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I've been reading about ebv on your site and I'm not a doctor but I don't want to feel like this anymore. I've been tested for Lupus, negative, and rheumatoid arthritis, sometimes ok sometimes above normal. I see a specialist every 3 months and am told it sometimes takes years to diagnose some of these diseases. I have two small children and I don't have years. I get so tired I literally can not function, I have fallen asleep driving sometimes, I get depressed, I have little sore throats off and on (I blame on allergies), and I have such muscle and joint pain that I get nauseous or get through the day in tears. I did have mono when I was about 9 and am now 28. When I tell my doctor how tired I get I'm told it because I'm a busy mother
and get more rest. Not all mothers feel like this and I don't see how this could be normal. Could I have EBV? Please help me, I can't do this anymore...
In Reply to: epstein bar posted by Tonya on July 12, 2001 at 20:40:23:
Your doctor needs to do a monospot test.
Personally, I think one of these tests should be routine any time someone complains of fatigue. It should be mandatory every when there also are the symptoms of sore throat, lymph node swelling, pains in the left side, and/or muscle and joint pain.
It's an inexpensive test - less than $5 the last time I checked. Public and individual health would benefit greatly if this inexpensive test was used more routinely, IMO.
I also believe that mono should be taken a lot more seriously than it is. It's definitely not something to ignore and push on regardless if one has it. It can develop into recurring and chronic mono. Sometimes it can set the stage for the developing of CFIDS (aka CFS - Chronic Fatigue Immune Dysfunction Syndrome/ Chronic Fatigue Syndrome). (A lot of PWCs - Persons With CFIDS - refuse to use the CFS label because it trivilizes the condition and makes it sound like fatigue is all there is to it. Sort of like calling diabetes Chronic Urinating Syndrome or calling pneumonia Chronic Coughing Syndrome. Descriptive of only one symptom of the disorders, and thus, not conveying how serious and how debilitating they are.)
Judy
In Reply to: Re: epstein bar posted by Judy on July 12, 2001 at 22:36:29:
Thanks Judy. I go back to my doctor on the 23rd and I am going to ask him about the test and tell him all the information I have found. I just gets to the point where you don't know what else to do. There are no visual symptoms a lot of times so it's like you are making it up or it's all in your head. The one thing I do know is the pain I feel is REAL very real, and my fatigue is putting stress on and affecting my whole family. Until now I felt like I was alone in this.
In Reply to: Re: epstein bar posted by Tonya on July 13, 2001 at 09:12:28:
In the meanwhile, continue learning all you can. And if your doctor won't take your complaints seriously, get a new doctor who will.
You're definitely not alone. Mono is a much larger health problem than many people realize. I suspect if there was an expensive prescription drug for it, doctors would take it more seriously and test more for it. As it is, there are no expensive drugs, only some very basic and common sense things that not only will put the mono into remission but will improve overall health.
Judy
In Reply to: Re: epstein bar posted by Judy on July 12, 2001 at 22:36:29:
Tonya,
If this monospot test comes back positive, what do doctors usually do?
I am a 40 year old active male, who has been affected by chronic fatigue, severe pain in the back of my legs, and low libido............only to have my FORMER doctor tell me she thinks I'm a worrier.
Judy, your condition is VERY real, and all I can say is SERIOUSLY evaluate your diet (we must eat EXTREMELY healhy based on this website) and other habits like stress and smoking.........remember you probably didn't get to where you are overnight.
Best of luck!
Rodney
In Reply to: epstein bar posted by Tonya on July 12, 2001 at 20:40:23:
1) you are going to the wrong type of doctor for this (i.e. allopathic). its like taking your airplane in to see a car mechanic. they dont know much if anything about your type of chronic condition. 2) even if it was mono or "ebv" they cant help you any way , and thats not the cuase of your problems anyway.3) you have "chronic fatigue syndrome" which is a misnomer- what it means basically is that your body has been "poisoned " over the years by things such as bad diet, STRESS!!( hypothalamus overload),drugs- antibiotics etc, possibly candida/leaky gut. the only way i have ever seen anyone overcome a bad case of this is to - a) eat a perfect diet( all whole foods- no sugar , refined, booze caffiene) b)skilled relaxation c) carefull exercise- light at first d)carefully pull out all poisons- candida, mercury etc e) revitalize the organs involved- adrenal glands, possible thyroid, clean out the intestines and then keep up the good work the rest of your life.
In Reply to: Results of Monospot test??? posted by Rodney on July 13, 2001 at 10:17:11:
If the monspot test comes back positive, most doctors will just tell the person to rest. A few know that vitamin and mineral supplements can help. The real help is to be found by doing research in the alternative medicine field and considering some basics like changing diet and lifestyle (like you mentioned.)
I want to say something about the symptoms you listed for yourself: Chronic fatigue, severe pain in the back of legs, low libido. These point very strongly to something called Kidney Yang Deficiency, especially the low libido. Other things can cause each of these symptoms, some having nothing to do with TCM (Traditional Chinese Medicine), but taken all together, they strongly suggest Kidney Yang Deficiency.
I'm going to list the common symptoms of Kidney Yang Deficiency. All or some may be present. The more that are present, the more likely Kidney Yang Deficiency exists. Yang warms and activates the body.
Severe fatigue. Is bothered a lot by cold and has trouble warming up. Tends to get worse in the winter. Breathing may be swallow with shortness of breath. Seldom thristy and prefers hot liquids when one does think. In extreme cases there can be an aversion to drinking liquids. Loose stools (though in some cases Yang Deficiency can manifest as Yang Deficiency constipation - more likely in severe cases and when Cold is trapped and accumulated in the lower abdomen). Urine will be clear and there will be a lot of it. This can be a person whom anything they drink will run right through them. Spermatorrhea may be present. In very extreme cases the hearing may be diminished. The person tends to move and talk very slowly. Movement also is weak. The memory often is poor and the person may become frightened easily. Edema is common though there may be a mixed edema/dryness pattern in cases of long-standing Yang Deficiency. In cases of long-standing and severe Yang Deficiency the person also will be extremely weather sensitive and/or prone to catch infections. Allergies and sensitivities can be a marked problem. Impotence, sterility, and low libido go hand in hand with Yang Deficiency. The state of the teeth may be particularly poor, and the teeth may be loose. The pulse usually will be weak and slow, and the tongue tissue will be very poor. The back often is sore and weak. Applications of heat and pressure helps the back. The knees may be weak and sore. Teh backs of the legs may be affected because of the close relationship between the Kidneys and the Bladder. (The Bladder meridian runs up the back and outer sides of the legs.) Incontinence may also be a problem because the Kidneys are too weak to supply the Bladder with the Qi it needs.
When Kidney Yang is Deficient, the Kidneys almost always are Kidney Yin Deficient though to a lesser degree and vice versa. Typically, this is a person who has trouble tolerating any extremes in temperature. If the K Yang Deficiency predominates, there will be more problems with cold than heat. If the K Yang Deficiency is particularly bad, temperatures in the 70s and even the 80s can be too cold for the person. But this is only seen in the most severe cases. Feeling sleepy a lot and needing excessive sleep also can be a symptom of Yang Deficiency. Hypo-glandular states are common in the Yang Deficient.
It's normal for Kidney Yang and Yin to decline with age, but not to this extent in one's 40s. The Kidneys also supply the Yang and the Yin for the rest of the body.
The herbal libido/ increase your sexual stamina and desire herbal supplements which are being sold include at least one herb which is a Yang tonic (increases Yang in the body) herb. The way these formulas are marketed and sold is very dangerous and irrespsonible. Most of the population don't need them and may be hurt by them. They can cause a relative Yin Deficiency and a host of problems. But, in the case of someone who actually is Yang Deficient, the Yang tonic herbs can be a godsend, increasing not only libido but energy, endurance, etc. and clearing up a number of symptoms linked to Yang Deficiency.
The class of herbs which Warm the Interior also get used in addition to Yang tonic herbs. Dried ginger is one example of herbs in the Warm the Interior class. This includes the ginger one can buy in the spice section of the supermarket.
Other TCM imbalances may also be present in an individual in addition to the Kidney Yang Deficiency and Interior Cold. These will need to be identified. The beauty of TCM herbal formulas is that they usually will treat everything at once.
Moxibustion will be used in acupuncture to increase Yang in the body. Certain acupoints used just in acupressure can improve the situation. Some foods - like shrimp - are Yang tonic in nature.
If you have a lot of the symptoms listed, you may want to start learning about Kidney Yang Deficiency.
Judy
Judy
In Reply to: Re: epstein bar posted by doc bob on July 13, 2001 at 11:19:07:
I have been suffering from what I believe to be EBV based on my blood test results and process of elimination....for 2 1/2 years now. I am 31, an overachiever, I realize, and for two years have re-adjusted my lifestyle to accomodate this virus. My so called "dirt diet" that I followed strictly for a year, did rid me of the symptoms of EBV, however, the moment I began to enjoy life a little, one cookie, maybe on New Years, or something ridiculous like that, everything came back...this never ending debilitating viral symptom. I refuse to believe that there are a few select individuals who are subjected to this virus because they are "bad"....choose to live a little, stress, ect. that our entire population subjects themselves to on a daily basis.....if that is the true cause then wouldn't this be an epidemic? Every single homosapien who has touched reifined sugar, carbohydrates, and refuses to drink their backyard daily is punished with this awful virus?
Comments? I am only looking for a cure and I already have adjusted my lifestyle and still suffer 2 1/2 years later with the symptoms related to the EBV virus and my life has stopped as a result. Can anyone help?
thank you
lisa fara
In Reply to: epstein bar posted by Tonya on July 12, 2001 at 20:40:23:
Hi, Tonya.
Of course it could be EBV. However, what difference does it make? Conventional medicine can do nothing about ANY of the diagnoses they are considering.
Serious wellness is your only solution to ALL or ANY of them.
See the archives about wellness and the homepage for a free protocol.
Let us know how you do.
Walt
In Reply to: Re: Results of Monospot test??? posted by Judy on July 13, 2001 at 13:44:48:
Thanks, Judy!
Walt
In Reply to: Re: epstein bar posted by Tonya on July 13, 2001 at 09:12:28:
Tonya, unless you have a very unusual doctor, I wouldn't get my hopes up. They just became more and more offensive when I tried it. They have little to offer you anyway unless they suggest physical therapy, which I found very effective. Other than that, I think Dr. Stoll's information is much more beneficial and they are things you can do for yourself.
In Reply to: Re: epstein bar posted by Lisa Fara on July 13, 2001 at 19:04:18:
Hi, Lisa.
You are still thinking in the allopathic paradigm we have all been brainwashed to think is the only way to think.
EBV is becoming MUCH more common and, at it's present increasing rate of increase, within 40 years everyone will have it. Is that epidemic enough?
There are genetic susceptibilities to the virus, to the dietary relationship to the condition, to the stress contributions, etc. If you happen to have one, or more, of these susceptibilities, YOU will be the "canary in the coalmine" for the rest of the population.
Hope this gets you thinking.
By the way, with all that you have done, how did you do with the SR (the most important thing) during this time? MY bet is that you did not do ANY of that "hocus pocus".
Walt
In Reply to: Re: epstein bar posted by Lisa Fara on July 13, 2001 at 19:04:18:
Hi, Lisa.
You are still thinking in the allopathic paradigm we have all been brainwashed to think is the only way to think.
EBV is becoming MUCH more common and, at it's present increasing rate of increase, within 40 years everyone will have it. Is that epidemic enough?
There are genetic susceptibilities to the virus, to the dietary relationship to the condition, to the stress contributions, etc. If you happen to have one, or more, of these susceptibilities, YOU will be the "canary in the coalmine" for the rest of the population.
Hope this gets you thinking.
By the way, with all that you have done, how did you do with the SR (the most important thing) during this time? MY bet is that you did not do ANY of that "hocus pocus".
Walt
In Reply to: Re: epstein bar posted by Lisa Fara on July 13, 2001 at 19:04:18:
Possibly, "the moment you began to enjoy life a
little...everything came back" was you body's way of telling
you not to go back to that lifestyle. I suffer from
CFS/Candida/depression and have been on a whole foods diet
now for some time. Every time I touch refined sugar,
carbohydrates, drink alcohol, etc. my body reacts to it in a
negative way: bloating, increased pulse rate, fatigue, etc.
It's my body's way of telling me, "You no longer need this."
Our bodies are not meant to take refined foods and alcohol.
Once you become attached to feeling good in your body, you
become willing to keep doing what it takes to keep it
healthy for the demands in your daily life. Eventually, you
will become "tired" of feeling tired and your perception of
what it means to "live a little" will change.
SUZIE
In Reply to: Re: epstein bar posted by SUZIE on July 15, 2001 at 10:39:22:
Thanks, SUZIE.
Your testimonial may well help others find their way.
Namaste`
Walt
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