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Dr. Stoll,
I have already started your 3-4 legged stool of wellness and will continue. I've already had my S.R. certified w/biofeedback tech.
While online looking up info on candida I found a I.C.web site http://www.ic-hope.com/ with this info.
>>> Get tested for enterrococcus, mycoplasma, ureaplasma and chylamidia. Please be aware that even if your urine cultures have come up clean in standard cultures that does not mean you are infection free. Check out www.icsuccessonline.com and see some of the proactive things people are doing to improve their situation. Consider sending a urine sample to United Medical Labs and having it broth cultured to see if enterococcus, a gram positive bacteria is involved. Consider being tested for mycoplasma or ureaplasma infection. These hard to detect bacteria require special testing which will not be done unless you demand it. Get a PCR test done for mycoplasma & ureaplasma. Then get a broth culture done on a urine sample to see if enterococcus shows up.
MYCOPLASM and CHLAMYDIA
These bacteria can survive in the reproductive tract for years undetected until a patient is specifically tested for the infection. Women who experience infertility, recurrent pregnancy loss, pelvic pain, premenstral, bladder, urethral or vaginal symptoms should be tested. First symptoms are buring on urination, a feeling that you have to urinate all the time, terrible discomfort when the bladder is full, and vaginal itching, odor or discharge. Other first symptoms include itchy eyes, a cough or a burning in your nose.
If you feel you've had this for many years the treatment could be a lot longer because if the infection is left untreated it can spread to other parts of your body and make you sick or damage nerves, joints and muscles.>>>
I don't believe I was ever checked for these. Would like to know what you think/suggest.
Thanks for all your time and help.
CJ
In Reply to: (Bladder )Dr. Stoll others, some I.C. bacterial and or fungal ??? posted by Connie Jean on October 20, 2002 at 12:35:18:
Thanks, CJ.
First of all bladder infections show more things than infective organisms. There would also be many white blood cells and perhaps some red blood cells. When there are none of these is when recurrent problems must be considered possible IC.
Do you have your actual urinalysis reports in hand?
Walt
In Reply to: (Bladder )Dr. Stoll others, some I.C. bacterial and or fungal ? Archive in kidn posted by Walt Stoll on October 21, 2002 at 08:46:42:
Dr. Stoll,
I'm not sure I totaly understand your reply.
I guess I should have been more specfic in my question to you. I have a diagnosis of I.C. already.
I'm wondeing if it's possible that some cases of I.C. could really be an undetected case of chylamidia mycoplasma or ureaplasma. The symptoms can be the same as I.C. And the bacteria require special testing which would have been done by a gyn, if done at all.
>>>These hard to detect bacteria require special testing which will not be done unless you ask for it.These bacteria can survive in the reproductive tract for years undetected until a patient is specifically tested for the infection<<<
Untill yesterday I was not aware of this bacteria. I'm thinking I should inquire about being tested for them.
What do you think as you would know more about this than I would? Thanks so much Dr.Stoll, CJ
In Reply to: Re: (Bladder )Dr. Stoll others, some I.C. bacterial and or fungal ? Archive in kidn posted by Connie Jean on October 22, 2002 at 17:09:55:
I was diagnosed with vulvodynia and had inflammation in my bladder with daily unrelenting, gosh awful pain. Couldn't have sex for three years, couldn't wear underwear, couldn't eat anything (etc., etc.).
I went down that road and had the broth culture done and was on specific antibiotics (for seven straight months)specifically tested for enteroccous by Dr. Fugazzotto and another doctor (found by the three day broth culture) and ended up in WORSE condition than I was previously. By then, I was allergic to every food, supplement, perfume and cleaner known to man, and in worse shape, bladder wise.
I have been to Mayo, I have been to this doctor and had this and that test done, and yes, I was checked for myoplasma (and blah, blah, blah), but it DIDN'T WORK.
Detoxification finally got my bladder pain down. I bought a sauna and got alot of chemicals down, and my pain went away. Also, dealing with stress and doing things to help my stress load. I also had my mercury fillings removed and replaced too. IMHO, there was a toxic overload in my system, and getting all those toxins out is the key to wellness, but of course, you have to find out things for yourself, but I hope that you don't have to struggle in pain as long as I had to before you find real answers that give you relief.
I am fine now, and I can eat anything now. Good luck..
In Reply to: Re: (Bladder )Dr. Stoll others, some I.C. bacterial and or fungal ? Archive in kidn posted by Connie Jean on October 22, 2002 at 17:09:55:
Thanks, Connie Jean.
Listen to Susan.
IC makes one be more susceptible to ANYTHING that can bother the bladder. SO, it is still worth while trying to detect contributing causes. However, in my opinion, looking for an obscure organism is the least likely thing to produce results. Investigating environmental hypersensitivities (like foods for example) are a lot more likely to produce results.
In the end, eliminating the biggest cause (bracing) will make it easier to deal with anything else that is discovered.
Hope this helps.
Walt
In Reply to: Dr. Stoll others, some I.C. bacterial and or fungal ? Archive in IC. posted by Walt Stoll on October 24, 2002 at 08:22:06:
Thanks Dr Stoll,
You wrote;
>>>Investigating environmental hypersensitivities (like foods for example) are a lot more likely to produce results<<<
I have suspected food allergies for some time.
I'm planning to do an E-diet in the next few wk's. The only draw back is w/the I.C. it can take up to 3 or 4 days for food reactions to appear. I fear this will take a long time w/not much to pick from. And even the ph of the water I drink can hurt me. Thankfully I already know from this site that I'm an H.G. (I'm hypoglycemic)
I've been thinking about my original post. And it seems to me that even (IF)I have one of those obscure organisms, doing a complete wellness program should take care of them.
Thanks again, CJ
P.S. Believe me Susan has my attention !
In Reply to: Re: (Bladder )Dr. Stoll others, some I.C. bacterial and or fungal ? Archive in kidn posted by Susan in FL on October 23, 2002 at 10:08:22:
Hi Susan,
I read your story at icsuccessonline.
Thanks for caring enough to respond to my post.
I've had I.C. for yr's. 1st started w/bladder infections as a child at age(13) about the same time I got my 1st peroid. There were strawberry fields both behind our house and across the street. I now know I was exposed to a lot of pesticides because of that. I lived there from age 9-13. I also had ear, nose and throat prob when younger (antibiotics). Then after I had my 1st child it became mostly pressure and frequency. Or if I ate acid foods my urethra would burn and my bladder would hurt. I just used the baking soda in water, later prelief. Over the yrs I would maybe get one or two infections a yr treated w/antibiotics. I have always just managed to get by. I can't take it anymore. The last few yr's it has become worse. I'm afraid to eat, can't sleep. I hurt all the time. I also have other health problems. PMS so I take estradiol. Hypothroid taking unithroid. Also hypoglycemic. I'm having a lot of muscle pain, also pain in my hips. I’m now 47.
I have been wk-ing on reducing my stress.
I think about toxic overload. I have a mouth full of mercury fillings. When I went to a new dentist a few wk's ago and he told me that my fillings were so old that most of the mercury was probably all in my body. So I would be at low risk during removel.
Btw I called about the sauna. I'm waiting for them to phone me back. There ck-ing to see if they have one in my area for me to try before I buy.
I really apprecitate your time.
I'm very interested in how you recovered form I.C.
Would it be to much to ask if we could talk. I'm leaving my e-mail address.
Thanks again, CJ
In Reply to: (Bladder )Dr. Stoll others, some I.C. bacterial and or fungal ??? posted by Connie Jean on October 20, 2002 at 12:35:18:
nmi
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