Dear Martha,
ALL of your questions (and a lot you did not know to ask) are covered on this BB already. Use the search feature & read everything you can find aobut EBV, Chronic Epstein Barr Virus and the like.
THEN, if you still have questions, write again.
EBV is a FAD diagnosis that will no longer be used within 10-20 years. The virus is not likely to have any effect on your pregnancy. HOWEVER, the reasons you are feeling bad (and your titer is up) WOULD. The virus is NOT the cause of your symptoms. The cause of your virus is the cause of your symptoms.
It is interesting that the best book in the world for parents to produce the healthiest pregnancy and baby is "Every Woman's Book" by Dr Paavo Airola. He has demonstrated that both the father & mother need to begin preparing the quality of their sperm & egg at least 2 years before conception---and how to do it. His recommendations are EXACTLY the same as those we have been recommending for people with chronic EBV and chronic fatigue syndrome to resolve THEIR problems.
What do you think THAT means????
You can learn about my book by clicking on the link at the top & bottom of this page. It WOULD be a good place for you to start understanding this & what you can do NOW.
Walt
I myself am on Prozac 20 mg for EBV. My doctor said that the seratonin in the drug helps with fatigue. Maybe this would help your son too! I have had a hard time with my primary care doctors too, they all say that they don't believe in the EBV theory. I don't see how they can say that when the blood tests prove there is an abnormality in the body going on.
About a year ago I was really feeling lousy and had a bad cough which landed me in a hospital ER diagnosed with
mycoplasma pneumonia. On follow-up with my primary care he noticed I had an extremely high EBV titer (1100) and told me to rest!!! I had been so totally exhausted before this but they had never done blood work so I don't know how long I had the virus. After about 4 months I believe it went away, they didn't do any more blood work - just each time I went into the office and complained about fatigue they immediately assumed "Oh, you've got Epstein Barr". Well I went on a strict regimen of veggies and exercise and felt better. However twice more last year I had the same symptoms. Didn't bother going to the Dr. - knew what they would say. My reason for writing now is I have been on a great eating and exercise regimen but now am feeling like I have been beat up with a baseball bat every day. I PUSH myself to exercise aerobically 20-40 min 5-7 days a week and eat no fats, 3 veggies a day and 2 fruits and have been doing this since Jan 3. But this past week (Feb 22-28) I thought I was dying. I don't know what to do. The Dr. I went to last year told me at first it could be brought on by stress, then when I went back two weeks later was told stress had no relation to the onset of the virus. PLEASE HELP. I have just found this BB so I have never heard of your book but certainly would like to purchase it if I can get it in a book store. I am very leery about buying things over the Internet. Any help you can give me would be greatly appreciated.
Annsport
In Reply to: Recurrence of EBV posted by Annsport on March 01, 1998 at 15:53:49:
Ann,
While your are waiting to hear from Dr Stoll, I would suggerst you search everything on this BB on EBV, Whole foods and relaxation. On the home page there is wonderful information as well. I would question my doctor if he counterdicted himself about stress breing the onset of EBV. I know if you search the BB about EBV you will begin to understand why you became a victim of this virus. As for Dr Stoll's Book, I fell it is a must I was so impressed I purchased 8 to give to others who are searching for a soulation to better health. If you check the link DR STOLL'S BOOK ypu will find the info on ordering. You do not order it directly over the internet. You have to call them.
Shelly
Dear Lisa,
What books, recommended on this 'site, have you read?
What did you get out of "all the BB notes you read"?
At age 13, you cannot expect your son to learn why he feels the way he does. YOU have to do it. However, HE is the one who has to learn the skilled relaxation technique, and practice it at least 20 minutes twice a day (never within 2 hours of bedtime). What else is he doing with his time anyhow?
Unfortunately, at age 13, he would probably sooner suffer than learn something new. The least likely time for anyone to learn this technique is from 11-14.
THIS VIRUS IS NOT CAUSING HIS SYMPTOMS! The same complex of causes that allows his "titers" to be up are what are causing his symptoms. If you could magically remove the virus from his body, he would feel exactly the same. I can hardly conceive that you read very much about this subject on this BB and not at least learn that much. If you have, you really must be on the wrong BB.
There are NO experts on EBV, only experts in a viatlistic paradigm of healing since that is the only way he is going to do something about his condition. A GOOD Chiropractor, Naturopath, Ayervedic Practitioner, Chinese Medicine Practitioner, Homeopath, etc., would be of more help than the allopathic practitioners you have seen so far. ALL approaches to healing (EXCEPT ALLOPATHY) are vitalists.
If I have not made you too angry to think yet, I would suggest you read just ONE of the books recommended on this 'site: "Mind as Healer, Mind as Slayer" by Dr Pelletier. You would soon begin to understand what you need to know to resolve this.
I can sympathize with your frustration about all the information that is out there. The proof of the pudding is what works. 99% of what I am aware of, out there for lay people to read, is like the blind men trying to describe an elephant by feeling his tail, trunk, legs, side, ears, etc. They are not seeing the forest for the trees.
I am not here to make you like me. I know what works and the difficulties you are facing with a child of this age feeling this way. Only by your seeing the forest will you deal with this. At his age, you are going to need lots of love & luck.
If you get past your present block, please do not hesitate to write again with your new understanding & any questions you might have from THAT perspective.
Walt
Dear Pam,
Don't get hung up on names & FAD diagnoses!!!!!
Read "Mind as Healer, Mind as Slayer" by Dr Pelletier. He wrote it about you.
THEN, with this essential knowledge under your belt, I would be happy to answer any further questions you might have right here on this BB.
Walt
Dr. Stoll,
I have been searching for an answer for two years. I have been ill for two years following the birth of my daughter, I had a post partum fever and from there went down hill. I had a breast infection while breast feeding, and a possible uterine infection, after they were cleared up I never felt really better. When my daughter turned two I developed chronic hives, my doctor calls and tells me I have Lupus, I didn't even know what Lupus was so I read in an old medical book (very outdated) and I am an emotional basket case. My doctor sends me to a rheumatologist and he comes up with nothing but a low anti nuclear antibody, and says there are a number of things it could be, but I'll have to wait for more symtoms before he can do anything. Needless to say waiting for your health to improve or worsen is a stressful thing to go through, I had two anxiety attacks and he tried putting me on prozac and xanax. I never took the prozac, the zanax helped ease some worry. I went in after all this took place to see him about a bad bout of hives, and he said he heard mono caused chronic hives, he tested me for EBV and it came back positive. He hasn't said what to do or what I can do to feel better, I have several symtoms that come and go I have muscle pain in my chest and I will have sometimes yellow phlegm when I cough, pelvic pain that comes and goes I will get cold sweats, sore throats, headaches, etc My question is are all these symtoms EBV? I live in a very small town and the doctors here seem to think it's all in my head , but I know how I feel, also do I need to find a doctor in a bigger town to help me through this, or can I do it on my own? I am 27 , and I was always a very active and very healthy person until I had my daughter is there any hope?
Feeling alone in a small town, Lee
In Reply to: Dr Stoll, Can you help me? posted by Lee on March 02, 1998 at 14:20:57:
Lee,
While you are waiting to for a respond to Dr Stoll I thought I would write and share with you. It is not all in your head. I heard that for more than 10 years. I would sugesst you start Searching here on this BB and read everything you can about EBV, Strees and immunity. Dr Stoll's book is a wealth of information. Reading the BB andthis book would has given me a great peace of mind. Your hives is just another way of your body telling you it is over stressed. As far a having a doctor from a small town or not I think it is most important to educate our selves. Find a doctor who has the smae principles as you. Do you want to treat your symptoms or do you want to find the cause of the symptom.
You will also fell much better about your health once you start reading and learning that you can be in control of your health and the outcomes.
Happy Reading
Shelly
my 11yr. old daughter has just been diagnosed with epstein bar. she has been sick for about 7 weeks now. her main symptoms have been severe fatigue and severe pain in her lower right quadrant. her pediatrician is doing a ct scan tomorrow to see if anything is going on with her appendix. my question to you is, does pain in this area go along with ebv? why would she get this? she did have mono 2 years ago, would that have anything to do with it? also, i would like you to know that she has had an upper & lower gi, abd.
& pelvic ultrasound, and alot of blood & urine tests. her white blood count was 6000 but it is now 7750. her immacurate is 14.
In Reply to: Recurrence of EBV posted by Annsport on March 01, 1998 at 15:53:49:
Dear Annsport,
The only way you will kick this is for you to become an expert in WHY you have it.
It is interesting that you make no mention of the regular practice of skilled relaxation which is, BY FAR, the most important component of any wellness program that will resolve this.
Although MY book will help you more about what to DO about this, there is a book that was written about you (which explaines, in depth, exactly why you are feeling the way you are) that IS more easily obtainable in bookstores: "Mind as Healer, Mind as Slayer" by Dr Pelletier. If you cannot get enough assurance that I am for real by reading stuff on this BB, you might as well have the bookstore order you a copy of my book. It is about 200 pages with about 50 pages of references & resources to learn as much as you need to resolve most chronic conditions. Tell them that prepayment is required. It will cost you more and will take a lot longer to get it but one must do what one is comfortable with.
Walt
In Reply to: Re: Recurrence of EBV posted by Shelly R on March 02, 1998 at 09:34:45:
Dear Shelly,
I appreciate your note. Sometimes things other people say make a bigger impression than anything I can say.
Thanks, Walt
I have been diagnosed with EBV and also have a positive ANA, my tests were also negative for the other diseases, so I know your worry! Hang in there.
Cameron
Dr Stoll,
It stared two years ago after the birth of my daughter, I had been a very healthy and active person, after my daughter was born I had a 102 postpartum fever with mastitis and a possible uterine infection. When I finished the medication for this I never really felt better, eventually I developed chronic hives when my daughter was 9mnths old. I was sent to rheumatologists, allergists, and dermotologists, the only thing they came up with was a low antinuclear. My doctor calls me and tells me I have Lupus, well I get out a very outdated medical book ( I had no idea what lupus was) and think I'm going to die. I Had two anxiety attacks and felt horrible. I went to my doctor for a bad outbreak of hives, and he said he heard mono caused hives in some people, so he tested me and it came back positive. All my tests for lupus came back negative, with my EBV positive do you think these problems are EBV related? I have headaches, I feel like I have a chest cold somtimes, and increased pelvic discomfort with periods, and halfway through the month. I live in a very small town and the doctors here think it's all in my head, do I need to find a doctor to see me through this or can I do it on my own?
Thank you, Lee
In Reply to: Re: epstein barr virus posted by kelly m. on March 02, 1998 at 21:22:38:
Dear Kelly,
NONE of your daughter's symptoms are due to the EBV. Within 10-20 years this FAD diagnosis will be an embarassment to the profession.
Your daughter has Candida-Related Syndrome which explains all of her symptoms. She had to have LGS before she could "get" C-RS.
Go to the library or bookstore & get a copy of The Yeast Connection" by William Crook, MD. He has also written several books about children with this disorder. Any of them will point you in the right direction. You could call (901) 660-5027, any Tuesday (between 1:15 & 2:15 CST) for the names of the closest knowledgable physicians to you AND any references you might want. You will recognize your child in these publications and will likely see that this started as long as years ago.
As your child gets well, please share your experiences with us here on the BB. This conventional medical FAD of "diagnosing" EBV and then telling people that time is the answer, is a terrible disservice to the public. Knowledge will set you free.
Walt
In Reply to: Re: Recurrence of EBV posted by Shelly R on March 02, 1998 at 09:34:45:
Thank you for taking the time to write. I have seen the advice you gave me regarding reading all I can from this BB using the "Link". I am not familiar with this. Can you tell me what I am supposed to do to read all the information that he says is available here. All I am able to read are the letters and follow-ups. Don't know what an Optional Link URL , Link Title or Optional Image URL is?
Thanks for your help.
Thanks
Ann
In Reply to: Re: EBV question posted by Cameron on March 03, 1998 at 14:35:05:
Dear Cameron,
Once you understand how all this is connected, You will stop looking for more diagnoses & learn how to do something about the causes.
Walt
Recently I was diagnosed with Epstein-Barr Syndrome. I am looking for a place on the internet that might give me a little more information regarding this syndrome.
What is Epstein Barr? I am having extreme fatigue, dizziness, heart palpitations, and muscle pain. Many people have suggested looking into Epstein Barr? Can this be cured, and how do you know you may have this.
Sincerely,
Marisa
In Reply to: Re: EBV question posted by Cameron on March 03, 1998 at 14:35:05:
Dear Cameron,
Thank you for your reply to my question, at least now I know I'm not the only one with this situation. I have done as much reading as possible on EBV, but I just can't find enough info out there about it. All of the doctors I have seen say they just don't believe in the quote "Epstein Barr Theory", and won't discuss it, explain it or treat me for it.
thanks,
Pam
In Reply to: Re: epstein barr virus posted by Jadeane Payne on March 05, 1998 at 18:07:17:
Dear Jadeane,
You have come to the right place (if you want to learn enough to actually resolve this problem). If you are just looking for support for the fact that you "have" EBV, you have come the the wrong place.
Use the search feature for this BB & read everything you can find about EBV, Chronic Epstein Barr, and the like. At its present state of construction, you may have to wait a few minutes for the engine to finish the "search".
THEN, if you still have questions, write again.
Walt
In Reply to: Aplastic Anemia & Clincal Ecology posted by Dave on March 05, 1998 at 22:32:39:
Dear Dave,
Contact the American Academy of Environmental Medicine for the answers to your questions (215) 862-4544. Their website is INFO@AAEM.COM
Also, I would hate for people to think that they can just throw themselves in the lap of the CE and not take responsibility for learning as much as they can about the other factors they have to deal with.
They ALL need to get as much distance between where they are living and the "edge of their cliff". The more room there is there, the less ANY environmental toxin will individully effect them. Many CEs will only know enough to draw connections between environment and things like AA. MUCH more can be done by combining THAT information WITH the things each individual can do to directly improve their wellness (horespower to deal with this in many ways).
The simplest, and least expensive, way anyone could get started in THAT direction would be to read a copy of my book which was written exactly for that purpose (link below).
THEN, if you have more questions, write again.
Walt
My friend's mother was just diagnosed with Epstein-Barr and
she is very worried about her mother. I told her I would
look for information for her on the internet but I am new
at this and am not having much luck. I have found tons of
technical information but nothing in english and nothing
that offers any real information on causes, treatment and
symptoms. Any help would be appreciated.
Regards, Cassandra
In Reply to: Recurrence of EBV posted by Annsport on March 01, 1998 at 15:53:49:
Dear Annsport,
I want to respond to your note because I hope what I know may be of some interest or help to you. As much as I respect Dr. Stoll and agree with him, I don't always agree 100%. Epstein-Barr has been described as a "weak" virus. Retroviruses are described as "weak" viruses. HIV is a Retrovirus and is purported to be the cause of AIDS. My own personal belief is that these so-called weak viruses are hell to get rid of once you have them, and it is easier to get them if your immune system is in a weakened state. Have you ever heard of CFS (Chronic Fatigue Syndrome) and CFIDS (Chronic Fatigue Immune Dysfunction Syndrome)? These are two names for probably the same condition. I say probably because I am currently reading a 700 page book called "Osler's Web - Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic". The agency politics by the NIH (National Institutes of Health) and CDC (Centers for Disease Control) are horrendous and I would say, criminal. In excruciating detail, this author, Hillary Johnson, describes a 10 year history of how this more than likely infectious disease has been ridiculed and suppressed and continued to be described as a psychiatric ailment. I have been suffering for probably 10 years with symptoms of anxiety, severe fatigue, chronic bowel problems, tinnitus and many other symptoms that are aggravating and making me a social recluse because I don't feel capable of finding or maintaining a relationship with a girlfriend due to low energy and anxiety about the nature of my disease. I've thought I've had parasites from scuba diving trips, chronic systemic candidiasis,among other things. Since getting reinterested in the possibility that CFS may be my main problem, though I am not severely disabled like many people who are described in the book, I will start attending a support group that meets in my area once per month and as soon as work allows, go see a physician in the Houston area, Patricia Salvato who specializes in AIDS and CFS patients. I am at about page 500 in this 700 page book, and I highly recommend you examine it to see if what these people are suffering from strikes a chord with you. I have been unable to get a definitive diagnosis in the past 10 years from more than half a dozen doctors (I won't take the time to count them up at the moment, I can't easily remember, another symptom of this disease), but perhaps I will be able to get a diagnosis after visiting Dr. Salvato, if this is indeed my problem. I say this because, in reading the book and the evolution of the research by independent researchers and clinicians (no thanks to the government), there are certain markers, such as reactivated Epstein-Barr infection, which indicate the presence of this disease...others being abnormal T8-T4 immune cell ratios, and abnormal levels of natural killer cells (NK). However, I think most clinicians do not believe the Epstein-Barr to be the cause of the illness, but simply a marker, an opportunistic infection taking advantage of a suppressed immune function. CFS doesn't seem to kill most people, like AIDS, but it is no picnic either, especially when most doctors look at you like you are crazy and you know that you are sick, but practically everyone around you thinks you are a hypochondriac. Hope this helps one way or another, in identifying your problem, hopefully, as something you don't have.
In Reply to: Re: epstein barr virus posted by marisa on March 06, 1998 at 07:03:36:
Dear Marisa,
The answers to your questions have been discussed meticulously on this BB many times over the past year. Either use the search feature provided for this BB OR go to the archives & read everything you can find about your question.
EBV is a FAD diagnosis that will not ever be made 10 years from now. NONE of your symptoms are being caused by the virus. The same things that cause an elevation of your titers are the things that are causing your symptoms.
No CONVENTIONAL physician has suggested s/he has any cure for you has s/he? What YOU need is enough knowledge to know WHO to believe.
THEN, if you have more questions, write again.
Walt
In Reply to: Re: EBV question-to cameron posted by Pam K on March 06, 1998 at 20:11:02:
Dear Pam,
There IS no conventional "treatment" for EBV. Those docs who are not signing onto the current FAD of calling what you have EBV are being honest with you. Ten years from now NO ONE will make this diagnosis--since it has NOTHING to do with how you feel.
I can see you strugglig out there hoping that someone else will do the work you will need to do to regain your health. Believe me, that is a human reaction (almost universal). However, I can tell you that the LEAST you will have to do is learn (do your homework). Actually DOING what you learn will be a lot more work. Until you are ready to even do the learning, you are no where NEAR being ready to get well. Perhaps after you have suffered for another few years-------
I know that you are not liking what I am saying. However, I am not here to get you to like me. I am just telling you what my 40 years of training and experience have taught me will work for what you have.
When you get over being angry with me, I welcome any further questions you might have (AFTER you have done your homework). I know you are REALLY angry with your situation. Ido not mind your taking it out on me. Remembver, you may need that anger to have the energy to do the learning you are resisting.
Walt
I have been diagnosed with EBV. I have had it previously. Sometimes my stomach gets naseaus and fills with gas, sometimes headaches, sometimes constipation/diaherria, sometimes joint pain, my lungs sometimes feel like lead and of course fatigue. I am purchasing a product called Enerprime to build my immune system, and plan on purchasing your newest book. I just feel like I have the flu in alot of different ways. But I have one question along with a comment to everyone else. Can overexercise trigger the virus again even if you feel great? Also, I wish people would stop putting Dr. Stoll down for plugging his book. Listen, he has expertise in a field, he probably did a lot of painstaking research on the subject and went to the trouble to write a book to help US!! Let's be grateful. I am.
In Reply to: Epstien Barr posted by Pat Mone on March 10, 1998 at 09:32:33:
Thanks, Pat.
The only time I even mention my book is when it is the quickest, most effective & cheapest way for the person to learn what they need to learn to resolve what they are asking about. My only other alternative would be to retype out the entire book for each person when they ask.
I appreciate your support. I make no money from the sale of my book. It was written as a public service just like I run this BB. The printer & publisher were not so eager to donate THEIR services though. Since I have been living on my RN wife's income, for the past 4 years, I had to charge for the costs of those services.
As you must know, from reading my book, EBV is a FAD diagnosis that will no longer be made 10-15 years from now. The current "standard of practice" by the conventional medical monopoly, is to find the elevated titer in the blood & absolve themselves from dealing with the person's problem by announcing the "diagnosis" & saying there is nothing we can do. This is treating a blood test & not the person.
ANYONE willing to learn about WHY they feel the way they do, have the choice as to whether they want to be well or not. Ths EBV is NOT causing their symptoms.
Anyone not understandign that statement would benefit from using the search feature provided with this BB (perhaps even using the archives) & read everything they can find about EBV, Chronic Epstein Barr Virus, etc.
Exercise can only help resolve this complex of problems. However, since people who feel like this have a hard time exercising, that is not the first thing I would recomend for anyone--unless that is the only thing they are willing to do. The first thing is to learn an effective skilled relaxation technique & practicing it at least 20 minutes twice a day (not including any time it is done within 2 hours of retiring).
THEN, as they start getting more energy, a mild exercise program would magnify the effects of the relaxation AND, the fact that they were already doing the relaxation would magnify the effects of the exercise.
THEN, write again with any more questions.
Walt
Dear Sir:
I am trying to find out about this disease and all I can find on the web are personal letters to you about a loved one having the disease. Please send me or tell me where I can read about the disease itself, ie. symtoms, complications, cure. Thank You
About 16 years ago, I was diagnosed with epstein barr virus and mono that lasted for about of 6 months of low grade temp and fatigue. Over the years, the tiredness never really left me and I considered myself a little lazy. I had back pains and leg pains since I could remember and headaches. Whenever I got a cold, it drained me and it seemed ti go on forever. Then about 2 years ago, I had a bad flu and the aches and pains really got worse. My doctor then informed me that the epstein barr virus had been dormant and the flu activiated it. Since then, I don't sleep much, and have had to cut my activities back about 50% because of fatigue. I am now diagnosed with Chronic Fatigue Syndrome and Fibromyalgia. From what I have read, the epstien barr virus had nothing to do with the CFS or FM but it does not help. Only a certain percent of patients with CFS/FM had been found with the virus. It is very depressing at times but I have found that with loving support and understanding from my family I can deal with this illness.
Peace & Love,
Maria Caballero
In Reply to: Re: Epstien Barr posted by Walt Stoll on March 12, 1998 at 10:28:49:
Walt:
I wasn't referring to exercising after the diagnosis to Epstien-Barr. My doctor says that I had this before--I can trace it back about 5 years right after my dad passed away from Colon/liver cancer. I had to take care of him for 5 to 6 months and I was limited on sleep and high on stress. 2 weeks after his passing, I began working in a Private school and that september I had 2 to 3 months of what I thought was a bad cold, sore throat, and very fatigued. It passed and I have not been seriously sick until 6 months ago. I have been trying to figure out what I did to cause the EBV to stir up again. Previous to this I was eating well, exercising 5 to 6 times a week for 45 minutes a day, eating well, lots of fruit and vegetables. I took vit E, Vit C, Cod Liver Oil (straight!). I never drink coffee, soda, dont' smoke and hardly ever take medication. So, I'm trying to figure out what went wrong so that I can avoid it again. By the way what is the book that is on EBV and how can I get it and how much? It's okay, you can plug your book to me, I won't get made. Thanks Dr. Stoll.
Pat
I had blood work done in the summer of 1996 and found that I had a high EBV count; my general GP said it was nothing to worry about. However, I have had major fatigue setbacks as well as depression. In addition, my weight seems to be out of control--constantly escalation altho I am watching my diet. Wondering if depressionand weight gain are side effect of EBS.
Thanks--Marilyn
In Reply to: Re: Epstien Barr posted by Pat Mone on March 14, 1998 at 12:33:32:
"I had 2 to 3 months of what I thought was a bad cold, sore throat, and very fatigued."
This sounds like what I went through about 7 years ago, after coming back from a trip through Europe. I was 16 at the time, 23 now. I think I picked something up there, that I wasn't able to shake for 9 months. The doctors here did all the tests they could think of-cancer, HIV, mono, etc, but couldn't come up with anything. It took me about 2 years before I felt semi-normal, but I still have chronic headaches, fatigue and lately developed a severe allergy to hay fever (I think). I've never been allergic like this before, but I've been sneezing for the past 2 weeks now to the point where I get so tired that I fall asleep after an attack. I've also had severe migraines and flu-like symptoms during this time.
Someone suggested that I ask my doctor if it's Epstein-Barr, which I'm doing a search on now. I've already been mis-diagnosed with fibromyalgia. Any suggestions?
In Reply to: Epstein Barr and Depression posted by Marilyn on March 14, 1998 at 13:17:19:
Marilyn:
I too was test for Epstein barr and had levels of it in my blood. But because it caused gastritis and stomach distress I lost weight. Just starting to gain it back. Did your doctor do a thyroid workup? It's possible that the EBV has somehow affected it. I am presently using a product that has seen some excellent results for EBV. If you want to know what it is drop me a line and I will give you the info on it. Okay.
In Reply to: Re: epstein barr virus posted by Vikki on March 13, 1998 at 15:03:53:
Der Vikki,
Try going to the archives. MANY resources are there for this condition.
Basically, the EBV diagnosis is a FAD diagnosis that will no longer be given 10-15 years from now. ANY knowledgable physician should be embarassed to give it now!
If you cannot find what you need in the archives, go to the library or bookstore & get a copy of "Mind as Healer, Mind as Slayer" by Dr Pelletier--last edition 1992. This book was written about you & will help you understand WHY you feel the way you do. NONE of your symptoms are due to EBV!
THEN, if you still have questions, write again with what you have learned and what questions you have.
Walt
In Reply to: Re: epstein barr virus posted by Maria Caballero on March 13, 1998 at 16:59:13:
Dear Maria,
Just reading your note makes me angry. Your story is a perfict example of the bankruptcy of the conventional medical paradigm. There is no longer any excuse (other than greed) for the conventional medical monopoly to continue to try to force the health care camel though the eye of the conventional medical needle.
OF COURSE, your EBV did not cause your CFS, etc. However, they are ALL caused by the same mechanisms. Until you deal with those causes, the rest of your life will only look like a bad rerun of what has happened to you so far.
Use the search feature for this BB & read everything you can find about EBV. It may even be archived. THEN, if that is starting to make sense to you, get a copy of my book (link below). That will at least point you in the direction of knowing what questions to ask. If you really want to read an in depth book about WHY you feel the way you do, one of the books in the reference section in the back of my book ("Mind as Healer, Mind as Slayer" by Dr Pelletier) was written about you. It would hjelp you understand, in depth, WHY. My book is more about understanding what to do about the why.
THEN, if you still have questions, write again.
As you get well, please share your experiences with the rest of us here on the BB. There are lots of people out there just like you that you might point toward recovery with your testimonial.
Walt
I would like to know if this virus can silently and painlessly attack the heart causing death.
In Reply to: Re: Epstein Barr and Depression posted by Pat Mone on March 14, 1998 at 16:36:30:
Pat Mone,
Would like some information on the product that you are using for EBV. I was just diagnosed this month and I am looking for any info I can get. Thank You
I am just trying to find some info about what Epstein-Barr is. Is it different than Chronic Fatigue Syndrome. Do people with it typically have trouble waking up and making it to work in the a.m?
Are there any known treatments for epstine-barr related arthritis? Can you send me some information on epstine barr or reccomend as web site which specializes in it's treatment. Is there an address or phone number which I could call for information?
In Reply to: Re: Epstien Barr posted by Pat Mone on March 14, 1998 at 12:33:32:
Dear Pat,
You DO need my book. (grin)
You need a much better definition of what "stress" is. ALSO, you have a much healthier life style than most. However, the most important thing anyone can do to prevent this kind of stuff AND to get rid if it is the main thing you did not mention : the regular practice of skilled relaxation as a part of your daily life.
Once you have my book under your belt, write again with any questions you might have left. THEN, as you get well, please share your experiences with the BB participants. Just think how many people you could save from going through what you have.
Walt
In Reply to: Epstein Barr and Depression posted by Marilyn on March 14, 1998 at 13:17:19:
Dear Marilyn,
Of course, they are all related!
There is a book that was written about you that you need to read before you will understand what is behind all this: "Mind as Healer, Mind as Slayer" by Dr Pelletier.
THEN, once you have that under your belt, when you are ready to learn how to reverse it, you need a copy of my book (link below).
If you still have questions, after you know what this is all about, write again. As you get well, please take the time to share your experiences with the BB participants so others do not have to go through what you are.
Walt
In Reply to: Re: Epstien Barr posted by Elizabeth on March 14, 1998 at 16:34:19:
Dear Elizabeth,
Read the note I left for the EBV & Depression note, today. EBV is a FAD diagnosis that will no longer be made 10-15 years from now. ANY professional making that diagnosis today should be ashamed of her/himself.
You could also use the search feature for this BB & read about all the diagnoses with which you are concerned. Perhaps you would stop putting so much effort into being labled with something that the doc will just tell you is untreatable anyhow. ALL of this is unnecessary.
Walt
Not sure if this has anything to do with it, I have been taking Chromium tablets, I realize that in large doses they can alter blood sugar - since I've been taking them, my skin is extremly dry and I get open sores (like pinholes) on my hands arms and legs. They itch like crazy, not sure if this has any relevence, but I find it odd.
In Reply to: epstein-bar posted by margaotbch@aol.com on March 15, 1998 at 12:28:10:
Dear Margaotbch,
No. Chronic EBV does not cause ANY symptoms! It is the causes behind the susceptibility to the virus that causes everything. Use the search feature for this BB & read everything you can find about EBV, Chronic Epstein Barr and the like (you may have to look in the archives). At least then, you will have the option of learning WHY you have what you have & eliminating it from your present & future.
Walt
In Reply to: Re: Red & itchy skin. Sudden attack! posted by Knut Fjellheim on March 15, 1998 at 15:28:02:
Dear Knut,
First, you have to get rid of the fallacy that al docs are competent.
"Allergists" only work with the classical definition of allergy discovered more than 60 years ago: serum allergy. Only 5% of allergies are serum allergies. All the rest are cellular (tissue) allergies and cannot be found with the standard allergy tests "allergists" still use for everything. MOST of what an allergist does is placebo.
Even in medical school 40 years ago, we were taught that: If an allergist did all the allergy testing available, discovered significant allergies and produced the serum for injection to stop the allergy--then used that serum for allergy injections twice a week--after 2 years 55% got better. However, if a double blind study was done, in which neither the doctor OR the patient knew what was in the syringe (half were sterile water) at the end of the 2 years 50% got better. Only 5% of the improvements were on the basis of what was in the syringe. We now know that that is true because only 5% of the allergens are serum sensitivities and that is all that was being treated.
Clinical Ecologists diagnose AND treat all of the tissue sensitivities as well as the serum ones. is it any wonder that they have such better results?
Call the CEs closest to you & take your records for a consultation. Call the American Academy of Environmentaql Medicine at (215) 862-4544 or go to their website at info@aaem.com to find them.
Let us know what you learn.
Walt
In Reply to: Re: epstein barr virus posted by gy hound on March 15, 1998 at 16:07:04:
Dear gy,
Your questions make it obvious to me that you desperately need some "tincture of knowledge". You have come to the right place.
Use the search feature of this BB & read everything you can find about EBV, CFS, Chronic Fatigue Syndrome and the like (they may be archived). Not only are the answers to your questions there but resources to help you get rid of how you are as well.
THEN, if you still have questions, write again. There is no treatment for you BUT knowledge.
Walt
In Reply to: Re: Red & itchy skin. Sudden attack! posted by Knut Fjellheim on March 16, 1998 at 08:25:32:
Dear Knut,
First, you might connect with the website of www.healthcomm.com and the professionals website for the same world wide educational system for professionals learning how to keep on the cutting edge www.fxmed.org
Any professionals who had subscribed to this service for more than 2 years would HAVE to know what you need. Let me know what you learn.
Now to answer your other questions in order:
1. I think I answered that in my other note to you today.
2. Same.
3. Claritin is not what you need. However, I know of nothing but taking at least 6 grams of esterified vitamin C (1 hour prior to exposure) that would help.
4. My best clue is in my first paragraph above. This is based upon the open mind, and inquisitive nature of the professional--which THEN leads them to educate themselves enough to help their patient the most. LGS is well enough established, world-wide that I would be suspicious of any professional who does not know about it.
5. There ARE fairly reliable ways to detect the fungal form of candida but they are NOT foolproof. Many times a skillful clinicial CAN be more accurate with a questionaire. However, it is a fatal flaw for the clinician not to know about LGS since THAT must be dealt with of you will be treating the candida forever.
6. I have heard of such "machines". Many are computerized and some are psychic (Radionics is a good example of the latter). However, not everyone can use these machines. They ALL require interaction of an operator in an alpha state and not all people can do this. Your best bet would be to talk to many of this clinician's patients to see how successful they have been.
Walt
dear sir,
would you please recommend some dietary changes / additions and vitamins for my 15 year old daughter (vegetarian) recently diagnosed with EBV? Thank you
Dear Dr.Stoll, I decided to go to the appointment I had made to see about detoxing. He did the tests and said my immune system was only operating at 50% .He also felt that I had mercury poisoning and probably other chemicals that were causing trouble.He suggested a two year detoxing programme including getting my fillings out. I started on some of the chemicals and had a major reaction to one called chlorine-dioxin. I felt really exhausted and worse than I had felt for ages. I am still on the wholefood diet and am doing my relaxation. What are your views on the detoxing? Is it possible to avoid it with diet and so on or once the chemicals are in your body do you have to get them out so they don't upset you anymore.Thank you for your advice. Margaret.
What does anyone out there know about treatment?
Are B vitamin injections beneficial?
In Reply to: epstien-barr posted by Michael Kelly on March 16, 1998 at 00:44:59:
Dear Michael,
There is no such thing as arthritis caused by EBV. Some intentionally ignorant physicians may think so because the same mechanisms that make a person susceptible to arthritis also make them susceptible to EBV. Since they commonly coexist, simplistic thinking physicians may think that they are directly associated.
For anyone to suggest this rrelationship, it means that you need to find a more knowledgable physician to work with you. Your present physicians are not willing to go beyond the outmoded concepts of the 19th century and they will NEVER be able to resolve what you have.
If I knew what part of the country you were from, I might personally know of a competent physician for you to see in consultation.
However, a much more powerful thing for you to do would be to educate yourself so you would know who to believe. In this period of paradigm transition, YOU are the only one positioned to protect yourself.
If you are ready to become a student, write again & I will point you in a productive direction.
Walt
Hi:
Can you recommend some websites where I might read up on epstein barr, please?
Thank you.
Brian Fraser
In Reply to: Re: epstein barr virus posted by betty on March 16, 1998 at 11:23:37:
Dear Betty,
I have never heard of this happening with chromium. What dose are you taking? This is one of those minerals with a fairly narrow range between effectiveness & toxicity.
If you are takiing more than the recommended dosage, you should hie yourself to the library & read everything you can find about chromium toxicity. SOME people are a lot more sensitive to this than others.
FINALLY, it is always good to listen to your body. If one suspects that something they are taking is bothering them, it is a good idea to stop it & wait till the symptom clears up & try it again to see if it comes back. We are ALL very different from each other. you remember the old adage: "One man's food is another man's poison."? It is more true than we ever thought.
Let us know what you learn.
Walt
Hello Dr Stoll, I have just recently found out I have EBV and I'm very confussed. I have never been so run down and sick in my life. I have a 3 yesr old toddler and a 6 year old son who had Brain Anoxia,I do not have time for this virus to get me down. I just ordered your book but untill I receive it,is there anything I can do for energy? And I have been having bad UTI's.I have been on antibiotics for over 2 weeks now and I'm no better.
Thank You,
V Saville
Can you please tell me what this is. My 4 year old daughter has been going through numerous Blood Counts. Her platelet count has been between 80,000 to 126,000. I have to take her once a month for 3 to 4 months to see if the virus has gone away, and to check her platelet count. If the platelets have not gone up to the normal count 150,000, then we'll have to do a Bone Marrow Aspiration.
If there are some articles my husband and I can read, that will be very helpful.
In Reply to: Re: epstein barr virus posted by Ernie John on March 17, 1998 at 14:32:03:
Dear Ernie,
This subject has been discusssed in great depth many times right here on this BB. The way to access this information is by using the search feature for this BB & read everything you can find about EBV, Chronic Epstein Barr Virus, and the like. Don't forget to also use the archives if needed.
THEN, if you still have questions, write again.
Walt
In Reply to: Re: CFS testimonial posted by Margaret pringle on March 17, 1998 at 17:41:57:
Dear Margaret,
It COULD be that the detox stuff was just doing its job too fast. I am not a good enough detox expert to advise you here.
A serious wellness protocol is still the best detox approach I know & it is free with no negative side effects. You already are doing 2 of the 3 you would need. If you can find the time & energy to do a one hour daily walk, in addition to what you are already doing, you might consider not doing anything else for 6 months to see where you are. If you still need detoxing, you would be MUCH better able to deal with the "healing crises" detox might produce.
More questions?
Walt
In Reply to: Re: epstein barr virus posted by Linda Salkins on March 17, 1998 at 17:46:54:
Dewar Linda,
THERE ARE NO CONVENTIONAL TREATMENTS.
Your best bet would be to learn more about EBV (a FAD diagnosis at best) AND your options for resolving what REALLY is causing your symptoms.
Use the search feature provided for this BB & read everything you can find about EBV, Chronic Epstein Barr Virus, and the like (you may have to use the archives too).
THEN, if you still have questions, write again.
Walt
I have a long history starting 5 years ago I was diagnosed with Herpatic Encephelatis. Since then I have suffered with different ailments from Migraine headaches (which are now under control) to the most recent the past 15 months I have had stomach problems no vomiting no diarrhea, just severe upper mid gastric pain with anorexia and a 30lb weight loss. YOu name the test I have had it. & I have had it truly at this time. Since this has all started I have had a trend towards a low WBC with and increase in lymphs (All other WBC in normal range) My lowest count has been 3100 but the average is 3600. I am also now presenting with a swollen lymph node (no others affected) and a red rash on 1 leg. I am currently on Doxepin 50mg sid (bedtime) Donnatal extend tabs sid and Depakote 250mg sid. The Depakote keeps the headaches away miss 2 doses and I pay dearly. I know Doxepin can cause leukapenia but my WBC started dropping before the meds were started. My Gastro Doctor seems unconcerned though he has offered up Epstein-Barr as a diagnosis, and possibly seeing a Heme. Doc. I am not to keen on a bone marrow aspirate! Anyhow I am trying to find out about Epstein-Barr and its symptoms. Could we be missing the boat from the Herpeatic episode? I am currently doing mental therapy w/imagery, manipulation therapy, American Saffron tea, Hot packs of Castor oil and soon to start Acupuncture. I am a Veterinarian Technician so I have been very active in my case and big words don't scare me. Any suggestions at this time would be appreciated.
Thanks
Laurie
In Reply to: Re: CFS testimonial posted by Walt Stoll on March 19, 1998 at 12:09:38:
Dear Dr.Stoll, Thanks again I really appreciate your advice as I get myself really confused about the whole thing. I think where I got muddled was when ages ago you said when you find the cause of your fatigue cfs is easy to treat . So I thoiught that maybe the cause of mine was chemical sprays etc. The detox Dr. would say it was. He also says cfs people damage the mitochondria. If that is so does it heal itself or if chemicals are in your body will they stop it from healing. I'm not sure whether any of that makes sense-sorry. I guess my main fear is that it will go on for ages like you hear some people talking about. Anyway thanks again. Margaret.
In Reply to: Re: epstein barr virus posted by Brian Fraser on March 18, 1998 at 10:47:12:
Dear Brian,
You are already at the website where you will find the most useful information. Use the search feature provided & read everything you can find about EBV, Chronic Epstein Barr & the like. You may need to look at the archives as well.
THEN, if you still have questions, write again.
Walt
In Reply to: Re: epstein barr virus posted by Brian Fraser on March 18, 1998 at 10:47:12:
Could you please reccommend some websites on the Epstein-Barr virus? Nothing too scientific.
Thank you.
My daughter is 7 years lod and was diagnosed with EBV 4 months ago. she is also experiencing Alice -In -Wonderland Syndrome with it. Her spleen and liver are still enlarged. the fatigue has passed and she "seems" better. She has had chronic ear infections since September. Is there a connection? can EBV leave the speen and liver enlarged?? .
In Reply to: Epstein-Barr? posted by Laurie on March 19, 1998 at 16:39:57:
Dear Laurie,
It looks to me like you are a prime subject for resolving this. With your background, you are already a leg up.
You could never have contracted Herpetic Encephalitis had you had a healthy immunity. Many of the rest of your note mentions other things that have to do with low immunity.
I would suggesst you check your imagery brain rhythms to be sure that you are reaching the alpha/theta rhythm since the stress-effect reduction you need will not be resolved unless you are AND the imagery will not be effective unless you are (biofeedback check).
Also, ask your library to find you a copy of "Psychoimmunity & the Healing Process" edited by Jason Serinus & published by Celestial Arts in 1986. Also, you might take a look at "Nutritional Healing" by Balch & Balch. It is available in any bookstore & library. You may know what they have under improving immunity already.
I would recommend you also read a copy of Dr Pelletier's classic: "Mind as Healer, Mind as Slayer". It would help you see the deep interconnections to everything you already mentioned.
THEN, if you still have questions, write again. If I knew what part of the country you came from, I might know someone personally there who could serve as a consultant for you.
Walt
In Reply to: Re: CFS testimonial posted by Margaret Pringle on March 19, 1998 at 20:33:32:
Dear Margaret,
He is right about the mitochondria. However, the research about how do do something about that damage is in its infancy. That is why I have been focussing on how this happens so people can start reversing the actual causes.
Even the mitochondrial ineffeciency has a reason so, if the only thing we did was right the mitochondria, they would soon have the same problem all over again. The mitochondria will right themselves once the causes that damaged their function in the first place are gone.
Keep me up on what you are doing to reverse this & perhaps I can tell whether you are getting the resluts you should be getting.
Walt
In Reply to: Re: Epstein-Barr? posted by Walt Stoll on March 21, 1998 at 10:58:04:
I am from Columbus OH. The rash I described earlier is actually several lesions. Some the size of a nickel and others smaller. They are now spreading to my left arm. One of the Veterinarians that I work for stated that they looked just like the Chicken pox lesions he go what when his kids had the pox. If I am reading correctly Epstein-Barr is a Herpes simplex virus. Am I contagious(I don't think so but..)? I have a fairly good Health insurance plan so any suggestions for referral would be great.
Thanks
Laurie
In Reply to: Re: epstein barr virus posted by Jennifer Casler on March 20, 1998 at 12:57:22:
Dear Jennifer,
You are already at the best site for EBV. Just use the search feature provided & also look at the archives. The subject would be listed under both EBV and Chronic Epstein Barr Virus.
This FAD diagnosis has nothing to do with how you feel and is totally unnecessary. Once you have the above under your belt, if you still have questions, write again.
Walt
In Reply to: Re: epstein barr virus posted by Michele on March 21, 1998 at 09:53:58:
Dear Michele,
It is critical for you to learn WHY this happened or this poor child is just beginning a life of medical treatements for more, and more, serious conditions.
Use the search feature & archives to read everything you can find about EBV and Epstein Barr Virus. THEN, if you still have questions, write again.
Walt
In Reply to: Re: Epstein-Barr? posted by Laurie on March 21, 1998 at 13:00:58:
Dear Laurie,
If I could see it, I would know what it was (or at least how to find out). I taught dermatology to the school of allied health for 3 years and developed a 700+ slide tape for self instruction that is still being used by the medical center 20+ years later.
From what you are describing, this is an immunological/viral rash. A biopsy would probably tell you EXACTLY what it is called. However, that will still not give you a way to cure it without learning WHY you now have this susceptibility to these kind of conditions. Conventional physicians will have no suggestions except cortisone & tincture of time. It is caused by the same mechanisms that allowed you to get the EBV. It is just another example of what I am talking about when I say the bodymind is sending you a message & the message will get louder (more serious), and louder, till you hear it.
The best place in Columbus was (for 40+ years) the Beachwold Clinic as developed & run by Dr Shearer, MD, DO. However, there has been no one of his genius to take his place & he is now about 90 and cannot do as good a job as he used to. He is still there and has several other physicians working there who are trying to learn from him. If it were me, I would go there & get the best that they have to offer. You might also consider traveling to Centerville & seeing Heather Morgan, MD, She was a classmate of mine in medical school & is in active practice of complementary medicine right now.
Since both are at least MDs, there should be no problem with getting your insurance to cover them.
HOWEVER, remember that BY FAR the least cost of illness is the monetary cost. Just think what the real cost has already been to you (not considering money). A growing % of people are electing to pay for what works rather than continue to use what doesn't work because their insurance pays for it.
Think about it.
Walt
In Reply to: Re: Epstein-Barr? posted by Walt Stoll on March 23, 1998 at 11:45:51:
I really appreciate the time you have taken to talk with me. I found two of the books you suggested. You are correct in monetary versus mental costs. Would you believe a Taiena type fungus? We currently have a dog at the clinic who is also immune-suppressed- Guess what the dog and I both glow orange under a black light. The dog's owner also showing a few lesions. But I'm ready to work on the mind as my healer and stop all this medicinal stuff. I got mad and stopped both the Doxepin and Donnatal on Friday. I already feel physically better (I'm not wore out). New CBC next week so we'll see how it all is helping. Thanks again. I'm not far from Centerville either so I will look up your classmate.
In Reply to: Re: epstein barr virus posted by Walt Stoll on March 19, 1998 at 11:36:48:
please e mail me a site that i dont have to look, it just gives info on the virus, please please please, you make it sooooooooooooooooooooo hard to find something, i really need info. please please please
please
please
jonathan
I am very new on the computer. But I ran across this part and saw what you wrote. It is nice to see other people have had and are having the same problems as me. I have had EBV for a few years now. Please send me ALL the info you have on it. I WANT HELP! I just need to know what to do! I will walk through the door if its opened!
Thank you very much. I hope I can find where I am right now or hope that you will e-mail me.
Debi G
Dr.Stroll:
First and foremost, thank you for providing a forum where people can be proactive in their conditions. I can't imagine where you find the time to respond to all of these inquiries.
I am an athlete actively competing in road cycling. I have had some considerable success in my endevours, however, this year there were clearly some problems such as insomnia, long recovery periods, significantly reduced endurance, low maximal heart rates, etc. I was tested by a local physician that specializes in elite athletes. Salient results showed resting heart rate of 34BPM, body fat composition of 5.6%, over 500 watts output on Conconi test using Velodyne tester, etc...all good indicators, however, VO2 max was 50.1 (significantly lower than past years ), max HR during test was 165 (I expected 180-185) and AT occurred at 145 BPM. Blood test revealed EBV VCA AB IGG of 134 and EBV VCA AB IGM of 63. Diagnosis was Epstein Barr. Unfortunately, I am not a big name athlete that can generate considerable publicity for my physician, and am frustrated that the adivice I'm geting is cursory and limited to one page hand-outs.
The prospect of being sidelined now (I should be at peak of intensity training) is daunting, however, I am more than willing to be the worlds most compliant patient provided that I can obain good advice based upon proven case histories. To this end I subscribe to you for advice on how to best proceed to combat this condition in the most efficient manner.
I am generally in excellent health and have never experienced anything like this.
Again, thank you for your comments and suggestions. I also invite anyone having personal experience in this matter to E mail me at wwibhunter@earthlink.net
In Reply to: Re: Epstein-Barr? posted by Laurie on March 23, 1998 at 17:06:59:
Dear Laurie,
Glowing, huh?
Let us know what you learn. By the way, ask your library for a copy of this week's "Science News" & read the cover article.
Say hello to Heather for me, will you?
Walt
In Reply to: Re: epstein barr virus posted by Debi on March 24, 1998 at 07:52:43:
Dear Debi,
You have come to the right place since is sounds like you are ready to learn what it takes to resolve this issue.
Use the search feature provided with this BB & read everything you can find about EBV and Chronic Epstein Barr Virus.
THEN, if you still have questions, write again.
Walt
In Reply to: Epstein Barr Virus posted by Brad Hunter on March 24, 1998 at 15:09:58:
Dear Brad,
Your situation is a perfect example of the fact that even an outstanding exercise program does not necessarily make for a healthy person.
The other 2 legs of the stool are the regular practice of skilled relaxation 20 minutes twice a day (not counting any done within 2 hours of retiring) and a diet as full of micronutrients as possible (whole foods and the necessary supplementation to make up for what is no longer in even whole, organic food.
If I knew what you were doing in those areas, I could better point you in the right direction for now. Also, extensive research from the world nutritional & medical literature is now showing that what you are experiencing has something to do with mitochondrial efficiency-- something you can do something about. Ask your doc what s/he knows about that. If s/he looks blank or says s/he knows nothing about mitochondrial function & your findings, s/he is not such an expert as s/he is cracked up to be.
The onle thing I CAN tell you now is that your EBV titer has nothing to do with your reduction in efficiency. Finding an elevated EBV titer, when the doc has nothing better to offer in explanation of your problem, effectively gets the doc off the hook. Isn't that EXACTLY what happened when that was pronounced to you?
Once I have the above information, I can more efficiently point you in a fruitful direction. THEN, as you get back to being better than you were before this happened, I hope you will take the time to share your experiences with us here on the BB. There is a growing number of athletes who are experiencing exactly what you are beginning to go through. They need to know that it is totally unnecessary.
Walt
Dear Dr. Stoll:
I have a friend who was diagnosed with EBV over 8 months ago, he has been to 9 different doctors with no satisfaction. He is not feeling any better. We live in East-Central Illinois and are looking for a Doctor in our area who treats EBV. I have contacted the University of Michigan to see if they can help. Any information you can give on this will be greatly appreciated.
In Reply to: Epstein Barr Virus posted by Jody McIntosh on March 28, 1998 at 10:39:58:
Dear Jody,
Intentional ignorance is rampant in the land (9 docs, huh?). The medical profession should be ashamed!
Use the search feature provided with this BB & read everything you can find about EBV and Chronic Epstein Barr Virus. THEN, if you still have questions, write again. Within 10-15 years this diagnosis will never be used again. It is a FAD diagnosis and NONE of your friend's symptoms are being caused by his EBV titer.
Walt
I have struggled with poor health for about 10 years have been diagnosed with chronic fatique and have high ebv tithers. My mother died from burkitts lymphoma- she took care of her brother during the war when he had malaria and i'm wondering if this is where it all started! My 16 year old daughter has already had mono. So far i haven't been treating myself with any kind of treatment except occasional vitamins. What is my next step? Of course i keep very busy - i own my own business and do volunteer work when i can and myself always comes last. On the other hand i know that i want to be as healthly for my children as i can and i don't ever want to get burkitts! What a dreadful disease! I just found this web page , thanks
In Reply to: Burkitts Lymphoma posted by Cynthia on March 29, 1998 at 19:49:16:
Dear Cynthia,
First, use the search feature provided with this BB & read everything you can find about EBV & Chronic Epstein Barr Virus. THEN, if you still have questions, write again.
This is a TOTALLY unnecessary condition.
Walt
Over the past 5 months, I have had lymph nodes swelling up and going down and several sinus infections. About 6 weeks ago, the lymph nodes in my neck swelled up to the point of feeling like someone had their hands around my throat. At that time, my doctor told me, it was caused by a sinus infection. Two weeks later, those lymph nodes were still swollen and I had probably 25 or more lymph nodes swollen throughout my body. My doctor ordered every test imaginable (they took 9 vials of blood from me),a chest xray, sinus xray, etc. Today, my doctor called me to tell me that every test came back negative exept for Epstein-Barr - it was positive. (But my mono stat test was negative). Most of my swollen lymph glands have gone down in the past few weeks since I had the tests except for one or two. Although all my other tests were negative, my doctor wants to refer me to an oncologist to have him evaluate my lymph nodes and see if one should be biopsied. The only symptoms I have are the swollen glands and itching which I know are symptoms of Hodgkin's. However, my blood counts and chest xray were normal. What do you think all this means?
I would appreciate any information.
Thank you.
In Reply to: Re: epstein barr virus posted by jon on March 23, 1998 at 17:45:28:
I have recently been diagnosed with this virus. It is a pain and it makes my whole body ache. I get headaches and I am constantly tired. If any body knows of any treatments please let me know.
I am currently taking zinc, an anti-inflammatory, and antibiotics.