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Celiac

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Celiac

Posted by Miho on March 05, 2003 at 08:33:57:

I've been on a gluten-free diet for a little over 2 months now since I am sensitive to gluten. I just started to wonder if this is what is called Celiac. Could a person "acquire" it later in life, suppose she did not have any symptoms of the desease in her early age? What is the differense between "gluten-intolerance" and Celiac?? If one has Celiac, can he eat gluten-containing foods with inter-vals (like every 4-5 days) since he must be on the gluten-free diet for life? So as long as it does not provoke the symptoms, can it be a matter of frequency, rather than going crazy with all gluten-free products?



Re: Celiac

Posted by Lori on March 05, 2003 at 09:02:50:

In Reply to: Celiac posted by Miho on March 05, 2003 at 08:33:57:

Hi,
Not everyone who is gluten-intolerant has celiac disesase, which has a specific constellation of symptoms; I believe there is a group of things they're allergic to but can't remember the components of it. A search on the net should yield it.

The only way to TRULY diagnose celiac disease is by a bowel biopsy. No, true celiacs cannot eat gluten at intervals; they should never eat it as it causes extensive bowel damage.

Most likely you just have acquired allergy to gluten, which is much more common -- celiac disease is relatively rare.

Good luck.



P.S. Celiac is genetic. Do you have family history? NMI

Posted by Lori on March 05, 2003 at 09:05:49:

In Reply to: Re: Celiac posted by Lori on March 05, 2003 at 09:02:50:

NMI



Re: P.S. Celiac is genetic. Do you have family history? NMI

Posted by Miho on March 05, 2003 at 09:27:16:

In Reply to: P.S. Celiac is genetic. Do you have family history? NMI posted by Lori on March 05, 2003 at 09:05:49:

Celiac disease is not very common in Japan as it is primarily a rice-eating country. The name of the disease is not well known either. Non of my family member seem to have indigestion problem with gluten. They never eat as much/ often bread or pasta as I used to. Seems I am a suddenly "self-mutated" breed in the family... lol I love bread and pasta. I moved to NYC - a city with the best bagels in the world!! - and all I was eating for about 2 years was gluten plus lots of sugar! I blame myself for getting a "pizza face" one day.

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Re: Celiac

Posted by Shelly on March 05, 2003 at 11:19:41:

In Reply to: Celiac posted by Miho on March 05, 2003 at 08:33:57:

I am gluten intolerant, diagnosed when I was 46 - now I'm 48. I had a biopsy done and it proved negative. What made me start checking was the constant stomach aches, sometimes severe cramping and diahrreah or constipation roller coaster that was awful. I was miserable for over a year full time and before that just part of the time. I finally went to a nutritionist who uses Electro Accupuncture to determine causes of maladies and that was what she diagnosed. I immediately started a gluten free diet and within a couple day the stomach pain was gone and within a week, my bowels had become more normal.

I accidently ingest gluten in small amounts (sometimes at home, sometimes when eating out - which is rarely) and it makes me feel awful. I use a homeopathic remedy to settle the symptoms and that really helps but my understanding is that with an intolerance, you cannot go back to ingesting the thing to which you are intolerant. It was a difficult diet to follow for the first couple months but I now have a system, keep GF flours and other supplies on hand and know by heart what I can and cannot eat.

Eating out is a pain but I find that if I eat things that are whole foods without marinades or sauces, I can usually keep pretty safe. If in doubt, I call the restaurant ahead of time and check.

Best of luck to you.



Re: Celiac

Posted by Miho on March 05, 2003 at 12:09:49:

In Reply to: Re: Celiac posted by Shelly on March 05, 2003 at 11:19:41:

So, you have been on the gluten-free diet for 2 years now. Have you slipped even once in a 6-months period that is a requuired length for re-setting your immune system to stop making anti-body? Walt says, if you eliminate the food that you are intolerant to for 6 months, you will no longer have the sensitivity to that food (but make sure you have also eliminated your Leaky Gut, otherwise you will get the allergy back.) If you have completely eliminated gluten and never cheated the whole time yet still have that severe sensitivity, doesn't it mean you are celiac? (Walt, what is your take on this??)



Re: Celiac

Posted by Helping You on March 05, 2003 at 13:14:05:

In Reply to: Celiac posted by Miho on March 05, 2003 at 08:33:57:

The short answer is that true celiacs have an inherrited allergy to gluten which can result in severe symptoms or even death if consumed. Someone that is "gluten-intolerant" will not die of eating gluten but may suffer from various allergy-type symptoms like gastrointestinal stress, runny nose, or sneezing. This is called a "sensitivity" and is not immediately dangerous but over many years, could weaken the immune system and cause disease

-HY

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Re: Celiac (Archive in LGS.)

Posted by Walt Stoll on March 06, 2003 at 08:44:12:

In Reply to: Re: Celiac posted by Miho on March 05, 2003 at 12:09:49:

Hi, Miho.

Celiac disease is serious enough that I would NEVER consider "slipping".

If you diligently eliminate your LGS the time will come in a year or so when you will be able to have small amounts without much risk of relapse. Your genes have determikned that this a cross you will have to bear all your life so you will ALWAYS have to be careful but will be able to live a life that is not inconvenient.

Let us know how you do.

Walt



Re: Celiac (Archive in LGS.)

Posted by Miho on March 06, 2003 at 10:35:51:

In Reply to: Re: Celiac (Archive in LGS.) posted by Walt Stoll on March 06, 2003 at 08:44:12:

Thanks Walt and other who responded. Can I be super clear on this? Does that mean that I am not a Celiac but have LGS with sensitivity to gluten?The reason I eliminated gluten in the first place is that it was something I was eating every day in large quantities for about 2 years before I started to get cracked lips (yeast mouth?) I did not know if I "felt" awful after eating gluten-containing foods. After about 5 months of going on the whole foods diet with elimination of gluten, I no longer had skin rashes. I returned to eating pasta/bread every day. Then, after about a year I started to feel indigestion after eating gluten. Do some people like myself have sensitivity to foods without immediate physical disturbance?



Re: Celiac (Archive in LGS.)

Posted by Walt Stoll on March 07, 2003 at 11:52:40:

In Reply to: Re: Celiac (Archive in LGS.) posted by Miho on March 06, 2003 at 10:35:51:

Hi, Miho.

Someone else said that only a biopsy can make the diagnosis. They were perfectly right.

The only reason to actually give a name to this is so that some predictive efforts can be made for what the person can expect in the future. It does not do anything to help the individual learn about and do something about the cause(s).

Hope this helps.

Walt



Re: Celiac (Archive in LGS.)

Posted by Miho on March 07, 2003 at 13:40:10:

In Reply to: Re: Celiac (Archive in LGS.) posted by Walt Stoll on March 07, 2003 at 11:52:40:

"Learn something about the causes"

Are you saying Celiac is caused by LGS or something else
other can genetic abnormality?

The Canadian Celiac Association says, although they are not
the exact words, "When you eat a bowl of pasta does your
stomatch bother you? If you are one of those people, you
are Celiac"

Someone like me only have a mild case of indigestion
occasionally. However, it could be from just eating too
much. When I eat small amount of bread or pasta, it does
not bother me.

I know I am drifting. My point is that if Celiac is CAUSED
by something, could it be cured if the causes are dealt
with?

Sorry if I am just being too slow - I am not getting your
point.



Re: Celiac (Archive in LGS.)

Posted by Walt Stoll on March 08, 2003 at 06:37:41:

In Reply to: Re: Celiac (Archive in LGS.) posted by Miho on March 07, 2003 at 13:40:10:

Thanks, Miho.

Celiac disease is a genetic SUSCEPTIBILITY that is awakened by life style choices that do not affect the rest of us.

The underlying mechanism, that ALL celiacs can deal with, is to get rid of their LGS and see how many symptoms they still have left.

Any of the LGS complications worsen celiac conditions so they have to be taken into account during this process.

Hope this helps.

Walt

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