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Dear Dr. Stoll:
A few weeks ago, we had to rush our 12 year old daughter to the hospital. She had not been feeling well for 2 weeks. At the start she complained of a headache which soon turned into a neckache and then loss of energy and very tired. We assumed she was fighting a virus, which our Dr. also diagnosed. He sent us home with Immuplex from Standard Process to knock out the virus but also to watch her symptoms closely. It was 11:00 that night when she started losing control of the right side of her body and we rushed her to the hospital. They did a CBC. She was very anemic, her hemoglobin level was at 2.8. They started a blood transfusion and transferred her to a larger hospital with a pediatric ICU. Over the next few days she had 5 more transfusions. Several tests were performed; catscan, MRI, and scope of the heart. The MRI revealed an infection in a deep sinus cavity so they put her on an antibiotic. Before any tests were performed, 3 different Dr.'s told us that she probably had Leukemia. When the first bone marrow results came back the Dr.'s were puzzled. She only had 20-25% radical cells and her bone marrow was still producing all the proper cells, only on a much decreased level. He told us that he could not diagnose it but that it would probably get worse. He wanted to wait a few days and do another bone marrow test. A 2nd one was performed and had the same results. That same day he sent us home saying that it would eventually get worse and turn into Leukemia. Needless to say we were very upset and confused. By the start of this E-mail you could probably tell that we have investigated and used alternative treatments before, in fact we took my Grandmother who was in her mid-seventies at the time to Dr. Glenn Warner in Seattle, WA for treatment of breast cancer. She is in her late eighties now with no sign of cancer, treated only with natural supplements and very mild radiation. NO CHEMOTHERAPY!!! Now it was time to educate ourselves about anemia. I tried to think if changes or things our daughter had been exposed to since she has always been very healthy. 2-3 days before her 1st symptom I redecorated her room including new paint and carpet. We read many books, conventional and alternative, and almost all of them listed chemicals from paints and carpets as possible causes of anemia. My sister, who has the Internet, also did much research and stumbled across your website. She informed us of how you recommend clinical ecology. She did the research and found a Dr. in MI where we are from who agreed to look at our case. He thinks the paint and carpet are strong possibilities of what could have triggered our daughters problem. My sister has persuaded us to get the Internet because of all the information. Since then we have read all of your archives on anemia and have ordered your book. Our alternative books have given us information on vitamins, supplements, and herbs for anemia which we are giving our daughter now and she is improving. We still need to get to the root of the problem and when we see the clinical ecologist on Aug. 3rd we hope to get the answers.If you have any advice we would be happy to hear from you. Keep up the very important work you and your family are doing. Sincerely, Tom & Fran
In Reply to: Anemia posted by Tom Fran on August 02, 1999 at 20:28:51:
Hi, Tom & Fran.
Your little girl is very lucky to have you as parents!
I am not so concertned about this becoming Leukemia but that it is most likely the precurser for Aplastic Anemia. Your Clinical Ecologist will recognize what I am talking about.
The stuff in her room was, almost certainly, the "straw that broke the camel's back" and is only the last straw and not the cause. Your CE will undarstand that as well.
She is likely to become a MCS (Multiple Chemical Sensitivity Person)--if she is not already. Your CE will understand this as well.
If whe were mine, I would immediately try to get her to learn the skill of SR and practice it at least 3 times a day. If you are not familiar with SR, go to the FAQ and the glossary link below. Twelve years old is about the worst age to learn this. Not because it is hard to learn but that many 12 year olds already know everything there is to know & refuse to learn new things. Many would sooner die than learn anything new. If she is resistant, you could find out how to maybe help her get past her resistance by getting a copy of the book "Meditating With Children" by Deborah Rozman.
Let us know how she does. As you know, this is a life-threatening situation and she doesn't have a lot of time to turn it around.
My hopes will be with you.
Walt
In Reply to: Re: Anemia (Critical Problem---archive under AA) posted by Walt Stoll on August 04, 1999 at 11:44:55:
Dear Dr. Stoll:
Thank-you for your response and advice. We are studying the skill of SR right now. Our daughter seems very receptive to learning this practice.
We visited the CE on Tuesday and wanted to run by you the advice he gave us. He stated that since our daughter had six blood transfusions that we should wait 120 days before running any tests {120 days being the approx. max. life span of a RBC} to analyze what her own system is producing. He recommended a CBC every 30 days and to keep an eye on her physically. The vitamin, herb, whole food diet, and supplement program that we already had her on was also highly recommended. He spent over two hours with us and was very attentive and interested in what we had to say. He said that we could call him at anytime even at home to discuss the situation.
A CBC was done today and the counts seem to be droping. The following are the partial CBC counts from the day released from the hospital until present.
WBC RBC HGB PLT
7-19 4.3 3.74 11.3 80
7-22 3.1 3.18 9.3 59
8-5 3.6 2.59 7.6 33
We noticed today when we told her she was going for the blood test that she became very nervous and "worked up" and became pale. Within one hour upon returning home her color was back and she looked well. We were wondering if just the stress from having the test could effect her counts.
We also would like to share the supplement list, that our daughter is taking, with you.
1 multiple 2/day Ultra-mega Gold
2 Ester-C 500mg 3/day
1 citrus bioflavonoid 2/day
2 garlic 600mg 3/day
1 B-50 complex 2/day
1 CoQ10 30mg 2/day
1 acidophilus 1000mg 2/day
2oz. Aloe vera juice 2/day
3 MGN-3 {immune enhancing complex from Lane Labs} 3/day
2 alfalfa 3/day
1 beta carotene 1/day
1 Vit. E 400IU 1/day
These are spread out from waking-up until going to bed at night. Do you know of anything that might stimulate bone marrow production?
We are also living in a different house that our Mother has made available to us to get her away from the new paint and carpet. We have air cleaners, drink bottled spring water, and use only natural soaps, toothpaste, deodorant, etc.
We have the bone marrow and chromosome test in our possession to be studied if need be.
If you think a coaching session would be beneficial we would be more than happy to set up an appointment with you.
Once again, thank-you for your advice and allowing us to take up part of your valuable time.
Sincerely,
Tom & Fran
In Reply to: Re: Anemia (Critical Problem---archive under AA) posted by Tom Fran on August 05, 1999 at 22:47:49:
Sorry, the CBC counts did not turn out the way we typed it in the post. Let us try it again.
Date -- WBC -- RBC -- HGB -- PLT
7-19 -- 4.3 -- 3.74 - 11.3 - 80
7-22 -- 3.1 -- 3.18 - 9.3 -- 59
8-5 --- 3.6 -- 2.59 - 7.6 -- 33
Thanks,
Tom & Fran
In Reply to: Re: Anemia (Critical Problem---archive under AA) posted by Tom Fran on August 05, 1999 at 22:47:49:
Hi, Tom & Fran.
It sounds like you are in good hands. I would take up your CE's offer of calling with questions. He is on the spot and I am not. All of these are questions he should be in a better position to answer than I am on the other end of a computer.
Keep good records of what is happening and start collecting the most complete livetime history you can. If it never comes to your needing my HC services so much the better. Your present CE can use this information in the meantime.
Your record of HGB is dropping much too fast. Either she is destroying the transfused cells (imperfect type & crossmatch of blood transfusion) or she is losing blood somewhere that has not been detected. I surely hope that one of her docs is paying attention to the results of the blood tests.
Her neuresthenic response to the thought of getting the blood drawn would not effect the results. However, it cannot be pleasant for her. Were she mine (especially since she seems to be receptive to the SR), I would have her see a good instructor in self-hypnosis and deal with this fear of blood letting right up front.
Walt
In Reply to: Re: Anemia (Critical Problem---archive under AA) posted by Tom Fran on August 05, 1999 at 22:59:47:
This additional info does not change my previous response.
Walt
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