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Walt
Thankyou for your response, its nice to know someone is out there. I have seen 3 consultants in England and have each said that it is like histoplasmosis but it is not, as I have not been to any of the countries where you would normally get it (and no nobody has done a biopsy or fungus culture), I have been told either Idiopathic subretinal neovascular membrane or Inflammatory disciform neovascularisation depending on who I see, but really nobody knows for sure I have been told that sometimes things like this happens and nobody knows why or what caused it. Steriods where tryed but made no differance and then over the course of 2 years I have 2 membranes in my right eye removed which did now make my sight any better but did stop it processing for a while, but now it has started again, the loss in my right is enough for me not be able to read any letters on the sight chart, I also have 3 other blind spots outside my central vision, as far as the consultants are concerned this eye is not worth doing anymore to but I think it is, if the sight went in my left eye which it has started two over the past 2 months(I keep getting blurred vision) this has been checked by a consultant and he says the damage is not near the central vision at moment, than any vision in my right eye would be a bonus, I can still see enough to be able to walk around but just cant see anything in the middle. I did talk to a consultant over the phone in Florida and he did say that the consultant that I have in England is very good and he did know him, but my consultant just says now that these eye problems are best left alone, which is not a great help when its your vision thats disappearing, I have read today on the internet about Photodynamic Therapy with Visudyne do you know anything about it, is it in your opinion worth me visiting a consultant in America for another opinion? if yes do you know anyone who specilizes in this type of eye problem?
I hope you can help, I running out of ideas.
Juju
In Reply to: mimicks ocular histoplasmosis posted by juju on October 21, 2001 at 07:50:43:
ju ju,
have you looked into acidosis possibly being part of your
vision problem. It may not be but with my experience with,
loosing my central vision, blurred vision, doll eye and more
it would be nice if that was at least part of your problem.
VF
In Reply to: Re: mimicks ocular histoplasmosis posted by Vince F on October 21, 2001 at 08:24:43:
Thank you Vince
I hope I don't appear too thick but what is Acidosis? I havent heard of it
Have you had any luck with stopping your vision from getting worse
Juju
In Reply to: mimicks ocular histoplasmosis posted by juju on October 21, 2001 at 07:50:43:
Thanks, juju.
The membrane" that they removed would have ben sent to the lab for analysis (and should have been cultured as well). What was the pathological diagnosis?
If there is no fungus here, you should be able to help yourself with high doses of antioxidents (and their cofactors) that tend to concentrate in the eye.
Start 100 milligrams of CoEnzyme Q10 twice a day, 5000 milligrams of esterified vitamin C twice a day, 1000 units of mixed tocopherols (natural vitamin E) a day, 50 milligrams of elemental zinc a day and the essential oils on the home page. None of this can possibly harm you and you should see benefits within 3 months with total benefits within a year. What do you have to lose?
Good solid doses of phytochemicals will also help but they may be hard to find since the conventional physicians have just discovered that they are essential for eye physiology.
Let us know how you do.
Walt
In Reply to: Re: mimicks ocular histoplasmosis posted by juju on October 21, 2001 at 08:57:44:
ju ju, almost missed your reply. We all learn new terms.
Acidosis is when acid builds up in the body. There is
metabolic acidosis where I believe the kidneys which
regulate the acid/alkaline balance don't do it. They
recycle bicarbonate into the blood or dump it into the urine
to regulate it. There is also, Respitory acidosis if the
lungs don't release CO2. When our systems go acid blood can
pool in the brain and engorge the vessels going to the eyes
and press on the optic nerves and affect the central vision
and make the Normal blind spot caused by the nerve entering
the retina to get bigger.
I don't know if this could be your problem but might be
something to look into or check especially if there are no
other answers. Maybe it will lead you to an answer somehow.
In my case my lungs were burned from chems and my breathing
was affected and a week later I couldn't see in front of me
and had to turn my head to the side. I got a rare case of
heart burn so took some bicarb and brought back my central
vision. One thing they say that bicarb isn't recomnded in
one type of acidosis. I Think respitory. Mine could have
been metabolic since my liver and kidneys were also affected
and maybe my lungs were only part of the problem. I Did have
a Dr tell me that the bicarb was the Worst thing I could
have taken But it solved That vision problem though I had
and have a bunch more.
VF
In Reply to: Re: mimicks ocular histoplasmosis posted by Vince F on October 23, 2001 at 06:30:35:
Thank you Vince
I am learning a lot, have heard of a new procedure that might help now and have spoken to a consultant in NY who specializes in my type of problem, so I'm not giving up.
Will only need to travel several thousand miles to see him!
I like you have other health problems to, you sometimes wonder how much more life can throw at you.
Regards
Juju
In Reply to: Re: mimicks ocular histoplasmosis posted by juju on October 23, 2001 at 12:02:16:
I am curios as to what membranes you had removed ??
I Think there are a Lot of things that can happen to us
and many people get hit with a bunch.
VF
In Reply to: Re: mimicks ocular histoplasmosis posted by Vince F on October 23, 2001 at 13:49:49:
Hi Vince
I have had a membrane removed from my retina (back of the eye), two years later I had another one removed, the operation is still experimental only 1 in 3 are successful.
Juju
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