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I have experienced chest pains described in the archive in my ribs on one side at a time which I can pin point, but I was wondering if the type of pain I've been feeling lately is due to fibro as well. Sometimes, my entire rib cavity aches all at once. Lately, I can feel discomfort in my back when I swallow - high up to the left of my right shoulder blade. It really doesn't feel like it is on my insides though, but rather between my skin and the rib itself. The other day, I felt a rumbling in my chest next to my heart. I've had an ekg a couple of months ago, which came back normal. I've read Dr. Stoll's book, and I'm currently teaching myself skilled relaxation. The lymph nodes under my arms ache and wax and wane in swelling, as do the ones on my ribs next to my chest. I've had my cervical lymph node biopsied, which showed it was just an inflammatory response. After numerous blood tests for everything under the sun, the only thing abnormal was positive titers for EBV. My doc says I probably have chronic fatigue and referred me to an infectious disease specialist, which I'd love to not go to. I suspect I have LGS and know that all of this is interrelated. I just want to know if anyone could tell me if all this jives, or if I should worry about having another condition that I should go get checked out. Thank you!
In Reply to: effects of fibromyalgia? posted by Nicole on July 26, 2001 at 08:55:55:
Nicole, From my experience in the past you are describing some of the problems I had exactly. I went thru all the tests to get it off my mind that there was something major wrong. Luckly for me there was not. It was just bracing which sr does wonders for. Also I did have lgs and candida problem which I treated and I am doing fine now. In my case and everyone does not go the same route but I would say you are at the early stages and you could probably fix it quicker then I did because I waited to long and did not know what was wrong . I would not tell you to not take more tests,but it sounds like stress is a large factor in what your problem is. My biggest problem was recognizing the stress. Good luck
In Reply to: effects of fibromyalgia? posted by Nicole on July 26, 2001 at 08:55:55:
Totally, sounds like my "fibrolike symptoms" to me.
Listen to Dave, I'm finding out that all of this stuff is related to my Candida and LGS. If you can find a doctor who will help you with those symptoms, you're doing great. I haven't found anyone yet, but the SR, Primal Defense, L-Glutamine, and regular exercise are really helping a lot.
In Reply to: effects of fibromyalgia? posted by Nicole on July 26, 2001 at 08:55:55:
It all jives. Been there, experienced all that. But other things still need to be ruled out as CFIDS and/or FMS can mimic a great many other things.
There is a lot of very good material in the archives of the BB on both CFIDS (CFS) and FMS.
BTW, you may want to reseach vitmain A. Some rather high dosages of vitamin A is what enabled me to clear up the swollen and painful lymph nodes. It also helped to clear the brain fog and chronic pharyngitis. The herb echinacea and vitamin C and the minerals zinc and magnesium also helped a great deal. But for me the greatest correlation as far as the lymph node swelling and pain and the brain fog was vitamin A. Every time I tried to drop below a certain dose, the lymph nodes would swell again, the pain behind the nose and the brain fog returned. Within hours of taking the needed dose, the swelling and pain would disappear.
You'll want to research A because this is one of those fat soluable vitamins that can cause problems if you get too much. Of course what many books don't tell you is that if you have an infection, or you've been under a great deal of stress either physical stress from medical problems (not just infection) or psychological stress, or your digestion and assimilation aren't too good, it can take some higher than normal dosages of A. The best sources of material on A are going to take these factors into consideration.
Judy
In Reply to: Re: effects of fibromyalgia? posted by Judy on July 27, 2001 at 00:30:40:
Thanks Judy (you too, Beth and Dave). Just wondering though, I understand fibro can mimic other things and they should be ruled out before considering this a diagnosis. So far, this has been tested: lupus, tuberculosis, toxoplasmosis, mercury levels of my blood; I've also had a chest x-ray, CT scan of my neck, cervical lymph node biopsy, numerous CBCs, HIV test, and my thyroid checked. As I mentioned, everything came back normal except for EBV. The whole time, my WBC was within normal limits, even when the doctors said I had a throat infection. Is there something else you think I should look into? I really have lost all confidence in allopathic physicians, and I currently am under the care of a naturopath, but she can't make any diagnosis in my state. I also have run out of funds. I do, however, wish to see a doctor in my area who is a MD that is highly trained in Chinese medicine (just have to save the money to get there). Perhaps his treatment could be more beneficial? The other night, my entire left leg swelled up as did my arm several months ago. My naturopath, through iridology, says I have a lymphatic blockage. Could accupuncture help? Thanks again!
In Reply to: Re: effects of fibromyalgia? posted by Nicole on July 27, 2001 at 08:49:37:
Nicole, One other thing, if I were you I would look into rebounding. I had great sucess with that also. Good luck
In Reply to: Re: effects of fibromyalgia? posted by Nicole on July 27, 2001 at 08:49:37:
Right off hand I can't think of anything they haven't ruled out that needs to be ruled out. There is a special RNA (I believe) test for lupus, but I can't remember the name of it, and it's an expensive test. (It's been some time since I had it.)
An abnormal thyroid test doesn't rule out CFIDS because thyroid problems are common with CFIDS.
In my case leukemia had to be ruled out because my white blood cell count was so high and I had pains in my joints. (White blood cell counts can be above or below normal in CFIDS. So can sedimentation rates.)
It's also common for PWCs to have slightly elevated titers to ANA with a speckled pattern so don't get worried if that shows up. It happens a lot with PWCs without there being any recognized autoimmune disorder.
You may want to check out the website of the CFIDS Association of America. They have some excellent info dealing with reserach and test results, and most of it is very well-written in a very accesable manner.
There's so much overlap between FMS and CFIDS that's it's a good idea to check resources on both.
Judy
In Reply to: effects of fibromyalgia? posted by Nicole on July 26, 2001 at 08:55:55:
Hi, Nicole.
What the devil is an infectious disease specialist going to do for fibromyalgia--except get you out of the referring physician's office so he doesn't have to spend time with you?
This is costochondritis which is caused by fibromyositis (fibromyalgia is the same thing).
What have you learned from the archives about these things?
Walt
In Reply to: Re: effects of fibromyalgia? posted by Nicole on July 27, 2001 at 08:49:37:
Nichole,
If you have used the archives you already know it matters little what the final diagnosis might be (except that you will have become bankrupt making it) all of these exotic diagnoses are caused by exactly the same set of circumstances. Besides, conventional medicine has not a clue how to treat any of them.
Walt
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[ Fibromyositis/Fibromyalgia/Arthritis Archive ] [ Main Archives Page ] [ Glossary/Index ] [ FAQ ] [ Recommended Books ] [ Bulletin Board ] |
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