Leaky Gut Syndrome Archives

Dr. Stoll, Celiac in 1 year old?

[ Leaky Gut Syndrome Archive ]
[ Main Archives Page ] [ Glossary/Index ]
[ FAQ ] [ Recommended Books ] [ Bulletin Board ]
   Search this site!
 
        

Dr. Stoll, Celiac in 1 year old?

Posted by Concerned Grandmother on January 18, 2000 at 17:23:44:

Dr. Stoll, my daughter was told my 1 year old grandson was allergic to wheat, oats and rye. While searching the internet for gluten free recipes she noticed that he seemed to have all the symptoms of Celiac disease and asked her Pediatrician to test him for that. The test came up positive and she was referred to a Gastroen. . . specialist to do an "intestinal biopsy". What exactly is this biopsy for, and how can we find a reputable specialist in our area?



Re: Dr. Stoll, Celiac in 1 year old?

Posted by Walt Stoll on January 19, 2000 at 18:11:57:

In Reply to: Dr. Stoll, Celiac in 1 year old? posted by Concerned Grandmother on January 18, 2000 at 17:23:44:

Dear Grandmother,

This is a genetic susceptibility but that does not change the fact that this is LGS and only by reversing the causes of that will any permanent progress be made.

I would do the biopsy since there are some specific things that can be done, conventionally, for that varient of LGS.

The other problem is that, at this age, he almost certainly already has the complication of C-RS from his LGS. That will have to be diagnosed and treated as well.

Your best bet for finding someone who would know how all this fits together would be to get a copy of John Trowbridge, MD's book "The Yeast Syndrome" since it has a national list of physicians knowledgable about this in the back. The rest of the book would at least give you an introduction into what this is about.

In the meantime, you should spend a few hours on this site reading up about candida in children. Use the homepage, glossary, search engine and then the archives,

THEN, if you still have questions, write again, THIS IS A RESOLVABLE PROBLEM!

Walt



Re: Dr. Stoll, Celiac in 1 year old?

Posted by Straw on January 21, 2000 at 21:42:49:

In Reply to: Re: Dr. Stoll, Celiac in 1 year old? posted by Walt Stoll on January 19, 2000 at 18:11:57:

Dr. Stoll, what conventionally can be done for that varient of LGS? If you remember, my child is 7 & has responded well to the gluten free diet & your diet(and nystatin powder & all). My child's problem was really bad behavior & developmental delays (severe ADHD). I had gone to a pediatric gastroentologist, who wanted to prescribe flagyl for 10 days & if that did something (which I cannot remember what at this point) then they would do something & then an intestional biopsy to check for celiac. I did a search on flagyl, found your site & have been reading all about diet, candida yeast, leaky gut, gluten free & all this. I threw away the flagyl prescription & never went back to the pediatric g. (was supposed to schedule an appointment in 30 days). I was so fed up with conventional medicine & I have been cooking from scratch, and you know all I'm doing.

Did I make a mistake by not following that doctors recommendations? (I mean in addition to doing all this stuff, which has has positive results?) I thought a biopsy would be a serious surgery. Maybe I don't know what an intestional biopsy is, but I thought they would put my son under & cut on his intestine, and that could be serious.

Thanks again!

Straw



Re: Dr. Stoll, Celiac in 1 year old? Archive in neurological & LGS.

Posted by Walt Stoll on January 22, 2000 at 16:07:42:

In Reply to: Re: Dr. Stoll, Celiac in 1 year old? posted by Straw on January 21, 2000 at 21:42:49:

Hi, Straw.

In intestinal biopsy is done through the rectum or via a capsule that is swallowed. It is not fun but it is not risky.

Your case is extreme and for extreme things extreme recommendations are not out of line. The past year's FMU has had dozens of articles that go beyond what even you have learned yet. Even though they fit in my understanding of LGS, they have gone beyond what I have learned in 40+ years of learning, teaching and practice. See my note to RocketHealer about FMU today.

This country is a dismal failure in diagnosing parasitosis. The doc was trying a "therapeutic trial" for some parasites--in deperation. Not a bad doc. Since all parasites make LGS worse, it would be helpful to have him cleared out. The alternative approaches to parasites are much safer and more general than conventional approaches. Since, in this country, you will be hard-pressed to accurtately diagnose more than a few of any parasites, the longer term alternatives would be what I would do. Flagyl is VERY toxic and is only effective against a very few intestinal parasites.

Basically, I think you need to give yourself a pat on the back for all you have already done. How do you think your child would be doing if you had just thrown him on the "mercy" of the conventional medical system????

Namaste`

Walt



Re: Dr. Stoll, Celiac in 1 year old? Archive in neurological & LGS.

Posted by Straw on January 23, 2000 at 17:07:05:

In Reply to: Re: Dr. Stoll, Celiac in 1 year old? Archive in neurological & LGS. posted by Walt Stoll on January 22, 2000 at 16:07:42:

I don't think he would have done very well & in fact was not doing very well under the conventional medical system. But, it is fairly scary to me to be the one in charge of making these decisions (and couldn't do it without you via computer). But, yes, so far, his behavior is improving (although not perfect, yet, but closer). I'm also trying to educate the doctors but I am not really succeeding on that one, yet. I'll look for your post to RHJ, haven't found it, yet.

As always, thank you so much!

Straw

P.S. So, does this mean I am doing the diet, Nystatin, etc. instead of the flagyl & the diet & all will help take care of any parasites, because we are going toward wellness & the body taking care of them, or destroying the parasites? Or, does this mean I am supposed to give him the flagyl AND do the diet, etc. (sorry, I'm so out of my league here)



Re: Dr. Stoll, Celiac in 1 year old? Archive in neurological & LGS.

Posted by Walt Stoll on January 24, 2000 at 15:35:57:

In Reply to: Re: Dr. Stoll, Celiac in 1 year old? Archive in neurological & LGS. posted by Straw on January 23, 2000 at 17:07:05:

Straw!

You think YOU are "out of your league"! From what you have said so far, you are more on top of this than all the docs you have seen.

I know it is scary to have been told all your life that only docs have the intelligence and training to deal with illness. However it simply is not true. His management is NOT in the hands of an incompetent---it is in the hands of YOU!

The conventional treatment of parasites is pretty simplistic. Each prescription drug (of which Flagyl is a common one) only is effective against very specific parasites. There are about 20 different prescriptions and at least 50 different paarasites known. Docs have to have a chart in their office to have a chance to see which drug works for which organism. SO, there is NO WAY any doc can prescribe something out of the blue without having an accurate diagosis of the parasite being treated.
Otherwise, it is just shooting a shotgun in the dark.

The difference with the antiparasite stuff sold in healthfood stores is that those are pretty much effective against all parasites at the same time.

Hope this is helping.

Walt



intestinal biopsy

Posted by
tytrch@aol.com on January 24, 2000 at 20:34:03:

In Reply to: Re: Dr. Stoll, Celiac in 1 year old? Archive in neurological & LGS. posted by Straw on January 23, 2000 at 17:07:05:

Celiac intestinal biopsy is done with a small tube through the mouth. They take a very small sample of the inner layer of the small intestine to see what the villi look like. It is supposed to be a fairly simple procedure but I still did not let my daughter have it done. I put her on a gluten free diet for a couple of years. Now she is almost 4 and can eat just about anything, whereas before she had 4-5 diarrhea a day. Lee



Re: Dr. Stoll, Celiac in 1 year old? Archive in neurological & LGS.

Posted by Straw on January 25, 2000 at 09:40:17:

In Reply to: Re: Dr. Stoll, Celiac in 1 year old? Archive in neurological & LGS. posted by Walt Stoll on January 24, 2000 at 15:35:57:

Yes, it is helping & I will go look at the health food store today to see what they have regarding anti parasites. Thanks for all your help & your kind words.

Straw



[ Leaky Gut Syndrome Archive ]
[ Main Archives Page ] [ Glossary/Index ]
[ FAQ ] [ Recommended Books ] [ Bulletin Board ]
   Search this site!