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Dr. Stoll / Prednisone End stage LGS.

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Dr. Stoll / Prednisone

Posted by Hope [760.1399] on October 22, 2004 at 14:36:58:

Hi, Dr. Stoll.

I posted the other day about a possible intestinal blockage. You suggested I have a flat panel ex-ray.
I went to the ER and they decided a CT would be the best thing to do.

The CT showed severe inflamation in the entire left quadrant of my colon. Next came the colonoscopy. Finally they determined I have ulcerative colitis. I am 50 years old and never had this problem before. I have had digestive issues for about 4 years. I have just gotten past Candidisis.

The next thing I know I'm in the hospital on high doses of prednisone. (100mg in the IV every 8 hrs) I believe the first few doses were higher.

After two days of this I became crazy couldn't sleep and crying and yelling at my husband like a crazy person. This usually worsened after each injection.

I told the Doc I was leaving. He wanted me to stay longer like a week of this. Finally he agreed to release me, but says I must come off this stuff gradually. He put me on a 4 week taper 20mg 2X each day first week, 30 the second, 20, and then 10. Does this sound right to you and is this a must. I hate this stuff.

I gained 10 pounds each day I was in the hospital my nerves are shot. I only eat whole foods, no sugar etc. He told me diet made not difference to eat anything I wanted. Not to worry about sugar and orderd me thing like pudding sugar ladden juices etc. I ate none of them had my husband bring me rice protein and soups from home.

I did go through a major trama 2 months pryor to this episode.

Should I go ahead and start nystatin while on the prednisone?

Help, What have done? How can I undo this?

Hope





Re: Dr. Stoll / Prednisone (End stage LGS.) Archive.

Posted by Walt Stoll [9.8] on October 23, 2004 at 08:21:27:

In Reply to: Dr. Stoll / Prednisone posted by Hope [760.1399] on October 22, 2004 at 14:36:58:

Thanks, Hope.

You have crossed a line into what is a very serious (potentially fatal) condition of untreated LGS.

My best results were when the individual would practice SR at least 3 times a day.

See the skilled relaxation archives, home page and glossary and get busy. In the meantime, you will have to preserve your life by following the "doc on the spot's" recommendations.

Let us know how you do.

Walt

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