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Hi,
my doctor thinks my Coxsackievirus 'relapse'feelings could be related to my heart.
As I mentioned before, I often feel lots of physical nervousness, any little noise or movement seems to be able to release lots of adrenalin. I also often feel like I had 20 cups of coffee or something (I never drink coffee though). I can often feel and hear my fast heartbeat. I have breathing problems, sometimes almost intoxicated feelings in my head. I'm tired and exhausted and stressed out by every little thing.
I'll get some more blood testing done tomorrow, including thyroid, coxsackie titer, immune status and minerals..
My doctor also refered me to a cardiologist who is supposed to do an echocardiogram for me on Monday. I don't know anything about heart disease.
Dr. Stoll, can you tell me please what you think about my symptoms?
Is there anything particular that I have to take care of now? I mean like ask for some more heart testings?
How much physical activity is okay? Can I do SR? I bet I can, right? Should I stay away from work for a while?
I'd appreciate any comment on heart diseases, so that I can take care of everything. All I know is that coxsackievirus B can cause myocarditis, but I still haven't understood how severe this is and if it can be detected at all and if one can do something about it.
I checked the archives for echocardiogram but found only something about MVP which I didn't really understand.What can an echocardiogram show? I read that the myocardits (??) can't really be detected anyway.
I'd VERY much appreciate any information. Thank you so much in advance.
Sabine
PS: June and Leon, I replied to your posts further down. 8/6/2000
In Reply to: Dr. Stoll, Paulette?? Questions regarding heart disease posted by Sabine on August 08, 2000 at 08:36:12:
Hi Sabine,
I've been following most of your posts and here are some houghts:
You are getting sucked into the familiar cycle of symptoms, tests, then medications, then side-effects, then more tests, etc. etc. You seem to be going in all directions and wanting to take care of everything all at once. And in the meantime you become frustrated, fearful and full of anxiety - which, of course contributes further to your physical deterioration.
So, STOP, get quiet and look at your life and your options. Then see what needs to be done first and do one thing at a time. Skilled relation is number one, eating healthyly can be just cutting out ALL soft drinks, junk food, processed foods and instead concentrate on whole foods (Vollwertkost). Just simple food that hasn't been alterned. Can include fish and chicken, eggs, if you like - preferably organic.
I'm German (been here for 40years) and have a question: Have you heard of the Austrian herbalist Maria Treben(now deceased)? She is one of my favorites. I have several of her books (in German and English) and I have used her suggestions over the years with much success.
Her formula for Swedish Bitters sold by Nature Works (the owners of which incidently have a pharmacy in Homburg near my hometown - I guess it's still there...?) has been my steady companion for at least 20 years. I make it myself from the herbal mix (cheaper) or sometimes buy it ready made by the Quart if it's on sale. SB is a superb general tonic for the liver and very effective for any kind of stomach upset. It tastes horrible (bitter), but my husband and I are so used to it we take it straight...make a face and laugh saying: anything this bad HAS to be good for you :-) (You can read more about it's origin in her books.)
HAIR LOSS: I noticed you mentioned this in another post. I have used the following lotion with success on myself and my husband.
On page 39 in her book "Health from God's Garden" under Hair Growth - Burdock Rinse, Ms. Treben gives directions for a solution using burdock root. It's a little time consuming so I've made my own (successful) adaptation:
(Note: If your healthfood store sells burdock in bulk it will be much cheaper but the burdock tea bags will work also, just more expensive.)
Get some Burdock tea, empty a bag into a cup of cold water and let stand overnight. Next morning heat gently, simmer for a few minutes and strain. Let cool and put into one of those plastic bottles with a tip on it (from hair color applications). I apply this to my hair after shampooing and towel drying. My husband applies it every day. I did, but my hair has gotten so thick now that I only do it once a week. (My hairline was receding dangerously!)
Recently we took a two-week trip and didn't take the lotion with us. My husband commented (and showed me) that his comb was full of hair again. When we got home he resumed the treatment and his hair stopped coming out.
I don't guarantee this will work for everyone, but why not try it, it's so cheap and can't hurt.
I am a "regular" on the board but since I have not had most of the problems discussed here, I don't contribute that much. To me the right food is everything but it has to start early in life and these days even babies guzzle down soft drinks and feast on processed foods. It's very disturbing to see our population get fatter and sicker in the midst of all this plenty and availability of healthy food. It seems hopeless. Because the food industry will always try to make more money - as it should be in a capitalist society - and junk food is just soooo seductive. And the young tpically won't listen. But maybe you will...who knows?
Hope this helps some
Viel Glueck (good luck)
Rosemarie
In Reply to: Re: Dr. Stoll, Paulette?? Questions regarding heart disease - my thoughts and suggestion for hairloss posted by Rosemarie on August 08, 2000 at 11:36:23:
Thanks for your advice Rosemarie.
There is actually a book of Maria Treben at my parent's house. I'll try to get it. Would be nice to get rid of the hairloss. I want to mention though that right now I'm more concerned about the rest of my body.
Did you want to suggest that I don't go for testing my heart? I know Coxsackievirus is the number one cause for myocarditis and love to rule that out. I' also curious about the blood test results.
The symptoms could, of course, be psychosomatic. I dealt, however, with severe anxiety and panic attacks 10 years ago and whatever I feel presently feels a lot different.
Why do you think I don't have a structure in my 'health planing'? I'm reading the SR book and think it's possible to get a blood test done at the same time. I'm slightly starting to eat better food.
Although I don't like my situation I'm still suprised that I haven't freaked out more about it yet. This can still happen though. I don't understand what you mean by 'get quiet'. I ask many things very quickly this might give the impression that I'm panicking !?!
One more thing is that everybody here as different suggestions and I try to listen to everybody...so maybe this makes me look like I'm going in many different directions. Somebody else who's reading this might think now...oh now, she's concerned about her hairloss not her heart. This is not true. I'm just trying to listen and answer to your recommendation which was about hairloss not heart.
Hope this doesn't produce any misunderstanding. I'm grateful for your hair advice.
Danke!
Sabine
In Reply to: For Rosemarie posted by Sabine on August 08, 2000 at 13:24:07:
Hi Sabine,
1. I am so sorry for sounding somewhat caustic in my previous post to you. I just spent the last hour reading some of your earlier posts - especially the ones explaining the coxsackie virus and now have a much better understanding of what you're up against, and your concern for your future health. I had heard of this virus but did not really know much about it. I also was not aware that you were living in Germany - thought that you were a German going to college here in the USA. One just never knows where people are from. By the way what's wrong with your English - it's perfect!
2. Did you ever find the Ester C? If I'm not mistaken, then Wal-mart is now in Germany, right? Try them. I often get my Ester C from there.
3. I comment you for taking your recovery into your own hands (with the guide of a good doctor, of course) and getting informed about your illness. That is one of the most important steps in getting well. I learned that when I was just 14/15 and my Mother, age 40 at the time, woke up with Rheumatoid arthrits (Polyarthitis) one morning. She was nearly paralyzed. Went to the hospital for a month and came home with a handful of cortisone pills (which caused terrible side effects, including swelling of her face). The doctors predicted she'd be in a wheel chair within 6 months.
Determined to prove them wrong she sought the help of a dear old lady who owned a local health food store and who herself had overcome a severe illness. I'll make this very short: My Mother started to drink juices, eat lots of salads, etc....got better, and throughout the years managed to keep her illness under control with the help of many different and sometimes quite unusual alternative treatments. This was my own introduction to the wonders of alternative medicine. We children (brother, sister and myself) all played right along, eating huge salads and drinking juices. I learned first hand what a change in eating can do. Later she added other things, like massages, magnetic therapy, oxygen therapy, Frischzellentherapie (the kind you had where they draw blood, oxygenate it and inject it back into the veins) and many more over the years. She played tennis throughout her life till age 70. She died at age 76.
3. You may also be familiar with the name Johanna Budwig. Her extensive research into the immune enhancing properties (Interferon type) of Quark (sort of like cottage cheese here in the US, but much tastier) mixed with flax seed oil (Leinoel) is well known but more controversial in Germany than here. I've provided a link to more info for you. Read about it and see if this might fit into your health plan.
I do a lot of alternative things, myself but more for prevention than any health problems. I do believe however, that a healthy diet is VERY IMPORTANT (I've followed much of Dr. M.O. Bruker's Vollwertkost for years but with addition of chicken and fish.) Is he still living, do you know of him. He must be in his 90's by now. I think you'll just have to try different things and see what happens. Not everyone responds the same way. Don't ever get discouraged orgive up. Somewhere there is a cure.
Well, it's getting late here and I'm going to stop.
All the best, and if you have any other questions I'll try to help as best as I can.
Rosemarie
In Reply to: For Sabine and others who may be interested posted by Rosemarie on August 09, 2000 at 00:10:49:
Hi Rosemarie,
thanks for your reply. I'm glad you don't see me as a confused hypochondriac. My doctor thinks the viurs could have really a/effected my heart, but I'll see on Monday at my visit to the cardiologist.
I just called Wal-mart (we have them,yes), they don't have the ester-C, so I'll order from the internet. If someone has a favorite brand, they could tell me, otherwise I'll just order from somewhere.
Do you remember more of the alternative medical treatments your mother tried? I think what I got was not oxygen therapy. They just shot back my own blood with something like Echinacea.
Well, Quark with Leinoel seems something easy to add to my food stuff. I'll read the link. I've never heard of J. Budwig, neither of Dr. Bruker. Is he/she German, too?
I very much liked your mother's health story. Wonderful how she managed her disease. Rosemarie, thanks for your encouraging words. As I might have mentioned before, although I don't know what the future will bring and this virus seems to be able to do nasty things, there's a calm spot inside of me (most of the time) and I'm sure this spot wouldn't be there anymore without this BB, without the hope that wellness can help, without all the encouraging words and advice from people who have experienced similar things themselves or know someone close who has (like your mother).
I appreciate it a lot.
1000 Dank,
Sabine
In Reply to: Dr. Stoll, Paulette?? Questions regarding heart disease posted by Sabine on August 08, 2000 at 08:36:12:
Hi, Sabine.
Tests cannot harm you; they are only expensive.
However, it seems to me that your docs are hearing hoofbeats in KY and looking for zebras instead of horses.
Your tests (after thousands of dollars of tests) will come out "anxiety". Even if they find what they are "suspecting" there is no treatment that is not more dangerous than the condition.
One of the things we learned in medical school (and I am sure this fact has not changed in 40 years) was that: "If the results of any test will not change your treatment, that test should not be done."
NOTHING you have said here is life threatening and you would be wise to do something about the anxiety, and see what that does for your symptoms, rather than do all these "tests". What harm can come from doing the SR---no matter what the diagnosis?
Walt
In Reply to: Re: Dr. Stoll, Paulette?? Questions regarding heart disease - my thoughts and suggestion for hairloss posted by Rosemarie on August 08, 2000 at 11:36:23:
Thanks, Rosemarie.
Good stuff. I cannot add anything to it!
Namaste`
Walt
In Reply to: Re: For Sabine and others who may be interested posted by Sabine on August 09, 2000 at 05:30:18:
Hi Sabine,
I'm very surprised that the German Wal-mart stores don't have the Ester C. But you know, sometimes the people that answer the phone don't understand what you're asking, or they don't realize that this is plain vitamin C but just in a different form. If I were you I'd personally go there (if it's convenient) and look for myself. It's a little hard to spot sometimes but usually among the other vitamin C. I think it's by Sundown (can't remember right now and just threw away my bottle a few days ago). Sometimes you just gotta look for yourself :-) However, it IS, of course, quite possible they don't carry it over there. Let me know.
I'll answer your other questions a little later when I have more time.
all the best
Rosemarie
In Reply to: Re: For Sabine and others who may be interested - Ester C posted by Rosemarie on August 09, 2000 at 09:39:43:
Rosemarie,
you might be right, the guy on the phone didn't seem very bright or interested. He said,however, that they don't have any American supplements in general, only some American food stuff.
Walmarts is not that close to where I live and right now I spend most of the time in bed and feel too weak to go there. Do you think the stuff you can order from the internet isn't good enough?
Danke, bis bald
Sabine
In Reply to: about German wal-marts posted by Sabine on August 09, 2000 at 09:57:21:
Sabine, Internet ordering is fine - I do a lot of that, as well. You should have no trouble - just be sure to compare prices..they vary greatly. I have a standing account with www.vitaminshop.com. But I don't know what companies ship to Germany.
I do hope you feel better soon. By the way Dr. Stoll's answer to you earlier is what I was trying to convey also -he just said it better...and with much more authority :-)
Rosemarie
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