Interstitial Cystitis Archives

ok, now I believe you truly are brilliant...re pelvic floor dysfunction

Dr. Stoll --

I stumbled upon this site, first heartened, then cautious, as I read through your license revocation, etc. But when I clicked on the Interstitial Cystitis article, it warmed the cockles of my heart. My OBGYN, the same man responsible for permitting vaginal birth of a 10lb.+ baby when I TOLD him it was going to be too big and he said it would be 7 lbs...the same man who allowed me to have a 4th degree tear, lose a liter of blood and go into shock post-partum...you get the idea...anyway...
this man, after I had gone to him for 18 months with excruciating pelvic floor pain...at that point had the nerve to say, oh, the urethra and bladder are irritated, you must have IC. Never mind that the pain well pre-dated the irritation of the bladder and urethra...you get the picture.

Anyway. 10 years later. I am still suffering. Somewhat my own fault for trying to 'push through' the pain. Somewhat because I became so disillusioned at seeing doctors that I 'hid' in physical therapy for the last four years with minimal progress.

I finally realized I had to get help and embarked on a new long-distance quest with an OBGYN who seems to have a grasp of musculoskeletal issues. I had my first internal pelvic floor treatment and after a severe downward spiral I am beginning to sense the long term benefits. I have a dedicated local pt who simply doesn't have the training to do the internal work, but is willing to get them.

So maybe there is hope for me. How can you help me? How can I learn about this Skilled Relaxation? How can I get some quality of life back?

I have excellent insurance, am well-educated, worked in a hospital as a PR director, know the system, but have STILL not been able to get decent medical advice.

I place myself at your mercy.

Follow Ups:

• Re: ok, now I believe ......... steven 14:46:55 9/30/01 (1)
  • Re: ok, now I believe .........comment for Steven mm 02:01:06 10/02/01 (0)
• Re: ok, now I believe you truly are brilliant...re pelvic floor dysfunction (Archive in IC.) Walt Stoll 09:42:44 9/30/01 (0)
• Re: ok, now I believe you truly are brilliant...re pelvic floor dysfunction Beth E. 17:38:27 9/29/01 (0)

In Reply to: ok, now I believe you truly are brilliant...re pelvic floor dysfunction posted by mm on September 29, 2001 at 00:02:54:

All of the questions you have asked can be found on this website already. I have IC and am doing much better following the information found here. Read the glossary thoroughly and check the archives regarding your questions. When you've done a bit more research, you may still have some unanswered questions, and that's what this BB is for. Good luck!

• Skilled Relaxation glossary information

In Reply to: ok, now I believe you truly are brilliant...re pelvic floor dysfunction posted by mm on September 29, 2001 at 00:02:54:

Hi, mm.

Listen to Beth E.

The very last thing you need to do is "throw yourself on ANYONE'S mercy". You have already done that and see where it has gotten you.

Once you have learned what is in the IC, bracing, SR and stress archives, let us know shat you have learned.

Although there are expensive biofeedback devices for direct training of the levator ani, I still believe that total body reversal of bracing is the best in the long run.

Let us know what you learn so others will be benefitted as you get well.

Walt

In Reply to: ok, now I believe you truly are brilliant...re pelvic floor dysfunction posted by mm on September 29, 2001 at 00:02:54:

mm,

This is wonderful that you have found and obygyn to treat the musculoskeletal tissues and a dedicated if not yet trained pt. I hope you will continue with this treatement.

You may also consider visceral massage as trauma to the internal organs can set up reflex arcs that maintain ischemia and hypertoniciy in the musculoskeletal tissues.

Consider also an xray examination for a leg length difference, the procedure is available for reference in Travell and Simons' Myofascial Pain And Dysfunction Volume Two page 59.

best wishes,

steven

Follow Ups:

• Re: ok, now I believe .........comment for Steven mm 02:01:06 10/02/01 (0)

In Reply to: Re: ok, now I believe ......... posted by steven on September 30, 2001 at 14:46:55:

Steven -- thanks for the input. I do indeed have a short-leg thing going on. My pt's have worked on me for 4 years thinking if they got the SI joint stabilized it would work itself out.

We're all puzzled at the fact that something is triggering these severe muscle spasms and we just can't figure out what it is...