Dysautonomia historical posts July 1998

Re: Labrynthitis-Help!

Posted by Laurie on July 15, 1998 at 19:28:05:

I have been diagnosed with labrynthitis and have had it for about 6 weeks with no signs of it getting better. I have some chronic problems with my neck on the same side as the labrynthitis. Although, my neck feels pretty good right now, is there any possibility that something could be pinched or pressing on something that affects my ear? Also, is there evidence of allegies to St. John's Wort? I was taking it for about a month before the dizziness. (Although I had been having ear irritations for a few months prior to that). Another symtom I've been having is spots in front of my eyes. They look like little black dots and also began a few months ago (before taking the st. johns wort)Any help or info would appreciated. Thanks



Re: Labrynthitis-Help!

Posted by Walt Stoll on July 16, 1998 at 11:05:06:

In Reply to: Re: Labrynthitis-Help! posted by Laurie on July 15, 1998 at 19:28:05:

Dear Laurie,

Resubmit your note with Doc Dave in the title since I am sure he can help with this.

Also, do you have TMJ? If you are not sure about what I am talking about, look at notes about this on this bb this week.

Finally, a Cranial Osteopath could likely resolve this in a couple of visits. Use the archives to find articles about C.O. and how to find a good one close to you.

In the long run, you will likely find that you have been "bracing" and need to discharge the storage of the stress-effect from the hypothalamus to prevent this from recurring.

If you need to know what I am talking about, let me know & I can refer you to easily understood references.

Walt



Re: Labrynthitis-Help!

Posted by Becky on July 29, 1998 at 11:32:01:

In Reply to: Re: Labrynthitis-Help! posted by Walt Stoll on July 16, 1998 at 11:05:06:

Was checking internet for more info on labrythitis and noticed your message board. . .diagnosed over 2 wks ago still experiencing the weird dizziness. . .no trauma brought this on, but I noticed you mentioned TMJ which I do have. Can TMJ cause it and how much longer will this go on? Would wearing a night guard help? Thanks so much for replying if you have time.



Re: Labrynthitis-Help!

Posted by Walt Stoll on July 30, 1998 at 13:02:55:

In Reply to: Re: Labrynthitis-Help! posted by Becky on July 29, 1998 at 11:32:01:

Dear Becky,

TMJ is probalbly the most common cause for this condition becoming chronic. Wearing a night guard is possibly the least likely thing that would help but it does help some people.

Breaking the habit in the daytime AND wearing the guard at night would help a lot more.

The most reliable help for now would be Rolfing, Cranial Osteopathy, or Chiropractic. If that is all you do the problem will probably recur in the future.

I can understand your wanting immediate relief, though.

Walt



Re: Labrynthitis-Help!

Posted by laura on July 30, 1998 at 13:50:36:

In Reply to: Re: Labrynthitis-Help! posted by Walt Stoll on July 30, 1998 at 13:02:55:

My osteopath diagnosed my labrynthitis about 1 month ago when I woke up one morning with terrible vertigo and a low-grade fever. Since that time, I have had good days and not-so-good days. Because my jaw is so tight, my osteopath has referred me to a dentist who specializes in TMJ--for a workup.

Exactly what kinds of things precipitate and how does one resolve this condition? I was surprised to learn that Antivert is primarily an antihistamine...I too am curious about whether or not my illness is related to allergies? An environmental toxin? Stress?

Any information would be appreciated.


Re: Labrynthitis-Help!

Posted by Walt Stoll on July 31, 1998 at 11:07:09:

In Reply to: Re: Labrynthitis-Help! posted by laura on July 30, 1998 at 13:50:36:

Dear Laura,

There is no doubt that your TMJ is contributing to this. HOWEVER the vast majority of dentists know practically nothing about the causes & their treatments cause more damage than they do good.

One would hope that any osteopath would know if the dentist knew what he was doing but, in my expereince, even most osteopaths do not know.

Any Cranial Osteopath would likely know since TMJ tends to lock the skull bones in place & Cranial Manipulation cannot be done.

Total body bracing is the cause of TMJ. Without dealing with THAT, any "treatment" of TMJ will be futile.

Look on the FAQ page of this 'site and do what it says for temporary relief of the TMJ habit. You can get some relief that way. Getting a deep, total-body, therapeutic massage 3 times a week for 2 weeks would do you a lot of good and a series of Rolfing would give you relief for at least months. Chiropractic may even give you temporary help.

Only the regular practice of skilled ralaxation will permanently resolve this and it will take you months for relief if THAT is all you do right now.

Walt



Re: scleroderma/CREST syndrome

Posted by Maureen N on July 31, 1998 at 13:02:22:

In Reply to: Re: scleroderma/CREST syndrome posted by Walt Stoll on July 17, 1998 at 11:05:51:

My Aunt has crest syndrone she is attending Albany Med Ctr. in N.Y. for treatment. The doctors put her on zestril, indur, adalat, coumadin, lasix, ultrane. She has not much heart muscle left, she has difficulty swallowing, her fingers are blue with brown patches of sores, and are very hard and cold. The doctors told her that her fingers will eventually fall off. She is 02 dependent. We herd about stem cell transplant.
Would you please tell us a about it? We are not sure we are doing everything right for her, and is ther anything more we could do. Is there a specialist in our area that specializes in crest syndrone that she could see?


reflux and arrhythmia

Posted by shane lippard on July 17, 1998 at 13:41:51:

My wife has recently experienced several arrhythmias the last one
being rather severe causing her heart rate to reach apprx.
230 beats per minute. She was admitted to ER briefly and has just
visited our general practitioner who has prescribed a blocker
to correct the arrhythmia. Strangely though, the arrhythmia
"attacks" just started ocurring when she began having stomach
problems which was diagnosed as an ulcer and prescribed an
acid blocker. Could the stomach problems be reflux (GERD) and
could the reflux aggrivate the vagal nerve that would cause the
arrhythmia? By the way...she is 29 years of age and our GP
says she is too young and in too good of health to have an
ulcer, hiatal hernia, etc., etc, Thanks.


Re: reflux and arrhythmia

Posted by Walt Stoll on July 18, 1998 at 09:45:12:

In Reply to: reflux and arrhythmia posted by shane lippard on July 17, 1998 at 13:41:51:

Dear Shane,

Your GP cannot REALLY be that ignorant.

By the way, what your are describing for her heart is NOT an arrhythmia but a dysrrhythmia. Any competent physician knows THAT too.

She has an early case of dysautonomia and all of these conditions are related. Both of you need to read a book that was written about her. Once you have it under your belts, you will have the tools needed to protect yourselves from the exploitation of the conventional medical monopoly. If she does not learn this, she will serve as a comfortable annuity of the conventionally trapped docs who are exploiting the public's anxiety linked to their lack of knowledge. Both of you will spend the rest of your lives trapped in her downward spiraling "poor health".

Read the most recent edition of Dr Pelletier's classic: "Mind as Healer, Mind as Slayer". THEN, if you still have questions, write again.

Walt



Re: dysautonomia

Posted by Renny Cohen on July 22, 1998 at 16:54:12:

I am a 27yr old women with Familial Dysautonomia and i would like to know if you could help me please. I would like as much information on this as possible, so i can help myself as well as others.

Thank you for your time and helpfulness.

From Renny Coehn


Re: dysautonomia

Posted by Walt Stoll on July 23, 1998 at 14:06:19:

In Reply to: Re: dysautonomia posted by Renny Cohen on July 22, 1998 at 16:54:12:

Dear Renny,

Very likely. This just puts you at the bottom of the Bell Curve for this bodymind function. ALL of the human genome project is now teaching us that we are not trapped by our genes--that ALL genetic expression is modifiable by understanding what we can do to enhance THAT particular process.

Start by reading Dr Pelletier's classic: "Mind as Healer, Mind as Slayer". Re-read it if needed and then again if needed. Once you understand it pretty well, write again with any questions you might have & let's get going with this.

Walt



Re: dysautonomia

Posted by Dorothy on July 23, 1998 at 21:13:53:


Dear Renne

I would be glad to share information with you on dysatuonomia. I also know of some great web sites on this disorder. Please email me at Graduatesv@aol.com


Re: scleroderma/CREST syndrome

Posted by Tara McMonagle on July 27, 1998 at 09:31:50:


My father has CREST Syndrome, the doctors do not seem to know much about it is there something he can do, his hands bother him a lot and his face does as well. At night he has trouble breathing. He used to smoke but he quit about 3 years ago when he found out about the disease. please write with any information you may have. thank you for your help.


Re: scleroderma/CREST syndrome

Posted by Walt Stoll on July 28, 1998 at 14:05:25:

In Reply to: Re: scleroderma/CREST syndrome posted by Tara McMonagle on July 27, 1998 at 09:31:50:

Dear Tara,

He needs to do 2 things:

A. Go to the library & read anything he can get his hands on about DMSO.
B. Learn about "wellness" and practice it religiously.

As he improves, please have him share his experiences with the BB.

Walt



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