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Dear Anybody, I have just been diagnosed with Chronic idiopathic anaphylasis. I have had the"Giant Wheel Attacks" since I was 14 years old. For the past 3 years anaphylasis has accompanied the hive attacks. When I started having the hive attacks at 14, my mother would always ruch me to the Dr.'s office, only to be given benadryl and other antihistamines for several weeks, and told that it was my laundry detergent, shampoo, food, dust, etc.and they would eventually go away.I would have only one to two attacks a year and I learned to live with it. I never went to an allergist with my condition, because no one ever told me that I needed to, they always gave me an answer such as dye that you may have contact with, penicillen, etc.The first emergency room visit(3years ago)with hives that lead to anaphylasis was a nightmare, couldn't breath, heart arrythemia,along with those hives,I guess you know the proceedures that followed.The E.R. Dr. told me to never go anywhere without my (2)Epi-pens. The hives always cover my entire body, big huge raised whelps, sometimes closing my eyes,in palms of my hands,some covering entire body parts. This year, the last one(no penicillian, no change in weather,no kind of chemical contact that I am aware of) was the worst.. The emergency room Dr. wouldn't let me leave until he called an allergist and scheduled me an appointment for the next day. Every E.R. visit my symptoms immediately start going away when administered Epinephrine,steroids always followed. My question is: My allergist told me that my hives never went away, they went into remission, is this correct, can they go into remission for a year(I've never had more than 1-2 a year)? Can I relate other incidences with this illness?? such as going into lab at school and getting really dizzy, shortness of breath(I got to the point that I wouldn't go to school without my ventolin puffer,not that I had to use it) and confusion, usually when I get stressed. He is still doing all blood testing, and I am scheduled for a skin test this week. I have in the past 2 years been diagnosed with IBS, but I don't think that this is related. I tried biofeedback the last attack, but when the point of no return hits, no kind of meditation or relaxation will help you breath when your throat is swollen together.Now I'm almost scared to go out of the house.I carry my epi-pens with me everywhere. My allergist told me that I have a life threatening illness? Will I have another anaphylasis attack when he does the skin test? Do you or anyone have any new news relating to this condition?? Believe me, everything that I have read on this board I have tried, and/or eliminated.Thanks for any help.
In Reply to: Chronic Idiopathic Anaphylasis posted by carol on September 09, 2000 at 16:48:09:
Hi carol,
You said, "Believe me, everything that I have read on this board I have tried, and/or eliminated." Please be more specific and tell me what you have tried so far. This is serious stuff you are dealing with. It all has an underlying cause (overwhelming stress-effect in the hypothalamus), and as far as I know wellness is the only way you can turn it around. You need to practice regular twice a day (or more) SR as though your life depended on it; because it probably does.
Have you been to an Applied Kinesiologist?
You may also be a candidate to try NAET therapy. Do a search on this site and find the recent string of posts relating to NAET.
Anyway, please tell us specifically what you have tried.
In Reply to: Re: Chronic Idiopathic Anaphylaxis posted by KMD on September 09, 2000 at 20:10:50:
Carol,
I agree with KMD; I've been thinking about your situation and tried to do a search on MedLine - but so far I haven't found anything.
My first thought was, "Here's a person who would probably really benefit from the e-diet." You probably know that stands for "elimination diet" and there is a very good one you can read about on this board. I've put a link in below. Use the Glossary and search feature for unfamiliar terms and if you'd like to read more about any of this.
And please share with us what you've tried; there may be something someone could add that you'd find helpful.
June
In Reply to: Chronic Idiopathic Anaphylasis posted by carol on September 09, 2000 at 16:48:09:
All I wanted to tell you is that I have the same exact
problem. I too carry 2 epi pens and make frequent trips to
the ER. I have seen 9 different doctors, and have altered my
diet in every which way possible. Now I am only eating the
same couple of things everyday and only drink water. If you
want to e-mail me directly I could go over a some things I
have tried. sabz@earthli
In Reply to: Chronic Idiopathic Anaphylasis posted by carol on September 09, 2000 at 16:48:09:
Hi, Carol.
This is what happens when the allopathic principle of treating the "tips of the iceberg" comes home to roost.
NOW, you will have to learn about MCS and protect yourself while you practice STRICT wellness to get yourself out of the hole your "treatments" have gotten you into. In the meantime you will have to avail yourself of those treatments to survive this long enough to get over it.
Let us know how you do. See the glossary for any unfamiliar terms!
Walt
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