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Sinus/Crohn's/Food tastes horrible

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Sinus/Crohn's/Food tastes horrible

Posted by
Sonia on March 28, 2002 at 04:04:10:

Hey,
I'm writing because for the past week or so even foods I
used to like taste terrible (which is bad, because I was
already an extremely picky eater). I think mostly
everything tastes too salty. This is one of the weirdest
things for me becaus I used to crave salt so much... I
could never get enough... sometimes I would pour a
little on my hand and lick it, which I know people will
disapprove of, but I'm just trying to explain how strange
things like orange juice being too salty is.

Recent history: I always have chronic sinus problems,
but I had a big bout where I couldn't get out of bed, it
hurt even to lift my head off the pillow or turn a dim light
on. This lasted for a week and a half before it even
started to get better. I had gone to the doctor I think right
when it started to turn because it's hard to get an
appointment because I'm going to school out of the
state where my health insurance is. Anyway, she
prescribed me Augmentin and guafinex. I got extremely
sick to my stomach (more than I already was, anyway,
since I have Crohn's and haven't felt well in 5 years
now), started throwing up bile and other unmentionable
ickiness with such violence I hit my head on the tub
(since at the time I was having bad diarhhea and
couldn't get off the pot, so had to throw up by bending
over the tub while sitting). Throwing up for me also isn't
weird because I tend to throw up 5-30 times a day, but
the kind of throwing up I usually do is more of a few
mouthfuls kinda thing, not like when you have the flu or
something. Anyway, so I wanted to give the pills a try,
but after a day and a half I couldn't take it anymore so I
called the doctor and she prescribed zithromax. This
stuff only made me tolerably ill, so I kept taking it since I
know once you start a course of antibiotics you really
ought to finish it or your infection will come back (I just
have one dose left!! :). Point being she didn't check to
see if I even had an infection so I never should have
started, but oh well. Oh, and I'm also allergic to Cipro
(digestive and respiratory) and Flagyl (peripheral
nervous system). So, my question now is what should I
do to be able to eat? I've lost 15 pounds in the past 3
weeks, which is not normal for me -- even when I've
been hospitalized for crohn's, I only really lost 5 over a
few months (IV helped I guess), and even before I got
treated I never had the skeleton look of most crohn's
patients. I was thin, but you'd never know I wasn't
healthy. I looked sicker after the prednisone fattened
me up! So, I think this message is getting so way long
enough, and you probably don't need all the stupid
background information, but I thought I'd give you the
most complete story possible. Oh, one more important
thing is that food still smells just like it ought to; it's just
impalatable (ex, water tastes like someone soaked
pencils in it, pasta tastes like trash that's been left out,
chicken tastes like feet... [all those comparisons are
imaginative; i've never actually tasted trash or feet of
course!]). Do you think after I stop the antibiotic it'll just
go away?

Thanks for any help and sorry for my long-windedness,
Sonia :)



Re: Sinus/Crohn's/Food tastes horrible

Posted by S.H.A.P.E. on March 28, 2002 at 10:17:53:

In Reply to: Sinus/Crohn's/Food tastes horrible posted by Sonia on March 28, 2002 at 04:04:10:

Hi Sonia - If you want to answer some questions on a Candida/Leaky Gut Questionnaire that I have - I can give you some suggestions that should help! cantact me at
alternative.health@verizon.net if you're interested!

Follow Ups:


Answers that you need

Posted by Helping You on March 28, 2002 at 12:14:31:

In Reply to: Sinus/Crohn's/Food tastes horrible posted by Sonia on March 28, 2002 at 04:04:10:

Hi Sonia,

When I think of crohns disease, the first though that comes to mind is "Jordan Rubin". This is a young guy that got struck down with crohns disease when he was just 19. When he finally got a diagnosis, he was told he had stage 4 crohns/colitis disease meaning that both is small and large intestine were inflamed. His blood work looked like that of a dead man. He dropped from 180pds to 104pds at 6ft 2. His resting heart beat was over 200 beats per minute. The interesting thing is, he went to over 70 different health professionals all over the world and took over 200 nutritional products every day. He had many alternative therapies including chelation, injections with live sheep cells, intravenous therapies and more. But this was to no avail. Fortunately, he got help with the 71st doctor he went to. He recommended that Jordan go back to the basics of eating and quit taking all of his supplements. He recommended that Jordan eat as PURE a diet as possible (I will give you suggestions in a moment) and only get on one supplement. The supplement was a type of probiotic that grows in the soil on organic fruits and vegetables. They are called Homeostatic Soil Organisms (HSO's). So, he changed his diet to include the following:

Grass-Fed animal products (www.grassfedorganics.com)
DHA-Enhanced Eggs (Gold Circle Farm)
Mercury-Free Fish (very hard to get)
Free-Range Poulry
Fresh organic NON-STARCHY vegetables
Raw Dairy products including yogurt, kefir, butter and cream
The best imported Olive oil
Real Sourdough Breads (made from sprouted grains)
Certain fruits such as berries

His diet was almost void of grains, legumes, nuts, starchy vegetables. After about 1 month on this diet and the HSO supplement, he began to gain weight. Now, at age 26, he shows no signs of the disease and weighs in at 180pds. He looks like a bodybuilder now!

Grains and legumes must be soaked or sprouted before cooking and nuts must be soaked/roasted before consuming. These foods have anti-nutrients that damage the GI tract. At first, it is better to eliminate these foods from your diet. This type of diet is called, "The Specific Carbohydrate Diet" and can be found on the web. They allow you certain starches but I wouldn't eat them. I would focu on fats, proteins and non-starchy vegetables with some raw dairy foods like yogurt, kefir, butter and cream. Don't consume pasturized dairy. Also, Jordan consumed lots of real fermented vegetables like raw saurkraut. NOT the type you can get in stores. Luckily, there is a product available in healthfood stores that is excelent. It is called "Zing". This is the only acceptable substitute for homemade lactofermented vegetables.

See, Jordan's immune system failed because he lived on a diet of junk food while in college. This type of eating opened the door to an intestinal environment condusive to poor gut ecology (LGS/CR-S). By changing the diet to include ONLY whole natural foods and by supplying the intestinal tract with lactic acid and probiotics, the intestinal terrain changes so that bad bugs just CANNOT live there. Don't focus on the bugs. Focus on the terrain. Take this very seriously. Your only chance to heal crohns is with a VERY STRICT whole foods diet like the one I described, consuming HSO's (There are a few products out there---Primal Defense, Nature's Biotics), and practicing daily SR and whatever exericse you can tolerate. Here are some websites for you to read:

www.westonaprice.org
www.mercola.com
www.crohns.net

take care. let me know if you have questions

-HY



Re: Answers that you need

Posted by
Sonia on March 29, 2002 at 00:21:03:

In Reply to: Answers that you need posted by Helping You on March 28, 2002 at 12:14:31:

When I first got a book on the Specific Carbohydrate
Diet at my doctor's recommendation, I thought it was
exactly what I needed. I followed it to the letter for two
months, right into the hospital. This was two years ago,
but it's an experience I don't want to repeat. I'm currently
19, but I've had Crohn's since I was 13. I've tried
probiotics and Lactobacillus GG and clear fluids only
and all sorts of things after I refused to take any more
steroids (which did help, but started my arthritis
problems and other things that a then-15 year old
should not have to deal with). I'm in a very competitive
and difficult college getting my engineering degree, and
I'm sure the stress doesn't help, but I have my own
apartment and cook for myself. I don't eat dorm junk. I
just want to know if my taste buds will go back to
normal after I stop taking my antibiotics, or if there's
something else I can do.

Thanks for your help,
Sonia :)



Re: Answers that you need

Posted by Helping You on March 29, 2002 at 01:03:43:

In Reply to: Re: Answers that you need posted by Sonia on March 29, 2002 at 00:21:03:

Sorry to hear of your lack of sucess with it. All I can tell you is, it may take longer for you to respond since you have had this problem for many years. I would try the diet (modified to include lactofermented foods as well) along with serious SR, and possibly a supplement such as Primal Defense. Give that 3 months and see where you are.

Most likely, the taste problem you are having is a side-effect of the antibiotic and will go away shortly thereafter. These antibiotics cannot be helping your gut ecology. You need the flora. LGG is a good probiotic for crohns disease. I still think Primal Defense is better

-HY



Re: Answers that you need

Posted by
Sonia on March 29, 2002 at 03:52:33:

In Reply to: Re: Answers that you need posted by Helping You on March 29, 2002 at 01:03:43:

Thanks a lot for your advice! What is SR? I think I will try the diet again over the summer, when I will be working from home and serious problems won't interfere with my schoolwork (I already just had to take 2 weeks off, which is 1/8 of the semester!)

sonia :)



Re: Answers that you need

Posted by Helping You on March 29, 2002 at 09:42:53:

In Reply to: Re: Answers that you need posted by Sonia on March 29, 2002 at 03:52:33:

Go to the archives here and look up:

1. Skilled Relaxation (SR)
2. Chronic Bracing
3. Leaky Gut Syndrome

-HY

Follow Ups:


Re: Sinus/Crohn's/Food tastes horrible

Posted by Walt Stoll on March 29, 2002 at 11:19:23:

In Reply to: Sinus/Crohn's/Food tastes horrible posted by Sonia on March 28, 2002 at 04:04:10:

Hi, Sonia.

You need to step back and look at yourself as a whole. So far you have only been treating the tips of your iceberg. Everything you have is related.

Serious wellness is the only chance I think you have. In the meantime you will need to continue treating the "tips".

See the glossary for any unfamiliar terms.

Walt

Follow Ups:


Re: Answers that you need (Archive in Crohn's)

Posted by Walt Stoll on March 29, 2002 at 13:33:31:

In Reply to: Answers that you need posted by Helping You on March 28, 2002 at 12:14:31:


Thanks, HY!

Namaste`

Walt

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