Chronic Fatigue Syndrome Archives

CFIDS Testimonial

[ Chronic Fatigue Syndrome Archive ]
[ Main Archives Page ] [ Glossary/Index ]
[ FAQ ] [ Recommended Books ] [ Bulletin Board ]
   Search this site!
 
        

CFIDS

Posted by
Judy on May 24, 1999 at 15:48:40:

I'm posting not with a question but with some of the things that have helped me over the years. Contrary to what conventional doctors say, there are treatments that can make the difference between a worse case scenario and a better case scenario, possibly even an almost total remission as long as certain precautions are observed.

I've had CFIDS for 25 years. I didn't know what I had for the first 19 years. Since finding out what I had and being able to tap into a vast amount of info about it, I've been able to help myself even more. Before, I was able to help myself some because I started reading what I could that sounded like my symptoms and cautiously trying things like vitamins. One of the things that hurt me the most over the years before I knew what CFIDS was and how it affects people is that even though I managed to go into partial remissions, I didn't know to take the precautions that PWCs (People With CFIDS) need to take like enough rest, good diet, etc.

Magnesium has been like a miracle drug for me. After starting on the Mg shots, I lost a lot of pain (I also have FMS like about 85% of PWCs do), gained energy, and lost the sensation that my arms and legs had weights attached to them. It also helped with the asthma I have, colonic inertia, and some other problems. Mg probably is one of the most neglected elements in the U.S. There's a long, long list of conditions that have been linked to Mg deficiency including some (not all) cases of high blood pressure, one type of kidney stone, a peculiar kind of "paralysis" that many PWCs get (it's caused by muscles needing Mg in order to be able to relax), increased sensitivity to pain as well as feeling overwhelmed by sights and odors and sounds (Mg is a GABA enhancer, an inhibitory neurotransmitter, and PWCs frequently have low levels of GABA and high levels of NMDA, an excitatory neurotransmitter so nerves fire too much - theory advanced by Paul Cheney, MD), muscles spasms and tics, a tendency to blood clots, arteriosclerosis, "nervousness", some cases of asthma (Mg will cause air passages in the lungs to dilate plus muscles not being able to relax around the chest can be a factor in some cases of breathing difficulties), seizures (that neurotransmitter thing again), etc. A lot of this information about Mg deficieny has been known at least since the 1950s but ignored in the rush to develop new and more powerful and expensive prescription drugs. Recent research points to Mg playing some critical roles in immune system health as well as in allergies. (See the work of Mildred Seelig, MD, American College of Nutrition.) Food processing practices in the U.S. frequently remove a lot of Mg from food. In addition, Mg seldom is replaced in soils used for growing crops. And, some people, because of various factors - intestinal disease, Leaky Gut Syndrome, viral infection, etc. - have trouble absorbing what little there is available in food. I had to stay on Mg shots for over 5 years because I couldn't absorb enough from the pills or from the Vitamist oral Mg spray. My overall health has now improved to the point of being able absorb enough from capsules.

I used to have the swollen lymph nodes about all the time. Some high dosages of vitamin A for a while got rid of that problem as well as the almost constant soreness behind the nose. I now only have to take 8,000 IU per day of A, but if I skip taking the A for too many days, the problem returns.

The Evening Primrose Oil (omega-6) didn't help me; in fact seemed to make me feel worse sometimes. I needed omega-3 fish oil. The omega-3 also reduced some sensitivities and allergies as well as the tendency to them. Some people need just the Evening Primrose Oil, some need both the omega-6 and omega-3, and some people need just omega-3.

Two years ago I discovered a lot of help from TCM - traditional Chinese medicine. I'm fortunate in that I live in a state (AZ) where alternative medicine is more accepted than in a lot of states. There's a herbalist living in the county I live in that is trained in TCM herbalism and the TCM diagnosis. His diagnosis was that my main problem was I had a Kidney Yang deficiency and was too Cold. So he recommended yang tonic and warming herbs. They work! After about 3 weeks on the herbs, I started to take another major step up in terms of energy and ability levels. I continue to improve slowly. (Keep in mind that I've had CFIDS for 25 years and had had it for 23 years before I started on the TCM herbs. The quicker a problem is identified and treatment started, the quicker it can be resolved.)

I started reading everything I could find on TCM. TCM recognizes two types of fatigue - Fatigue of Exess and Fatigue of Deficiency. Fatigue of Excess is the normal kind of fatigue that one gets from overdoing. The solution is simple - quit overdoing. Fatigue of Deficieny is a more serious condition than Excess. The Kidney and/or Spleen meridians have been damaged by Cold and lack Yang energy.

I don't know how many PWCs fit the criteria for Kidney Yang and/or Spleen Yang Deficiency. Some of us do; some of us do not. TCM syndromes do not always correspond to Western medical disorders. In fact, they rarely do. A few - like the common cold and most types of arthritis do - but most do not. TCM recognizes that different individuals may have the exact same symptom, but the appropriate treatment for each person may be different because the underlying cause is different. TCM is geared toward identifying and treating causes, not symptoms.

The best website I've found for TCM is the Rocky Mountain Herbal Institute website. You can pick up a lot of the basics of TCM just by reading their material.

Some other things help me too. I use acupressure, meditation, visualization, good diet, enough rest, etc.

I want to thank DR. Stoll for his website and this BB. I'm picking up more info here and wanted to give some back for what I'm receiving.

Judy



Re: CFIDS

Posted by
Kate on May 24, 1999 at 21:12:20:

In Reply to: CFIDS posted by Judy on May 24, 1999 at 15:48:40:

What's CFIDS?
Sorry, simple question...

Kate



Re: CFIDS

Posted by
Judy on May 25, 1999 at 10:17:38:

In Reply to: Re: CFIDS posted by Kate on May 24, 1999 at 21:12:20:

CFIDS stands for Chronic Fatigue Immune Dysfunction Syndrome. It's the same thing as CFS. A lot of PWCs refuse to call it CFS because the CFS label makes it sound like we're just a little bit tired and doesn't convey how serious and debilitating the condition is. Calling CFIDS CFS would be like calling diabetes Chronic Urinating Syndrome or calling pneumonia Chronic Coughing Syndrome - descriptive of one symptom while trivializing the conditions.

Judy



Re: CFIDS (Testimonial for Mg Archives AND CFS)

Posted by Walt Stoll on May 26, 1999 at 10:40:50:

In Reply to: CFIDS posted by Judy on May 24, 1999 at 15:48:40:

Thanks, Judy, for your testimonial. It WILL help others begin to realize that there are better options out there than those offered by the allopathic monopoly.

Namaste` Walt



Re: CFIDS (Testimonial for Mg Archives AND CFS)

Posted by
Judy on May 27, 1999 at 00:18:52:

In Reply to: Re: CFIDS (Testimonial for Mg Archives AND CFS) posted by Walt Stoll on May 26, 1999 at 10:40:50:

There are so many things that can help so many people.

If you don't mind, I'd like to mention some other things about treating CFIDS.

Two of the first priorities in treating CFIDS is to bring the digestive system problems and the allergy/sensitivity problems under some control. PWCS are known for tending to react not only to prescription drugs but also to herbal remedies. The reason the digestive and allergy problems need to be addressed early on is so the PWC can use herbs and other supplements without reacting to them.

A poll of PWCs revealed that the number one thing that helps with digestive system problems are digestive enzymes. There are other things that help too, but this was the number one thing.

Treating the digestive system problems with digestive enzymes when appropriate can also help the allergy problems. PWCs are known for an increased sensitivity to histamine. In addition to histamine being a byproduct of allergic reactions, histamine can also be a byproduct of incomplete digestion. The last thing a PWC needs is more histamine from any source. BTW, the histamine-releasing anesthesias are particularly hard on PWCs. They can trigger the CFIDS in susceptible individuals. The CFIDS Association of America has a list of anesthesias that are safer for PWCs as well as a list of those that should be avoided.
http://cfids.org/cfids

LGS is common in PWCs. Scott Rigden, MD, has done a lot of work with LGS in PWCs. I suspect that Rigden has just begun to scratch the surface when it comes to treatments for LGS, and there are other things that will help.

There often is an additional triggering factor in the development of LGS in PWCs besides stress. Another hallmark of CFIDS is the tendency to very servere headaches. NSAIDs also can trigger LGS. A lot of people don't realize that aspirin is a NSAID. I can remember taking a lot of aspirin and BC or Goody powders for the headaches before the digestive problems and the CFIDS eventually got worse. This is another reason to explore acupressure, massage, trigger points, heat (in a few cases cold) packs for treating these headaches. Another reason is that neither aspirin nor any other pain killer will reduce the tendency to the headaches, but the massage, acupressure, etc. will. Also, the massage, acupressure, etc. work far, far better than drugs on these headaches and work quicker. My worst headaches couldn't even be knocked out with a shot of demerol in ER. The demerol would blunt the pain enough so I could sleep through the worst of it, but I still had a rather severe headache for the next day or two. Not to mention the incredible nausea, sensitivity to light, etc. Once a person discovers the particular trigger points/ acupressure/ massage points that works for the individual, you can knock one of these headaches out in seconds to minutes.

Namaste, Judy




Re: CFIDS (Testimonial for Mg Archives AND CFS)

Posted by Walt Stoll on May 27, 1999 at 11:51:27:

In Reply to: Re: CFIDS (Testimonial for Mg Archives AND CFS) posted by Judy on May 27, 1999 at 00:18:52:

Thanks, Judy.

Great information! This will make a good basis for the archives on CFIDS.

Walt



Re: CFIDS (Raw foods can help)

Posted by
Paul Reynolds on May 27, 1999 at 21:13:08:

In Reply to: CFIDS posted by Judy on May 24, 1999 at 15:48:40:

Hi Judy,

I never had an 'official' CFIDS dx, but I've been through just about the whole symptom list (you can see it on my symptom improvement chart on my web page) so I know what it is and how it feels, and the severe difficulties involved in healing the condition.

I had a similar tremendous response to Mg pills a few years ago when I was dealing with Hg poisoning. One of the best sources in the long run are eating 'lots' of dark, raw greens in the diet; by doing this and resolving C-RS, I don't need Mg in supplement form at all any longer.

Something to consider is the value of a mostly raw-foods, adequate-protein diet (and paying attention to, learning about, and applying the little, and often little-known, nutritional details); it has been a great benefit to me in boosting energy and overall health while eliminating and reducing symptoms and dependence on expensive supplement pills; others have found the same:

http://www.math.jussieu.fr/~tu/raw-food/faq.html

(The type of diet I eat is not a 'traditional' raw food diet, these diets such as '100% raw, 100% vegan' would probably make CFIDS worse).

Paul (preynolds@mediaone.net)



Re: CFIDS (Testimonial for Mg Archives AND CFS)

Posted by
Rotraut on May 28, 1999 at 02:35:26:

In Reply to: Re: CFIDS (Testimonial for Mg Archives AND CFS) posted by Judy on May 27, 1999 at 00:18:52:

Can you explain, please, what are PWCs? Thank you, Rotraut



Re: CFIDS - what are PWCs?

Posted by
Deb on May 28, 1999 at 06:38:33:

In Reply to: Re: CFIDS (Testimonial for Mg Archives AND CFS) posted by Rotraut on May 28, 1999 at 02:35:26:

Rotraut,

Just a guess - but from the context, I'd say "people with CFIDS"

Deb



Re: CFIDS (Testimonial for Mg Archives AND CFS)

Posted by
Judy on May 28, 1999 at 09:23:12:

In Reply to: Re: CFIDS (Testimonial for Mg Archives AND CFS) posted by Rotraut on May 28, 1999 at 02:35:26:

PWCs stands for People With CFIDS.

Judy



Re: CFIDS (Raw foods can help)

Posted by
Judy on May 28, 1999 at 10:53:09:

In Reply to: Re: CFIDS (Raw foods can help) posted by Paul Reynolds on May 27, 1999 at 21:13:08:

Thanks for the information. I've bookmarked your site.

I had to grin when I read the part about green leafy veggies. Several years ago I started craving them, literally could not get enough of them. At the time I also had a mildly elevated alkaline phosphatase level. My doctor couldn't tell me why the AP level was elevated but didn't think it was all that important because it wasn't too high. I only the other hand wanted to know because I was so sick and I felt so bad overall. So I got a medical text and looked up what can cause an elevated AP level.

There's a long list of medical conditions that can cause an elevated alkaline phosphatase level, and some of the medical conditions are very scary. But when I got to the entry on osteomalacia (adult rickets), it hit me that this was the probable in my case. By that point in my life I had had to cut out all milk. I had the symptoms of both lactose intolerance and allergy to milk. I couldn't even tolerate the small amount of lactose used as a filler/binder in pills or the least amount of milk in prepared food. I couldn't eat cheese or yogurt. Absolutely no dairy in any form.

There can be different causes of osteomalacia, ranging from excessive use of aluminum hydroxide gels to intestional disorders to parathyroid problems to kidney disease, etc. It occurred to me that it could also be due to a person having had to cut out all dairy. I knew that green leafy veggies are high in calcium (I didn't know about Mg at that time), and I reasoned that perhaps my constant craving for spinach, mustard greens, collards, etc. was related to the elevated AP level and my body trying to get enough Ca. I also reasoned that I also had some kind of absorption and/or ultilization problem because the way I was packing away green leafy veggies should have been enough but wasn't. So I started on calcium-magnesium pills. The AP level came down, and even though I continue to like green leafy veggies a lot, I no longer constantly crave them. Later I would discover that it was the Mg I needed far more than the Ca, and I needed the shots. (Ca alone or too much Ca and too little Mg actually can have some detrimental effects on PWCs and others. PWCs have the highest percentages of nondiscocytes of any patient population. Nondiscocytes are misshapen, rigid red blood cells that have trouble making it through the smallest capillaries; thus, contributing to our circulation problems. Ca has a stiffening effect on red blood cells. B12 will reduce percentages of nondiscocytes. Dr. L.O. Simpson of New Zealand is one of the researchers who has done the most research into nondiscocytes.)

As for raw foods, many many years ago I realized that I always felt better the day after I had a salad. So several years ago I made it a point to start having at least one salad each day. There can be a problem with PWCs and raw foods. When the PWC is very sick, the digestive problems can be so bad that raw foods can result in very severe cramping and other problems. As the digestive system problems are brought under control, the PWC can start to eat and benefit from raw foods. Depending on how sick the PWC has been and how long the person has had CFIDS, supplementation with vitamins and minerals may be required for some time. In some cases - a lot of cases when it comes to PWCs - the digestive system and overall physiology are in such poor shape that the person can't even absorb and ultilize enough from pills and requires IM shots or IV supplementation. This is especially true of magnesium. I had to stay on the shots for 5 years before I could absorb and ultilize enough from pills.

I also used to crave eggs a lot. I finally figured out that I was craving eggs the most when I had a active infection. So I started eating eggs regularly. (I have low cholesterol, so this is not contraindicated for me.) I'm one of those PWCs with a history of positive monospot tests and also have been diagnosed as having Chronic mononucleosis. The titers to both EBV (Epstein Barr Virus) and CMV (Cytomegalovirus - the 2nd leading cause of mono) were elevated as well as the monspot tests being positive.

I need to say a few things here about mono, EBV, CMV, and monospot tests. According to the NIH (National Institute of Health) EBV is responsibile for about 90% of the cases of mono, and most of the remaining 10% are caused by CMV. A monospot test establishes if there is an active case of mono. The better, newer test will also establish if there has been active mono within the past 6 months. An EB titer test looks at 4 antibodies against EB. One of them will only be positive if it is the person's first bout with mono. The pattern of the 4 antibodies will reveal if this is the person's first bout of EB mono, if it's chronic mono or if it's recurring mono. Other than being used to make a fine-tuned diagnosis the EB titer test is not all that useful. (And it's expensive.) It's more a test of how the immune system is behaving rather than what's going on with the EB because it measures antibodies against the EB, not the EB. In worst case scenarios some of the titers will actually be low because the immune system is so exhausted that it can no longer turn out antibodies. In these cases, as the person improves, this EB titer will actually rise to extremely high levels.

Usually, the diagnosis chronic EBV is given if certain EB titers are elevated but the monospot test is negative. The chronic or recurring mono diagnosis is given if certain EB titers are elevated AND the monospot test is postive or shows "exposure within the past 6 months". I suspect that chronic and recurring mono are not separate medical conditions, but different phrases of the same medical condition. Monospot tests can correlate with how sick a PWC or a person with chronic/recurring mono. In one of these people an "exposure within the past 6 months" test result will correlate with the person being very, very sick. This test result may also show up over a period of years until the mono is finally put into remission. When this happens in a PWC who has chronic mono, it doesn't mean that the PWC is well from the CFIDS. It means that the PWC is feeling a heck of a lot better than s/he did because there's no longer an active case of mono.

CMV mono can mimic hepatitis. CMV also has been linked to some learning disabilities. I don't understand the exact mechanism or link - it's not a direct cause and effect relationship - but it's believed that CMV can play a role in some learning disabilities.

Getting back to me craving eggs when I was the sickest and did have an active case of mono. I finally started eating them regularly. A few years after this I ran across a mention in an alternative health book that some healers were looking at eggs as a possible treatment for EBV and AIDS. Moral: Pay attention to your cravings. I also realize that eggs would be contraindicated for some people.

For some reason fresh strawberries also help me. As far as I know I'm the only PWC who is helped by fresh strawberries. Blackberries also help me. Cherries help me, but a little bit more is known about this. It has long been known that cherries can help in the treatment of gout. One UCLA researcher (can't think of his name right now) who has FMS (Fibromyalgia Syndrome) and have a lot of relatives who have it has theorized that FMS is a gout-like illness. (About 80 - 85% of PWCs also carry the FMS diagnosis, and there is a lot of debate about rather FMS is one of those things that PWCs are prone to or if FMS and CFIDS are the same condition with pain predominating in those with FMS as the primary diagnosis and fatigue dominating in those with the CFIDS primary diagnosis.) I'm looking very foward to cherries being in season again, and after we move I intend to have several cherry trees.

Judy




Re: CFIDS (Testimonial for Mg Archives AND CFS)

Posted by
Judy on May 28, 1999 at 11:02:30:

In Reply to: Re: CFIDS (Testimonial for Mg Archives AND CFS) posted by Walt Stoll on May 27, 1999 at 11:51:27:

Thanks. Glad to help.

Judy



Re: CFIDS (Testimonial for Mg Archives AND CFS) (Archive under CFS)

Posted by Walt Stoll on May 28, 1999 at 14:27:25:

In Reply to: Re: CFIDS (Testimonial for Mg Archives AND CFS) posted by Judy on May 27, 1999 at 00:18:52:


Thanks, again, Judy.

This is exactly the thing others need to hear.

Already, more than 70% of Autistic children reepond very positively to the approach via LGS. Just one injection of secretin (an intestinal lining hormone) sees benefits in a few days that lasts months (sometimes permanently).

Walt



Re: CFIDS (Raw foods can help)

Posted by
Paul Reynolds on May 29, 1999 at 14:12:21:

In Reply to: Re: CFIDS (Raw foods can help) posted by Judy on May 28, 1999 at 10:53:09:

Judy,

I had never considered my AP level - your experience is interesting.

Initially when I was adding more raw foods to my diet, I did have a lot of gas and cramping. So it was not an overnight change. Now the only foods that really give me any gas are apples - even red onions are not a problem.

Although I never had EBV, I was eating lots of eggs for a year or so - over the past week I lost my craving for them. Cravings seem to be a useful indicator of whether a food is 'needed' or not, as long as the food is not denatured. Pasterized dairy, cooked grains, and breads are often craved, but in these cases the craving is usually related to allergy, not actual need.

Some folks practice a raw-food eating method called 'Instincto' - natural, raw food of 1 type is eaten singly until one reaches a 'stop', where the taste and smell of the food turns undesirable, indicating the food is no longer needed. It is a fascinating phenomenon! One can also have 'stops' with pure vitamin and mineral supplements (I recently had one with my bottle of 200 IU vitamin E - the aroma coming from the bottle became 'bad').

My view on FMS and CFIDS is that the conditions overlap because the underlying causes (exogenous and endogenous pollution, stresses, mal-nutrition, infection, structural energy-flow blockages) are the same, and globally present throughout the body, and so tend to cause malfunctions in the body im multiple systems that produce both fatigue and pain (arthritic as well as muscle pain). Depending on a person's relative consitutional strengths and weaknesses, either pain, or fatigue, may be the prominent symptom and as you say in most cases both are present.

Paul



Re: CFIDS (Raw foods can help)

Posted by
Judy on May 29, 1999 at 17:47:48:

In Reply to: Re: CFIDS (Raw foods can help) posted by Paul Reynolds on May 29, 1999 at 14:12:21:

I had a problem with an addictive allergy to wheat. I finally figured out that the way in my case to tell if it was an addictive allergy or me craving something I need is that in an addictive allergy I feel worse if I don't get the food. If it's something I need, I feel better when I get it, but I don't feel any worse if I don't get it. I stayed off wheat for several years, and now it doesn't bother me. I don't eat it every day. Just once in a while. It's nice to have the greater variety.

I don't know if you're interested in TCM (Traditional Chinese Medicine) or not, but a man from Hong Kong shared with me that sometimes cooking with herbs instead of taking them in a tea or in a capsule can work better for some people. I've noticed that I don't get as much benefit from cayenne in a capsule as I do from cayenne in homemade chili.

I'm going to start smelling the herbs I take as a guide to if I still need them or not. Right now, they smell very good to me.

I do sometimes get hints on foods to avoid in my dreams. Usually, I'm in the bathroom in the dream looking at the commode and I'll think of the food and feel really nauseous. Or, I will look at the food, and it looks bad and I feel nauseous in the dream.

I've gotten help from Hara breathing exercises. I find it interesting that the Hara point is about where the acupuncture/acupressure point called "The Sea of Energy" is located - about 3 fingers below the navel.

I got the idea from this message group to add a visualization where I visualize smooth flow of energy through the body. I still do the acupressure, but I figure the visualization may enhance the physical acupressure.

Judy



Re: CFIDS (Raw foods can help)

Posted by
Paul Reynolds on May 30, 1999 at 10:27:14:

In Reply to: Re: CFIDS (Raw foods can help) posted by Judy on May 29, 1999 at 17:47:48:

Judy,

It appears people live in a state of 'adaptive dysfunction' for many years (as I did), addicted to wheat or dairy and of course, refined sugar and junk food in general, until eventually the immune system is exhausted and a disease like CFIDS appears (or, for people over 50, more often diagnosed as the disease of 'old age' or something else).

TCM is very interesting to me, but since I'm doing well with my own techniques and lifestyle I'm just going to continue. I'm not a 'fanatic' about raw foods, and I can see where the cooking of foods or herbs might change its properties to ones benefit - but more often I think it goes the other way and people may not realize that.

Where did you learn about Hara breathing exercises? Right now I'm doing a morning meditation and a series of deep breaths 5X per day an old girlfriend from Mexico taught me, and it is beneficial. She said they would change my life, but I was not disciplined or motivated enough to follow them back then. I just need to keep with it until it is a daily habit just like my diet.

Paul



Re: CFIDS (Raw foods can help)

Posted by
Judy on May 30, 1999 at 11:35:08:

In Reply to: Re: CFIDS (Raw foods can help) posted by Paul Reynolds on May 30, 1999 at 10:27:14:

Hi Paul,

I learned the Hara breathing exercise from the book Acupressure Way of Health: Jin Shin Do by Iona Marsaa Teeguarden.

I mentioned the cayenne in the homemade chili because it was such a surprise to me. I observed that the cayenne in the homemade chili helped me a lot more than when I took it in capsule. According to the Western paradigm (that teaches that it's a specific active ingredient in a specific drug or herb that does the job), this should not have been happening, but I observed it happening over and over. According to the Western pardigm, it shouldn't have mattered in terms of effectiveness if I took the cayenne in capsule or in chili. In fact, according to the Western paradigm, the cayenne in the capsule should have worked more than the cayenne in the chili because the capsule had a higher dose of cayenne. But the opposite consistently happened. Then, come to find out from the man in Hong Kong, people in the East have known for centuries about preparation making a difference in some herbs' effectiveness. I tossed the information out here because it had been such a surprise to me. Also, I'm still at that stage where I'm surprised that my observations are on target and it's the paradigm that is deficient. I think a lot of people are like me in that they've been taught to disregard their observations in favor of what the paradigm says is or is not possible. That's a big part of the reason why conventional medicine first stagnated and then started turning more and more destructive. It's bad enough when doctors ignore what patients are telling them because they can't measure what the patient claims with an "objective" test or it doesn't fit the current model. Unfortunately, doctors too are trained to disregard their own observations and their own powers of analysis in favor of what "objective" tests say and what should be happening according to the current paradigm. As a result they often miss the clues that would enable them to know which tests should be ordered, and when they do order the tests, fail to interpret them correctly.

I've also observed cases where cooking a food or herb can diminish its properties. As I said, I noticed a long time ago that I did better the day after I had a salad, and that's why I started having at least one salad a day. There's something in those salads that I desperately need that I simply cannot get from a pill or anything other than the raw food. Also, I'm aware of some of the many times that manufacturers of baby formula, weight reduction plans, processed foods, and even vitamins claimed that their products had everything the baby or adult needed because they were "scientifically" formulated, but babies and adults started having health problems because it turned out that "science" didn't know what it thought it knew. My niece was on one of the popular weight reduction formulas (against my advice) last year and started developing bruising on the body. This really scared her because her mother had just died of the side effects of chemotherapy for leukemia. After she stopped the weight reduction formula and went back to all regular food, the brusing stopped and hasn't recurred. In spite of what manufacturers (wanting profits) tell the public and in spite of all the "scientific" studies they cite, science does not know everything and there're some things available in regular food, especially in raw food, that one simply cannot get anywhere else.

Judy



Re: CFIDS (Raw foods can help)

Posted by
Paul Reynolds on May 31, 1999 at 12:04:38:

In Reply to: Re: CFIDS (Raw foods can help) posted by Judy on May 30, 1999 at 11:35:08:

Judy,

Thanks for the reference on the Hara breathing exercises.

Your points are well-taken on lab tests; occasionally the right test at the right time can make a big difference. In other cases the test may be a waste of time or money or just point out something self-evident.

I have the same experience with salads and raw veggies and foods in general. The only supplements I'm taking now are colostrum and some cleansing herbs - the pills over the long run, once the LGS was largely healed and candida cleared up, were for me just out of balance and excess (although not unsafe in moderate doses).

Paul



CFIDS

Posted by Join this site: http://www.cfsn.com on May 31, 1999 at 22:48:35:

In Reply to: Re: CFIDS (Raw foods can help) posted by Paul Reynolds on May 27, 1999 at 21:13:08:

Lower back pain that cannot be ascribed to skeletal/muscular causes seem very common in people both mercury intoxicated, and during the detox process.

When I was really ill the pain would come and go from my attention, but didn't rise up as the most disturbing feature of my condition.

Copy of E-mail exchange:

During mercury detox, I have recieved many reports of people experiencing lower back pains of this type, and have experienced it too.

Metals and Human Health - An E-mail Discussion Forum Sponsored by CFS Nutrition - "Feed Your Health"TM
http://www.cfsn.com



Re: CFIDS

Posted by
Judy on June 01, 1999 at 11:03:01:

In Reply to: CFIDS posted by Join this site: http://www.cfsn.com on May 31, 1999 at 22:48:35:

Thanks. It looks like a good site.

Judy



[ Chronic Fatigue Syndrome Archive ]
[ Main Archives Page ] [ Glossary/Index ]
[ FAQ ] [ Recommended Books ] [ Bulletin Board ]
   Search this site!