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Hi Dr. Stoll,
I thought you might like an update on Tracey's situation. We have eliminated all dairy products from her diet and (almost) all corn syrup. I know she has the occasional ketchup and that corn syrup is probably the mystery ingredient in too many other things - it's pretty hard to avoid it.
I realize now that I didn't do her justice when I talked to you! At 11, she is so much more cooperative than she used to be in treating this problem. I was able to reason with her and she could see for herself with the applied kinesiology test that she tested weak for the two categories. Now she is checking labels herself and being extra careful about not eating dairy, and we also found a wonderful dairy substitute that I'd like to tell other people with milk allegies about - "Soy Delicious" ice cream substitute. It's really wonderful and she doesn't feel so deprived.
We have been giving her 1 TBL of Kondremul each evening, 1 TBL of metamucil and some flaxseed every day and acidopholis, and she has been having 1 BM every day. She feels better and is very happy. I also seem to notice (and I hope this isn't just wishful thinking) a subtle change in her behavior. She's still very active and hyper, but she doesn't have the temper outbursts that she used to.
a) Could that be because she cut out milk products?
b) Will it continue to get better over time in terms of the hyperactivity?
I am confused over one point. The practicioner told us that she did not test weak at all for 100 percent lactaid milk. She felt that we didn't have to be so strict about whey and casein, etc. I may be wrong, but I thought that the milk proteins would be what could cause constipation, not the lactose, though there is some information on the web about lactose causing constipation too. I've been afraid to ruin a good thing, so she's not eating the milk proteins, but
c) what is your opinion on that?
d) When can we reintroduce it?
e) Do you think it is the lactose or milk proteins that cause her chronic constipation?
f) Since the mineral oil and metamucil are working in a mechanical way, does this mean that now that the amounts we're giving her are working, her body won't eventually get "used to it" and need more and more for it to work? Or do you think she eventually will need more over the months?
g) And how many months will she need to do this? More than 6? MOre than 1 year?
h) Do you have any other words of advice?
I'm very pleased so far. She has been more communicative than she ever was in the past, which is such a step in the right direction. Thank you so much and please answer all the above questions, tiresome as I know they are!
In Reply to: Dr. Stoll please - and Rich, feel free to jump in if you wish! Your comments are always greatly appreciated! posted by Wendy on March 08, 2001 at 19:28:47:
Hi. I have some opinions regarding her situtation. Dr. stoll may or may not agree, however, I hope he will comment on this.
I believe her hyperactivity is caused by dysbiosis in her intestine. Candida and other harmful bacteria can easily overwhelm the endocrine and nervous system and lead to this. Her intestinal pH then becomes alkaline and constipation, food allergies, LGS, chemical sensitivites, and many other problems can result. Over the long haul, her dysbosis must be corrected. THEN I think you will see marked improvement in her hyperactivity. You might consider gettting the Comprehensive Digestive Stool Analysis with parasitology to check her digestion and flora balance. If she has allergies and constipation, I would almost bet my life she has dysbiosis/LGS. Testing will help you know for sure.
As far as the lactose or casein causing the problem, it could be either. I think that if she is lactose-intolerant, she probably doesn't have enough lacto-producing bacteria in her intestinal tract so she has no lactase enzymes to break down dairy products. This includes dairy proteins so the lactose intolerance can lead to "casein intolerance" and so on.
Constipation is also a major cause of mental imbalances. This is probably why Dr. Stoll wanted to get those bowels moving right away. Increasing bowel movements improves ones mental clarity. Treating the bacterial imbalance should finish the job
I think that testing the digestive system is needed if you haven't done so already. I hope Dr. Stoll agrees or has mentioned this himself.
Rich 1
In Reply to: Re: Dr. Stoll please - and Rich, feel free to jump in if you wish! Your comments are always greatly appreciated! posted by Rich 1 on March 08, 2001 at 19:52:17:
Thank you for your thoughts. I know we won't be able to do the stool analysis, though - I have the kit and it entails doing 3 consecutive stool tests. She's 11 and has been very cooperative about everything else - but this is where she'll draw the line I know! I wish there was an easier way to test it. I know they have a urine test for LGS which we can do someday, but I don't know of an easier way to test for bacteria. Her pediatrian, who is a holistic doctor and experienced in matters regarding LGS said she's almost positive that she doesn't have LGS. She always felt that she had a slow transit time and that it will improve with puberty, and that her behavior had a lot to do with how the chronic constipation problem started. Of course, we won't just wait and see, and I'm happy with her improvement for now. I hope Dr. Stoll answers my questions about whether or not her body will get used to the medication - I could never get a clear answer on some of the specifics, including the past wetting accidents and what caused them.
If it isn't unsafe to just assume that she does has dysbiosis and if there is an herb or something else that's safe and natural that we can give her to correct it I would be happy to start doing it. Does Flax meal or flax oil help? We give her some of that every day. Do you know of a gentle herb mixture, essential oil or something? I'm afraid to give her too many different things - she's doing very well right now and I think it's best to keep it simple.
I have a feeling that Dr. Stoll will agree with what you said. Of course, I would like to be sure about what is wrong, if there is any ailment besides the milk allergy (sensitivity?) and her long habit of withholding stools. I just wish it didn't have to entail a stool test.
But at least we're making progress and it's so nice to be able to share some of these concerns. THank you always for your concern and attention to my endless questions.
I hope you are in good health.
In Reply to: Re: For Rich posted by Wendy on March 08, 2001 at 21:35:13:
Well, if she can't do the parasite test, why not do the LGS test. It is a simple test that requires her to drink a test drink and collect urine. Not too bad. ??
Rich
In Reply to: Re: For Rich posted by Rich 1 on March 09, 2001 at 11:38:03:
Right, not bad at all. If she has LGS, would it follow that she also has dysbiosis? And is it wise and feasible to assume that she has dysbiosis and treat her herbally for it? I've been looking on the internet and can't find an answer to that one anywhere. She's already getting a heafty acidophilus pill every day and I imagine there must also be an herb mixture that could correct a possible bacterial imbalance without harming her - isn't there?
I ask her doctors these questions and the ones I've already written, but nobody can give me specific answers which are so important in addressing a situation like this.
In Reply to: Re: For Rich posted by Wendy on March 09, 2001 at 11:50:42:
If LGS is present, so is dysbiosis. They go hand-in-hand. There are certain antifungals that do not harm benefical bacteria and could treat her dysbiosis. The first one is called Dioxychlor (DC3). It is selectively deadly to pathogenic bacteria. another one is Olive Leaf Extract. Especially d-lenolate which is a more powerful form of this. Garlic, Caprylic acid are others that don't destroy benefical bacteria. She should rotate herbs. Take one for 4-7 days and then switch to a new herb. This will prevent the pathogens from becomiong resistant to the herbs.
Soil-based Organisms would be a helpful addition for her. These aggressive bacteria are completely resistant to heat, stomach acid, chlorine, flourine, and are meant to survive the harsh conditions of the body. They implant regardless of intestinal environment whereas acidophilus and bifidus need a slightly acidic pH to survive and she doesn't have that. her intestinal tract is undoubtedly alkaline so I don't know what benefit the acidophilus will be. The SBO's will also treat dysbiosis. Go to www.crohns.net and the product is called PRIMAL DEFENSE.
You have already increased fiber which will help eliminate all the dead pathogens you kill. You may need to stay with this type of regimen for 3-6 months or more before you completely eliminate the problem. A high-carb diet will be detrimental to the process but you need to get ample amounts of fiber in her diet so opt for legumes, gluten-free grains, and vegetbales for fiber. Go easy on fruits, and eat moderate amounts of meat and eggs. Flax oil and olive oil fight fungal infections so use them judiously.
L-glutamine is ESSENTIAL in fighting LGS. 5-15g are needed but I am not sure of the dosage for a child. She should also be on plant enzymes because faulty digestion can create dysbiosis. She may or may not need HCL to digest protein. It all depends on the level of stomach acid she has. If it is low, she needs supplemental HCL taken with meals with meat. Do not take with starch meals.
This should help. Let me know if there is anything else.
Rich
In Reply to: Dr. Stoll please - and Rich, feel free to jump in if you wish! Your comments are always greatly appreciated! posted by Wendy on March 08, 2001 at 19:28:47:
Hi, Wendy.
a. Yes, The protein in the milk could be contributing to both her behavior AND her bowel problem.
b. IF she can totally eliminate the dairy, she should continue to improve in both things for at least 3 months.
c. Lactose has nothing to DO with this. It is ALL the protein in the milk and the whey is almost pure milk protein.
d. About 6 months after total elimination has been accomplished. It takes that long for the bodymind to readjust. IF that is not long enough, her symptoms will just come back when she tries dairy again. At least, at that time, she would not be set back to the beginning--she would get rid of the symptoms within a week of, once again, totally removing the dairy. THEN, it might be worthwhile trying it again in a few months.
e. See c.
f. No. After she has been normal for 6 months, you will be able to reduce the MO & metamucil over a few months to get totally off everything---IF she is willing to eat high fiber foods as a permanent part of her diet.
g. Persist! With her present results it is possible that she is one who will resolve this problem with only one BM a day. Do not get overconfident!
Walt
In Reply to: Re: For Rich posted by Rich 1 on March 09, 2001 at 21:01:55:
Thank you Rich for all the time you spent on this. I printed it out for future reference. I will make an appointment for her to get tested for LGS. If she does have it and at this point it sounds quite likely, I'll let you know and I'll do as you suggest. It sounds a little overwhelming - I feel it would be best if there were just one capsule per day that I could give or rotate with another. (Is there?) The more I learn about this, the more questions I have, and the problem is that I know so little about herbs and possible interactions and side effects.
In Reply to: Re: Dr. Stoll please - and Rich, feel free to jump in if you wish! (Archive in constipation.)Your comments are always greatly appreciated! posted by Walt Stoll on March 10, 2001 at 08:29:25:
Hi Doc. Stoll,
As far as I know, whey contains NO casein which is the most allergic protein in milk. Lactalbumin is in human milk and is less allergenic. What whey DOES contain an abundance of is lactose. Can you comment for me? thanks a lot.
Rich
In Reply to: Thank you, Rich! posted by Wendy on March 10, 2001 at 11:10:39:
You are welcome. Just so you know, I would feel much better if I knew she was in the hands of a good hololistic, nutritionally-oriented physician. I know a great deal but I don't know everything. Plus, conventional medicine will not help her.
RIch
In Reply to: Re: Thank you, Rich! posted by Rich 1 on March 11, 2001 at 14:35:17:
YOu're certainly right about conventional medicine - it never worked for this problem. She has just started going to a chiropractic center - they are the ones who did the applied kinesiology(sp?) test. Her practicioner agreed about the possiblity of her having LGS, she also identified dairy and corn syrup sensitivities, and agrees with Dr. Stoll's metamucil and mineral oil program. Like you, she felt we should do a stool test - wish it wasn't so difficult. She seems to have the right idea. The only way her opinion differs from Dr. Stoll's is that she didn't find a sensitivity to milk proteins, so she felt that we didn't need to be so strict about eliminating those. Somehow, a sensitivity to milk proteins didn't show up at all in the AK test. And fortunately, she didn't test weak for wheat either. I don't know if someone can be sensitive to things without having them show up in the test. But we'll do our best to eliminate whey and casein anyway, just to be safe.
Anyway, I just wanted you to know she is seeing a holistic doctor. The doctor wants to do chiropractic on her reflex points - I don't know if that would really help her and somehow doubt it, but I'll have another consultation with her just to find out more. You're great to be so concerned.
In Reply to: Re: Thank you, Rich! posted by Wendy on March 11, 2001 at 15:14:13:
AK is a GREAT tool but is not 100%. It is possible that she may STILL be sensitive to those things. It is best to TRY to avoid what you can. The stool test would be great because you can identify EXACTLY what strains of bacteria are going on and you will know what remedies will erradicate them. The lab tests HER specific bacteria with natural and prescription remedies to see which ones do the best job of killing it. This could take a lot of guess work out of it. Maybe if you explained to her how important this test is, she may be willing to do it. It could mean the difference between a speedy recovery or a lengthy road with hits and misses. Sure, you can give a general treatment for dysbiosis that will eventually work but it takes longer than targeted treatment. Just a thought. I figure, she has to go anyway, all you need to do is keep a little of it each day and put it in the vile. It really isn't TOO difficult (then again, I am not 11 :))
Rich
In Reply to: Dr. Stoll? posted by Rich 1 on March 10, 2001 at 12:04:02:
Hi, Rich 1.
I stand ready to be educated.
I was born and raised on a large dairy farm and, with my medical training, thought I knew this backward and forward.
Whey is the fluid that leaks though cheesecloth when one is making any form of cheese. How that would filter out much (any) of the protein is presently beyond me.
My medical training tells me that no one could eliminate milk allergy (which could be to either the lactalbumin OR the casiene, OR a combination of both) without eliminating the whey.
The lactose would not trigger any form of allergy since the immune system only makes immune complexes (antibodies) to protein structures or parts of protein structures (peptides).
Help?
Walt
In Reply to: Re: Dr. Stoll? posted by Walt Stoll on March 12, 2001 at 08:30:10:
nmi
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