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I would greatly appreciate an opinion on this.
For about 12 yrs., I've had migraine headaches.
For about 2 yrs. now, I've had FMS.
Here's the odd thing. When I have a migraine, there is
no FM symptoms, my hands and arms feel great. When the
migraine goes away, the muscle pains, aches, etc. return.
My thoughts have considered cortisol, adrenal, prostaglandins, or combinations of stress/lack of sleep,
and how these may do this. So far, I cannot put together
anything that would suggest how one would "attract" the
pain from the other. Any ideas would be much appreciated.
(I've studied vitamins, minerals, naturopathy, nutrition
for many years, tried all I can, so far, no luck).
By the way, excellent site.
Bear.
In Reply to: FM/Migraine interchange posted by Bear on November 21, 1999 at 16:15:47:
Thanks, Bear.
My first take would be that your migraines have been misdiagnosed and that your headaches are muscular in nature--just as is your fibromyositis. You are aware, are you not, that 95% of all migraines are misdiagnosed?
First, I would suggest you VERY carefully describe EXACTLY your experience with the entire history of one "migraine".
Then, let us go from there.
Walt
In Reply to: Re: FM/Migraine interchange (Migraines?????????) posted by Walt Stoll on November 22, 1999 at 10:01:06:
Thanks so much Dr. Stoll,
Well, it generally begins after waking up in the morning,
and proceeds to get worse throughout the day. It will move around my whole head during the day, but also have a more
permanent residence behind one eye. Neck and back of the
head pain comes and goes also. I have no aura to speak of,
but my focus is slightly altered. I sometimes experience
a numbing on the left side of my face. Naseau is there sometimes, not often. I feel like I just don't want to talk
or think, as the pain is constant and strong. I often have to resort to pain meds, as in acetominophen/codeine combinations. It may last one to three days, depending.
Smells, odours like perfumes, etc. make it much worse, as
does bright light and noise.
(Triggers appear to be: weather, polyunsaturated oils(like
canola, sunflower, flax, etc.)
aspartame(hardly ever used it), dried egg/shortening,
msg/salt together in one product, but alone ok, tea
sometimes, gingko, aspirin and all nsaids, and dairy).
I've tried Sumitriptan, works but it comes back worse.
Nsaids make it much worse or can start them.
Acetominophen with narcotic only helps get through a day.
Feverfew did nothing. B-2 nothing. Magnesium some help.
Fish oil starts them. Antioxidants do nothing to help.
Thanks again.
Bear.
In Reply to: Migraine description posted by Bear on November 22, 1999 at 10:25:10:
I forgot to mention, I intend (seriously) on getting your
book, sounds interesting for sure.
Here's one other thing also.
Some years ago, in 91, I ate at a fast food restaurant.
I went home, woke up early in the morning, had intense
diahrrea and pain unimaginable. This persisted for 6 weeks,
while they tried to find an answer. I thought it might be
food poisoning, they said finally it was IBS, and to eat
more fiber. A few years later, I felt terribly fatigued,
gained weight easy, and could barely move around from being
tired. In 94, dx's with Hashimoto's. Now the fibro type
syndrome. The migraines began in 89. They weren't much
trouble until around 91/92. After reading your migraine
piece, I'm thinking about the leaky gut/genetics/peptide
possibility. Since your time is money, I won't expect you
to ramble on here, but, am I on the right track then?
Thanks.
Bear.
In Reply to: Re: Migraine description posted by Bear on November 22, 1999 at 12:51:57:
Hi, Bear.
From this excellent description, I would hazard that there is at least an even chance that this is not even a vascular headache--let alone a migraine.
In all that you have said, you never once mentioned being able to count your pulse with the pulsations of pain in the headache: something that is universal with any vascular headache of which migraine is but one kind. I would bet that this is a severe muscle tension headache.
In a way, this is too bad since we could eliminate the pain of a vascular headache in 10 minutes by the simple trick in the article on the homepage. This does not work for a muscle tension headache. You might try it just to certify that I am right before we spend a lot of time dealing with your "bracing" headaches.
I would focus there not only because that would remove a certain amount of stress from your life but that the same things done to relieve your headaches would also relieve everything else you have mentioned at the same time by getting at the common causes.
Let me know what you learn.
As you get well, I hope you will take the time to share your experiences with the BB so as to help others prevent what you have been going through.
Walt
In Reply to: Re: Migraine description (Archive under headache.) posted by Walt Stoll on November 23, 1999 at 09:42:12:
Ok Dr. Stoll,
Thanks so much. I do not have cold hands, in fact, they
are usually warm or hot even. I have studied your hot water idea, makes sense, but doesn't work for me, so you
are right on there. I will try this again to make sure.
I sometimes get a temporary relief from hot water as in
a bath, (real hot), but it lasts a few minutes only.
I will share my experiences gladly, thank you again.
And I will search your archives again.
Bear.
In Reply to: Re: Migraine description (Archive under headache.) posted by Bear on November 23, 1999 at 09:57:56:
Hi, Bear.
WELL! You just confirmed for me what I thought: THIS IS NOT EVEN A VASCULAR HEADACHE! How come I can discover that when I have not even seen you? Perhaps your docs are too busy counting the money they make from treating you (sigh)?
What you have is a severe muscle tension headache and it is no wonder your "docs" have been unable to resolve it for you!
Write for suggestions about this type of headache. Over the Thanksgiving working vacation, you need to learn about bracing, Rolfing, Feldenkrais, Alexander Technique and SR.
Looks like I am trying to get everyone else to have a "working vacation" (grin).
Walt
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