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IC PNE or what? TESTIMONIAL

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IC PNE or what?

Posted by Fatima [6760.2765] on January 27, 2009 at 16:33:18:


Dear Doctor Walt,

I am writing to you hoping you can say something about my situation. Well,i had urinary infection which wasn't going away by antibiotics for a year,i had all the tests done,cultures, ultrasons,cystoscopy ,kidney tests,you name it. The doc diognased me as chronic cystitis but i noticed instead of the e-coli showing in dffirent counts each time,i was never been able to get rid of it totally. And the funy symptom is things getting worse when i sit down and resolving when i stand up. When the symptoms were at its most extreme case,i was bad standing up too..With those qns in my head,i turned to the internet,forums over forums,facing all scary disorders, IC, Pudendal Nerve Entrapment, PFD and finally i am here ,hoping to find my own cure.

Well,i believe the stress factor and the muscle tension you mentioned about and the IC theory being caused by bracing. I have read and reviewed all of the posts and articles. But i have some important qns in my head:
1- I was working out at gym when this conditioned was first developed..Could excessive gymnastics, weight lifting etc have caused this?
2- My symptoms gets its worse when i sit down (right now) and resolves when i stand up in a weird way..It's like when the actually bacteria showed up,it was all the time without positional changing symptoms..But now it turned to be like i have mild burning/ irritation feeling around the urethra and clitoris area,it doesnt feel like coming from the bladder. If i finally give up ignoring this feeling and go to the bathroom,i feel its not coz my bladder is full bu just to get rid of the feeling and in a funny way it returns when i sit down. Could it be some nerve problem? If so,would skilled relaxation still work? And do i have to purchase something to preactise it? I read everyone can find their own way of relaxing the parts of their body searching about the SR.
3- When this problems were happening i also had rectal bleeding,had colonoscpy done and doc stated mild colitis started close to the rectum and prescribed salofalk. It went away when i took the meds for 2 weeks but urination problem was still there. At that time, i started working somewhere which required me to be standing up 10 hrs a day.I was also stress free for a period of time and noticed, it went away on its own..Now the nightmare is back with 1 positive and 2 negative cultures(no bacteria), sitting problem and colitis. What do you advice me to do?


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Re: IC PNE or what?

Posted by Ron [5412.6593] on January 28, 2009 at 06:21:50:

In Reply to: IC PNE or what? posted by Fatima [6760.2765] on January 27, 2009 at 16:33:18:

Hi Fatima,

Your docs should have been more aware of what was happening.
Sounds like E Coli Syndrome to me.

Here is a link for an explanation


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Re: IC PNE or what?

Posted by Susan in Fl [612.7419] on January 28, 2009 at 07:11:16:

In Reply to: IC PNE or what? posted by Fatima [6760.2765] on January 27, 2009 at 16:33:18:

I went through unrelentless pain with bladder issues for years, and my story is in the archives under Susan's Recovery, however, I have one simple remedy for you to try--baking soda. Take 1/2 teaspoon of baking soda with 8 oz. of water 3 times a day and see if that helps your pain. Good luck. :)

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Re: IC PNE or what?

Posted by Walt Stoll [93.4968] on January 28, 2009 at 09:34:02:

In Reply to: IC PNE or what? posted by Fatima [6760.2765] on January 27, 2009 at 16:33:18:

Thanks, Fatima.

This combination of symptoms sounds like chronic bracing to me. How long have you actually practiced certified effective SR as recommended in this website?

Walt

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Re: IC PNE or what?

Posted by Fatima [6715.7439] on February 09, 2009 at 07:35:15:

In Reply to: Re: IC PNE or what? posted by Walt Stoll [93.4968] on January 28, 2009 at 09:34:02:

Hello,
I have been practising deep relaxation for the last 2 weeks and just trying to be positive. It's probably too early to expect some results. I am also on no sugar diet. I still have the urinary frequency happening more if i have to sit on my desk for a long time at work and the slight bleeding on stoll. I think urinary symptoms and the bowel symtoms are just a part of one single problem, either muscle dysfunction, or some nerve problem, or just the inflammation is spasming the muscles and making me go to void more. I couldnt even get a proper diognasis coz doctors are very stupid seeing the pic one by one instead of viewing the total situation. Colitis in the rectum can cause muscle spasm and thus frequent urination itself? Is there any other recommendations for me to do while practising SR?


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Re: IC PNE or what?

Posted by Walt Stoll [93.4968] on February 10, 2009 at 06:38:05:

In Reply to: Re: IC PNE or what? posted by Fatima [6715.7439] on February 09, 2009 at 07:35:15:

Hi, Fatima.

Until you have certified effective your SR there is no way to predict how long you might have to do it to be certain of noting results. IF you happen to hit upon your effective technique, AND are particularly suscpetible to the RR, you might begin to note some short term benefits within a week or so. However from the description of your symptoms, you will need the long term effects to make a difference.

The only way you would see results this quickly from dietary changes is by practicing the PWFD (which, of course, means total elimination of all refined carbohydrates and not just sugar) for a week).

Hope this helps.

Walt

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Re: IC PNE or what?

Posted by Fatima [9604.7439] on February 11, 2009 at 09:59:40:

In Reply to: IC PNE or what? posted by Fatima [6760.2765] on January 27, 2009 at 16:33:18:

Thank you very much to everyone replying to my post and especially to the Dr. Walt.

Well,i have modified my diet and practising the deep relaxation twice a day and doin anything to stay light and relaxed. As my complaint has been increasing frequency of urination and burning like irritation in the genitals mainly just upon sitting,i was feeling that this could be smething to do with nerves. Today i made a self exam and found out something else. The burning has a intense point,which is the left labia and if i pinch that area towards the groin,i feel there is a intensity, and that burning. I try to self massage to the area. Perhaps this is just a nerve issue and not IC (since sitting is the major flare up issue) at all.Just complex issues which require endless periods of time using medicines with tones of side effects without even knowing they will help or not!

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Re: IC PNE or what?

Posted by Walt Stoll [93.4968] on February 12, 2009 at 07:36:42:

In Reply to: Re: IC PNE or what? posted by Fatima [9604.7439] on February 11, 2009 at 09:59:40:

Thanks, Fatima.

I would have to examine you, along with this description, to have any idea what could be causing such a strange symptom. Let us know what you find out from your regular doc.

Walt

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Re: IC PNE or what?

Posted by Fatima [9604.2765] on February 12, 2009 at 10:16:21:

In Reply to: Re: IC PNE or what? posted by Walt Stoll [93.4968] on February 12, 2009 at 07:36:42:

Hello,
Today i went to the uro asking for an urinary system ultrasound.I wanted them to check if i retain any urine.So the result is 20 cc post-voidal urine, went to the doctor to ask why this might be happening and if it is the reason of my sitting complaints. The doc seemed very careless. Then i asked if the colitis has any relation with bladder complaints and he said since those are very close parts,spasm and irritation in one can cause irritability to the other. Next week i will see a gyne and then another uro to ask for an opinion. I wont be surprised if the final diognasis is very mild IC along with the clotis.I am trying to be armed with information and dont want to take any medicine for a chronic condition.As i want to continue with SR and no sugar,refined carb diet. Today i had no bleeding. I will ask to the new uro to tell me if there are any stretches or relaxing exercises to do .Actually if he diognises me with IC,i just want to try physical theraphy but i hav lost my faith in doctors and a wrong theraphy might mess me more.If i were living in the US,i would come for an examination,Dr. Who wants antidepressants anyway? I have read all the info you posted about IC and i truly believe the mechanism.


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Re: IC PNE or what?

Posted by Walt Stoll [93.4968] on February 13, 2009 at 13:55:37:

In Reply to: Re: IC PNE or what? posted by Fatima [9604.2765] on February 12, 2009 at 10:16:21:

Thanks, Fatima.

Sounds reasonable to me. Let us know how you do.

Walt

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Re: IC PNE or what?

Posted by Fatima [12185.7439] on February 16, 2009 at 03:14:57:

In Reply to: IC PNE or what? posted by Fatima [6760.2765] on January 27, 2009 at 16:33:18:

Hi Dr,

I need your help in one thing. Yesterday i talked to a surgeon who is good at pelvic floor muscle issues and he said i might need a theraphy which is a month and he didnt explain much, just told me that he would see me and decide how bad is the condition first. I have seen his web page and he seems to be offering biofeedback often to his patients.
Now, since practising SR for more than 2 weeks and taking a med for colitis,i started to feel better. Just to see if i have anything serious or to see what kind of diognasis it will be,i might go to see this dr who is away from my hometown. If he offers biofeedback, should i go for it? I am asking coz i am sceptical in trying something which is given from outside to relax or change the muscles and cause something new. Would trying it hurt me or not?


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Re: IC PNE or what?

Posted by fatima [6760.7439] on February 16, 2009 at 09:23:06:

In Reply to: IC PNE or what? posted by Fatima [6760.2765] on January 27, 2009 at 16:33:18:

Can SR get rid of the trigger points associated with IC or as it's like what they say for biofeedback, "symptoms can return as soon as you get an emotional trauma" ? I don't think i can find someone who gives trigger point release theraphy here, but perhaps i can try to learn how to help myself.


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Re: IC PNE or what?

Posted by AT [11797.4426] on February 16, 2009 at 09:41:54:

In Reply to: Re: IC PNE or what? posted by fatima [6760.7439] on February 16, 2009 at 09:23:06:

There's probably a debate about that. Have you read a book based on Simon and Travell about this? They think manual manipulation is necessary to release trigger points which are fibrous tissue with lymph fluid and to be deactivated. Clair Davies has a very intructive book (The Trigger Point Therapy Workbook) for doing it yourself.
SR could probably deter future problems.

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Re: IC PNE or what?

Posted by fatima [6760.7439] on February 16, 2009 at 10:09:58:

In Reply to: Re: IC PNE or what? posted by AT [11797.4426] on February 16, 2009 at 09:41:54:

I will order the book and check, thank you so much.


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Re: IC PNE or what?

Posted by Walt Stoll [93.4968] on February 17, 2009 at 08:44:47:

In Reply to: Re: IC PNE or what? posted by Fatima [12185.7439] on February 16, 2009 at 03:14:57:

Hi, Fatima.

At the very least, a biofeedback training session would help you know IF there is a bracing problem there AND whether or not your current SR technique is working. A month of biofeedback training seeems a pretty short time, if that is all you do, for resolving a problem like this--unless you are given a machine to take home for the month and use it at least twice a day.

Walt

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Re: IC PNE or what?

Posted by Walt Stoll [93.4968] on February 17, 2009 at 08:59:09:

In Reply to: Re: IC PNE or what? posted by fatima [6760.7439] on February 16, 2009 at 09:23:06:

Fatima,

The longer you practice an effective SR technique, the longer the benefits will persist.

Walt

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Re: IC PNE or what?

Posted by Jan DeCourtney, CMT (Happygal) [716.7432] on February 17, 2009 at 22:09:19:

In Reply to: Re: IC PNE or what? posted by Fatima [12185.7439] on February 16, 2009 at 03:14:57:

Hi Fatima,

Biofeedback doesn't hurt anything, except maybe your wallet if their fee is high.

Best wishes,
Jan

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Re: IC PNE or what?

Posted by Jan DeCourtney, CMT (Happygal) [716.7432] on February 17, 2009 at 22:11:20:

In Reply to: Re: IC PNE or what? posted by fatima [6760.7439] on February 16, 2009 at 09:23:06:

Hi Fatima,

Besides doing SR, find other ways to keep reducing your stress. "Recapture Your Health" has many suggestions.

Also, good idea to work on the trigger points yourself.

You may be able to find a therapist who specializes in it, though, also.

Best wishes,
Jan

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Re: IC PNE or what?

Posted by Fatima [12185.7439] on February 23, 2009 at 10:06:54:

In Reply to: IC PNE or what? posted by Fatima [6760.2765] on January 27, 2009 at 16:33:18:

Unbelievable! Almost 1 month and i am having my first remission from the big part of the urinary discomfort. Things i do: take no medicines, do SR 3 times a day, get random massages, have fruit/ vegetable juices and do very gentle stretches and "accept" my situations instead of being anxious about it. Seems like i am breaking the cycle.I hope this is not a spontonous remission. I wish i could learn where my trigger points are and prevent the existence of this weird and very disturbing symptoms and could change the response of my body to the stressful situations (that's what i am trying to work now, how can i change it if i am holding all the stress below my belly without even being aware of it?) SR is obviously helping for the whole body. I feel all my body is so light afterwards and sometiems i come to the point that i dont feel the parts of my body at all during the session. Thank you Dr.Walt. I am now expecting some tips on how to build a healthy bowel flora, get rid of inner hemorroids and effects of toxics. Thank you again and everyone who has been replying to my posts. I will keep updating on my situation.

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Re: IC PNE or what?

Posted by Jan DeCourtney, CMT (Happygal) [7244.7432] on February 23, 2009 at 10:39:00:

In Reply to: Re: IC PNE or what? posted by Fatima [12185.7439] on February 23, 2009 at 10:06:54:

Hi Fatima,

Congratulations!!!!!!!

Try to find your trigger points yourself. Trigger points feel painful when you touch them, and sometimes they feel like a large or little bump. They often refer pain to a different location. So explore for tender points, and when you find them, just gently press on them until the pain slowly fades away. Then rub the area and look for another point.

I had a different condition, but I found that first I'd be feeling better, then bad again for a little while, then much better, then bad again for a little while, etc. So expect some ups and downs but keep moving forward with your program.

Best wishes,
Jan

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Re: IC PNE or what?

Posted by fatima [6760.7439] on February 24, 2009 at 05:35:20:

In Reply to: IC PNE or what? posted by Fatima [6760.2765] on January 27, 2009 at 16:33:18:

Today i got the result of my vaginal swap and it revealed enterobacter spp. growth,nothing else. The dr said nothing really, just prescripted some antibiotics. Now i wonder if this bacteria without a confirmed bacteria in the urine could be the part of the reason for urological symptoms such as frequent urination?


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Re: IC PNE or what? TESTIMONIAL.

Posted by Walt Stoll [93.7469] on February 24, 2009 at 07:33:43:

In Reply to: Re: IC PNE or what? posted by Fatima [12185.7439] on February 23, 2009 at 10:06:54:

Congratulations, Fatima.

Listen to Jan. It is to be expected, though not essential, that you will still have some ups and downs over the next few months. You will just have to persist to get through them.

Let us know how you do.

Walt

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Re: IC PNE or what?

Posted by Walt Stoll [93.7469] on February 25, 2009 at 06:33:14:

In Reply to: Re: IC PNE or what? posted by fatima [6760.7439] on February 24, 2009 at 05:35:20:

Fatima,

Which enterobacter? There are dozens of them and only a few are pathological.

Walt

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Re: IC PNE or what?

Posted by fatima [6851.7439] on February 26, 2009 at 18:22:58:

In Reply to: Re: IC PNE or what? posted by fatima [6760.7439] on February 24, 2009 at 05:35:20:

Oh the report doesnt show what kind it is,it only says "enterobacter spp" and the list of antibiotics. Since this all started, i have been having the urge to urinate as soon as i get into shower, doesnt matter if i have just urinated or not. That never used to happen before.


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Re: IC PNE or what?

Posted by Walt Stoll [93.7469] on February 27, 2009 at 07:41:28:

In Reply to: Re: IC PNE or what? posted by fatima [6851.7439] on February 26, 2009 at 18:22:58:

Thanks, Fatima.

Without knowing the variety of species of enterobacter, these results are meaningless. Everyone has enterobacter species growing on them somewhere. I seriously doubt that the random prescribing of antibiotics will affect your symptoms at all.

Let us know how you do.

Walt

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