My 32 yr old wife has aplastic anemia which I believe is due to treatment (chemo/radiation) for a brain tumor. Over the past 11 months she has received countless red blood and platelet transfusions. Two months ago her white cell counts dropped dramatically and remain below 1. Also two months ago she started on ATG/cyclosporin therapy (the cyclosporin was subsequently changed to FK506 because of severe nausea associated with taking cyclosporin.) Her hematologist has ruled out a bone marrow transplant because he says the chances for success are low. I have read everything on this bulletin board regarding aplastic anemia (including the archives) and wonder what else can be done. Obviously, she is no longer on chemo or radiation.
In Reply to: Aplastic anemia posted by Scott Cunningham on June 01, 1998 at 13:09:25:
Dear Scott,
Although the chemo/radiation may have pushed her over the edge, it is unlikely that it caused this problem all by itself. If so, why doesn't everyone who gets the treatment get AA? The things that made her susceptible to this outcome ARE changable.
If you have read the archives about this, you know the consult you need to get NOW and how to find her/him.
In the meantime, she can improve the function of the tissue she has left by becoming a student of wellness & get it started before all her cells are dead. Any cells not yet dead will respond to that.
Walt
DEAR Dr. STOLL, THANKYOU, THANKYOU, THANKYOU, FOR ALL YOUR HELP. I READ ALL THE ARCHIVES FOR APLASTIC ANEMIA AND THAT WAS A GREAT HELP. I NOW HAVE THE NAMES OF CLINICAL ECOLOGISTS IN TEXAS WHICH I FOUND ON THE INTERNET ( MY UNCLE LIVES IN COLEMAN, -----WEST TEXAS.) MY NEXT CHORE IS TO RESEARCH SOME VERY `GOOD " WELLNESS PROGRAMS" ON THE INTERNET. I JUST MEET A LADY THAT WAS HEALED BY DR. SCHULTZ OF SANTA MONICA, CALF.. AND SHE REALLY BELIEVES HIS PROGRAM IS TOP NOTCH. I ALSO WOULD LIKE TO FIND A HOMEPAGE OF OLDER PEOPLE WHO WERE "CURED" OF MYELODYSPLASTIC OR APLASTIC ANEMIA. THIS WOULD HELP GIVE HIM SOME ENCHORAGEMENT. THANKYOU ONCE AGAIN DOCTOR, AND I'LL KEEP YOU IN TOUCH. GEORGE BOWDEN bigben88@hotmail.com
In Reply to: Re: UNCLE JOHN posted by GEORGE BOWDEN on June 03, 1998 at 17:30:05:
Dear George,
There is really only one "wellness program" that everyone in the world agrees on. Any variation has to be because of the individual's genetic idiosyncrasy but would not change the basic 3 things.
You could start to understand this by using the link:
How to be Healthy
Of course, my book goes into much greater depth with references (link on this page).
He is fortunate that he is in Texas. Perhaps the top professional in the world is in Dallas (Bill Rea, MD, PhD) and he is responsible for many of the international conferences to train physicians (in Clinical Ecology) from all over the world. He does these conferences in Dallas so, just because of proximity, there are many well educated physicians in Texas who know about Clinical Ecology.
Walt
Can anybody help direct me on research of myloid mediplasia fibrosa (spelling)?
In Reply to: Re: Rare blood diseases posted by Adam Barton on June 18, 1998 at 01:04:39:
Dear Adam,
The correct spelling is myeloid metaplasia fibrosa.
The only known thing that causes this condition is clinical ecological sensitivities. The kind of expert one needs is a Clinical Ecologist. ALL of these kind of toxic conditions are caused by the same thing so you can learn who to see, & how to find them, by going to the link:
archives.
Then read everything you can find about aplastic anemia since that is the representative diagnosis for all of these.
Walt
My friend is 20yrs old and is not expected to live past 30, she has 2 young children and is suffering from a rare disease inhereted from her mother (who has lost her life from this rare disorder). The disease weakens the blood vessels in the brain and thins them so that at any time they may rupture and kill her. What is this disease called and is it here in america, I know it is in England and Iceland. Thank you so much.
In Reply to: Re: Rare blood diseases posted by Maria Moss on June 24, 1998 at 08:32:03:
Dear Maria,
The only thing I know of in this country, that matches your description, is called (at the final breaking point) a "berry aneurysm".
The only thing I know that will prolong the time till this may happen is a serious wellness program AND making a hobby of keeping up with the world research in what one can do to improve vascular integrity (lots of THAT available).
These resources are in the back of my book. I would also subscribe to the world service that finds articles like that---they have subscribers all over the world. Call (800) 843-9660 for information. Out of the country people need to call (253) 851-3943.
Let us know what you learn.
Walt