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I wrote a few months ago expressing interest in your protocol for treating RA. I have had sero-negative RA since the age of 23, 10 yrs. now. Started up after an extremely stressful time of life (1 year home from extended travel abroad, 3 months after leaving graduate school) and during regular exposure to an allergen (lab rats)from a job I had. I have only taken NSAID's and injections so far, but the dr. is pressuring methotrexate which I'd like to avoid. I have been in pregnancy induced remission for about 2 yrs (maybe I should just stay pregnant? ha!). I am now 6 mos. postpartum, so expect full symptoms and inflammation will return soon. Both wrists are already fused. Starting to experience some night-time stiffness again. I am ready to do whatever it takes to turn things around, I feel I owe it to myself and my children. Ready to make life changes. I am usually the type person to research things excessively, but unfortunately all my reading on this has been in the wee hours since I have 2 little ones under 2 years old, it's hard for me to read everything, and I am already soooo sleep deprived. I have read archives, Robert McFerran's chapter, Joseph Hackett's website, most of Dr. Stoll's book, and some of several other of the recommended books. I feel overwhelmed with information, and just need some clarification as to what my priorities should be. (One thing to keep in mind, I am still breastfeeding an infant, highly important to me, so that may be a factor with some of this stuff. Any advice on how to do this safely for my baby is appreciated!) I get that first I should do the e-diet. I think I would need to make sure to eat a lot of fish to keep my caloric intake up to maintain my milk supply, would this interfere with my ability to detect my metabolic type? Also, will the e-diet still be useful to detect food sensitivities, since I don't currently have many symptoms, or do I have to wait until my arthritis returns in full force? I do believe I have some sensitivites, as I have always noticed foods seems to play a role in my pain level. So, I do the e-diet, eliminate the foods I should, establish my metabolic food type, and eat accordingly. Practice stress reduction (I got that book, too). Possibly get some rolfing/massage therapy if I can afford it. Next, do I need to take supplements for colon cleansing/LGS/candida at some point and when, and are these safe for me to take in terms of the baby nursing? I have not had obvious yeast issues, but have always craved sweets. Only other health issues in my history is eczema and very dry skin. Please tell me if I'm missing anything that I will need to do or focus on. I hope you don't mind holding my hand a little, I just honestly can't find the time to do all the research I need to, and every page I read here seems to link to another with more and more information...which is wonderful but impossible for me! I wouldn't actually be doing anything to help myself for years and I don't even have months before another joint fuses. Is Robert McFerran a good resource for more one-on-one advice? Any advice/help is so greatly appreciated - Maggie
In Reply to: RA protocol/breastfeeding mom - I think I'm ready - a few ??? posted by Maggie on January 07, 2003 at 00:02:30:
Try a food allergy blood test, what are your uric acid levels, what kind of supplements do you take, what is your diet like? Practice SR 2 times a day and try to eat a whole foods diet.
In Reply to: Re: RA protocol/breastfeeding mom - I think I'm ready - a few ??? posted by howabout on January 07, 2003 at 01:50:03:
seems like you might have a mycoplasma related RA condition - look at Dr. Mercola's site for further info on that - follow the e-diet (yes, lots of the rec fish will help keep your milk supply up and move you through the program) Eliminate sugar immediately. You have LGS and need to address it through healing the gut and sealing off the holes in the system that allow undigested food to seep through into your blood stream - I think the 2 easiest and least hearmful to your child will be a product called permavite and Primal Defence (order from a catalogue obtained on the Doctors Trust website - they have the best prices) - if you have a mycoplasma and have a dr willing to give you the minocin to kill it, that will be a big plus - if you can't get the minocin, order a non-de-natured whey product (I will find the name for you...) that will increase absorbable levels of glutathione and help kill this off - try not to go on methetrexate -I did for 3 years (it's a chemotherapy drug) and I lost my hair (still growing back in), gained 35 pounds (which I am still trying to lose), experienced weird narcolepsy episodes, and was emotionally crazed - other people on this board are so much knowledgeable - listen closely to Dr Stoll, HY and Rick. They really know their business. Good luck.
In Reply to: Re: RA protocol/breastfeeding mom - I think I'm ready - a few ??? posted by RA person too on January 07, 2003 at 09:38:54:
the whey product is called Immunepro you can read out it and get it from doctorshealthsupply.com
In Reply to: Re: RA protocol/breastfeeding mom - I think I'm ready - a few ??? posted by howabout on January 07, 2003 at 01:50:03:
They lower inflammation, among other things. You can find info on that on this BB, too.
In Reply to: Re: RA protocol/breastfeeding mom - I think I'm ready - a few ??? posted by howabout on January 07, 2003 at 01:50:03:
I've never had a food allergy test...maybe a good idea, just trying to decide how I could justify that with insurance. I only take a multivitamin whole foods prenatal vitamin, extra calcium, and flax seed oil. Otherwise eat very healthy with many whole foods, but trying to give up sugar which is killing me! What does the uric acid test show?
In Reply to: and don't forget to supplement with EFA's posted by EllieK on January 07, 2003 at 11:15:33:
Thanks! I take flaxseed oil but could probably use additional to get both 6 and 3...
In Reply to: Re: RA protocol/breastfeeding mom - I think I'm ready - a few ??? posted by RA person too on January 07, 2003 at 09:38:54:
Thanks for your reply. I had read about Minocin a couple of years ago but since have been pregnant, it hasn't been an option. Also haven't found a dr. willing to do it. Do you have personal experience with it? There seem to be mixed reviews about that treatment on this site. Thanks for the info. on methotrexate, I know it is bad stuff. Praying not to use it. Also am looking up the supplements you recommended, thanks!
In Reply to: RA protocol/breastfeeding mom - I think I'm ready - a few ??? posted by Maggie on January 07, 2003 at 00:02:30:
Hi, Maggie.
At first it IS confusing but the more you learn the more things will begin to assume a pattern and it will begin to get easier with your developing understanding. Up to now you have been taught to think mechanically like all Western Thought. You need to begin thinking holistically like all Eastern Thought.
While you are getting to that point I would suggest you focus ALL of your attention to becoming a certified (biofeedback check) expert in SR.
When you have accomplished that let us know how you are doing and we will be able to suggest what next to concentrate on.
Walt
In Reply to: Re: RA protocol/breastfeeding mom - I think I'm ready - a few ??? posted by Maggie on January 07, 2003 at 20:20:13:
Dr Stoll is so right about the SR - that's paramount - because you may not make any marked progress without it - I just started the Immunepro 2 days ago - there is already a noticeable difference in my pain level and joint mobility. I also just started taking a strong enzyme called wobenzyme too - I hope to make enough improvement soon so that I can reduce my supplement intake to only a few items (I take a handful of other vits as well, and I am not sure they are all necessary). keep asking questions - good people here will help.
In Reply to: RA protocol/breastfeeding mom - I think I'm ready - a few ??? posted by Maggie on January 07, 2003 at 00:02:30:
Hi Maggie,
I hope my "handle" doesn't give you any symptoms! ;-)
Do you have any idea at all about your metabolic type? A low uric acid level indicates a hunter-gaterer metabolism (someone else mentioned it in their post to you) As far as blood allergy testing, the problem with that is that it's often simply wrong. My spouse experienced this with that test vs. the e diet. The very best way to learn what you're allergic to is to test it on your own body - the dreaded e diet!
As far as waiting for your sypmtoms to return - the MAJOR indication of a food sensitivity is fatigue, not necessarily arthritis symptoms, so I think you're all right with that.
As far as the order of doing stuff - e diet first (because you're pregnant, keep taking all your supps) testing foods second, and THEN testing vitamins, minerals and other supplements.
Timing will be crucial for you as well as planning and *keeping on hand* the e diet and then the testing foods. You also need to keep good records of what you eat and how you feel. It's a LOT of work especially with the two little ones. However, it seems that you are very motivated, and if you are organized you can get through it...what is it you eat now?
I am surprised your doctor is pressuring methotrexate since you can't nurse while taking that as far as I know...
~~~8>
In Reply to: RA protocol/breastfeeding mom - I think I'm ready - a few ??? BEGINNING Archive posted by Walt Stoll on January 08, 2003 at 07:34:14:
Thanks, Dr. Stoll. You gave a me a "check" in that you are right, my post sounds extremely tense and structured. I am a 1-2-3 type person, so Eastern thought might be a challenge. I think rather than jump into the e-diet I will focus on my stress reduction workbook, regularly exercise, and just go to a perfect whole foods diet as soon as I can (might be a little liberal at first to get rid of some groceries!) ;o) I'll be in tocuh as things progress I am sure!!! Thank you for a wonderful site which provides optimism and sound advice to those who need it most.
In Reply to: I think you're on the right track posted by labrat on January 08, 2003 at 12:47:14:
No idea about my metabolic type. I grew up on a meat and 3 vegetables kind of meal plan, courtesy of a southern mom! So, not sure how much I "need" the meat. After reading Dr.Stoll's post, I think I will go on the perfect whole foods diet before doing the e-diet, so I can practice some stress reduction/relaxation techniques, too, without being so overwhelmed. I am not currently pregnant, but almost 6 months post-partum. My dr. wants me to start methotrexate when finished breastfeeding, he hopes sooner than later, although I usually nurse my kids at least a year. His concern is the period between my arthritis returning, and weaning (or improvement on meds.), since last time that was when I got my second wrist fused, since I won't take meds and nurse. Right now we eat pretty well compared to most, but in reading Beth Loiselle's book, I am realizing we still have too many refined carbs in our diet. They are everywhere! I currently only supplement with flaxseed oil and vits. I just don't know what's really safe to take while nursing. This is all pretty new to me, the supplements. Thanks for your reply and your time, I appreciate those on this site so much!
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