Cancer historical posts April 1998

T-cell Lymphoblastic Lymphoma

Posted by Beate Clark on April 05, 1998 at 21:49:23:

Dear Dr. Stoll,
my 11 year-old daughter was diagnosed with t-cell lymphoblastic lymphoma a week ago. She underwent emergency surgery to remove fluid from around her heart and has been on chemotherapy since then. She had a large tumor behind her breastbone, and only one week later it has disappeared completely due to the chemotherapy. She is to stay on a heavy regimen of chemotherapy for two years. She looks and feels awful, has had excruciating headaches and backaches since a spinal tap four days ago (she is to have them every two weeks or so). Needless to say, I am worried sick about her. I'm glad her tumor receded so quickly, but am not happy about her future treatment nor her current condition. Do you have any recommendations for us, or know of any doctor in the Dallas/Ft. Worth area who could help her - I am thinking of combining the chemotherapy with alternative approaches, but don't know what's available, especially for children with an aggressive cancer like hers. Thanks for any advice you can give us.
Beate Clark



Re: T-cell Lymphoblastic Lymphoma

Posted by Walt Stoll on April 07, 1998 at 09:43:11:

In Reply to: T-cell Lymphoblastic Lymphoma posted by Beate Clark on April 05, 1998 at 21:49:23:

Hi, Beate!

You are right to be "worried sick". However, if only conventional approaches are used, you need to be more worried. Unfortunately everything I know of that would help her greatly improve her chances will require HER learning & changing. You know her better than I. Is she likely to do that?

If she wer mine, I would call Cancer treatment Centers of America. They are the only ones successfully combining alternatives with conventional treatment and are available everywhere in the country. Call (800) 515-1221 or (800) 515-0176 and find the one closest to you.

You could also call my friend (and med school classmate) Bill Rae, MD. there in Dallas. Tell him I suggested you call and find out who HE would recommend. Certainly, part of her causes are ecological and he is the best in the world right now with that.

Walt



Re: T-cell Lymphoblastic Lymphoma

Posted by Beate Clark on April 08, 1998 at 14:20:14:

In Reply to: Re: T-cell Lymphoblastic Lymphoma posted by Walt Stoll on April 07, 1998 at 09:43:11:

Dr. Stoll,
thank you for your reply. Yes, I think my daughter is willing to do whatever it takes to get well. Do you have any specific suggestions? In the meantime I will make the phone calls you recommended. Thank you so much for your help.
Beate


Re: T-cell Lymphoblastic Lymphoma

Posted by Walt Stoll on April 08, 1998 at 16:55:19:

In Reply to: Re: T-cell Lymphoblastic Lymphoma posted by Beate Clark on April 08, 1998 at 14:20:14:

Deare Beate,

The first thing would be something that would help anyone in this situation without ANY evaluation at all: she needs to make high level wellness a hobby for the rest of her life. The entire world of holistic practitioners agree on that AND what constitutes a basic wellness protocol.

You have a copy of my book. In the back is the complete wellness protocol along with all the references, in the order of their complexity, needed to become an expert in all of them. With this diagnosis, she should learn enough about each of them to do all of them & do them right ASAP.

Although, that would be enough for the majority of people, without having had the privilege of examining her & being intimately involved in her care, I would also recommend she see a competent complementary practitioner in her area who would be able to follow & guide her closely until there is no longer ANY sign of disease.

Remind me of what part of the country you are in so, if possible, I can recommend someone personally. There is still too wide a range of expertise in the profession to just look at a list.

If she were mine, I would also suggest starting at least 4 grams of esterified vitamin C twice a day.

Let me know where you are & get her started learning about & practicing skilled relaxation, aerobics and a whole foods diet. Do not try the latter till she has a copy of Beth Loiselle, RD's book.

We can beat this thing!

Walt




Re: T-cell Lymphoblastic Lymphoma

Posted by Beate Clark on April 10, 1998 at 19:59:40:

In Reply to: Re: T-cell Lymphoblastic Lymphoma posted by Walt Stoll on April 08, 1998 at 16:55:19:

Dear Dr. Stoll,
thank you for your reply. I had no doubt that following all the health advice in your book would be important, but are you saying that is enough to beat something like cancer? Her doctors told us that her tumor was doubling in size every 12 hours, extremely aggressive and requiring an extremely aggressive, long-term treatment of chemotherapy. I would be too scared to take her off chemotherapy, at least not for the first three months, until she is considered to be in remission. But I definitely want to add holistic approaches to her treatment and am trying to find a doctor familiar with treating her type of cancer, in children, who can do this.

Maybe I misunderstood, but would you take her off chemotherapy at this stage if she were your child? We live near Dallas/Ft. Worth, Texas. I contacted Dr. Rea, but have not heard back yet. Cancer treatment Centers of America only has centers in Tulsa, OK, Zion, IL and someplace in Virginia. I have a call in to the Tulsa center and am waiting for a reply.

I have been wondering about vitamins, but her doctors say that some of them, such as folic acid, actually counteract the effectiveness of certain chemotherapy drugs (e.g. methotrexin). I assume vitamin C is ok. Thank you so much for your advice, I feel so helpless and confused. I am curious as to how big a part you think ecological causes play in her cancer.
Beate



Re: T-cell Lymphoblastic Lymphoma

Posted by Walt Stoll on April 12, 1998 at 12:49:51:

In Reply to: Re: T-cell Lymphoblastic Lymphoma posted by Beate Clark on April 10, 1998 at 19:59:40:

Dear Beate,

With a tumor so aggressive, there has to be a reason. It has to do with how weak her immune system is and that means that there many things that can be done to improve it.

Unfortunately, all those things take a few months to work and, even though the conventional therapy damages that very immune system, you may have no choice but to do conventional therapy to give her long enough to have the causitive management time to work. After all, that is the forte` of conventional therapy: temporary benefits with long term complications.

Toward that end, this is the strength of Cancer Treatment Centers of America: they know how to combine conventional with alternative to give the patient the best of both worlds.

With a tumor this aggressive, I would get her onto Macrobiotics immediately. Your library would have books on this subject so you could see if you both would be willing to do something like that. If so, call the Kushi Institute at (413) 623-5741 (or 2102) to find the closest Certified Macrobiotics Instructor to you. Although one can learn this on one's own, her aggressive tumor says that she MUST do it right from the begining and the only way to do that would be to have an instructor at hand to assure that.

Walt



Re: T-cell Lymphoblastic Lymphoma

Posted by Pamela J. on April 13, 1998 at 05:14:29:

In Reply to: Re: T-cell Lymphoblastic Lymphoma posted by Beate Clark on April 10, 1998 at 19:59:40:

Dearest Beate,

I am moved by your love and devotion to your daughter. I will pray for her healing and that you receive strength and guidance.

with love,
pamela


Re: T-cell Lymphoblastic Lymphoma

Posted by Beate Clark on April 13, 1998 at 10:52:36:

In Reply to: Re: T-cell Lymphoblastic Lymphoma posted by Pamela J. on April 13, 1998 at 05:14:29:

Dear Pamela,
thank you for your thoughts and prayers. I know they will help.
Beate


Re: T-cell Lymphoblastic Lymphoma

Posted by Beate Clark on April 13, 1998 at 11:07:40:

In Reply to: Re: T-cell Lymphoblastic Lymphoma posted by Walt Stoll on April 12, 1998 at 12:49:51:

Dear Dr. Stoll,
thank you for your suggestions. I will do everything you recommended. One other thing that keeps nagging me is that my daughter developed chemical sensitivities when we moved into a newly constructed house two years ago. I also just learned that we live 10 miles downwind from a cement plant burning hazardous waste (this plant is just south of the Dallas/Ft.Worth metroplex - how can that be allowed in a day and age when we worry about second-hand cigarette smoke?). My immediate reaction to all this is that we need to move to a safer environment. On the other hand, we moved out here to get away from congestion and automobile exhaust, and relocating now would be infinitely stressful for the whole family, kids uprooted from schools, etc. You mentioned that there is an ecological component to my daughter's illness. How important is her environment - most people tell me I am overreacting and that no matter where we live there will always be some type of pollution? I just want your opinion on this - I value it highly. Thanks for all your help.
Beate


Re: T-cell Lymphoblastic Lymphoma

Posted by Walt Stoll on April 14, 1998 at 19:12:31:

In Reply to: Re: T-cell Lymphoblastic Lymphoma posted by Beate Clark on April 13, 1998 at 11:07:40:

Dear Beate,

Environmental stresses come in many forms. Moving is one of them. HOWEVER, something about the way things are right now is causing how she is right now. A good Clinical Ecologist could put the pollution you mention in perspective for you.

In the meantime, improving her wellness is the best thing you can do to reduce the damage being done by whatever.

Good Luck!

Walt



Re: T-cell Lymphoblastic Lymphoma

Posted by Beate Clark on April 15, 1998 at 11:59:04:

In Reply to: Re: T-cell Lymphoblastic Lymphoma posted by Walt Stoll on April 14, 1998 at 19:12:31:

Dear Dr. Stoll,
thank you for all you help. I am so thankful for this board - it is always my first line of information because I know it it the most trustworthy information out there.
Beate Clark


7 Signs of Cancer

Posted by gerry on April 30, 1998 at 05:55:36:

Walt

You mention in your book (which has proved invaluable reading by the way) about the 7 signs of cancer and provide a number to call. I live outside the US and can't access this.

Do you have time to provide a quick precis?????

Thank you for your help

Gerry


Healing the Spirit

Posted by Martha on April 06, 1998 at 11:55:11:

Hello Everyone: Dr. Stoll's book is tops for healing the body and I just read a remarkable book with stories that heal the spirit. It is KITCHEN TABLE WISDOM by Rachel Remen M.D. a former pediatrician who now trains doctors in patient centered care and does cancer counseling.
She was on Bill Moyers PBS special "Healing and the Mind". What she relates is the most touching affirmation of the human spirit that I have ever read. Martha


Re: leukemia

Posted by Ken on April 27, 1998 at 11:56:01:

In Reply to: Re: leukemia posted by Walt Stoll on April 22, 1998 at 11:11:14:

Dr. Stoll,

I would like to understand how to improve the immune system. My sister has lukemia, has had a bone marrow transplant that put her into remission for 9 months. Unfortunately, it is back. The doctor's say she has 14% blasts of lukemic cells and that she either goes through another bone marrow transplant (white blood cell type) she will surely die. The procedure (white blood cell type) has a 20% success rate with the other 80% dieing from the procedure. The other option is to prolong her life with transfusions and low dose chemo. Any other alternatives would be greatly appreciated.

Concerned Love One,

Ken


Re: leukemia

Posted by Walt Stoll on April 30, 1998 at 09:49:13:

In Reply to: Re: leukemia posted by Ken on April 27, 1998 at 11:56:01:

Dear Ken,

The problem here is not that immunity cannot be greatly improved through individual efforts but that neither YOU nor I can do it for her. SHE has to be williing to learn about her options AND to do something about them herself. Until we both know that she is willing to do that, we both are wasting our time. You can open doors for her but no one can make her walk through them.

I will offer you references that SHE has to read. If you learn that she is like the majority of people with conditions like this (She would sooner die than learn anything new.) you are just going to have to love her as she is until she dies. Do not add the additional stress of trying to convince her, if she is not willing, to your relationship. It would unnecessarily poison the only real thing you have--your love for each other.

Have her read "Mind as Healer, Mind as Slayer" by Dr Pelletier, "Psychoimmunity & the Healing Process" edited by Jason Serinus and published first in 1986 by Celestial Arts (may have to get it at your library since it may no longer be in print) and THEN, if she is ready to get to work, a copy of my book (link on this page). Since all of these approaches take energy, she has to get them started while she still HAS energy.

THEN, if she has more questions--that are not supplied in the resources part of my book--write again here on this BB & I will do my best to help.

Walt



1998: Feb Apr

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