Interstitial Cystitis historical posts July 1998

Re: Interstitial Cystitis

Posted by Walt Stoll on July 01, 1998 at 09:00:43:

Thanks, Tessa.

IC would have no effect on a pregnancy. When you are ready to stop classifying yourself as having IC, use the archives attached to this BB.

THEN, as you get well, please share your experiences with the BB.

Walt



Re: Interstitial Cystitis

Posted by Walt Stoll on July 01, 1998 at 09:04:36:

Dear Tessa,

ALL cases of IC have habitual contraction of the lavator ani muscle. The most common cause of THAT is total body "bracing" which is the most common cause or LGS--
the most likely cause of your colon symptoms.

You have a lot to gain by perusing the archives & home page of this site. Read the references recomended (especially the book by Dr Pelletier).

THEN, if you still have questions, write again.

Walt



Re: Interstitial Cystitis

Posted by Walt Stoll on July 01, 1998 at 09:25:31:

To Micki,

If this is true, why does learning to relax the levator ani ALWAYS resolve this problem?

I have no doubt that anyone with IC is more susceptible to ANY bacteria since the bladder never quite empties.

I hope anyone who takes this advice as the total cause of this problem will continue to share their experiences with this BB for at least 5 years (including you, Micki). In every case the problem will recurr without the relaxation of the levator ani.

I make no income from this advice. Why in the world would I suggest it unless it worked? I would just be making a fool of myself with no reason. The problem is not that it doesn't work but it IS getting skeptics like you to realize that chronic problems like this will never be resolved by something you TAKE but by something you DO.

I have had more than 30 years of experience with this, half with the conventional approach & half with knowing about the cause. With dozens of cases I never resolved the problem (by more than a few months--just about twice the length of time you have experienced) by culturing the bacteria & treating them. I ALWAYS was able to resolve the problem IF the person was willing to learn an effective skilled relaxation technique & practice it twice a day for 6-12 months. THEN the wise ones continued at least once a day forever. How many people have you had personal experience with?

I hope you have the personal integrity to let us know when your problem comes back & you have to admit that I was right.

Walt



Re: Interstitial Cystitis

Posted by Micki on July 01, 1998 at 17:43:00:

In Reply to: Re: Interstitial Cystitis posted by Walt Stoll on July 01, 1998 at 09:25:31:


So you say that you are not trying to profit, then why are you selling a book and charging people for phone calls, $2.50 per minute I beleive it is. I suppose that the answers to how to relax the levator ani are in your book that you are selling for $13. I am a skeptic because you are charging for your information. If you really do have the answer to this disease than why don't you share it for free. It seems unethical to let people suffer when you have the cure does it not? I know that the antibiotic treament works for me and I am in constant contact with a lady that has been healed for 13 years by this treatment. She askes nothing from me ans offers her information at no cost. I am always open to new cures for this problem as it is a terrible disorder that affects every aspect of ones life. Maybe you can help me by explaining a little more about your theory. I am willing to listen with an open mind.


Re: Interstitial Cystitis

Posted by Bill on July 02, 1998 at 08:41:04:

In Reply to: Re: Interstitial Cystitis posted by Micki on July 01, 1998 at 17:43:00:

Hi Micki,

So you say that you are not trying to profit, then why are you selling a book and charging people for phone calls, $2.50 per minute I beleive it is. I suppose that the answers to how to relax the levator ani are in your book that you are selling for $13. I am a skeptic because you are charging for your information. If you really do have the answer to this disease than why don't you share it for free.

I would recommend that you skim the first time visitor FAQ to this site for some answers on why Dad plugs his book.

I submit that there is a LOT of free information here on the website. Have you read the article on Interstitial Cystitis yet? In that article, Dad suggests you contact a place in Michigan, that you read his article on Skilled Relaxation, that you consider contacting a good psychologist in some cases, all before he suggests you buy his book. The bottomline purpose of the book is not to cure IC; it's to get people to think about the doctor-patient relationship in a whole new way and to provide a ton of tools and resources for supporting personal health. As a result of following that path, people resolve IC and other problems they didn't know they had.

Dad's book does NOT go into great detail on how to do Skilled Relaxation. Please don't buy the book expecting that. The book has two pages specifically on Skilled Relaxation. These pages tell the benefits, recommend several general approaches (biofeedback, Silva Mind Training, autogenic training, meditation, prayer, self-hypnosis) and recommend resources for learning various techniques (The Relaxation and Stress Reduction Workbook by Davis, McKay and Eschelman, and The Relaxation Response by Herbert Benson, MD. The Resources section names four other books specifically on Skilled Relaxation, as well as dozens of related resources.

If you read Mind as Healer, Mind as Slayer by Kenneth Pelletier, PhD, you may find the evidence needed to convince you to try the Relaxation without paying a penny to Dad.

You may also want to read some of Jim Hare's posts for more thoughts on this path. Other archives may prove enlightening as well

I think there is a reaction whenever something seems to be too good to be true. I have a lot to say about that but will keep it short:

1. Skilled Relaxation as a cure for IC is a lot of work. It's worth it, but it is a LOT of work. The results may seem too good to be true, but it's far from a free lunch. You have to set aside 20 mins a day twice a day quite religiously for many months, and you have to learn to do it properly and verify it's being done properly. Much easier to pay a doc for antibiotics. Although I would rather take antibiotics than have IC, I would sure choose getting rid of causes over taking antibiotics the rest of my life and risking the bacteria developing immunity.

2. I would strongly recommend AGAINST doing the $2.50/min phone consultation as an introduction to this stuff. Geez, after five minutes you could have paid for the book and gotten a much more thorough introduction. I think the place of the health coaching is when you have already decided Dad knows what he is talking about, need specific suggestions and are unwilling to post your medical history on the internet.

3. Finally, I suggest that repeated doctor visits and orders of prescription antibiotics is quite expensive. I believe that we accept this approach without being skeptical, asking "why me - can I prevent this?" because of the way we have been conditioned in this culture. There is a great little book about the appropriate place of allopathic vs alternative medicine called Health at the Crossroads by Dean Black.

Thanks for being willing to keep an open mind. On a personal note, I turn 40 this year. I do skilled relaxation in s


Re: Interstitial Cystitis

Posted by Walt Stoll on July 02, 1998 at 10:33:03:

In Reply to: Re: Interstitial Cystitis posted by Micki on July 01, 1998 at 17:43:00:

Micki,

It is not fair for you to only sort out the part of the facts that support your suspicions.

You neglect to mention that I make no money from my book although that information is all over this 'site.

You also neglect to mention that I donate an average of 6 hours a day to giving free information on this 'site and that I do so in the interest of public information. The only reason I offer a paid service is for those people who do not WANT to do this publically. Done privately, no one else will benefit from the information.

I do everything I can to encourge people to do this publically FREE. Each condition, discussed publically, serves as a teaching opportunity and their testimonials serve to help others be inspired to learn more about their options.

There is only one of me & millions of you. What would you have me do? Should I spend 24 hours a day donating my time? Should I type out my book onto the website so everyone can read it free? That is a lot to expect of me. I am already at the limits of my ability to keep up. The only reason I wrote my book was to save time explaining and giving people resources to help themselves. The only time I recommend it is when the concept the person needs takes more time to explain than is practical on the 'site.

You also neglect to mention that even with the health coaching service I spend MANY hours (several days) studying the information sent me, and pay the cost of the phone, FAX and calls before the final session WITHOUT CHARGE. When the whole time is figured in, even though I charge $2.50 per minute for the final charged time, I am actually making about $2/hour for my time. If I doubled my charge, I would get close to the minimum wage.

All of the information anyone would need to learn to keep their levator ani relaxed is available FREE on this 'site. The only reason for anyone to consider my book is that it is easier to learn about there. Those who want to be spoon fed this information are expecting a lot. Those who are willing to take resopnsibility for using the information offered on this 'site can get it free. We have made it as easy as we know how!

So long as you are so suspicious, there is nothing I can help you with. Perhaps, when you have suffered enough, you will change your mind & remember that there was someone, once, that offered an opportunity.

Maybe by then there will be lots more professionals resolving this problem.

Good luck!

Walt



Re: Interstitial Cystitis

Posted by Dad on July 02, 1998 at 10:45:54:

In Reply to: Re: Interstitial Cystitis posted by Bill on July 02, 1998 at 08:41:04:

Thanks, Bill!

Perhaps, you could save this somehow to offer others like Micki who are too suspicious for their own good. It IS hard for many people to think that there could be ANYONE out there who truly is dedicated to helping without expectation of personal gain.

This might also be the time to let the BB participants know that YOU are spending almost exactly as many hours as I am, on a daily basis, to keep this 'site administered. Micki has NO IDEA what it takes to offer her this opportunity!

Micki is not alone in her suspicions. She has not shared the undoubtedly interesting stories she has that would explain why she is so suspicious. I have no doubt that she comes by it honestly. The shame is that she is going to miss her opportunity because of this baggage (sigh).

If she spent even a few hours, reviewing this 'site, she would not be so quick to rush to judgement. It seems like a small investment on her part--considering how much she expects US to donate to HER.

Love, Dad



Re: Interstitial Cystitis

Posted by Micki on July 02, 1998 at 16:39:13:

In Reply to: Re: Interstitial Cystitis posted by Dad on July 02, 1998 at 10:45:54:

Perhaps you have gotten the wrong impression of me. I am a strong advocate for my health and am always second guessing medical advice. If I were to take the word of every doctor that ever spoke to me about this disease then I would be under the influence of tricyclic anti-depressants, anti-spasmotics and other symptom only drugs. I ordered the relaxation and stress handbook from Barnes and Noble last night and it should be here in about 2 weeks. I know that I am a type A personality with lots of self inflicted stress and feel that trying your technique can only do me some good. I will use it in combination with the antibiotic treatment as I have seen such excellent results from it. Now, you must understand that I am also in the medical profession. I donate countless hours helping my patients and their families reach a better life. Please do not insult me when you do not know who I am. I am simply trying to find the best way in which to regain control of my life. I will not miss out on this opportunity if it is a valid approach. I know that it will not be easy, but please remember, living with this affliction is far from a breeze. Just ask anyone or their spouses who suffer. Now, is the book I ordered the best to start with and is it the only one I need to be successful at this treatment? Thanks for your help and try to remeber, a person who stops probing and asking, and analizing has lost control of their destiny. I am not trying to be disrepectful. Please offer me the same courtesy.



Re: Interstitial Cystitis

Posted by Micki on July 02, 1998 at 16:42:15:

In Reply to: Re: Interstitial Cystitis posted by Bill on July 02, 1998 at 08:41:04:


Hi Bill,
I sent a note to your dad, you may want to read it. Thanks for your help and clarification. I ordered the stress and relaxation book last night. I will use it in combination with the antibiotics. I read the Ic and skilled relaxation articles last night and decided to give it a try. I don't think it can hurt. Thanks again.


Re: Interstitial Cystitis

Posted by Micki on July 02, 1998 at 16:47:45:

In Reply to: Re: Interstitial Cystitis posted by Walt Stoll on July 02, 1998 at 10:33:03:

Thanks for the explanation. I have ordered the stress and relaxation hand book and will dig further into your site. If was wasn't such a suspicios person then I wouldn't have taken matters into my own hands to look for a cure. Not trying to be critical just want to make intelligent informed choices. I will be all the work I can into curing my body, whatever course I take. I will keep in touch.


Re: Interstitial Cystitis

Posted by Micki on July 02, 1998 at 17:36:02:

In Reply to: Re: Interstitial Cystitis posted by Dad on July 02, 1998 at 10:45:54:


I have just read some of the posts on this BB and am a bit confused. Which book should I get and read first: The stress and relaxation handbook or the Minad as Healer book. I know that the BB is going to be shut down for a while and would like a response before that happens. I am really listening and willing to learn. Honest!!!


Re: Interstitial Cystitis

Posted by Bill on July 02, 1998 at 22:09:26:

In Reply to: Re: Interstitial Cystitis posted by Micki on July 02, 1998 at 16:42:15:

Hi Micki,

I read all the dialogue, thanks. I'm glad you are going to investigate the Skilled Relaxation. Please do consider checking out Pelletier's Mind as Healer, Mind as Slayer. I think you will find it appeals to the type A, healing professional/scientist part of you.

I'm proud of my dad and what he's doing here, but (and he knows this) I still am bothered by tone he takes with folks who suggest he might have other than altruistic motives. You might want to check out why license was revoked if you are curious to learn a little about why he can seem so angry.

Good luck!
Bill


Re: Interstitial Cystitis

Posted by Walt Stoll on July 03, 1998 at 08:01:46:

In Reply to: Re: Interstitial Cystitis posted by Micki on July 02, 1998 at 16:39:13:

Micki,

I appreciate your note. I would suggest that you re-read it yourself. I could say the exact same things to you: "Please do not insult me when you do not know who I am." AND "Please offer me the same courtesy."

All of the questions you ask in this note are answered many times on this 'site. Use the homepage & archives. If you want to avoid digging things out, my book is your best bet. SORRY ABOUT THAT!

Walt


Re: Interstitial Cystitis

Posted by Walt Stoll on July 03, 1998 at 08:07:12:

In Reply to: Re: Interstitial Cystitis posted by Micki on July 02, 1998 at 17:36:02:

Micki,

Since you are a "health profesional" your best bet would be to read the MAH,MAS book first. The most recent edition would be best. ANY bookstore can get you a copy if they do not already have it on their shelves.

For the relaxation workbook, the oldest edition would be your best bet. It was published first in 1977 by New Harbinger. Your library should be able to find you a copy.

Then, if you still have questions about the relatioinship to your unresolved symptoms, MY book is still your best practical connection (SIGH).

Walt



Re: Interstitial Cystitis

Posted by Micki on July 16, 1998 at 08:59:50:

In Reply to: Re: Interstitial Cystitis posted by Bill on July 02, 1998 at 22:09:26:

Dear Bill,
Thanks for you letter. Yes your father can take quite a tone but I did not take any of it to personally. I am quite headstrong myself and sometimes putting two of those personallites together can cause a clash. As I explained to him, if I did not question methods than I would be under the influence of bad drugs and have no hope for a healthy future. I hope that he has not taken my remarks personally as well. I have purchased the relaxation work-book and have begun some deep breathing and autogenics. These seem to be easiest for me. I don't like progressive relaxation as it seems to make me more tense. I will look into the Pellitier book. I am going on a 2 week vacation starting Monday so I may have a chance to read it. I think that you have me pegged pretty good, the science and healing side of me always wants a logical answer for things. Thanks again Bill, keep in touch.
Micki



Vaginal soreness

Posted by Heidi on July 02, 1998 at 12:39:32:

Dear Walt,

I have been experiencing something very strange going on with my vaginal area. It's sometimes really sore after sex, but not always. Sometimes using condoms I get a burning sensation. Also, I have a strange smell. It's strong and a little fishy. I always have a discharge too. I don't itch, I just have these other weird symptoms. Please understand I am VERY clean. I shower 1-2 times a day, always after swimming, never douche or use any sort of strange things in or on my vagina. I have had yeast infections in the past, and treated them properly with medication and don't have sex while I'm treating them, eat yogurt, etc. I always wear cotton underpants. I have gotten over all of the infections, but I have also had PID twice. Please, what could be wrong? Please help!


Re: Vaginal soreness

Posted by Walt Stoll on July 03, 1998 at 07:54:18:

In Reply to: Vaginal soreness posted by Heidi on July 02, 1998 at 12:39:32:

Dear Heidi,

This sounds like "pelvic congestion syndrome" complicated by candida-related syndrome. Do you have orgasms &, if so, how often?

This is not related to "cleanliness"!

Walt


Re: Vaginal soreness

Posted by Aimee on July 03, 1998 at 17:47:08:

In Reply to: Re: Vaginal soreness posted by Walt Stoll on July 03, 1998 at 07:54:18:

what do having orgasms have to do with this problem? I'm curious for my own reference.


Re: Vaginal soreness

Posted by Walt Stoll on July 03, 1998 at 18:41:45:

In Reply to: Re: Vaginal soreness posted by Aimee on July 03, 1998 at 17:47:08:

Dear Aimee,

An orgasm results in the trapped blood in the pelvis (which accumulates during sexual stimulation (OR DESIRE) being suddenly released. If a normal person does not occasionally get this release, the pooling of blood in the pelvis causes MANY chronic pelvic symptoms & diseases.

Pelvic congestion syndrome is ALWAYS caused, primarily, by this mechanism.

Go to your medical school library & read up on PCS.

The second most common cause is the habitual contraction of the levator ani (which allows arterial blood to get into the pelvis but the (lower pressure) venous return to be trapped. Regular orgasm temporarily relaxes this muscle & allows some of the trapped blood to escape.

Interesting how this is all related, isn't it?

Walt



Pediatric Urinary Track Infection

Posted by Madeline on July 12, 1998 at 16:58:58:

Dear Dr Stoll:
I have a 3 .5 years old daugther who is actually suffering from a UTI they gave her Suprax this is her 2nd day of medication she has never had an UTI before. What concerns me is that they order 2 test for her one is Mag3 Renal Scan and VCUG. Is it wise to do them at the first UTI or no? Iwill really like to have your advise.



Re: Pediatric Urinary Track Infection

Posted by Wallt Stoll on July 13, 1998 at 08:02:31:

In Reply to: Pediatric Urinary Track Infection posted by Madeline on July 12, 1998 at 16:58:58:

Dear Madeline,

Without being on the site, there is no way I can second guess the docs you have seen. HOWEVER, the general rule is that a little girl so commonly gets a first urinary tract infection that the standard 10 day antibiotic treatment is all that should be done (other than looking at another urine specimen AFTER treatment). IF there is still any infection, microscopically, PERHAPS these studies might be indicated.

THEN, if there is a recurrence within a few years, the studies may be indicated. For these studies to be ordered at the beginning of the first infection is unheard of.

If a little BOY has a first infection, the studies should be seriously considered. This has nothing to do with "gender bias". It has only to do with the comnparable lengths of the urethra. The female urethra is so short, that infections of the bladder are comon. In the male, the urethra is so long that bladder infections are rare unless there may be something to find on studies like this.

ALL docs know this. Ordering unecessary expensive tests is a national scandal. If you find out that these tests were NOT indicated, you should take this as a warning about the motives of your present doc.

Walt



IC

Posted by Candie on July 14, 1998 at 23:51:14:

Dr. Stoll
I am very new to the internet and found this website, I have IC and it seems like all the doctors can do is prescribe pills. My condition is moderate, I have the hemorrhages shown from a biopsy done with cystoscopy. My s/s are urgency, pain, frequency. I have been taking elavil, initially the dosage was too high and gave me halluciantions, so now I take 10mg before bed and sometimes have to bite the pill in half b/c the drug will buld up and even 10mg causes hallucinations. Elmiron did not work for me, the DMSO tx seem too invasive and now the doctors want to try atarax. What is your suggestion?


Re: IC

Posted by Walt Stoll on July 15, 1998 at 11:23:06:

In Reply to: IC posted by Candie on July 14, 1998 at 23:51:14:

Dear Candie,

This is an unnecessary condition.

Go to the link: IC archives
and read everything you can find about IC.

THEN, if you still have questions, write again.

Walt



Pelvic Levator Syndrome

Posted by Tracy on July 19, 1998 at 16:50:18:

Dear Dr. Stoll,
I am writing on behalf of my father, age 62, who for several years was treated for an "inflamed prostate" by a GP. Finally Dad went to a urologist, who said that his prostate was fine, but that Dad has Pelvic Levator muscle spasms. The doctor told Dad that for most patients, bio-rhythm therapy is helpful, but that he (the Dr) didn't think that my dad would be able to withstand the therapy due to the initial pain.
Are there any other avenues of pain relief that we can explore" My Dad is in chronic pain now, is unable to sit long enough to eat a meal or drive to town. The pain medicines that were prescribed make him feel "hung over" or drunk.
I would appreciate any information you could offer.

Thank You,
Tracy


Re: Pelvic Levator Syndrome

Posted by Walt Stoll on July 20, 1998 at 11:00:22:

In Reply to: Pelvic Levator Syndrome posted by Tracy on July 19, 1998 at 16:50:18:

WOW, Tracy! I am impressed!

I have been trying to teach my patients (and my colleagues) about habitual spasm of the levator ani as a cause for chronic prostatitis, painful intercourse, Interstitial Cystitis, Hemmorhoids, etc., for more than 20 years. It has been discussed many times right here on THIS BB! To have SOMEONE actually make the diagnosis is like a cooling breeze on a hot day! This doc is one you must not let get away.

However, we are all learning as fast as we can and this doc is still where I was the first 5 years of recognizing this mechanism. The spasm is but a result of total body bracing and can be discharged by getting rid of that. I have discussed THIS many times right here on this bb. If your dad is ready to have this behind him (no pun intended), he is going to have to learn & to DO. You, nor I (nor even his becoming enlightened doc) can do this for him.

He MUST learn an effective skilled relaxation technique & practice it at least twice a day for 20 minutes (not counting any done within 2 hours prior to retiring). Getting a deep, whole body, therapeutic massage 3 times a week for 2 weeks would give him surprising relief for a few months. Perhaps that will be what he needs to prove to him that this is the answer!

My book (link on this page) would get him a good head start & if he needed any more in-depth understanding , one of the references in the back: "Mind as Healer, Mind as Slayer" by Dr Pelletier (recent edition) would further convince him.

He does not have to live with this. As a matter of fact, if he does what I have outlined above, he will eventually come to bless the day that this happened to him------BECAUSE it forced him to learn & practice skilled relaxation regularly. The resolution of the LAS is but the tip of the iceberg of how much better his health will be once he does this.

Let us know what happens but remember, we can only open doors for people. If they choose not to walk through them, we need to just love them as they are and let them do their own suffering. It would be that, when he complains of his suffering, you are not bothered so much since you know it is of his choice.

I know that is blunt but it is true. Even your dad would say to you that he is ready to stop beating around the bush about this problem.

Walt



Re: Interstitial Cystitis

Posted by Becky on July 20, 1998 at 14:57:46:

I have had IC for 15 years, I frankly do not believe it has any thing to do with muscle tension!!!


Re: Interstitial Cystitis

Posted by Walt Stoll on July 21, 1998 at 11:49:09:

In Reply to: Re: Interstitial Cystitis posted by Becky on July 20, 1998 at 14:57:46:

Dear Becky,

So keep it! It is no skin off MY nose. Perhaps after you have had it of 30 years????

Walt



Re: Interstitial Cystitis

Posted by Walt Stoll on July 21, 1998 at 13:57:45:

In Reply to: Re: Interstitial Cystitis posted by Becky on July 20, 1998 at 14:57:46:

Dear Becky,

I just happened to think: Since you are getting the results you want frpom the conventional palliation of symptoms, there is no reason for you to think differently. Only those dissatisfied with conventional treatment go to those who know about the muscle tension and see their problem finally clear.

However, they no longer classify themselves as having IC. The fact that you DO, tells me that you still have symptoms.

Rigidity of levator ani is frequently associated with rigidity of mind (Jung).

Good Luck. Walt



Re: Interstitial Cystitis

Posted by Bill on July 21, 1998 at 20:49:42:

In Reply to: Re: Interstitial Cystitis posted by Becky on July 20, 1998 at 14:57:46:

Hi Becky,

You wrote:
I have had IC for 15 years, I frankly do not believe it has any thing to do with muscle tension!!!

I'm sorry you have had IC for 15 years. I'm told it's a very painful and inconvenient condition.

What do you think causes it? If you don't know, why not consider the possibility that skilled relaxation can resolve it?

Peace,
Bill



Re: Interstitial Cystitis

Posted by Andrea on July 27, 1998 at 13:00:26:

In Reply to: Re: Interstitial Cystitis posted by Walt Stoll on July 21, 1998 at 13:57:45:

Hello,
My mother has IC and has had silver nitrate instilled into her bladder many times do you know anything about this? She also takes alot of narcotics for the pain. Do you have any suggestions? She also has Fibromyalgia.
Any comments will be appreciated.
Andrea


Re: Interstitial Cystitis

Posted by Walt Stoll on July 28, 1998 at 14:50:19:

In Reply to: Re: Interstitial Cystitis posted by Andrea on July 27, 1998 at 13:00:26:

Dear Andrea,

IC and FMS are both caused by the same mechanism.

Use the link: archives and read all you can find about both subjects. Then get her to read what you have AND the Pelletier reference.

If she thinks she would be wiling to learn something new to get rid of BOTH of these conditions, write again.

Walt



Re: Interstitial Cystitis

Posted by Becky on July 28, 1998 at 19:06:49:

In Reply to: Re: Interstitial Cystitis posted by Bill on July 21, 1998 at 20:49:42:

Bill,
I have researched many possible causes of IC, and to date I do not believe that there is known cause, many theories, but nthing priven at this point.I have had lond periods or remission from IC over the years , but currently at this time I am in a very difficult time. At this time I am extremely frustrated and willing to to do just about any thing.
Becky




Re: Interstitial Cystitis

Posted by Becky on July 28, 1998 at 19:13:06:

In Reply to: Re: Interstitial Cystitis posted by Walt Stoll on July 21, 1998 at 13:57:45:

Walt,
I am currently taking elimiron tid, ditropan 5 mg q6-8 hrs,
ativan 1 mg @ hs and valium 5 mg q 4-6 hours as needed.
my symptoms are occasionally relieved.I also just finished 3 months of DSMO treatments(weekly)
Any suggestions.
Becky


Re: Interstitial Cystitis

Posted by Bill on July 28, 1998 at 19:39:29:

In Reply to: Re: Interstitial Cystitis posted by Becky on July 28, 1998 at 19:06:49:

Hi Becky,

I would be interested in reading what theories are out there regarding the causes of IC. Common sense suggests that the theories include genetics, injury, bacteria resistant to antibiotics, diet, etc.

It seems to me that strengthening the immune system might be an effective treatment regardless which theory (if any) proves to be correct. Even it didn't cure the IC, it would almost by definition improve general health.

I hope you will not give up hope of being rid of this thing.

Peace,
Bill


Re: Interstitial Cystitis

Posted by Walt Stoll on July 29, 1998 at 11:29:49:

In Reply to: Re: Interstitial Cystitis posted by Becky on July 28, 1998 at 19:13:06:

Dear Becky,

Discharge your total-body bracing by the regular practice of skilled relaxation & break the habit of holding your levator ani tight.

Walt



Re: Interstitial Cystitis

Posted by Walt Stoll on July 29, 1998 at 11:31:02:

In Reply to: Re: Interstitial Cystitis posted by Becky on July 28, 1998 at 19:06:49:

Dear Becky,

It seems to me that anything that always works should be given serious consideration.

Walt



Re: Interstitial Cystitis

Posted by Becky on July 31, 1998 at 17:44:41:

In Reply to: Re: Interstitial Cystitis posted by Walt Stoll on July 29, 1998 at 11:29:49:

Walt,
What is a levator ani?
Becky


interstitial cystitis

Posted by Tracy on July 31, 1998 at 13:13:07:

I am a 34 year old female with a frequent and urgent need to urinate all the time. I have a large amount of red blood cells in my urine, but no white cells. I have no pain, other than the feeling of a full bladder. About 4 weeks ago I had an actual bladder infection (both white and red cells) and which I took an antibiotic for. I never had the feeling that I completly recovered, so I went back for a further urinalysis and it showed only red cells in my urine. I was refered to a Urologist, who sent me in for an IVP that showed no abnormalities. A cystocopy was perfomred, but when I went in for it the nurse had trouble inserting the q-tip with the topical numbing agent on it. I was told that this was my problem, and that I had the urethra of an 8 year old. I was dilated and my bladder was said to be "normal" and was told that my symptoms would go away within 7 to10 days. It has now been 7 days and I am actually feeling worse I do not have any other pain other than this feeling of urgency, and sexual intercourse is not painful either. I was put on Ditropan (5 mgs a day) and it doesn't seem to be doing anything other giving me dry mouth and making me sleepy. Please advise me as to what you think. I am in a panic as I am set to go on vacation in less then 2 weeks, and I am afraid of going away for 10 days when I am having such discomfort. Thank you.


Re: interstitial cystitis

Posted by Walt Stoll on August 01, 1998 at 09:58:16:

Dear Tracy,

Use the archives to read everything you can find about IC. This is a totally unnecessary condition.

THEN, if you still have questions, write again.

Walt



1998: Apr May Jun Jul

Return to Main Page

More Interstitial Cystitis historical posts