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Relationship of Dysautonomia, Bracing and Feeling Cold?

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Relationship of Dysautonomia, Bracing and Feeling Cold?

Posted by
Richard [5135.2385] on February 07, 2006 at 10:00:30:

After reading many of the archives on dysautonomia, bracing and other subjects I've been wondereing about the relationship between dysautonomia, bracing, and feeling cold. I know I'm someone who gets cold very easily when I relax, so I think some of my bracing issues might have to do with that because I feel myself tightening up much of the time in response to being cold, and staying in the fight or flight response because I'll get cold if I relax (and often putting on more clothes doesn't do any good after a point, I feel warm or even hot on the outside but still cold on the inside.

I've had some of the dysautonomia symptoms for at least five years, and I know that although warmth often triggers them, they have been in general much less in the summer when it's warm all the time, which I always thought was strange because I would go out on a sunny 60 or 70 degree day in the spring and then get terrible itchyness, tingling and burning when I got warm, and then go out in a 90 degree summer day and get hot and have little problem. For several years when my problems were less severe I would feel almost completely better in the summer, although once I started getting many other things like digestive problems they continued as bad in the summer as any other time. My question is do you think this predictible "remission" of some dysautonomia symptoms during the summer only to get worse again when it got colder could be due to less bracing during times when it's warm all the time?



Re: Relationship of Dysautonomia, Bracing and Feeling Cold?

Posted by EarthMother [2659.1137] on February 07, 2006 at 14:50:54:

In Reply to: Relationship of Dysautonomia, Bracing and Feeling Cold? posted by Richard [5135.2385] on February 07, 2006 at 10:00:30:

Most of the dysautonomia folks I know are miserable in the summer because we can't tolerate the heat --- and while we can layer on clothes in the cold ... there is only so much you can take off :-)

I am intrigued by the bracing/cold thing though as well. If I get too chilled on the way in to my office, even staying on top of my space heater won't subside my POTS symptoms.

Good luck on your healing journey.
EM

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Re: Relationship of Dysautonomia, Bracing and Feeling Cold?

Posted by opinion [202.2515] on February 07, 2006 at 14:55:24:

In Reply to: Relationship of Dysautonomia, Bracing and Feeling Cold? posted by Richard [5135.2385] on February 07, 2006 at 10:00:30:

have u ever been tested for hypothyroidism?



Re: Relationship of Dysautonomia, Bracing and Feeling Cold?

Posted by
Richard [5135.2385] on February 07, 2006 at 15:36:22:

In Reply to: Re: Relationship of Dysautonomia, Bracing and Feeling Cold? posted by opinion [202.2515] on February 07, 2006 at 14:55:24:

Yes I am slightly hypothyroid and have started taking a glandular extract, which has helped with the feeling cold significantly, but it still comes sometimes, specifically after eating certain foods, soy does it to me and also causes other symptoms, even the fermented soy that's supposed to be not as bad, as well as other things in larger amounts such as corn. I just noticed that the bracing, and thus the dysautonomia, seem to be exascerbated by cold, and hot weather seems to lessen it if it's warm all the time even the night. I also think clothes are part of the issue, I always make sure to wear shorts if it's above 60 or 65 degrees out and I'm doing any activity, even if I have to put on a jacket on top, it's just that when I'm wearing long pants and warm up quickly all the heat just seems to build up down in my legs and turn into itchy and burning sensations. I think summer clothes are much more cunductive to releasing heat and moving it around my body. Chinese herbs have helped with these symptoms significantly, as well as vitamin b12 but I don't think they've made any long term change in my body, the symptoms come back with a vengeance if I don't have the herbs for even a short period. I'm glad I found this website and hope the SR makes a difference over the coming months, I hope it's really true that something like that that costs nothing to do works as well for me as for some of the testimonials I've read. I also ordered some magnesium glycinate, I had heard about magnesium before and tried it with no luck but now realized by looking at the archives on this site that Iit was pretty much worthless because I had been using magnesium oxide and citrate.

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Re: Relationship of Dysautonomia, Bracing and Feeling Cold?

Posted by Walt Stoll [93.1889] on February 08, 2006 at 07:23:50:

In Reply to: Relationship of Dysautonomia, Bracing and Feeling Cold? posted by Richard [5135.2385] on February 07, 2006 at 10:00:30:

Richard,

How long have you been doing certified SR at least twice a day?

You KNOW that ALL of your symptoms begin in the hypothalamus and must be addressed at that level. If you are not convinced of that, read Dr Pelletier's classic MAH,MAS.

Walt



Re: Relationship of Dysautonomia, Bracing and Feeling Cold?

Posted by
Richard [5135.2385] on February 08, 2006 at 18:44:45:

In Reply to: Re: Relationship of Dysautonomia, Bracing and Feeling Cold? posted by Walt Stoll [93.1889] on February 08, 2006 at 07:23:50:

I know the hypothalamus is where it begins, but I was just wondering why the seasons affect it so much, is the hypothalamus stronger in the summer than the rest of the year which would have made my symptoms less? As for SR I've just been doing it since I found your website and it hasn't been certified because I don't know how I would do it without paying huge amounts for a machine, and I know I get most of the responses listed in the relaxation response in the glossary, and feel way different during and after I do it. Also, I saw my acupuncturist today for the first time in about a month (since before the SR) and she said compared to what she normally sees in that period ot time my muscles have relaxed a lot, especially near the surface although are still tight underneath. Maybe it's the SR or maybe just that I'm more aware of how I am with regards to the fight or flight response, when I never even considered that before, it's interesting to feel my stomach jiggle a bit while walking sometimes, I used to always hold it so tightly in that it never did that.



Re: Relationship of Dysautonomia, Bracing and Feeling Cold?

Posted by Walt Stoll [93.1889] on February 09, 2006 at 07:40:47:

In Reply to: Re: Relationship of Dysautonomia, Bracing and Feeling Cold? posted by Richard [5135.2385] on February 08, 2006 at 18:44:45:

Thanks, Richard.

Sounds like you are heading in the right direction. I have seen a few people that, even thoiugh they were doing everything right took several years of diligent practice--all the while gradually improving--to function anywhere normal.

Hope this helps.

By the way, a good GSR machine doesn't have to be expensive. Search EBay or the like and find a good used one and then, when you have figured out where you are, sell it the same way.

Walt

Walt



Re: Relationship of Dysautonomia, Bracing and Feeling Cold?

Posted by EarthMother [2659.1837] on February 09, 2006 at 10:26:09:

In Reply to: Re: Relationship of Dysautonomia, Bracing and Feeling Cold? posted by Walt Stoll [93.1889] on February 09, 2006 at 07:40:47:

How do we know what a "good one" is? I have a GSR BIOTOUCH moodlight (has lights and tones together) from Sharper Image and it "seems good". That is I can relax and make the tones go down ... then think of something really stressful and the tones go way up. But it doesn't react to things like pressure or other movements. Which seemed like a good thing to verify it was really GSR that it was testing.

What do we look for in a good GSR device?

EM



Dysautonomia, Bracing and Feeling Cold? Archive in biofeedback.--good GSR?

Posted by Walt Stoll [93.1889] on February 10, 2006 at 07:01:32:

In Reply to: Re: Relationship of Dysautonomia, Bracing and Feeling Cold? posted by EarthMother [2659.1837] on February 09, 2006 at 10:26:09:

Thanks, Earthmother.

How much did it cost? 20 years ago a good one cost in excess of $300 but they have come down in price just like computers, etc. What you are describing sounds pretty good to me.

Walt



Re: Dysautonomia, Bracing and Feeling Cold? Archive in biofeedback.--good GSR?

Posted by EarthMother [2659.1137] on February 10, 2006 at 09:20:58:

In Reply to: Dysautonomia, Bracing and Feeling Cold? Archive in biofeedback.--good GSR? posted by Walt Stoll [93.1889] on February 10, 2006 at 07:01:32:

I picked it up a few years ago on their 'deep discount' (overstocks) sale -- so I am guessing it was REAL cheap ($20ish).

Most of the books came in that I orded this week -- including the relaxation workbook and I've been testing the device with the APPLIED RELAXATION exercises and it seems work fine.

Problem is even though I 'get it' while I am meditating or practicing with the device ... I've noticed I quickly go back to bracing within minutes if I do not bring my awareness back. So most of the day I still brace.

Next step STICKERS all around for visual queues.

Still waiting for your book, it's the last to arrive from my amazon order!

Salubrious!
EM



Re: For Walt

Posted by Steven [280.62] on February 10, 2006 at 15:26:34:

In Reply to: Dysautonomia, Bracing and Feeling Cold? Archive in biofeedback.--good GSR? posted by Walt Stoll [93.1889] on February 10, 2006 at 07:01:32:

I think she is describing this one (link at end) Is it good?






Re: Dysautonomia, Bracing and Feeling Cold? Archive in biofeedback.--good GSR?

Posted by Walt Stoll [93.1889] on February 11, 2006 at 07:31:14:

In Reply to: Re: Dysautonomia, Bracing and Feeling Cold? Archive in biofeedback.--good GSR? posted by EarthMother [2659.1137] on February 10, 2006 at 09:20:58:

Thanks, EarthMother.

In the beginning, benefits are very temporary. With persistance, though, the benefits begin to last longer until, within an average of 12 months, they are present all the time. THEN, the longer you keep it up the more intense those permanent benefits become.

Walt

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Re: For Walt

Posted by Walt Stoll [93.1889] on February 11, 2006 at 07:49:48:

In Reply to: Re: For Walt posted by Steven [280.62] on February 10, 2006 at 15:26:34:

Thanks, Steve,

Of course what matters is the circuity inside that enigmatic black square. Might be good.

Walt



Re: For Walt

Posted by Steven [280.62] on February 11, 2006 at 09:09:46:

In Reply to: Re: For Walt posted by Walt Stoll [93.1889] on February 11, 2006 at 07:49:48:

But how would one know what's in there tho?

THe link I provided is about as detailed as you can find about the machine.



Re: Dysautonomia, Bracing and Feeling Cold? Archive in biofeedback.--good GSR?

Posted by baby bliss' mum [4.1399] on February 11, 2006 at 21:29:01:

In Reply to: Re: Dysautonomia, Bracing and Feeling Cold? Archive in biofeedback.--good GSR? posted by EarthMother [2659.1137] on February 10, 2006 at 09:20:58:

do you also find that after meditation, during the day, it's like your bodymind makes you even more aware of when you are "bracing", than if you hadn't meditated at all????
Meditation makes one more aware.

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Re: For Walt

Posted by Walt Stoll [93.1889] on February 12, 2006 at 07:07:34:

In Reply to: Re: For Walt posted by Steven [280.62] on February 11, 2006 at 09:09:46:

Steven,

No way to know except by having someone electronically knowledgeable dissect the thing and then having someone knolwledgeable about biofeedback and the tolerances to give an opinion.

Walt



Re: For Walt

Posted by Steven [280.62] on February 12, 2006 at 12:45:23:

In Reply to: Re: For Walt posted by Walt Stoll [93.1889] on February 12, 2006 at 07:07:34:

So then it's a waste to buy one then since it'll cost more to get all that done to verify.

Is there any brand that you DO recommend?



Re: For Walt

Posted by Walt Stoll [93.1889] on February 13, 2006 at 07:37:10:

In Reply to: Re: For Walt posted by Steven [280.62] on February 12, 2006 at 12:45:23:

Steven,

For somebody like you, buying a used one, and then reselling it when you no longer need it, would not only be helpful but VERY inexpensive.

Since it has been 20 years since I have purchased one, I am no longer an expert in brands.

Walt



Re: For Walt

Posted by Steven [280.62] on February 13, 2006 at 12:43:00:

In Reply to: Re: For Walt posted by Walt Stoll [93.1889] on February 13, 2006 at 07:37:10:

Then who is the expert in brands?



Re: For Walt

Posted by Walt Stoll [93.1889] on February 14, 2006 at 07:10:53:

In Reply to: Re: For Walt posted by Steven [280.62] on February 13, 2006 at 12:43:00:

Steven,

Back when I was still practicing, I took samples to an independent lab and had them tested.

That is too expensive for anyone not practicing medicine.

If you have a Naturopath with a healthfood store, you might ask her.

Walt

Follow Ups:


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