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Possible interstitial cystitis

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Possible intersititial cystitis

Posted by bcollie on December 08, 2002 at 16:03:46:

A couple of months ago I thought I had a UTI but was tested twice and the results were negative. I certainly had all of the symptoms - burning, frequent urination, etc. I had a pelvic ultrasound which didn't show any problems. I was put on antibiotics and I took them for a month and they didn't do a darn thing. I went back to the doctor and am now referred to a urologist and put on pyridium for pain. My doctor has already said that if it is IC there is nothing he can do.

I have of course got on the Internet and researched what was helping other IC patients. Diet changes don't seem to affect my pain too much, but I am avoiding sodas, chocolate and the other major IC trigger foods. I have taken calcium carbonate (for acid reduction) and am taking glucosamine/chondroitin that supposedly helps to heal any problems in the bladder or urinary tract. I must admit I am somewhat better, but this may just be a coincidence and I am in a temporary remission. I do not feel like I have any of the symptoms of a yeast overgrowth but you never know.

Has anyone here gone through this and if so what helped? I do not want to go through any of the conventional treatments (bladder stretching, infusion of DMSO) or take Elmiron since the side effects can be liver damage and hair loss. Jeez.



Re: Possible intersititial cystitis

Posted by Daisy on December 08, 2002 at 16:53:39:

In Reply to: Possible intersititial cystitis posted by bcollie on December 08, 2002 at 16:03:46:

Hi BCollie,
A good place to start is to read the Interstitial Cystitis and Bracing archives on this site. See if any of what you read there is familiar.
I have IC and have been greatly helped by using Dr. Stoll's approach in conjunction with physical therapy. My IC is based in bracing muscles in the pelvic floor. I've never seen a urologist or gone through any of the dilation or DMSO treatments. I was lucky enough to find Dr. Stoll first.

Take care,
Daisy

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Re: Possible intersititial cystitis

Posted by Susan in Fl on December 09, 2002 at 08:18:20:

In Reply to: Possible intersititial cystitis posted by bcollie on December 08, 2002 at 16:03:46:

This is my story. I hope it helps you and gives you not only some good ideas, but encouragement and hope.




Re: Possible intersititial cystitis (Archive.)

Posted by Walt Stoll on December 09, 2002 at 09:21:15:

In Reply to: Possible intersititial cystitis posted by bcollie on December 08, 2002 at 16:03:46:

Hi, bcollie.

Listen to Susan in FL and Daisy.

All chronic problems are multifactorial in nature and fortunately we do not have to eliminate ALL the factors to get well. That means that there are many different things that might help.

I focus on SR since I have the most experience with that and I know that bracing of the levator ani is ALWAYS a contributing factor in IC.

Let us know how you do.

Walt

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Re: Possible intersititial cystitis

Posted by bcollie on December 10, 2002 at 19:11:08:

In Reply to: Re: Possible intersititial cystitis posted by Susan in Fl on December 09, 2002 at 08:18:20:

Susan - I had already printed out info from your site. You have done an excellent job and include a lot of info.

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