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Hello! I was diagnosed with Fibromyalgia about 10 years ago. Years before this, I was also diagnosed with irritable bowel syndrome. For the past two years, my irritable bowel symptoms have gotten worse. Diarrhea is chronic and disabling. I have also experienced severe back pain and coincidentally, this seems to have occurred right when the diarrhea has gotten worse. Is there a connection between the diarrhea and back pain? My rheumatologist has also noted that I have developed Myofascial Pain also, with abdominal trigger points very prevalent. Is this possible that my abdominal trigger points/back pain are prevoking my severe diarrhea? Is this a connection? I am in the process of ordering your book, Dr. Stoll. I am told that your approaches are golden. Any comments on this would be greatly appreciated. Thank you in advance.
In Reply to: Fibromyalgia/MPS/Abdominal Trigger Points and Diarrhea posted by Ann on July 18, 2000 at 12:56:55:
Hi Ann
You are certainly dealing with a lot of problems! I was diagnosed with FMS in '97 and today I am feeling GREAT, with most of the credit going to Dr. Stoll and this bulletin board. The way I was led here was through a woman who was hanging out in a fibromyalgia chat room. Most of the people there were comparing their symptoms and their prescriptions. She stood out to me because she was the only one who was not relying on pills to get her well, she was taking responsibility for her health and making lifestyle changes. She shocked me when she said she didn't take ANY medicines and was doing alternative things to try to get well. THEN she told me about Dr. Stoll. When I came to this board I was in such a brain fog from the FMS that I couldn't make sense out of much, but I decided to do a coaching session with Dr. Stoll (see front page for a link on coaching session procedure). It was worth more than gold, because he very patiently showed me how I had been headed to the state I was in since BIRTH, and that all my minor problems contributed to one major fact, that my immune system was severely compromised and that I had to do something big to reverse the downward spiral I was in. Then he recommended several things, in small increments, which I can assure you he would do with you also...
He gave me the titles of two books to read, one being the book he wrote and the other being "Mind As Healer, Mind As Slayer" by Pelletier. Then I would be ready for the first assignment, which was to begin practicing some sort of relaxation techniques (he calls it skilled relaxation or SR). He said of all the things he would recommend, THIS would give me the quickest help in getting better, and that I was so depleted that I wouldn't have it in me to do anything else till I started relaxing. And here I was, thinking, "Me, stressed?"
But the Mind As Healer book taught me that stress isn't only psychosocial, it's anything to which your body must make an adjustment. This would include such mindless things as walking from an air-conditioned house into the 110 degree Texas heat as we have today, and doing it several times a day. It would also include inhaling the chemicals I use in housecleaning, not getting a restful night's sleep, bla bla bla -- I'm sure you get the picture by now. You see, a generation or so back, people got a good physical workout during the day, which may have been stressful but also relieved some stress, and then they slept peacefully at night and were refreshed and ready for another day. But in our time we are totally stressed by our environment, and there aren't enough hours in the night to release all the pent-up stress from each day, so every day we add a little more, and eventually our body starts to crumble -- FMS, IBS, MPS, diarrhea, Crohn's disease, diverticulitis -- lots of digestive problems.
When your body carries stress, it is always braced for an emergency, ready for fight or flight, as they call it. Your muscles are using an incredible amount of blood to stay ready to run from any danger that comes up. The more stressed out you get, your hands and feet start to stay cold, because even THEY are robbed of blood supply as your muscles in your arms and legs (and gut) battle for blood.
I had a hard time making a connection between digestive problems and stress until Dr. Stoll taught me that one of the first organ systems to crater is the digestive system because it demands the most blood to function optimally. That fact stands to reason because we must digest food every few hours, which requires energy. If all the blood is needed in the gut, then we develop problems elsewhere when the blood is robbed from there. THEN, if we are still over-stressed, even the gut falls apart, hence you experience the diarrhea, etc. that you mentioned.
Eventually, the gut breaks down and -- viola! -- leaky gut syndrome enters the picture. If you think of your lining of your intestines being made out of a cotton sheet, and the sheet becomes threadbare, with holes like cheesecloth, that might illustrate what is happening. Stuff you've eaten that should never get into your bloodstream begins to leak out and cause weird problems (fibromyalgia, for instance), and you are also a sitting duck for cancer, because the carcinogens that go through your body every day can cause either cancer in your stomach/intestines/colon or the carcinogens can go and lodge themselves somewhere else where you have another weak organ system. With leak gut (LGS) you have lost that barrier that's supposed to protect the rest of your body from all the crud passing through your digestive tract.
So maybe you're making a connection here, that you have to somehow manage to get enough blood supply to your digestive tract so it can heal -- of course, you realize it can't heal if it's deprived of enough blood.
When you learn to effectively practice relaxation techniques of some sort you will slowly begin to notice benefits. With each person the benefits manifest themselves differently, but for me, the first thing I noticed was that I no longer had dry eyes or a dry mouth, then I quit having to wear my mouthpiece at night for TMJ, then my chronic constipation ended. Slowly all these areas were realizing the benefits of blood vessels that had a free flow of blood nutrients once again, and my body could work as was intended.
This is a long answer to your questions, but I think Dr. Stoll would say basically the same things I have, just in a more articulate way. Incidentally, let me add that NO DOCTOR was able to offer me anything except drugs until Dr. Stoll came along. He taught me that I would never get well until I started reversing my downhill spiral. After I did my first assignment (learning and practicing SR), he led me on to other things which gave me back my health, but it would not have happened if I hadn't healed my gut problems.
The ironic thing is I didn't even know I had gut problems, because I didn't have diarrhea or anything, just constipation, but I thought that was inevitable because everyone in my family has it. Dr. Stoll told me about a test I could take to prove he knew what he was talking about, and WOW, I had leaky gut problems big time. My doctor said twice as he read the test results, "The size of the particles that are being leaked into your bloodstream are visible to the human eye!"
I am 50 years old, have had fibro four-plus years, and I don't know anyone with fibro who is doing as well as I am. But then I don't know anyone who has made the big changes I have either. The lady I mentioned who led me to this board did not do all I wrote about above, and TODAY, this morning at 9am, she had surgery for colon cancer. I guess that's what inspired me to take the time to write all this down. It's not new info; everyone who hangs out at this bulletin board knows what I've told you -- the issue is whether or not you will DO IT.
Feel free to email me privately. I hope this helps, and gives you a reality call.
Good health to you --
Johnelle
In Reply to: Treat the whole body to get well posted by Johnelle on July 18, 2000 at 14:00:07:
your writing is so good and clear -- the best summary I've read! May it help many, many health-seekers!
In Reply to: Treat the whole body to get well posted by Johnelle on July 18, 2000 at 14:00:07:
NMI
In Reply to: Fibromyalgia/MPS/Abdominal Trigger Points and Diarrhea posted by Ann on July 18, 2000 at 12:56:55:
Hi, Ann.
Since ALL of your conditions spring from a common cause, the only permanent (and universal) solution is SR.
Namaste`
Walt
In Reply to: Treat the whole body to get well posted by Johnelle on July 18, 2000 at 14:00:07:
Thanks, Johnelle!
Your generous contribution to helping others will surely help some to see that there IS a solution to their many chronic problems.
Namaste`
Walt
In Reply to: Treat the whole body to get well posted by Johnelle on July 18, 2000 at 14:00:07:
Dear Johnelle:
I cannot thank you enough for your time and energy that you put into writing a response for me and others. As I was reading your response, tears were rolling down my face as I was appreciating your kindness. You have no idea how you have already changed my life. For one reason, I do not feel so alone. Another reason is you gave me the incentive and hope to move on and heal myself. I read your response and then Dr. Stoll's book arrived hours later. I read all of Dr. Stoll's book in a few hours and I was never so happy! You summed up so much of Dr. Stoll's wonderful book! THANK you also Dr. Stoll! Everything makes SOOOOOOOO much sense to me now! It's unbelievable! And to think that I suffered my whole life with all of these problems. I will not dwell on that though. Because now there are angels on earth like you and Dr. Stoll who care so much! I thank the both of you from the bottom of my heart. You have no idea how much help and education that you have given me! Thanks so much! I will keep you posted on my progress! I can't thank you enough! Tears are still rolling down my face! Tears of happiness! Thanks again!
In Reply to: Treat the whole body to get well posted by Johnelle on July 18, 2000 at 14:00:07:
Your post gave me cold chills, Ann. So glad I could be of help. My first answer to prayer was when the lady led me to this bulletin board, her just taking the time to talk me through a few things in my hopeless state. Then the next answer to prayer was Dr. Stoll's wonderful (free!) advice, and Robert McFerran's eagerness to lead me through the elimination diet, along with three other precious women who shared in the misery and deprivation and laughs associated with that whole ordeal, then the grace of God that gave me the drive to go this far.
I am just grateful I can now do a little for others by my sharing. Would be glad to talk to you or anyone else again at any time, just email me at NellbellX@aol.com.
Johnelle
In Reply to: Fibromyalgia/MPS/Abdominal Trigger Points and Diarrhea posted by Ann on July 18, 2000 at 12:56:55:
It is mercury poisoning!
buy the book.
press the link.
In Reply to: Re: Fibromyalgia/MPS/Abdominal Trigger Points and Diarrhea posted by MAI on July 30, 2000 at 16:46:15:
;)
In Reply to: Re: Fibromyalgia/MPS/Abdominal Trigger Points and Diarrhea posted by MAI on July 30, 2000 at 16:46:15:
I'm replying to Yvette. This person is trying to tell people about his research. I don't think you should be rude to him. If he doesn't tell you, how will you know. Dr. Walt is very knowledgable, but keep an open mind. His views are not the only ones. I'm not saying he's wrong, I'm just saying you have to be global. Granted this man may want book sales, but everyone who is anyone has a book, that's the nature of the beast. And by the way, I like Dr. Walt very much and I'm taking what he says seriously even though I don't agree with everything.
In Reply to: Re: Fibromyalgia/MPS/Abdominal Trigger Points and Diarrhea posted by Walt Stoll on July 20, 2000 at 09:04:49:
I think I told Dr. Stoll I have fibromyalgia. The people who do the research, at least many of them say this is a spectrum disorder connected with CFIDS (same disorder). Even The Fibromyalgia Network (biggest support group) will tell you this. There are a plethora of symptoms and problems associated with this. Leaky Gut Syndrome seems to be at the top. I told Dr. Stoll about a lab for testing and I hope he got the info by now. Great Plains Laboratory, you can get it by typing these words in at search on the web, you don't really need there exact web address. They've done some studies on fM, you know the LGS, yeast, etc. When the results of one of their most severe clients came out, it showed high (50times norman) amounts of Tartaric Acid in the urine. The main source of this acid is yeast they say. This is a muscle toxin and inhibits the Krebs cycle enzyme Fumarase which produces Malic Acid. They also found elevated citrmalic, hydroxymethylfuroic, fiurandicarboxylic, and of course tartaric. Low pyroglutamic acid which they thought might indicat glutathione deficiency. It's an antioxidant and a molecule involved in detoxification of various toxins. You can get the reports free by going to the site, if you check that disorder and you can get an information guide telling about their testing. There is much more info, I've only given you an excerpt. I believe stress only is a trigger for flare ups, not part of the cause. Check it out!
Renee
In Reply to: Re: Fibromyalgia/MPS/Abdominal Trigger Points and Diarrhea posted by Renee Begley on August 06, 2000 at 14:48:31:
Thanks, Renee.
I have been trying to get people to understand that CFS, is the same as Chronic EBV, is the same as FMS, is the same as Fibromyalgia, is the same as hypoglycemia, thyroid problems, arthritis, LGS, are the same as, etc., for years. I am glad to see that some people are taking this seriously!!
THEY are all, basically, due to the accumulation of chronic stress-effect in the hypothalamus which changes the function of the hypothalamus--depending on the genetic suceptibility of the individual.
In other words, depending on your genes, the exact same causes might present as arthritis, thyroid conditions, CFS, colitis, hypretension, etc.
Hope this is making sense to you-all.
Walt
In Reply to: Re: Fibromyalgia/MPS/Abdominal Trigger Points and Diarrhea (Archive under stress.) posted by Walt Stoll on August 07, 2000 at 09:57:45:
Walt and all:
What Walt said here in his reply is SOOOOOO Important to understanding all this wellness/disease stuff that I wanted to use it for a subject line, so perhaps some here will actually read it.
"I have been trying to get people to understand that CFS, is the same as Chronic EBV, is the same as FMS, is the same as Fibromyalgia, is the same as hypoglycemia, thyroid problems, arthritis, LGS, are the same as, etc., for years.
THEY are all, basically, due to the accumulation of chronic stress-effect in the hypothalamus, which changes the function of the hypothalamus--depending on the genetic suceptibility of the individual.
In other words, depending on your genes, the exact same causes might present as arthritis, thyroid conditions, CFS, colitis, hypertension, etc."
I hope everyone here reads and understands this. If so, it would make Walt's life here much easier, and we all could spend less time worrying about our specific diagnoses and our specific symptoms. And deal with the (singualar) cause!
RHJ++
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[ Fibromyositis/Fibromyalgia/Arthritis Archive ] [ Main Archives Page ] [ Glossary/Index ] [ FAQ ] [ Recommended Books ] [ Bulletin Board ] |
Search this site! | |