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Dr. I have been on your site for the last 2+ hours looking for all the different symptoms I could find. I came here as I am very worried about my fiance. She suffers from many of the symptoms I see here and than some. This would not be so unnerving if her incompetant doctors could give her any answers at all. Needless to say she is fed up with doctors alltogether as she never gets answers just "come in for more poking and prodding if you don't mind."
We have both had mono in the past and we both suffer some of the symptoms mentioned here but her MUCH worse than I. Searching the web produces studies that make little to no sense to me and trying to search this site can produce thousands of posts when maybe a simple list of some known symptoms would help us arm ourselves a little better. Some of the the many symptoms she suffers from include:
1) Nausea after eating
2) SEVERE migraines(thanks for the tip on how to ease those!!!!)
3) Violent mood swings
4) Energy one minute and the next zombified.
5) Pink spots all over her body(yes they fade, but she knows when they are there as they feel warm)
6) Minor acne breakouts
Maybe I should let you know that she does have an ulcer and recently it was discovered she has an anuerism(sp?) that is situated in a place she is to afraid to let them do anything about. I jokingly refer to her as my walking wound and generally try to keep her spirits up. Many of these symptoms do not seem to occur when we go out and just have a good time as opposed to when she goes to work and has a bad day. I insist that it's the stress (the ulcer didn't show up until after her father died two years ago in an accident and her condition got worse from there.)
She has also been diagnosed with a condition I can never remember the name of but it attacks the immune system so that everytime she does get sick it gets severely weakened. I figured that would probably leave her very vulnerable to EBV. She is very stubborn and doesn't like to go to anymore doctors on a whim. She is sick of hearing how eye of newt and wing of bat can ease her pain. In a lot of ways I can't blame her, but you seem to have a good handle on this from what I've seen here. Looks like your book may just be what her doctor should have ordered and I may be looking into it should she prove to have EBV. In the meantime do you think you could compile an list of symptoms you know of or heard of for this condition? It would help us understand all the things she may be able to get rid of with say, meditation. Thanks for your time, sorry for the long post.
In Reply to: A list of symptoms of EBV? posted by Paul on June 18, 1999 at 15:52:35:
Seriously - sorry to hear of your fiance's health problems.
I've looked around a bit on the web for a list of EBV symptoms. I found one interesting site - linked below.
Walt may be able to help on this, but I'll be surprised if a list of symptoms is really the 'right' approach. Seems to me that your fiance has ALL symptoms of a complete lack of wellness, so comparing what she has with a list for EBV will not be enlightening.
The big question is "What she is really willing to do to become well?" You can search for information for her, but SHE must understand and must DO what is needed to get well. And this will be a long-term process (life-long!) There will be no going back to her old habits, without expecting old symptoms to return.
She sounds to me like a perfect candidate for Walt's 3-legged stool of wellness, as tailored for her current situation, of course. Consider getting Walt's Health Coaching for her. It would be easy/cheap compared to her current battles with the doctors.
Walt: have you considered setting up the Walt Stoll Health Spa for people like this. Instead of just doing health counseling with fax, email, and phone, how about making an arrangement with some hotel near where you live and set up a week-long program of patient education, deep-body massage, chiropractic, etc. using the hotel meeting room and local health practitioners. Take a week off in Walt's Health Spa and come back literally a different person! :-)
The only thing I don't know what to do about is all the potential sun exposure there. Guess you could do the education and other scheduled stuff during the peak sun times and let the person run around outside only in early the AM (a manditory walk on the beach each AM before breakfast might do Wonders!) and in the late afternoon.
Food! - You would need to pre-arrange to supply all food suitable for their metabolic type - or perhaps they could do the e-diet while they were there. And somehow they must agree to eat only what you supply them and totally eliminate all other junk food while they were there. That might be a challenge! :-)
If you have a spare bedroom, and live not tooooooo far away from the beach, you could start small! :-) This would put a whole new spin on a sunny, wild, uncontrolled Florida Beach Vacation!
Food for thought!
In Reply to: A list of symptoms of EBV? posted by Paul on June 18, 1999 at 15:52:35:
Hi, Paul.
WHERE IS HER ANEURYSM? This is important because it could kill her & conventional medicine is her only hope for this. This is an example of "not throwing out the baby with the bathwater". Conventional medicine is good for some things.
This is another example of the terrible damage conventional medicine's desperate clinging to their monopoly has done. Your friend has discovered that conventional medicine has not a clue about why she has her other symptoms or what to do about them. She has extended this to "nothing they do has value" and that is not true.
While we are disposing of THIS concern, my book IS a good place for her to start. However, as soon as she has THAT under her belt, she needs to read Dr Pelletier's classic "Mind as Healer, Mind as Slayer". This book was written about her and the only reason I suggest my book first is for her to more quickly & easily put that information in perspective. She could also read Herbert Benson, MD's book "The Relaxation Response" and Hans Selye, MD's classic "The Stress of Life".
To make things short, her future wellness is on this 'site. I wish we had a good search engine to make it easier for her but if she spends the time, she will see why she has to do what she has to do.
In the meantime, WHAT POSSIBLE GOOD IS IT GOING TO DO HER TO PROVE WHETHER SHE HAS CHRONIC EBV OF NOT? Is it going to change anything she needs to do? Conventional medicine has not a clue what to do and ONLY by dealing with why she has it will resolve it and all the other symptoms she has.
It is going to do NO good to list any of the symptoms due to EBV since most of them are caused by the causes of EBV susceptibility and NOT from the EBV anyhow. ANY chronic condition that has ANYTHING to do with any immunologically related condition will have very similar symptoms.
THEN, when she has the above under her belt, when she still has questions, write again.
In the meantime, the one thing I know she will have to do is the regular practice of SR at least twice a day for 20 minutes for the rest of her life. Might as well get started with that!
As she gets vigorously healthy, I hope she will remember to share her experiences with the BB participants. Others deserve to know that they do not have to live like this.
Walt
In Reply to: Re: Eye of Newt! Why did I not think of that! & the Walt Stoll Health Spa? posted by RocketHealer Jim++ on June 19, 1999 at 05:04:35:
Hi, RocketHealer Jim.
You would be amazed with the experiences I have had with this very thing AND the knowledge I have of others with my level of expertise doing the same thing.
For example: Evarts Loomis, MD, considered the "father of holistic medicine in this country" had "Meadowlark" in Hemet, CA for about 20 years. He developed from his practice of holistic medicine into exactly what you are describing. THEN, although it was perhaps the most successful center in this country for reversing chronic conditions & teaching people how to continue their program at home, AND in spite of about a million dollars in contributions and voluntary patient support, it finally failed financially. It was NOT poor management. It is just that, to do it right, it costs at least as much as one can reaasonably charge participants.
When I practiced in KY, a holistic spa opened in the woods about 10 miles from my Centre. I visited it at its opening and regularly contributed my time giving lectures to the "inmates". It was advertised in all the best Magazines (Harper's, etc.) It was able to struggle on for about 5 years & finally failed financially. It was also doing as close to what I think needs to be done as any center could.
I even bought an 80 acre woods overlooking the pallisades of the KY river (450 feet straight down) to develop such a center. Then I spent all my money defending myself from the harassment of the licensing board and had to leave it.
There are people in my community who keep asking me when I will consider doing something like this. Some of them are retired healers in their own right who would do it for the "treasures more precious than gold" like I do.
However, there would have to be at least a dozen different modalities available and one of them would have to be an expert whole foods cook who would be happy to learn how to cook whatever each individual needed.
This kind of center has been a dream of mine for years. However, it would have to be financed by someone who realized that the investment would probably return nothing but those "treasures".
There is a center in KY right now that is bankrolled by a billionaire woman who has enough to keep something like this going indefinitely. It is called Fox Hollow (outside Louisville). She has too much old money & contacts for the licensing board to attack her (yet). She flies in MDs from all over the country to do what is needed. A couple of years ago she had me there to give a seminar.I went early to spend a half a day touring the facility so I knew what I was talking about. When it came time for me to speak I could hardly talk. I was so choked up with having just seen what I would have done had the licensing board not done their dirty deeds. She has more than 1000 acres dedicated to the center and has patterned it after the famous European Spas. She is building 2 holistically inspired communities of 1000 homes on one side & 500 homes on the other. The holistic healing center sits in the middle as the center of it all. I am sure you don't want me to go on. There are many more examples.
I can't go on. Tears keep me from seeing the screen.
Namaste`
Walt
In Reply to: Re: Eye of Newt! Why did I not think of that! & the Walt Stoll Health Spa? posted by Walt Stoll on June 20, 1999 at 13:03:06:
Walt, I'm soooooooooo sorry to bring up such a sad subject for you. I did not mean to make you feel sad in any way. Perhaps it is time to stop feeling bad about what might have been (Grandiose) and to figure out something that could be done today/tomorrow, however less than complete in every respect.
You have soooooooo much knowledge and experience in this area. Would be nice to at least share it with someone(s). Several things come to my mind:
1) Is there a way we can "send" people to these "right-minded wellness places? Via recommendations, etc. ??? I've not looked at the resources in the back of your book to see if you list such places/resources there. Either way, if you can name the places, we could rather easily compile such a list/directory somewhere here, perhaps in a new page linked to the Glossary, to keep your/Bill's efforts minimized.
2) Knowing what you do about what NOT to do, is there a way to actually do something, starting very limited, that would be financially viable? I'm sure you've thought about this at length already and it might be too painful to even think about again.
You said, "to do it right, it costs at least as much as one can reaasonably charge participants." OK, is there a way around that or thru that? Perhaps you deliberately limit your clientelle to those who can PAY!
About mega-bucks financing, is there a way, on the cheap, to help some rich sick folks get better? They might be VERY appreciative.
Guess I keep focusing on people with MONEY, rather than the masses, yearning to be well again. Your and my focus is on Service, as it should be. But sometimes you have to serve those with the $$$$. You may disagree with me on this, of course.
Again, sorry to make you feel bad. I was really (only) trying to help.
RocketHealer Jim++
In Reply to: Re: The Walt Stoll Health Spa? So SORRRY! posted by RocketHealer Jim++ on June 20, 1999 at 17:01:58:
Walt,
Just wanted you to know I share your pain and frustration. It is so difficult to understand why things have to continue the way they are when people are not being served in the best way by conventional medicine. I can't help but think that in the end the establishment will slay itself because of its obsession with controlling healthcare in this country. I hope you and I are still around to see it happen. We are all victims.
I had no idea there were so many of these health spa ideas that had cropped up where holistic treatment was offered. That in itself is encouraging to me. If I were a billionaire I would enlist you to help start a center for the maintenance of good health. Did you ever get the info I sent you on the Van Allen Institute, in Michigan I believe? What were your thoughts?
Thank you for your unselfish contributions to this site.
Johnelle
In Reply to: Re: The Walt Stoll Health Spa? So SORRRY! posted by RocketHealer Jim++ on June 20, 1999 at 17:01:58:
I know, Jim.
You don't have a mean bone in your body. You would never deliberately hurt anyone. I REALLY do appreciate your thoughts.
I guess I am now saying that I have burned myself out trying to do this as the mover & shaker of the project. From here on in, I will be happy to be a consultant and to do what I know how to do within such a center. I would LOVE to be involved with something like that.
I located my centre in Lexington in the north end of town bedcause there was only one other physician there. All of the hundreds of docs in that town were located in the south end so as to be near the people with $$$. All the poor people were in the north end and they had to go all the way to the south end for ANY medical services. Even all 4 hospitals were in the south end.
I KNOW about trying to serve the needy. I was the only doc that would accept Medicaid in the first town in which I practiced conventional medicine.
HOWEVER, people that are just struggling to survive, from day to day, are not the best people to approach with more work (helping themselves get healthy). At first, till such a center was up & running securely, we would HAVE to focus on those with $$$. Those who REALLY got healthy, would then be more likely to help their communities, back home, provide this kind of education. By being our brother's keeper, we are indirectly helping ourselves. The community is just a macrocosm of the same stuff that has to go on inside our bodyminds. WE CANNNOT BE TOTALLY HEALTHY IN ISOLATION.
Making sense?
Walt
In Reply to: Re: The Walt Stoll Health Spa? So SORRRY! posted by Johnelle on June 20, 1999 at 18:21:43:
Yes, Johnelle, I got the Van Allen stuff.
I got about 1/10th of the way into it & it brought up all the stuff just posted. I just couldn't bring myself to think about it any more. Sorry.
What I did see was encouraging. If it had not been, I would have better have been able to go through it all.
Walt
In Reply to: Re: The Walt Stoll Health Spa? So SORRRY! (Philosophy archive?) posted by Walt Stoll on June 21, 1999 at 12:30:01:
Walt: I did not mean to suggest that I hurt your feelings deliberately. Some things hurt too much to ever bring up if one understands the other's history/sensitivity.
Like you said, I suppose it is time for you to just participate instead of planning/leading some things.
Soooooo, I guess it may be up to *ME* to plot/plan/schedule/implement the First Annual Wonderful Wellness Weekend With Walt (and others) at a beach resort somewhere near you.
Let's have an unofficial show of hands: who would be interested in participating (as a participant and/or as a speaker/demonstrator/therapist somewhere there on a weekend (or a week if that makes more sense) at a hotel (with cooking facilities) or condo with speakers/practitioners like Walt, perhaps a Biofeedback expert with equipment to test your SR at beginning and end of the weekend, a Rolfer or a theraputic massager. What other expertise would we need to make it cover enough ground to justify a trip there? I say speakers, but I'm really thinking of also including sessions for each individual by the logical practitioners, so a lot of practitioners would be needed if a large group signed up.
Perhaps folks could send Walt their medical history beforehand and get their Health Coaching in person.
If one's Metabolic type could be determined (perhaps with a questionaire?) beforehand, then each person could be given a shopping list and a meal plan upon arrival for their food/meals for the weekend. That way Walt's wife would NOT have to cook for 500 :-)
Think about it folks. Could we do this? Who would be there? When would we do it? I'm thinking off-season for much better hotel rates (but that may be the LEAST of the considerations). But school being in session might cut out too many folks. You could come as a family, but only have some family members participate in the WWWWW, if that made sense to you.
No need for a permanent "facility". Just an organizer, practitioners, and participants. If successful, the formula could be taken on the road around the country and perhaps even the world.
An idea: Should RocketHealer Jim++ be on the program?
You know that if this gets organized, I'll do my darndest to be there! Of course, if I organize it, I'm definitely there!
RocketHealer (Barnum and Bailey?) Jim++
In Reply to: Re: The Walt Stoll Health Spa? I need a WWWWW show of hands! posted by RocketHealer Jim++ on June 21, 1999 at 13:49:08:
If Walt did a weekend/seminar/spa/whatever, I would go!
In Reply to: Re: The Walt Stoll Health Spa? I need a WWWWW show of hands! posted by RocketHealer Jim++ on June 21, 1999 at 13:49:08:
Dear RocketHealer Jim.
You bring tears to my eyes. Wouldn't this be a wonderfully effective weekend? Most people need at least 2 weeks to have something they can take home for permanent use.
If experiential presentations were emphasized and lectures minimized, this might be possible for a 3 day weekend. It would really take a concentrated effort to organize things.
If people knew ahead of time how to organize their history and brought a tape recorder for the session, I could do some good spending the whole time doing HCs. The biofeedback guy would need to bring a lot of machines to keep busy the entire weekend teaching people (for $) and still do the pre & post tests you suggested. The SR person could easily teach groups with different approaches for people to find their best method.
Given enough money, a whole foods team of cooks could demonstrate that whole foods really taste a lot better than what we have been led to think of as food. They could have classes to teach interested people how to do it and even offer the opportunity for them to assist with the preparation of the meals so as to learn hands on. Of course, recipies for all foods would be printed for participants.
Plenary sessions for "Attitude Adjustment could be given. How-to sessions for the e/diet etc., with plenty of time for Q&A, would be worth while and handouts would give people protocols for when they go back home. Many possibilities here but the time limitations would have to dictate. People can only be in one place at a time.
There could be professionals like Rolfer's, Reflexologists, Chiropractors, Aromatherapists, Masseurs, etc., that could give basic presentations early in the 3 days & give individual sessions (for pay) the rest of the time.
For an untried endeavor like this, any hands-on professionals would have to do individual sessions for pay to get them to come. Once the system was established, this would still be helpful but not as essential.
RHJ. You are biting off a big chunk. Walt's wife doesn't cook.
Namaste`
Walt
In Reply to: Re: The Walt Stoll Health Spa? I need a WWWWW show of hands! posted by Walt Stoll on June 22, 1999 at 11:48:13:
Thanks Walt, for commenting on this.
It was, of course, a trial balloon. The fact that so few people even responded tells me right away that there is NOT enough interest right here to support such an endeavor. Of course, many people here are NOT regulars, and the regulars hail from all over the country, if not the world. So I'm not surprised by the response, or the lack thereof.
I think you have a good point that the "professionals" would need to be there to offer individual sessions for pay. In a three-day event, there would be only so many time slots that could be booked. So.... a much longer event would be needed to "draw" the professionals.
I was just kidding about your wife cooking.
Something I ran into lately: When you realize that you are not doing something that you want to do, DO NOT ask/analyze Why? or Why Not?, but instead ask "HOW?" I think that applies in cases like this. How?????
And, of course, "If not Now, then When?"
In Reply to: Re: The Walt Stoll Health Spa? So SORRRY! posted by Walt Stoll on June 21, 1999 at 12:37:05:
Um, I just saw this conversation...I would attend such a weekend undertaking with great enjoyment.
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