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Son with Ataxic Cerebral Palsy

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Son with Ataxic Cerebral Palsy

Posted by Toodles on March 22, 2001 at 14:48:21:

Hi Walt, thank you so much for your response to my earlier post about my "bracing" problem -- I now have a rolfing appt on the 30th.

I wanted to ask you for advice in treating my son. He is now 12 and has a brain anomaly that some doctors have referred to as ataxic CP. There is an area of the brain that is atrophied and apparently, just never developed. I believe the medical description was vermis of the anterior cerebellum. The neurologist said that it was an area next to the pituitary.

His current issues are: pituitary dwarfism which we are treating with humatrope, bipolar disorder which is being treated with depakote, brain vigilance disorder (Weinburg syndrome, named for his neurologist) treated with concerta, palsy throughout his body, slightly low muscle tone in upper body, balance difficulties, visual spatial perception impairments, very mild strabismus (no treatment required), poor fine motor largely due to the palsy and poor tolerance of food textures. He is ambulatory.

He attends a special school for learning different children and he is doing very well. Most of the time he is a sweet child, but has very low frustration tolerance. We have not seen a full blown rage since he started the depakote. He is quite intelligent and still is struggling with understanding why he is different.

His endocrinologist does not know yet whether the pituitary has been affected in other ways. The slight dwarfism (70% of normal gorwth hormone is being generated by his pitutiary) is the only known endocrine problem at this point.

I have heard of treatments like hypobaric oxygen and magnet therapies. Do you think he would benefit from any of this?Do you have an recommendation for improving the palsy or helping him through holistic medicine?

I've found that when he is "wound up", masssaging his back, legs and arms and putting pressure on his body helps to calm him and allows him to relax. I fear that his palsy and balance problem may cause him to "brace". What can I do to prevent the possible bracing problems he may experience over the coming years? When we take him places that require more than 20-30 minutes of walking we always get a wheelchair because the effort involved in this activity fatigues him and he becomes irritable.

We live in Dallas if that makes any difference in your recommendations.

Any advice or suggestions are appreciated. Thank you for your time and help.

Toodles



Re: Son with Ataxic Cerebral Palsy

Posted by Walt Stoll on March 24, 2001 at 11:34:30:

In Reply to: Son with Ataxic Cerebral Palsy posted by Toodles on March 22, 2001 at 14:48:21:

Hi, Toodles.

A VERY complex problem!

I wish you had had the information in Paavo Airola, ND's classic "Every Woman's Book" 2 years prior to your conceiving this child. However, now we have to deal with what he has left.

Remember that 1/2 of the brain can be surgically removed and the person can still be normal. Remember that most researchers say that humans use less than 10% of their brains. Personally I think it is about 1%.

That means that by improving what he has left by only 2-20% he could be normal--at least twice his present capacity in all areas.

SO, you need to become an expert in brain chemistry and brain allergies (see the archives).

If he were mine, the first thing I would do is only feed him whole foods (See Beth Loiselle, RD's book). Next, I would start him on the essential oils on the homepage. At the same time, I would also start him on a good multivitamin/mineral supplement. By approaching this this way, we will not know what helps but it will assure that he will see results in a few weeks. We can sort it out later.

Keep up his present treatment for now.

Let us know what happens and what you learn after reading the above. There is no POSSIBLE harm from what I have suggested above.

Walt

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Re: Son with Ataxic Cerebral Palsy

Posted by Walt Stoll on March 24, 2001 at 11:35:10:

In Reply to: Son with Ataxic Cerebral Palsy posted by Toodles on March 22, 2001 at 14:48:21:

Hi, Toodles.

A VERY complex problem!

I wish you had had the information in Paavo Airola, ND's classic "Every Woman's Book" 2 years prior to your conceiving this child. However, now we have to deal with what he has left.

Remember that 1/2 of the brain can be surgically removed and the person can still be normal. Remember that most researchers say that humans use less than 10% of their brains. Personally I think it is about 1%.

That means that by improving what he has left by only 2-20% he could be normal--at least twice his present capacity in all areas.

SO, you need to become an expert in brain chemistry and brain allergies (see the archives).

If he were mine, the first thing I would do is only feed him whole foods (See Beth Loiselle, RD's book). Next, I would start him on the essential oils on the homepage. At the same time, I would also start him on a good multivitamin/mineral supplement. By approaching this this way, we will not know what helps but it will assure that he will see results in a few weeks. We can sort it out later.

Keep up his present treatment for now.

Let us know what happens and what you learn after reading the above. There is no POSSIBLE harm from what I have suggested above.

Walt



Re: Son with Ataxic Cerebral Palsy (Archive in brain chemistry.)

Posted by Walt Stoll on March 24, 2001 at 11:35:58:

In Reply to: Son with Ataxic Cerebral Palsy posted by Toodles on March 22, 2001 at 14:48:21:

NMI

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Re: Son with Ataxic Cerebral Palsy

Posted by Sally on March 24, 2001 at 19:42:54:

In Reply to: Son with Ataxic Cerebral Palsy posted by Toodles on March 22, 2001 at 14:48:21:


Toodles, just reading all that you have to deal with, I want to send my utmost respect and encouragement. Often when we face difficult trials, we reap rich spiritual rewards. I wish that for you.



Re: Son with Ataxic Cerebral Palsy

Posted by Toodles on March 26, 2001 at 08:51:29:

In Reply to: Re: Son with Ataxic Cerebral Palsy posted by Sally on March 24, 2001 at 19:42:54:

Sally, thank you for your words of support. I am so inspired by my son's courage and inner strength that I feel I have become a better person just by knowing him. He has broadened and deepened my heart in ways I would never have imagined.

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Re: Son with Ataxic Cerebral Palsy

Posted by Toodles on March 26, 2001 at 08:59:49:

In Reply to: Re: Son with Ataxic Cerebral Palsy posted by Walt Stoll on March 24, 2001 at 11:35:10:

Walt, thank you for your help. I saw the movie "Lorenzo's Oil" when he was young and since then, I have made sure that he ate plenty of fatty foods, not really knowing what kind of fat is best, so I will check the info on your home page. I'm not real sure what "whole foods" are so I will look for that book.

I do believe that he can and will improve. The palsy is the worst of it, so I'm hoping that the experimental surgery they now have for Parkinson's will some day help him.

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