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my mother is in stage 4 of cirrhois, please help me

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my mother is in stage 4 of cirrhois, please help me

Posted by
janet weatherington on October 25, 2002 at 09:02:08:

My mother is 59. She started having problems with my dad when he started drinking and he started to get abusive. So my mom started drinking pretty heavy in 1994. She was drinking mixed drinks but then for the last 2 years it has been straight vodka to the point where she would passout. She quit eating. In 2001 she had a stroke in October and they told her that she may have cirrhois but they wasn't for sure. They wanted to send he specialist but she refused to go because I think that she already knew. At this time she lived in Florida and I lived in Kentucky. She stayed down there with my two other sisters. My oldest sister also has cirrhois but she is on a waiting list for a new liver. But anyway, my mom had surgery in March on her right vein in the neck. It was 75% blocked. The left on is completely closed. She has been pretty weak since that surgery but she kept on drinking. They say that she may still be having mini strokes. But they're not for sure. In September, she went to the hospital. She was vomiting blood and passing blood. Not just when she had a bowel movement but the blood was just leaking out also. The doctors told her that she has ascites, varices, and is in stage 4 of cirrhois. They told me that there wasn't anything they could do for her. So they released her and we brought her to Kentucky with us. She went into a hospital here and they said the same thing but they took out 7 liters of fluid that had build up in her stomach. This is really all new to me. Oh and the doctor down in Florida also told me that her life expectancy is only 3-6 months. I am trying to take care of her at home but I am not real familiar with all this. She did wake up last night with real shortness of breath and was wheezing like she had pneumonia. The nurse was here yesterday and said her lungs was clear. Can you please give me some more information on what to expect and also about the life expectancy on this so I really know what I am dealing with, please. They told me that her liver damage was to far gone to do a liver transplant. Please help me. I know that I probaly won't like the outcome but I need to know. Thank you, Janet



Not only does your Mom need serious wellness but have..msg

Posted by Rachel on October 25, 2002 at 09:45:30:

In Reply to: my mother is in stage 4 of cirrhois, please help me posted by janet weatherington on October 25, 2002 at 09:02:08:

there ever been discussions of getting her into a alcohol program to help her deal with her drinking and causes? Not until she completely stops drinking and begins to take care of her body will she have back her quality of life.

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Re: my mother is in stage 4 of cirrhois, please help me

Posted by Jennifer on October 25, 2002 at 15:17:30:

In Reply to: my mother is in stage 4 of cirrhois, please help me posted by janet weatherington on October 25, 2002 at 09:02:08:

I know that milk thistle helps with liver damage. I wish I could be more help. The archives may have something helpful too.

Best wishes to you both.

Jen

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Re: my mother is in stage 4 of cirrhois, please help me

Posted by
zarin on October 25, 2002 at 18:07:41:

In Reply to: my mother is in stage 4 of cirrhois, please help me posted by janet weatherington on October 25, 2002 at 09:02:08:

milk thistle is a great liver booster. Also Liv 52 which I think you can get from http://www.ayur.com , a magenesium supplement will also be beneficial as this will jump start the pancreas to produce enzymes that the liver needs. The liver can re-generate itself, so you can try and help your Mom by starting her on a holistic approach to healing. Spirulina is an excellent de-toxifying agent and you should start her on that as well, and ofcourse, no drinking, get your Mom to attend a local AA meeting. Alcoholism is a disease, not a social disorder.

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Re: Mother

Posted by Carol B. on October 26, 2002 at 01:46:19:

In Reply to: my mother is in stage 4 of cirrhois, please help me posted by janet weatherington on October 25, 2002 at 09:02:08:

Janet,
If the doctor in Florida told you that your mother has three to six months to live, he was probably basing that on what he has seen of patients in similar circumstances.
Her doctors and nurses in Kentucky can evaluate her present condition and tell you how much longer she likely has.
The Hospice program is very good with helping to care for terminally ill people at home. Their doctors and nurses are skilled and compassionate, and will help you to make your mother's final days as peaceful and pain-free as possible.
You can ask the nurse what you should do if your mother becomes short of breath again. Raise her head with pillows? Increase the flow of oxygen to the oxygen mask? Give medication? (Shortness of breath can happen when blood backs up in the lungs, due to a heart that is failing.)
Ask the nurse or doctor how people with your mother's condition usually die. This will help you both to prepare for what is likely to happen.
Sometimes the end is swift, like one patient I remember: He had distended blood vessels in the esophagus (esophageal varices) and they burst. Blood began gushing from his mouth, there was no way to stop it. After a few minutes he became very weak, and lost conciousness, and died. Although he was not in pain, and did not suffer a prolonged death, it did not give his family time to be with him at the end.
Other dying patients I have cared for went slowly over a period of a day or two. The breathing shows characteristic changes, where it speeds up and then slows down, known as Cheyne-Stokes breathing. As the blood pressure decreases, the pulse may speed up and become thready. They may lose control of their bladder and bowel. They might not be aware of what is going on around them. The family can help the nurse clean them up, change the sheets, position them with pillows, etc. Pain medication will keep them comfortable. Their breathing eventually slows and stops.
I hope this is not too graphic for you. Most people have no way of knowing what will happen, as they have not been around a dying relative.
You are a good daughter to help your mother like this. Is there anyone she still wants to visit with? Are there any special foods she wants? Any particular movies or records she wants to see/hear again?
Some people find comfort in making arrangements for their funeral service, picking which hymns they want, etc.
Be sure and take care of yourself during all of this. Get enough rest, eat well, take a break now and then. Don't be shy about asking others for favors, as they may be relieved knowing there is something concrete they can do to help.
I hope this helps.
Carol B.


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my mother is in stage 4 of cirrhosis, please help me (Archive in liver.)

Posted by Walt Stoll on October 26, 2002 at 07:13:42:

In Reply to: my mother is in stage 4 of cirrhois, please help me posted by janet weatherington on October 25, 2002 at 09:02:08:

Hi, Janet.

Sorry to hear about your mother. It seems to me that she has been trying to commit suicide with the bottle for the past 8 years. Does she still drink when she can? If so the best you can do is to love her till she goes and hope that the going will not be too painful.

Listen to Carol B, Jennifer, zarin and Rachael.

IF she has stopped drinking even one drop of alcohol, for at least a year, it is POSSIBLE that she could be brought back with caster oil packs, liver detoxification processes, alpha lipoic acid, milk thistle and the other things described in the liver archives. At least none of these approaches can hurt her and surely will help her last days be more comfortable.

Of course, your first job will be getting her to the place where she WANTS to live.

As you may know, KY is the most backward state in the union about advanced medical approaches and every one of the physicians with any knowledge in that area have been driven from the state. You are not going to get any help from the conventional medical community.

Let us know what you learn and how she does.

Walt

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Re: my mother is in stage 4 of cirrhois, please help me

Posted by kim on October 26, 2002 at 12:41:10:

In Reply to: my mother is in stage 4 of cirrhois, please help me posted by janet weatherington on October 25, 2002 at 09:02:08:

my mother passed away from cirrhois of the liver in 1999 i am so sorry to hear about your mom it is a sick disease i know been there.just keep your head up high and never give up hope.

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