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HELP!! Hubby's UC driving me nuts!!!

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HELP!! Hubby's UC driving me nuts!!!

Posted by crazywife on December 08, 1999 at 11:16:30:

Hi, I am in desperate need of help!! My husband has ulcerative colitis and for the most part has no problems with it. But recently he has had a flair up and he is sick all the time!! He can't even get out of bed! He has lost 9lbs. in the past week. He goes to the bathroom at least 15-20x a day. Mostly blood is coming out when he goes. He is so lethargic and liss-liss. He has been taking Asacol 3pills (400mg ea.) 2xd. But that hasn't been helping. I have gone through your archives and read the material on UC and LGS, but he is the type of person this won't work on. He is constantly under stress which I do try to alleviate for him. We do have 2 small children which I have basically taken over all the car for while he lays in bed 24hr. a day. I keep the kids quiet and away from him to try to calm him down and take some stress off of him. I have taken over all household responsibilties for him, but I am so worried for him. I can't stnad to see him wasting away like this. I have begged him to go to the dr. and get some stronger medication, but he refuses to because his dr. will put him on predisone and he won't take that because of the side effects of the medicine. He also hates taken the asacol because of the side effects but they seem to be alot milder than those of the predisone. I don't know what to do for him. Is there any herbal treatments that have been effective in combatting UC? Are there any medications that maybe he can get his dr. to give him outside of predisone that is effective yet has minimal side effects? Also is there anything that will give him immediate relief? I have read alot of your bb archives on this subject, but he is not the person to try those treatments on he is so stubborn, but he is driving me out of my mind the way he lays around and can't even get out of bed except to go to the bathroom. I know this is a debilitating condition, but please someone give me advice. I don't want my husband to be hospitalized because he won't get help!!! Please someone help!!!!!

Crazywife!!!



do you want one of us to stop by and talk with him?

Posted by One who finds his action irresponsible on December 08, 1999 at 13:03:19:

In Reply to: HELP!! Hubby's UC driving me nuts!!! posted by crazywife on December 08, 1999 at 11:16:30:

Hello. I'm not sure what you want from this board. I'm sorry about your/his problem, but to quote you, "he is not the person to try those treatments on he is so stubborn".

So if he "won't" try the natural remedies described here, and he "won't" go to his regular doctor, what do you want us/Dr. Stoll to do? I think you may be hoping that someone else with UC to write in and give you a magic pill that has worked for them. I hope you can find one, it he really won't "DO" anything to help himself. I'm sorry if I sound cold - I'm not - this is just the way it is. You must actually "do" something once in a while. And considering that he has kids, he has responsibilities, he clearly is not thinking straight. You must intervene.

How about this? Since he is afraid to go to his normal MD (...which maybe he should be in this case) encourage him (no, make him) to visit a Naturopathic doctor. He will not put him on predisone, but he may prescribe some medicine and life-style changes that are outlined by Dr. Stoll and others. Sometimes it takes a knowledgeable person to examine you and then tell you what you have to do to live before you take it seriously.

Also, since he has plenty of time to read, print out the discussions regarding UC (from this board and every other site you can find) and make him read them. Who knows, when lying in pain, he may feel it is worth a shot. Don't automatically assume that he won't.

Regards and I wish you luck.



Re: do you want one of us to stop by and talk with him?

Posted by crazywife on December 08, 1999 at 13:56:37:

In Reply to: do you want one of us to stop by and talk with him? posted by One who finds his action irresponsible on December 08, 1999 at 13:03:19:

Hi, I totally agree with you. I have driven myself crazy with him and his UC. I suggested meditation may help him, but he of course has no time for that. I have been all over the internet printing articles on UC for him and so far the only thing he has thought was good enough for him is the studies w/nicotine helping alleve symptoms in mild to moderate cases because he's a smoker. I have even called his dr. to make an appt. for him and he won't go.I am ready to give up on him just like you said. If he won't help himself I don't think I can help him any. I don't want to see him waste away or have himself put in a hospital because I love him and the kids need him. We have another one on the way due 3/2/00. But I am at my wits end with him and trying to help him. I was sympathetic for him at first, but now I am downright outraged as his belligerence in getting himself help!! I agree with you 100% and I can't help him unless he wants to help himself first. I 'm not on the boards looking for a miracle cure just some alternate medicines that maybe I can even ask his dr. for, for him to help him out. Thank you for your insight!! And believe me I didn't mean to come off in my first letter as looking for something that can't be found!!! Sorry!!!But I do agree with you 100%. Thanks



and he smokes?

Posted by Pete R on December 08, 1999 at 17:10:11:

In Reply to: Re: do you want one of us to stop by and talk with him? posted by crazywife on December 08, 1999 at 13:56:37:

I've smoked before. Of all the things you can do to help "wellness", quiting smoking is it. I recall my brother in-law; couldn't eat pizza and had all sorts of other restrictions for an ulcer. It all went away when he stopped smoking. You usually don't associate gut problems with smoking. (another example - the #1 recorded cause of bladder cancer is smoking. Its way bad. Unless I suppose you have the immune system of George Burns)

Anyway, maybe you can get him to read the paper by Cliff Garner (posted just above). The first paper includes a great description of alternative medicine.

Can you plead with one of his other friends to convince him to get help. Peer pressure may help. There is not much else you can do.

I do feel sorry for your problem. Your genetic "nesting" instinct is being messed with. I mean that with a baby coming most woman want to get everything "all set". And your husband is not all set. And, while you are saving him don't forget yourself. You are so clearly stressed - I hope you have the time to calm yourself. You don't want to get sick too.

Best of luck.



Re: CRAZY LIKE A FOX.......

Posted by SR- on December 08, 1999 at 18:59:32:

In Reply to: and he smokes? posted by Pete R on December 08, 1999 at 17:10:11:

Sounds to me as if he is doing whatever he can to accomplish the life he always wanted.

Perhaps, if he can somehow be assured that he has some control over his life and that he will not be expected to ONLY TOIL and bring sticks to the "nest", as someone else mentioned as.... his DUTY / RESONSIBILITY of providing for the "nest" .......
As my sister likes to somewhat jokingly say .. referring to her husbad.. where is my worker bee or my pack mule.. he then sort of laughs at this truth.. ha ha..

Maybe your husband needs to somehow be made aware that he can exist in and of who he is and allowed to become what he wants to be..... in addition to gathering the sticks of "HIS" responsiblities.

A persons life is all they have and if they are Feeling forced .. for whatever real or unreal reasons to gather sticks, then such sticks can only be used to beat and whip the collective spirit into ulcerfying physical lesions.

Such is some of the truth behind the healing possiblities of Skilled Relaxation... I would surmize ? ....

When your husband KNOWS he can have and has the Freedom to be and become something more than a stick gatherer,he will STILL proudly gather the sticks, but the sticks will then be used to build something good, rather than be used to BEAT SOMETHING UP ... such as his GUTS...

Not an easy task to for either party... but it will lead to your happiness and his healing..
At least in my opinion..
Good Luck
SR



Re: HELP!! Hubby's UC driving me nuts!!!

Posted by Peggy on December 08, 1999 at 19:20:17:

In Reply to: HELP!! Hubby's UC driving me nuts!!! posted by crazywife on December 08, 1999 at 11:16:30:

Believe me, when you are in the condition your husband is in, you are ready to hang it up. No, he's certainly not able to think straight when he's having painful, bloody diahrrea 15-20x a day (by the way that's 24-hours a day, I know he's up several times a night too). My worst flairs were "only" 10-12x day, so I can hardly imagine 20.

ANYWAY, I believe that the permanent answer to this problem is what Dr. Stoll teaches here and that's what I've been practicing. Any other effective solution that involves taking or eating something will only be temporary because it's not healing. But for now, he's in such bad shape he needs medicine to get it under control ... except for the opinion of Natural Hygienists who would say that he just needs to fast and rest until symptoms have ceased and that drugs are never necessary. I don't know, I haven't come to a decision about that yet. He feels so bad right now I know he doesn't have the energy to do ANYTHING. But, once he slows this down he will feel much better and, if he really wants to, will have the energy to work at permanent resolution. I also took the Asacol, only, I took 3 pills/3x day. He should try increasing. 6 asacol a day sounds useless for the state he's in right now.

Best wishes.

Peggy




Re: do you want one of us to stop by and talk with him?

Posted by EJ on December 09, 1999 at 11:39:50:

In Reply to: do you want one of us to stop by and talk with him? posted by One who finds his action irresponsible on December 08, 1999 at 13:03:19:

DIAL 911



Re: HELP!! Hubby's UC driving me nuts!!!

Posted by Walt Stoll on December 09, 1999 at 12:37:06:

In Reply to: HELP!! Hubby's UC driving me nuts!!! posted by crazywife on December 08, 1999 at 11:16:30:

Hi, Crazywife.

First, there is NOTHING either one of US can do. HE has to want to do what is needed to resolve this.

Ulcerative colitis was the first life-threatening condition that was found to be totally curable with Biofeedback (40 years ago). It is now known that any form of effective SR works as well. It takes 6-12 months to resolve the problem with SR alone. If you are not familiar with SR, go to the glossary, homepage, archives and search engine. Even if he was totally paralyzed, he still could learn and do this---if he would.

There is nothing wrong with taking prednisone in large enough doses to abort a flareup so long as it is not taken for more than a month. Any knowledgable physician knows how to do that. It is only by using small doses for months that one would get into trouble. The only thing wrong with it would be if that is all he does since that will do nothing about curing the problem.

NO ONE can resolve this but him and that procedure is well within his capacity. All it takes is the will to learn and the discipline to DO it.

Have him let me know if he is ready to be well. If he is ready to not have this for the rest of his life (and his last to years will be wonderful compared to the next ten years), have him post his questions on this BB after he has learned about SR, stress and LGS.

Walt



Re: HELP!! Hubby's UC driving me nuts!!!

Posted by
Nancy H on December 11, 1999 at 19:50:31:

In Reply to: HELP!! Hubby's UC driving me nuts!!! posted by crazywife on December 08, 1999 at 11:16:30:

While I agree with DR.Stoll when he says that it will take a combination of skilled relaxation, change in diet, and exercise, there is a product on the market that I credit as a dramatic "quick fix" for me. I had UC, LGS, and IBS, too, and the way I started getting it under control was with the herb, SLIPPERY ELM BARK. I used a tincture, by Nature's Answer, about a half dropper under my tongue, every time I felt the slightest cramp or queasiness. It has a pleasant, root beer taste. I still use it when I get off my diet and get a little out of sorts. Perhaps it will help your husband. Good luck. If he doesn't get better soon, you may be the next one in the family to experience some stress-related illness. Feel free to email me.




Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS.

Posted by Walt Stoll on December 12, 1999 at 11:29:28:

In Reply to: Re: HELP!! Hubby's UC driving me nuts!!! posted by Nancy H on December 11, 1999 at 19:50:31:

Thanks, Nancy.

This is the first that I have heard of this one. Certainly anyone with UC should give it a try for temporary relief. I would be very interested in any research you might have about it.

Of course, I have never put myself out as an expert in herbology. We have a link to an herbologist on our link page.

Walt



Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS.

Posted by SR on December 12, 1999 at 12:58:05:

In Reply to: Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS. posted by Walt Stoll on December 12, 1999 at 11:29:28:

I tried Slippery Elm.
I bought it buy the pound / the whole herb and then boiled up a tea, strained it and kept in frig for up to one week.
IT DID HELP, during episodes of stomach / bowel stress.
SR



Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS.

Posted by Nancy H on December 12, 1999 at 20:57:46:

In Reply to: Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS. posted by SR on December 12, 1999 at 12:58:05:

I consider it to be a miracle herb! If I'd had to boil it, though, I probably wouldn't have ever known the benefits of it. The tincture is so handy and effects are almost immediate! (I like instant gratification whenever possible!)




Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS.

Posted by Nancy H on December 12, 1999 at 21:13:36:

In Reply to: Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS. posted by Walt Stoll on December 12, 1999 at 11:29:28:

Walt

I'll see if I can link you up to any internet sites. It's in all the herbology books that I've looked at, though, and according to THE LITTLE HERB ENCYCLOPEDIA, by Jack Ritchason, ND, "Slippery Elm's principle ingredient is mucilage, a polysaccharide similar to that in flax seed. Slippery Elm is a demulcent and emollient and can be applied as a poultice to all wounds or ulcers to good effect. Internally it is used for stomach and intestinal ulcers. .... The main focus of the use of Slippery Elm is the GI Tract where it can provide nutrition, a soothing coat over stomach and intestinal ulcers, soothing the colon, either taken orally or as a bolus used as a suppository or added to enemas....An interesting side note concerning the Historical use of Slippery Elm. George Washington's Army during the bitter winter at Valley Forge was kept alive by eating the inner bark of the Slippery Elm tree. During the days of our forefathers who moved west they often found themslves without food and were able to survive eating the innerbark of the Slippery Elm Tree, where present."

Other claims:
Neutralizes stomach acidity and absorbs foul gases
can be used as food
helps irritated kidneys and inflamed lungs
helps feed the adrenal glands and produces the cortin hormone which stimulates the entire body
helps to lubricate the bowel, allowing for smooth and softer elimiations.
Nature's chapstick

Believe it or don't, but don't knock it till you try it!




Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS.

Posted by SR on December 13, 1999 at 12:55:52:

In Reply to: Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS. posted by Nancy H on December 12, 1999 at 20:57:46:

SO TRUE... Do you remember the name of the company that sells the tincture...?
I'd like to have it handy myself.
Thank you
Sr



Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS.

Posted by Nancy H on December 13, 1999 at 19:10:41:

In Reply to: Re: HELP!! Hubby's UC driving me nuts!!! Archive under LGS. posted by SR on December 13, 1999 at 12:55:52:

Nature's Answer. Can be found in health food stores.



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