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Bakers Cyst

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Bakers Cyst

Posted by Patti for Sarah on May 11, 2000 at 18:17:59:

I just took my daughter to the dr because i thought she was bit by a spider. This happend two weeks ago and the Zytec he gave her did not work. The back of her calf in her left leg is swollen to over half the size of her right calf.He informed us she had a bakers cyst that was draining down her leg.She is 14 years old and also diabetic taking 6 shots a day. That does not mean her diabetes is bad it just means the more shots you have the more it imatates your pancreas.Her specialists appointment is not for another two weeks is this common to wait so long? Also please inform me if therpy is just wasting time or should surgery be done quickly. She is having pains going down her leg and all that I have read says nothing about swolled calfs. Please respond. Thank-you Patti for Sarah



Re: Bakers Cyst

Posted by
June on May 11, 2000 at 19:49:50:

In Reply to: Bakers Cyst posted by Patti for Sarah on May 11, 2000 at 18:17:59:

If you click on the link above (or below) to the Glossary and scroll down to Baker's cyst there are links to a lot of information on this from Dr. Stoll, who is presently not answering posts while recovering from hospitalization. Other responders may want to know if there's been any fever, if the doctor confirmed this with x-ray and what specialist is your appointment with in 2 weeks.

June



Re: Bakers Cyst

Posted by Patti for Sarah on May 16, 2000 at 17:15:35:

In Reply to: Re: Bakers Cyst posted by June on May 11, 2000 at 19:49:50:

I posted once about Sarahs bakers cyst, she has no fever and she is to see a orthopedic dr. on the 22 of May. Sarah came home from school yesterday and her left leg was more swollen and turning purple. At that time i called her dr. and he said to take her to the E.R. I spent 5 hours at the hospital and they could only tell me it was not a blood clot and they are not God. They could not even tell me for sure that it was a bakers cyst. They did do a ultra sound of her leg and gave her pain meds. I called her pedeatric specialist at Rileys and he said there was a big difference between an adult cyst and a childs cyst. Her leg contuines to swell measuring left calf at 14 and one half inches compared to her right leg which is 13 inches. I am very concerned and no one except me is in the state of panic.(because her diabetes was misdiagosed 4 yrs ago another story) anyway i have read alot in the arcives and noone seems to have swolled calfs for 3 weeks and still going strong. Any suggestions would be greatly accepted or advice as to how much longer i should wait for a dr to take some kind of action. I would like to get her to a pedeatric dr at Rileys howevr i dont know how long she can wait with the pain... Please help in any way....Patti for Sarah



Re: Bakers Cyst

Posted by
June on May 16, 2000 at 20:40:09:

In Reply to: Re: Bakers Cyst posted by Patti for Sarah on May 16, 2000 at 17:15:35:

Dear Patti,

I'm so sorry to hear of Sarah's continued ordeal. As a mom I can relate to how hard this must be on you also. Ruling out a blood clot, though, was probably certainly in order. Dr. Stoll is still not regularly answering posts because of his recuperation. I'd like to offer that I never felt I'd made an inappropriate decision by just following my instincts when I wasn't sure what to do regarding my kids' health. It is possible the purplish discoloration could be due to rupture of the Baker's cyst. With her diabetes and the degree of pain she is in there is nothing to lose by going ahead and seeing the doctor you feel most comfortable with on her medical "team". I wasn't clear on if you'd talked to both her family doctor and her pediatric specialist or if just one doctor had been consulted on this pending the orthopedic appt. I personally would go ahead and insist someone see her.

Having said that, I do remember reading of some (adults) with Baker's cyst who had increased or prolonged swelling. But it's just possible a second look might reveal something else or determine if she needed additional intervention at this point for anything.

Please let us on the board here know how it goes.

June



Re: Bakers Cyst

Posted by Patti for Sarah on May 20, 2000 at 11:01:28:

In Reply to: Re: Bakers Cyst posted by June on May 16, 2000 at 20:40:09:

June, Thank-you for all your replys. I got Sarah into a pedeatic doc down at Rileys. It was a long day she had her appoinment at ( in the morning and culd not get an MRI until 7 that evening. We are a good 3 hours away. Anyway doc called called backfriday the 19th and said he could not believe there was nothing that showed up. He even measured her leg with the left being 1 ans one half inches bigger thatn the other. He said it was uncommon for bakers cyst in children and that i should start seeing a big imporivment within the nest week. Thata all i can do is pray he is right .She contuines to be in pain he said give her advil. So I will and i call him next friday to tell him how she is. Would you happen to know if a ruptured cyst shows up on an MRI. and also what if its??? Does the fluid just reabsorb back into the body.? Thanks agan Patti for Sarah



Re: Bakers Cyst

Posted by
June on May 24, 2000 at 19:22:19:

In Reply to: Re: Bakers Cyst posted by Patti for Sarah on May 20, 2000 at 11:01:28:

Dear Patti:

I still haven't found out the possibilities of what the MRI could have shown or not shown. How is Sarah doing?

June



Re: Bakers Cyst Att. June

Posted by Patti for Sarah on May 25, 2000 at 20:26:57:

In Reply to: Re: Bakers Cyst posted by June on May 24, 2000 at 19:22:19:

Dear June, The MRI could have shown a cyst? or a blood clot
however nothing was found and the DR. could not belive it himself. I am waiting now for another return phone call from the doctor because Sarah has not got any better at all. In
fact her left leg is more swolled and traveling up to her knee and lower theigh. This has been getting worse since may 8th and I am getting a little worried that they say nothing is going on. I mean I took her to her own doctor and a specialist what or where should I turn for the next step.? She also went to the E.R. and they did an ultra sound to check for blood clots as well. When I asked the DR. there ,what eles it could be he said " I can only tell what its not I'm not God" So I guess I need to know is 1) What would you do in my shoes? and 2) would a Bakers cyst show up on an MRI or a ruptured bakers cyst show up on an MRI? 3) what other tests could be done to see what she might have? I really thank-you for getting back me its just been such a hassle I don't know where to turn or what to do. I can tell you her diabetes doctor said it had nothing to do with her diabetes, because she has only been diabetic 4 years. I will eagerly await your reply. Thank-You Patti



Re: Bakers Cyst Att. June

Posted by
June on May 25, 2000 at 21:09:06:

In Reply to: Re: Bakers Cyst Att. June posted by Patti for Sarah on May 25, 2000 at 20:26:57:

Dear Patti:

I am trying to search for an answer for you. Right now I have a question: During the last few weeks have any doctors done blood studies and if so do you know what they were?

June



Re: Bakers Cyst Att. June ---Archive!

Posted by Walt Stoll on May 26, 2000 at 07:53:44:

In Reply to: Re: Bakers Cyst Att. June posted by Patti for Sarah on May 25, 2000 at 20:26:57:

Hi, Patti.

RocketHealer Jim passed on your note to me. I then went back and read every note you have posted and the responses by June (Thanks, June.)

Without seeing your daughter, I am at a REAL disadvantage. However, being able to see the entire history like this is a REAL advantage not shared with any of the docs who have seen snapshots of her condition. Of course, that is no excuse for the last few who have seen her since, IF THEY HAD TAKEN THE TIME TO GET AN ADEQUATE HISTORY, they, too, could have had that advantage. They have just been in too much a rush to see the next patient to take the time needed to understand this. TOO MANY PHYSICIANS JUST RUN TESTS AND DO NOT THINK.

My first impression of this is that this is a ruptured Baker's Cyst that continues to leak into the tissues of her lower leg. You could prove this by keeping her home from school for a week and keeping her leg elevated above her hips 24 hours a day--the higher the better (She can get up to go to the bathroom and to take a bath but then right back to the couch!) You could speed up how fast this would resolve by wrapping her leg, from the knee to her toes (not too tight) with an ace bandage. As the leg gets smaller, rewrap it to fit twice a day. Within 24-48 hours she will no longer need any pain medications!

This is likely not a cure (although it might allow the rip in the knee capsule that causes Baker's to heal--see the mechanism of causation in the archives under Baker's Cyst) but at least will prove the diagnosis to you both.

For her history to be valid, the rip in the capsule has to be a large one which MAY require surgical repair. ANY surgeon worth his/her salt would know what to do IF the problem recurred after you had resolved the problemm by following the above.

Even a tiny Baker's associated with a large rip would follow EXACTLY the scenario you have described and would not show up on ANY of the studies she has had done.

This looks perfectly clear to me and I would appreciate your sharing what happens, when you do the above, with the Bulletin Board participants.

Namaste`

Walt



Re: Bakers Cyst Att. June

Posted by Patti for Sarah on May 26, 2000 at 15:26:48:

In Reply to: Re: Bakers Cyst Att. June posted by June on May 25, 2000 at 21:09:06:

DR.Stoll and June , no blood studies have been done but the Dr. at Rileys has ordered a bone scan. He said not even fluid had shown up on the MRI. She has this done Wednesday 31st I will post after this. It would be impossibe at this point to keep her out of school as she has only 2 weeks left, and she is the President of her school meaning she has alot to do these last two weeks. I will however keep her off her feet as much as possible. Do you think it could be anything more serious? and would the MRI show fliud? thanks for all your help and i will be checking in. Patti



Re: Bakers Cyst Att. June

Posted by Walt Stoll on May 27, 2000 at 08:30:31:

In Reply to: Re: Bakers Cyst Att. June posted by Patti for Sarah on May 26, 2000 at 15:26:48:

Hi, Patti.

With all the studies you have had done, there is nothing that will permanently damage her if she waits to deal with this till it is "convenient". She will just have pain.

There are only 2 possibilities at this point as causes for her swelling. One is fluid and the other is fluid. Keeping her leg higher than her hips (partially as you have suggested) will HELP her pain. I was convinced that her pain was of a crippling nature which is why I recomended total elevation. However, your response to my suggestion (which would have resolved her pain in a day or so) suggests to me that it is bearable after all.

Walt



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