Dear hopkins,
Since conventional medicine has no solutions to this problem, you are not likely to find many who escaped with their lives UNLESS they learned WHY this is happening to so many people now and what to do about the causes.
The same is true for you. My suggestion would be to first use the search feature for this BB & read everything you can find about AA.
THEN, once you have that information under your belt, if you still have questions write again.
Your quickest way to get the testimonials you mentioned would be to title your request something like Aplastic Anemia Testimonials?
Walt
Dear Tanya,
There is a world of difference between anemia and aplastic anemia. You need an accurate diagnosis & then I can help you with understanding your options.
Walt
Der Dot,
For him to have this at this age, Ritchie has to be at the bottom of the bell curve for resistance to environmental toxins. I surely hope he is being seen in consultation by a good Clinical Ecologist.
Walt
My husband was told he is anemic but tests show his iron is good. Now they want to put a camera inside him to check for internal bleeding, (partially because he never brought the doctor a stool sample). What could cause this kind of internal bleeding and how serious could this be?
Is there any thing else they may be looking for?
I have just been diagnosed with aplastic anemia eight weeks ago, and i would like to know the recovery statistics i am 23 years old and was a roof tiler i can no longer work and find it very hard to fill my day, what do you mean when you talk about wellness.
Iwondering if my trade would have caused my illness through any contact with materials of my trade
thank you kim....
In Reply to: Anemia?? posted by Callie Peterson on March 02, 1998 at 22:53:29:
Dear Callie,
If his iron level is not down, it is VERY unlikely for this to be an iron loss problem (GI bleeding for example). For someone to recommend a very expensive test like the swallowed camera means that someone is going to make a lot of money--not that it is going to do your husband any good.
ANY reasonable doc would insist on several stool specimens before even considering a camera. For shame! Cameras are for finding the site of the bleeding NOT whether there IS bleeding, anyhow.
If he is anemic, AND his iron is normal, this is a problem with the blood forming machinery in the body (or even a serious B12 & folic acid deficiency--both of which can be diagnosed by a blood test)-------NOT blood loss of any type.
Walt
In Reply to: aplastic anemia posted by kim richards on March 03, 1998 at 05:57:56:
Dear Kim,
Certainly, your job could have contributed to your present terrible problem. However, that is in the past and you can do limited things about that.
As in ALL illness, there is a balance between the germ and the immunity, the stressor and the resistance of the organism, etc.
Improving your horsepower to deal with your problem is the most effective and least expensive thing you can do. Since you are not familiar with the world wide protocols for a serious wellness program, you need to get a copy of my book which carefully describes all of them, as well as any references you might need to learn more about them (link below).
THEN, if you still have questions, write again.
Walt
What is a Clincal Ecogist?
What type of tests does a CE perform on patients with A-A?
Where is there evidence [literature, reference] that a CE has had an effect on patients with Aplastic Anemia in precribing a remedy for any
Dear Doctor Stoll,
I am dating a girl who has been diagnosed with sickle cell anemia. She is 20Yrs old and fairly slim but not thin. When she was approx 11 yrs old she did spent 3 months in hospital with this condition but i'm not sure what treatment she received. Last year she did feel very week but was told by the doctor that this was because she hadn't eaten properly, apart from this she isn't experiencing any other problems.
The doctor has informed her that if the continues to eat correctly she should lead a normal life, is this likely to be true ?. What problems can we expect and what about having children ?.
Please reply via e-mail.
Regards
Peter
In Reply to: Sickle Cell Anemia posted by Peter Ribben on March 07, 1998 at 05:53:14:
Dear Peter,
You BOTH need to become experts in the rapid advances there have been in this area in the past year or so. What have you been told about urea (for example)?
UNFORTUNATELY, one cannot just trust that (if you pay enough) you can expect the doc to be responsible for your health.
If I knew what part of the country you came from, I might know someone personally there who WOULD treat her as though s/he had the problem personally.
Till then, you might go to the library (if you have a medical school in your community go to the med library--the public can use a med library the same as the public library, other than checking stuff out). Read everything you can find about sickle-cell anemia that has been published in the past 2 years.
THEN, if you still have questions, write again.
Walt
In Reply to: Re: aplastic anemia posted by kim richards on March 02, 1998 at 23:18:17:
Ms. Richards,
I was diagnosed with aplastic anemia in January of this
year. I am currently in the hospital undergoing a bone
marrow transplant. I am still not an expert of this
illness, however, I would be happy to try to answer any
questions or tell you of my experience. Real brief, I had lost about 15 pounds in a month and a half and started
noticing some bruising. I then noticed some purple
splotches on my torso and went to doctor. After blood test
I was diagnosed with severe aplastic anemia. The hospital
did matching tests on my siblings and out of 3 siblings
I had 2 matches. My brother and sister matched. They
decided to use my brother and I was flown to Seattle
where I was told was the best place in the world to get
a bone marrow transplant. I was given 4 days of chemotherapy, cytoxin and ATG, and then a day of rest. They
then infused the marrow. I am on day 13 of my transplant
waiting for engraftment. If you have any questions please
ask. Research as much as you can and pray. It has been
a strong belief in God and prayer that has gotten me this
far.
My 71 year old mother was diagnosed at Mayo clinic with myelodysplastic syndrome 3 weeks ago. She feels it was brought on from the Tymoxycin she was taking as part of her right breast removal treatment and stopped this medication. She has had mild anemia for many years supposedly as a result of hepatitus years ago. The clinic she is attending in the Clearwater, Fla. area started her on injections of Procrit last week, results take 4 to 8 weeks? In the mean time, I am searching for any alternative treatments that may be available. Your advice would be greatly appreciated.
In Reply to: Re: aplastic anemia posted by Ron Fowler on March 11, 1998 at 01:47:46:
Dear Ron,
Once you become an expert in this condition, you will begin to look for your causes NOT just more treatments.
Use the search feature for this BB & read everything you can find about AA.
Then, if you still have questions, write again.
Walt
In Reply to: myelodysplastic syndrome posted by Rod on March 11, 1998 at 20:52:47:
Dear Rod,
No one can take back the past.
HOWEVER, this cannot be the only factor contributing to her condition (it NEVER is). There are likely other factors, if she but knew what they were, that she COULD do something about.
That is why it should be a law that all patients with myelodysplastic disease (the precurser to aplastic anemia) must have a Clinical Ecologist as part of the team dealing with the problem.
ALSO, a serious wellness program ALWAYS helps. My new book has the protocols for doing wellness seriously (and the references to become an expert in them) in the back of the book (link below).
Use the search feature provided with this BB & read everything about AA & myelodysplasia. THEN, if you still have questions, write again.
REMEMBER, it is SHE who has to become the expert in this, not you. Both would be better, of course.
Walt
I WAS DIAGNOSED WITH SEVERE APLASTIC ANEMIA AT ST. JUDES
CHILDRENS RESEARCH HOSPITAL, JAN. 15, 1997.
I ALSO RECEIVED ATG, CYCLOSPORINE, AND PIXY 321
THIS PAST MON. NIGHT, HOPEFULLY, WAS MY LAST DAILY SHOT
OF PIXY 321, I HAVE AN APPOINTMENT THE 23RD OF THIS MONTH
AT ST. JUDES. MAYBE THEY WILL BE ABLE TO START REDUCING
MY OTHER MEDICINES.WRITE BACK !
TO WALT
IN THE BEGINNING, I WAS BEING TRANSFUSED EVER OTHER DAY
FOR FIVE MONTHS WITH BLOOD AND PLATELETS.
I WAS TREATED WITH ATG, CYCLOSPORINE 400MG TWICE A DAY,
AND PIXY 321 DAILY. I RECENTLY TOOK MY LAST SHOT OF PIXY
HOPEFULLY, MY COUNTS WILL HOLD SO THEY CAN REDUCE MY OTHER
MEDICINE. WRITE BACK !
In Reply to: Re: aplastic anemia posted by Ron Fowler on March 11, 1998 at 01:47:46:
DEAR RON,
I HOPE THAT THINGS ARE GOING OKAYE FOR YOU, I TOO HAVE
SEVERE APLASTIC ANEMIA, HOWEVER, I DID NOT HAVE A MATCH
FOR BONE MARROW. SO I WAS TREATED WITH ATG,CYCLOSPORINE,
AND PIXY 321. MY PRAYERS ARE WITH YOU. I KNOW FROM MY
OWN EXPERIENCE THAT PRAYERS WORK!ITS STILL A DAILY BATTLE
FOR ME AND MY FAMILY. MY MOTHER STILL WORRY`S ABOUT
EVERYTHING!
KEEP YOUR FAITH AND HAVE PATIENCE, AND YOU WILL BE OKAYE!
LOVE, ASHLEY
My mother has been diagnossed with Refractory Anemia with
Ecess Blasts. She is having transusions almost every 10 days now. Are you aware of any treatments. Any help would be very apprecitated. We've heard of stories of poeople having these up to 7 years. Thanks
DEAR DAVID
IN REGARDS TO YOUR FRINDS SON WHO HAS APLASTIC ANEMIA
I WAS DIAGNOSED WITH SEVERE APLASTIC ANEMIA IN JAN. OF
1997, I`M 15YRS OLD, AND RECEIVED MY TREATMENT AT ST. JUDES
IN MEMPHIS,TN
I RECEIVED ATG,CYCLOSPORINE,AND PIXY 321
THIS PAST MON. NIGHT, HOPEFULLY, WAS MY LAST DAILY INJECTION
OF THE PIXY. I STILL TAKE 400MG OF CYCLOSPORINE TWICE
A DAY, ALONG WITH DILANTIN THAT I`M TAKING DUE FROM SEIZURES
THAT OCCURED DURING THE FIRST TWO WEEKS OF TREATMENT.
I ALSO TOOK STEROIDS IN THE BEGINNING. MY PLATELET COUNT
WAS NON-EXISTENT, LESS THAN 500
I STILL DO NOT HAVE MUCH ENERGY,HOWEVER,I GO TO SCHOOL
EVER DAY UNLESS I HAVE A DOCTORS APPT.
IT`S BEEN A LONG 14 MONTHS,BUT WITH DETERMINATION AND
PRAYERS,MANY PRAYERS,MY FAMILY AND I HAVE MADE IT.
FOR MONTHS,I WAS BEING TRANSFUSED EVER-OTHER-DAY WITH
BLOOD AND PLATELETS.
IF I CAN HELP YOUR FRIENDS SON IN ANY WAY, IF HE JUST
NEEDS TO ASK A QUESTION,REGARDLESS OF HOW STUPID HE THINKS
IT IS,I`LL BE GLAD TO HELP.
DR. STROLL IS RIGHT,EDUCATING YOURSELF IS THE BEST TREATMENT
I STUDY EVERYTHING I CAN ON AA,I TRULY BELIEVE THAT IT`S
THE ENVIRONMENT WE LIVE IN,IN MY CASE I BELIEVE IT WAS
FROM THE CHEMICAL LINDANE.
PLEASE E-MAIL ME AT AROBERTS@MILLRY.NET,IF YOU HAVE ANY
QUESTIONS.
LOVE,
ASHLEY
In Reply to: Re: aplastic anemia posted by irv on March 15, 1998 at 18:06:58:
I`M VERY SORRY TO HEAR ABOUT THE LOSS OF YOUR DAUGHTER
TO APLASTIC ANEMIA. I CANNOT IMAGINE WHAT YOU MUST BE
GOING THROUGH. I CAME VERY CLOSE TO LOSING MY DAUGHTER
ASHLEY WITH THIS DISEASE. SO FAR SHE`S RESPONDED TO HER
TREATMENT.
IF SOCIETY DOES NOT REALIZE THE EFFECT THAT EVER DAY
HOUSEHOLD ITEMS HAVE AND THE DANGERS INVOLVED WITH
THESE CHEMICALS, I`M AFRAID MANY OTHER CHILDREN WILL DIE.
MY PRAYERS AND THOUGHTS ARE WITH YOU AND YOUR FAMILY.
SINCERELY,
CATHY
In Reply to: Re: aplastic anemia posted by Walt Stoll on March 04, 1998 at 14:02:30:
Does anybody know anything about
diseritropoyetic anemia No. 5 or No. 2?
Thanks
In Reply to: Re: dysplasia, refractory anemia, MDS posted by Gary Edison on March 14, 1998 at 13:11:28:
Dear Gary,
Use the search feature provided with this BB and read everything you can find about Aplastic Anemia--the end stage of what she is experiencing.
THEN, if you still have questions, write again. This might already have been archived.
Walt
In Reply to: Re: Aplastic anemia Treament posted by ASHLEY on March 15, 1998 at 19:07:15:
Thanks, Ashley!
Your note is exactly the kind of information people with this dread disease need to get to realize that they do NOT need to be helpless recipients of the conventional medical approach to this condition.
Walt
In Reply to: Re: aplastic anemia posted by IRVIN HORNE on March 16, 1998 at 21:27:16:
IN REGARDS TO YOUR GRANDSON,THE ONLY INFORMATION OR HELP
I CAN GIVE YOU IS THE NAME OF THE HOSPITAL WHERE MY
DAUGHTER IS BEING TREATED, ST. JUDES CHILDREN`S RESEARCH
HOSPITAL IN MEMPHIS,TN.{901}495-3300
THEY MIGHT CAN ANSWER ANY UNANSWERED QUESTIONS YOU MIGHT
HAVE, WHICH I`M SURE YOU HAVE MANY. IT`S HARD TO BELIEVE
SUCH A YOUNG CHILD HAS APLASTIC ANEMIA.
I`M STILL SEARCHING FOR ANSWERS MYSELF AS TO HOW THIS
HAPPENED TO MY OWN DAUGHTER, SHE`S 15YRS OLD AND REALLY
HAD NEVER BEEN SICK A DAY IN HER LIFE, UNTIL SHE CAME
DOWN WITH SEVERE APLASTIC ANEMIA IN JAN. OF 1997
ALSO, YOU CAN WRITE OR CALL THE APLASTIC ANEMIA ASSOCIATION
IF I CAN HELP, PLEASE WRITE BACK.
In Reply to: Re: aplastic anemia posted by Joaquin Delgado on March 16, 1998 at 10:23:26:
Dear Joaquin,
ALL of these dyserythropoietic anemias share their causation with aplastic anemia. Which diagnosis comes up for that person is based only on their genetic predisposition NOT any difference in causation.
THAT means that the management is the same for all of them. Use the search feature for this BB & read everything you can find about AA & you will be on your way to handling these kind of diagnoses as well.
THEN, if you still have questions, write again.
Walt
My father is just being diagnosed with Myelodysplastic Syndrome. 2 years ago he had been started on some eye drops for glaucoma named Trusopt (Dorzolamide). The PDR reports that adverse effects from this drug include: aplastic anemia, agranulocytosis and "other blood dyscrasias". Could these eye drops have contributed to his development of this syndrome? (They were stopped as soon as I reported the adv. effects to his physician).
In Reply to: Myelodysplastic Syndrome posted by Mary on March 19, 1998 at 09:41:50:
Dear Mary,
It certainly could. Your note points up what I have been saying about the causes of ALL these kind of conditions.
MANY environmental chemicals (and combinations of chemicals) can cause these conditions in susceptible individuals. Those hematologists who say that they have no idea what might be causing the problem are either intentionally ignorant or lying. There is no excuse for their still being ignorant of the world literature.
It is likely not the drops that are causing the entire problem. They are probably just the "straw that broke the camel's back". It is likely that he is still being exposed to the things that built up till the drops could "push him over the edge". There is probably little that can be done about the drops other that what has already been done--STOPPING THEM. However, he could still avoid the rest of the stuff--if he knew what they were. It will take a Clinical Ecologist to figure that out for him.
If you have not yet read everything on this BB about Aplastic Anemia (just another forn of what he has) you should do so. Use the search feature & archives.
Walt
In Reply to: Re: MDS Aplastic Anemia, Lukemia posted by Walt Stoll on March 18, 1998 at 13:37:40:
walt,
hi my name is james and i have a friend with lukemia and i haven't any knowledge of lukemia. can you please email some information about lukemia and the best thing for me to do if she has any problems while she is here? she is from halfway around the world and she is coming to see me in a week to stay for two weeks. i would appreciate it greatly. thank you very much.
sincerely,
james r virden
In Reply to: Re: MDS Aplastic Anemia, Lukemia posted by james on March 21, 1998 at 17:31:37:
Dear James,
For that short term, the only things you need to worry about are emergencies. NO ONE with Leukemia should travel more than 100 miles without all her medical records with her. Any physician who would LET their patient travel without the records is not a very good physician.
You need to let your present doc know that your friend is coming (with her records) and that you want him/her to know that in case of emergency. If your doc is not the one s/he would recommend for this hematological problem, s/he still has to be the one you call so that an official referral can be made at the time of the emergency.
The worst thing you might see is bleeding (which can come from the disease OR the treatment she has been having). She should not try to travel unless she is fairly stable.
Once she gets back home, she may be interested in what she could do to help herself improve her immune system (the strongest thing she could do to help treat her condition). All the resources she would need to learn this are listed in the back of my book (link below). You might feel her out when she is here. If it seems that she has thrown herself on the tender mercy of conventional medicine, just love her for how she is & don't bug her about helping herself.
Good Luck!
Walt
In Reply to: Re: MDS Aplastic Anemia, Lukemia posted by Walt Stoll on March 23, 1998 at 12:27:06:
You frighten me ... my mother was diagnosed with AML about 3 days before she would have died from it. Thanks to a great hemo-oncologist, she went into remission for two years, which considering her age and the severity of the particular form of AML and how late it was caught (due to my mom's not wanting to see a doctor because she didn't want to spend the money -- not due to any medical incompetence) was amazing and a blessing. She got to see my nephew be born and help raise him.
If she'd have written to you for help, it would have been "buy the book". She'd have been dead before it got there.
I wonder how many people have found themselves in similar situations?
In Reply to: Re: MDS Aplastic Anemia, Lukemia posted by Anonymous on March 24, 1998 at 11:02:52:
Dear Anonymous,
I am not against allopathic intervention. I am just against that being the only thing that is done. I spent 30+ years practicing conventional medicine and referred my share of patients to hematologists who only used allopathic approaches. It was only the last half of my practice, when I knew to offer more than that, that I realized how I had been shortchanging my patients the first 15+ years.
How old was your mother when she died? However old that was, if she had also become a student of what she could do to help herself, the last years of her life would have been much more fruitful AND there would have been a lot more of them. How do you know that your wonderful hematologist did not cheat her out of 10 more years of productive & happy life?
It is too late now & you cannot be blamed for believing in the doctor who, I am sure, came highly recommended. No one wants to believe that they did not know enough to help their mother.
You frighten me. Since when was knowledge something to be afraid of?
Walt