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dysautonomia-is anyone familiar with this???

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dysautonomia-is anyone familiar with this???

Posted by
Stacy on July 13, 2001 at 12:43:08:

Hi! Sorry to bother you again, but I had a couple questions regarding your last response and I wanted to see if anyone else was familiar with this...
You said the girl I was talking about before not only has dysautonomia but a generalized inflammatory musculoskeletal condition, where can I find more info. on this? You also said if she doesn't do something radically different, "this is as good as it gets," She has very aggressive physical and occupational therapy right now, what else should she be doing? I'm sure she'll be more than willing to try... If you know anywhere I could get more information on all of this it would be great, then I wouldn't have to keep bothering you. Thanks again! Have a great day!!! God Bless!
-Stacy
By the way, if anyone else knows anything about dysautonomia or knows someone who has it, any insight you can give me would be great, I have a friend w/it, she's 17. There is a message from July 9, describing her condition.



Re: dysautonomia-is anyone familiar with this??? (Archive in wellness.)

Posted by Walt Stoll on July 15, 2001 at 09:37:12:

In Reply to: dysautonomia-is anyone familiar with this??? posted by Stacy on July 13, 2001 at 12:43:08:

Hi, Stacy.

Since SHE is the one who will have to do it, she needs to be the one learning this. YOU can only do so much to help.

Use the glossary for any unfamiliar terms. Use the search engine for the expansion of any terms. Use the archives for dysautonomia, fibromyositis, chronic fatigue symdrome, stress storage in the hypothalamus, wellness, SR, etc.

Have her let us know what she learns. Unless she is willing to learn, there is NO WAY she will ever actually DO what is needed since THAT would take a lot more work than the learning.

If she is NOT willing to learn, just love her as she is. Her future (sicker) life will need a lot of loving support.

Walt



Re: thanks Dr. Stoll

Posted by
Stacy on July 15, 2001 at 22:33:39:

In Reply to: Re: dysautonomia-is anyone familiar with this??? (Archive in wellness.) posted by Walt Stoll on July 15, 2001 at 09:37:12:

Hi!
Just wanted to say thanks again for all your help! I know you are tired of hearing from me, but I think I miscommunicated a point... my friend is definitely willing to learn and get help. All she wants is to get better! The only reason I'm on here getting info. and not her, is because she is in a hospital bed barely able to walk. She's only 17, as am I, and she's busy trying to make the doctors understand what she's going through so they can help. I'm sure if she knows there's another option, she will do whatever she can! That's why, for now anyway, I'm trying to get info. and understand this (even if I can't help her, it's easier for me if I understand a little better) I will keep your advice in the back of my mind though and remember that she has to do the work and I can't get in the way... Above all, we know that God is taking care of her. Obviously he has blessed you, with such a caring heart to help all these people. Thanks again! Have a wonderful day! Prayin for ya :)
-Stacy



Re: thanks Dr. Stoll

Posted by Walt Stoll on July 16, 2001 at 10:56:13:

In Reply to: Re: thanks Dr. Stoll posted by Stacy on July 15, 2001 at 22:33:39:

Thanks, Stacy.

Serious wellness is her solution. See the archives, glossary and search engine for information and the homepage for a free protocol.

Have her let us know how she does since her experience will serve as an inspiration to others just being miserable at home for years.

I would be happy to answer any questions as you both learn.

Namaste`

Walt

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