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Perimenopausal Disautonomia...is there hope?

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Perimenopausal Disautonomia...is there hope?

Posted by
Elaina [7859.8054] on August 27, 2009 at 13:32:53:

I have read as much as I can of the threads and found them a bit confusing. I see the references to the book but find there are multiple books so I am not sure where to go for information!

5 years ago I became pregnant with my first child at the age of 31 after years of trying and a few miscarriages. During that pregnancy I developed gestational diabetes that became standard Type 2. A few months prior to that pregnancy I was sick with Epstein Barr. After the birth of my son I was more tired, had some post partum depression, etc...then I unexpectedly became pregnant with my daughter the following year (my children are 15 months apart). After the birth of my daughter my health seemed to take a turn down the drain.

I was face down tired and could not concentrate, brain fog to the point of tears, dizzy etc...and no one could find an answer. Finally, two years ago my gynecologist figured I was not always ovulating an put me on an oral progesterone pill. I took that for about a year but it still did not fix everything. Last March (2008) my GP tested me for low thyroid sure that this was my problem as my skin had gotten rough and dry, my hair was like straw, and I was exhausted. My tests came back "normal" but I thought we were onto something and started researching thryoid...after convincing him that maybe I had subclinical levels, he agreed to try me on a low dose of levothryoxine. To everyone's surprise I got much better. But I wanted to try armour instead and so we switched me over and spent a month or two trying to adjust the dose. All seemed well, my anxiousness and worry were manageable, the fatigue was gone, I was finally able to start losing some weight. Then it all went wrong again.
Last June, I was sitting at home with my family keeping our son up late as he was about to have a surgical procedure and we were trying to make sure he ate and drank all the way to midnight. I turned my head to say something to my husband and suddenly I felt this odd wave pass thu my body and an overwhelming feeling something was horribly wrong. My heart rate shot up and I couldn't get it to calm down, I checked my blood sugar, it was normal. The waves of ill feeling wouldn't let up so my husband took me to the ER where my heart rate was 110 and my BP was 150/100 (normally I am 117/70). This episode seemed to just go one for hours. They gave me a lorazepam, told me Id had a panic attack and sent me home. I didn't quite buy it but then I was feeling better so I went home and nothing more happened...until 4 weeks later almost to the day. I had another incident but milder. Then two days later I wound up in the ER from work...heart rate 110 BP 170/100. This time they caught what was a "slight surpression of the upper wave" on an EKG. I was sent to a cardiologist and had an Echo and then a stress Echo. All was fine and they offered me propanolol for the occasional racing heart I kept experiencing. I said no thanks. When it kept happening along with facial flushing and nausea, they started working me up for endocrine problems and also pheochromocytoma. Again, all clear except my thyroid was elevated during these episodes and I was the one who figured out they were happening during the time I should be ovulating.

Finally I was dismissed as having an anxiety disorder and given lorazepam to take. I took the lowest dose and not everyday. It was not a whole lot of help. I started going to a naturopath and we discussed possible adrenal fatigue. I cut out caffeine, refined sugar, and incorporated a load more veggies. At this point, I was also having horrible insomnia, my legs would get shaky while doing yoga poses, and I would cry on and off uncontrollably. Then in October, I started getting regular acupuncture along with the dietary changes and I seemed to be doing (cautiously) a lot better. Then my father died very tragically and unexpectedly in the beginning of November and all went south again. I started having regular panic attacks, legs shaky, insomnia, etc...During all of this (and before he died) I was also noticing that I would get these feelings as if the back of my brain was shaking in my head...like a tremor or muscle tension. This mostly occurred as I would lie down to sleep or upon waking. I was also getting all of the perimenopausal symptoms of feeling like a shock was running through my head, my period changed. I started keeping a symptom diary.

I started therapy for anxiety as I really started to develop a health related fear...something was wrong with me but no one was listening. I was having more headaches and neck pain and stiffness, my sex drive was (and is) non-existent, hard time concentrating, etc...Then in December I started going numb in the left side of my face (all of my problem symptoms are predominantly on the left side). I would get pain down my left arm into my hand, chest pain, my left hand would burn and tingle. I was sent for an MRI of the brain and head/neck CT. It was found that I have some arthritis in my neck (old car accident) and c5/c6 there is a slight disc protrusion putting slight pressure on the spinal cord...but the big one was that I have a borderline Arnold Chiari Malformation with a 4mm herniation. I thought this was then the answer and was off to meet with neurosurgeons. I am lucky to live fairly close to 3 of the top Chiari surgeons. I was told I was not a candidate for surgery, that my symptoms were not bad enough, and one surgeon even said he couldn't rule out a lot of my symptoms being anxiety. So I was back to square one only more devastated. It does seem like certain symptoms are intermittent and peak at particular times in my menstrual cycle. No one seems to think I should be too worried even though I feel awful most of the time and my quality of life has taken a turn to the worse.

I lost my job (for which I was thankful) and that did ease some of my physical symptoms but not all of them. Now I gt occasional runs of symptoms where I feel like I cant take a deep enough breath without physically contorting myself to raise my ribcage. Bowel issues where I am now only eliminating once a day despite a fairly healthy diet. A feeling as if I have a slight flutter in my chest but it feels more like the muscles of the chest wall as opposed to the heart. I have lost about 70 pounds in the past year. I still cannot sleep well through out the night. I have TMJ. I will lay down to sleep and my body will shake uncontrollably or an arm or leg will jerk every few minutes. I just feel like something is not right and I want to get well. I came upon your site by accident. I tried to follow the threads on this subject but could not decipher which book to get and found some of the posts were not there anymore. So here are my main concerns:

1) Can I get better or has this gone on too long?

2) How serious is the prognosis on this and what should I be looking at with my docs?

3) How long will it take to recover if recovery is possible (which I think it is...I have to believe that given I have small children who need me!)

Thank you for any time and information you or anyone else can share.

Elaina


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Re: Perimenopausal Disautonomia...is there hope?

Posted by Elaina [7859.8054] on August 27, 2009 at 13:35:43:

In Reply to: Perimenopausal Disautonomia...is there hope? posted by Elaina [7859.8054] on August 27, 2009 at 13:32:53:

Also, I am 36 and two of my doctors think I am in perimenopause but one does not. I appear to be ovulating occasionally and still having monthly cycles. Both my mother and grandmother have a history of female reproductive issues.


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Re: Perimenopausal Disautonomia...is there hope?--- Archive.

Posted by Walt Stoll [93.7937] on August 27, 2009 at 16:14:21:

In Reply to: Perimenopausal Disautonomia...is there hope? posted by Elaina [7859.8054] on August 27, 2009 at 13:32:53:

Elaina,

You are another classical example of perimenopausal dysautonomia. By far the best approach to this is the 3LS and it is up to you to educate yourself about this before starting on the program. I have spent the past 40+ years learning about this and make not one thin dime sharing this info with the public: books, Foundation and website! All this is a pure public service. The only problem is that each individual that needs it must educate themselves as to how and why to do it. The RYH book is the culmination of this process.

Let us know what you learn and there are many of us, here on the bulletin board, that can help you start getting results.

Walt


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Re: Perimenopausal Disautonomia...is there hope?--- Archive.

Posted by Elaina [7859.8054] on August 27, 2009 at 20:44:41:

In Reply to: Re: Perimenopausal Disautonomia...is there hope?--- Archive. posted by Walt Stoll [93.7937] on August 27, 2009 at 16:14:21:

Thank you...I really needed to know which book to look at out of all you have compiled. I kept seeing references to "the book" but then realized there were several so I didn't know where to start. I am all over this like Nancy Drew! I believe we all have not only a responsibility to heal ourselves also the ability. I feel like I have been attacking it the right way with diet and life changes but some pieces have been missing. I will read the RYH book and come back. Again, thank you!


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