Aplastic Anemia Archives

Myelofibrosis (Another name for AA)

Dear Dr. Stoll

After 7 months of conventional medical visits,
which included the implantation of a pacemaker, a
co-workers spouse was diagnosed with myelofibrosis.
Doctors have sent the patient home saying there is
nothing they can do outside of transfusions.

My question is can the symptoms (constant fatigue) of
myelofibrosis be an indicator for something else?
A second Bone Scan/MRI is scheduled for next week.

Thank you.

Follow Ups:

• Re: Myelofibrosis (Archive under aplastic anemia.) Walt Stoll 13:46:53 1/14/00 (0)

In Reply to: Myelofibrosis posted by Dan on January 13, 2000 at 13:24:47:

Hi, Dan.

Your co-worker's wife IS doomed if she does not do something about the causes. It seems her present docs have not bothered to keep up with the available knowledge. Since they specialize in this field, there is NO EXCUSE for such laxity.

It has been known for a number of years that the main cause of this is MCS (Multiple Chemical Sensitivity)! Genetic susceptibility is a factor as well but, as yet, there is nothing we can do about THAT. This person needs to get copies of all her records, plus creating the kind of personal health history described in my Health Coaching Protocol on this 'site. She needs to take all of this information with her and see the closest Certified Clinical Ecologist (All are Board Certified Medical Specialists in their own right.) in consultation ASAP!

In the meantime noth her and her husband could learn a lot by going to the archives about MCS. Call the American Academy of Environmental Medicine at (215) 862-4544 or go to their email at info@aaem.com for the closest Clinical Ecologists. Call them first and decide which to go to on the basis of which one seems to know the most about MCS and myelofibrosis.

THEN, they could also learn more by going to the archives about aplastic anemia since myelofibrosis is such a close relative that we know that they are just different stages of the same disease.

THEN, let us know what happens. The advice she is getting is more than 40 years old!

If anyone has further questions after the above, write again.

Walt