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Hello im new to this barr virus. I was feeling tired and washed out all the time so i went to the doctors and i finaly found someone ( after many tries) that gave me a blood test and told me i had EBV.He told me that it was left over from when i had mono , only thing that puzzles me is that i had mono at 15 and i am now 34 so how can i have effects now. I have read the previous posts and have ordered Dr. Stolls book thru my local bookstore. My Question , if it wouldnt be too much trouble , could you tell me. is it all in my head like so many of the other Dr. like to tell me?. Im tired all the time and have no energy and except for this one Dr. who did the blood work, no one has said anything except that i need to sleep more and get more rest. What should i be a invalid? I don't want to stay in bed until im not tired , heck that may be a while. i would appreciate advice you could offer
Stephanie
In Reply to: Epstein Barr posted by Stephanie on February 26, 2001 at 19:31:29:
Hi,
There's a lot of info on this 'site about EBV and when I'm not rushing my child to school I'll write you back. Feel free to e-mail me. I had abnormal EBV titers when I explored my fatigue; mono at 18, chronic EBV at 40 or so.
Meanwhile, I implore you not to buy into any crap about this all being in your head. That seems to me an insulting cop-out.
Anyway, keep reading, e-mail me if you like, I'll jump in the BB discussion when I have the chance to do your questions justice - meanwhile relax, rest, read and get some Ester-C with bioflavonoids.
June
In Reply to: Re: Epstein Barr:Stephanie posted by June on February 27, 2001 at 08:20:32:
Thanks June i will keep reading and look forward to hearing from you.
Stephanie
In Reply to: Re: Epstein Barr:Stephanie posted by Stephaine on February 27, 2001 at 18:31:40:
Hi, Stephanie
The virus which causes Mono is the Epstein-Barr virus. Mononucleosis is an acute condition which needs medical attention. This virus is forever present in your cells after having mono. In some people their resistance becomes lowered (lowered immune function) and as viruses are opportunistic little beasts, if you are susceptible then EBV is one of the chronic health conditions you might get.
Your EBV is not directly the cause of your symptoms, your lowered immunity is the root of the problem and essentially the EBV saw its chance and joined the party. Doctors want to do labwork and x-rays, that type of thing, to find out what's causing your problem. Most of them don't check for things like impaired immune system or multiple chemical sensitivity or leaky gut syndrome. In your case and mine our doctor probably said, "Hmm, might be EBV, let's find out." It's usually trial and error in medicine. Often when a doctor finds an explanation that suits him/her, then they look no further.
Once the doctor detected EBV as far as he/she was concerned, the search was over. Some tell patients to just rest. Some prescribe anti-virals. I have heard from some people whose doctors have prescribed antibiotics (rolling my eyes here....).
If you have not already done so, go to the homepage where the articles are and read the one about Modern Medical Interpretation of Stress. Also, there is a Bell Curve of Immunity - some of us may be more susceptible to things than others. Conventional grocery store foods can come covered in pesticides & fungicides, filled with preservatives and artificial everything, and frequently processed to the point that the nutrients you need to digest them are absent. So if you think about Walt's philosophies, our diets can tend not only to be deficient in the needed nutrients, but are composed of ingredients that qualify as stressors (like the pesicides).
I hope you've dropped any thoughts that this may be in your head. Getting better can be hard work. The skilled relaxation Walt recommends serves a purpose; Walt opened my eyes to the effects of bracing and currently I'm seeing an osteopath who uses the exact same term. Think about your body and try to be aware of muscle tension: do you feel some? In massage therapy last year I was amazed to learn that I became tense in different areas when I thought of different stressful things. I began to pay attention to this. The bracing, especially total body bracing which I've experienced for a long time, can do terrible damage. SR is a tool to start undoing the damage. You can learn more about this at this 'site, and Walt's book is not only informative but quite the bargain.
I hope you come across some of the posts about IV vitamin C and oral C supplementation. Ester-C is easily absorbed and not harmful to the stomach. I have taken Ester-C to bowel tolerance to help with the viral symptoms. Once you're getting loose stools its time to back off on the dosage because that's an indication that the vitamin is no longer being absorbed. I have absorbed up to about 12 grams a day, then there have been times I apparently needed 4 to 6 grams. I'd encourage you to experiment with the Ester-C, perhaps a gram every hour or 2 grams every 3 hours; if you feel you're getting signs you don't need that much, just cut back a little. Take the C throughout the day.
Most Americans are magnesium-deficient (it is one of the minerals most often removed from our processed foods). I think just about everyone needs to supplement with magnesium; don't get magnesium oxide - not absorbed well at all. I'm in favor of taking calcium/magnesium 2 times a day. The same things don't always help everyone.
I have found that using an exercise rebounder (just put "rebounder" in the search box) to be extremely useful and for awhile it was the only exercise I could do. If you wrote a post asking people how they've benefited from bouncing on a rebounder (a mini-trampoline) you'd probably get a lot of enthusiastic answers.
The one thing that helped me to start getting better was getting a handle on the bigger picture. It was as if my health issues were this confused mess of a puzzle and the more I looked into things on my own, everything just made sense to me. I could see the picture instead of a pile of uncomfortable symptoms and what seemed like an army of doctors who specialized in treating body parts rather than people. I think its very hard work to get better; about 2 and a half years ago I could hardly go, slept all the time, had fevers and swollen lymph nodes, just miserable. Today I lifted weights and then shot some basketball (I was awful at it but it was fun). If you find you get better and then suddenly you feel worse again, that's just normal. Keep on trying.
Read on, and good luck. I did a health coaching protocol with Dr. Stoll and that's an option you might want to think about too.
June
In Reply to: Re: Epstein Barr - Stephanie long, more info posted by June.one on March 01, 2001 at 15:04:28:
Thanks, June.one.
Namaste`
Walt
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