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I have suffered with EBV and Lyme's, but now I am told I suffer with fibromyalsia. I am being treated with an anti-depressant. I feel horrible! I am 42 years old, but feel like 80. I am less able to do things everyday. I am gaining weight and I am really scared. I am so exhausted! My concentration and memory are the pitts.
I take Gloucosimine complex to help with cronic joint pain, ginko biloba for memoory, ginsing for energy. But I still feel like death.
I FIGHT to get out of bed EVERY morning! I love my job, so it's not caused by that.
I need some serious HELP, now!
What can I do? Where do I start?
In Reply to: Fibromyalsia posted by Eileen on May 15, 1999 at 16:57:55:
Hi Eileen,
Remember the phrase "it's always darkest before the dawn"? You have come to the right place. I have been where you are now and take heart because your situation can get much better!!
The first thing I would suggest is that you read the archives and articles on fibromyalgia. The people on this BB are the best with information and support. But YOU will also need to be willing to work hard to help yourself.
Read also about Skilled Relaxation and find a form of it that you are willing to do. SR, for me, is the glue that holds everything together. From there, I was able to improve my diet and start to exercise. All of these things together will improve your health immeasureably.
Kathy
In Reply to: Fibromyalsia posted by Eileen on May 15, 1999 at 16:57:55:
I also was diagnosed with fibromyalsia and perscribed a medication but it couldn't be very strong because of having gone thru a year of chemo for ovarian cancer. I went of medicine and have been taking a dietary supplelment called MSM glucosamine found at the drug store or health store. take it with Vitamin C .I take 1000 mg each morning. It also comes in powder form which I add a dab to my toothbrush and It helps to make healthy gums. I have taken it for a month and a half and have really noticed the difference. the stiffness is gone.
In Reply to: Fibromyalsia posted by Eileen on May 15, 1999 at 16:57:55:
Hi, Eileen.
You have finally found the right place to find your answers.
We have been discussing the identiry of the causes of all the conditions you mentioned for years right here on this 'site.
To help you hold things together, you really need a copy of my book (link on this page). While you are waiting for it, you might see what you can find about these conditions in the archives and on the homepage for this 'site. You could start with the link below.
THEN, if you still have questions, look at leaky gut syndrome, stress & skilled relaxation in the archives. There is also a lot of these subjects that are not yet archived & they are still on this bulletin board.
As you start seeing how this all is connected, please ask any questions you might have on the BB so others might benefit from our exchange.
Walt
In Reply to: Fibromyalsia posted by Eileen on May 15, 1999 at 16:57:55:
Hi Pat
I was diagnosed with FMS about two years ago. It has been a long, hard struggle. My most valuable discovery is that there is no one magic pill. FMS involves a lot of different organ systems not operating optimally. Each system that you address and improve will gain for you a percentage of better health.
I went to numerous specialists and spent a fortune before I came to this bulletin board and finally started making progress. I have yet to find a practicing M.D. who really understands FMS as Dr. Stoll does. Every M.D. I saw said I had to learn to live with FMS. My brain was so foggy that I couldn't understand the Archives or make sense of people's posts on the BB, but I scheduled a coaching session with Dr. Stoll, which was invaluable. I HAD read his book beforehand, but my brain fog kept me from grasping what he was saying in the book. I tape recorded our coaching session and replayed it several times, reread the book, and started finally making sense of what worked for others, so I embarked on the path myself and am probably 80% better today (that was about nine months ago).
You will have to take responsibility for learning and persevering in this battle, though you don't have much in the way of resources with your body in the shape it is now. No one else will be interested enough to research and dig through all the information on this BB as you yourself.
The first thing Dr. Stoll said I should do, which was a superb recommendation, was to begin practicing skilled relaxation. There are many forms of this, including meditation, yoga, self-hypnosis, etc. The purpose of doing SR is to put your body in a state where it promotes healing. The rigidity in your muscles right now and the stiffness you describe are from your connective tissue problems. During SR your brain will slip into a different mode where your muscles will relax spontaneously, enabling the free flow of blood and nutrients to return to every part of your body. After two or three weeks of practicing SR I began to notice that I could finally address different muscles in my body, focus on them and send a message to "release" to that muscle group. Before I started SR it was a hopeless challenge to relax my muscles under any circumstances.
I have done other things since then which are helpful, but I would say SR has probably given me more "bang for the buck", which is why Dr. Stoll recommends it so highly as the first thing to do. People with FMS are desperate for relaxation, and without it the other suggestions will take you a limited distance down the road to wellness.
Feel free to email me privately. I will also send you a link to the guaifenesin website. Guai is a drug that claims to "reverse" FMS. It doesn't really reverse it; it just kind of "cleans up" the body, but the body will return to the same state eventually if you don't address the cause of FMS. You could read what the website has to share and make some choices.
My best to you in your struggles. There really is hope, and FMS really can be reversed. The catch is that there are some lifestyle changes involved. When you begin to understand what caused you to get into this state (which may be different for you than for me, for instance) you will realize what changes you must make and can determine whether it's worth the effort to you.
Blessings
Johnelle
In Reply to: Re: Fibromyalsia posted by Johnelle on May 16, 1999 at 15:58:18:
Thanks, Johnelle, for your testimonial.
This is exactly what people need to know. I say it is easy to resolve this. What I should say is that is easy for me to know what will resolve it--although it took me 30+ years of study & practice to learn it. The individual still has to do the work---which is far from easy as you will attest.
I am proud of you for persisting. You will be a lot better 6 months from now and a year after that if you persist. Think how you would have been if you had not put out the effort!
Namaste` Walt
In Reply to: Re: Fibromyalsia posted by Johnelle on May 16, 1999 at 15:58:18:
Johnelle-Where do I find your email id? I'd like to follow
up with some questions for you. I too have FMS--and have
improved by exercise, meditation, yoga stretches, massage
supplements(?)--and diet changes. I would like to compare
notes--I want to get to a 100% again! (My sleep though
improved is still far from a deep continuous sleep cycle).
In Reply to: Fibromyalsia posted by Eileen on May 15, 1999 at 16:57:55:
My mom has fibro and is very miserable. Please talk to her.
Thatis her first name and e-mail address.
In Reply to: Re: Fibromyalsia posted by Johnelle on May 16, 1999 at 15:58:18:
I have been told that I too have fibromyalsia, and as of now my Dr. has been trying visteral, i think that is how you spell it, my Dr. wants me to improve my sleeping patterns thinking it is the beginning in improving my overall feeling. Oh, the stiffness, memory loss, and the bad thing is I am a Physical Educator and moving somedays is so very hard. Keep your comments coming people like me are reading.
In Reply to: Re: Fibromyalsia posted by Beth on June 22, 1999 at 18:53:26:
Hi, Beth.
Vistiril is a tranquilizer.
What you must have is SR.
Walt
In Reply to: Re: Fibromyalsia posted by Karen on June 16, 1999 at 22:15:09:
I thought I had Fibro, but the doc determined it was nerve ending damage, after many many tests since Feb.1999. I still ache thoughout, but not as much. I take ibouphrophin. I once took medication with opium in it and it made me crazy. I could not move my left arm and hand and they thought I had a stroke. But no. I go to therapy and it helped. I still wake up with aches and pains. I bought a bubble mattress and that helps. Some of the pressure points relate to fibro. Still confused. Adele
In Reply to: Re: Fibromyalsia posted by Adele on October 27, 1999 at 18:06:02:
Hi, Adele.
How are you doing with your regular practice of SR?
Walt
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