Autoimmune Mechanism and conditions Archives

Need Advice PID

Dr. Stoll, I recently posted re: my condition of Primary Immune Disorder. I have had chronic skin infections and joint inflammation with bone infections etc... I had to go to a county hospital for treatment two days ago for a very bad diffuse staph infection that was becoming worse on my face that was secondary to whatever is causing the eczema like lesions and plaques in the first place. I was routed from the ER to the clinic where, after an 8 hour wait, I saw a PA. I tried to give him a little hx and he told me that I could stop, that he had never heard of my condition, that I would have to come back in a week to see an MD and asked what specific problem I came there for that day. He wrote for a CBC w/diff which was not to be drawn until 48 hours later, even after I had told him that you need to do additional quantitative tests for this problem, and rxd Cephalexin. (Which seems to be helping with the Beta Glucan) On his way out the door, about 5 minutes after coming in, I was told to go out into the hallway and a nurse would bring me my papers. Anyway, I left there without this PA even having done a physical exam, no palpation of lymph nodes, no palpation of internal organs, no auscultation of heart and lungs, only a cursory look at the obvious, visible to the eye, with me still dressed. I was in tears in the hallway and was sick, not really able to communicate my frustration through any of this ordeal. I have to see the MD on Monday and don't know how to approach this. I was able to, on the day of the blood draw to have an RN order a quatitative immunoglobin series she and the techs at the lab had never heard of the test. I waited 2 years of being very sick and not going into the system for healthcare just for this reason, but I am not living a life with quality anymore and am only 34 as well as having four kids. I need help from the professionals whose job it is to help those who are sick... which I tried to do as a medical professional when people needed my help. I fear I may fall through the cracks of this system, before I can get some other form of healthcare and a doctor who cares. I know that I am not their wife or mother or sister or daughter, but I somebody's somebody. If I was someone they loved though, I wonder if treatment would have been any different.????

Re: Need Advice PID

Re: Need Advice PID (Archive in autoimmunity.)