Dear Dr. Stoll,
I meant to tell you this is my other inquiry but was disconnected. I have seen 5 docors and they all want to check me for Lupas first thing. What's your thought?
Thanks Again,
Teresa
In Reply to: Lupas posted by Teresa R. Barrett on August 06, 1997 at 20:48:45:
Dear Teresa,
It is possible that your condition has progressed to Lupus. However, when we look for causes, it doesn't really matter.
Walt
In Reply to: Lupas posted by Teresa R. Barrett on August 06, 1997 at 20:48:45:
Dear Teresa,
My wife and I have been taking a food formula that was patented in 1988 that has had incredible results with auto immune problems such as Lupus and MS. I have witnessed these and know of many more. Every person I know of that has used this patented formulation that has Lupus has gotten life changing results in a very short time. If you want I'll send you information on it. I just need your snail mail address.
Email me at thepope1@earthlink.net
Best Wishes, Larry
In Reply to: Re: Lupas posted by Walt Stoll on August 24, 1997 at 14:53:31:
WAITING FOR 3RD SET OF BLOOD TESTS TO COME IN TO FIND OUT IF I HAVE LUPUS
SYMPTOMS RIGHT NOW ARE
OCCASIONAL NUMBNESS IN ARMS & FINGERS
GREAT DIFFICULTY IN BREATHING SOMETIMES
BREAKING OUT WITH HIVES
EYE INFECTIONS
MY RIGHT ARM IS SORE ALOT - NOT MUCH STRENGTH IN IT
CHEST PAINS AROUND MY HEART - FEELS LIKE A CIRCLE AROUND MY HEART
CAN ANYONE TELL ME IF THEY HAVE HAD ANY OF THE ABOVE?
ALSO, IN READING YOUR MESSAGES i READ THAT A CONDITION PROGRESSES TO LUPAS - PLEASE ADVISE WHAT THIS MEANS - DOES IT START AS SOMETHING ELSE AND THEN BECOME LUPAS?
In Reply to: Re: Lupas posted by CAROLYN on September 29, 1997 at 01:16:20:
Dear Carolyn,
I am sorry to see that you are still hanging on the every pronouncement of we MDs as though they meant something. So what if your test results come back as Lupus? All you will be told is what you can expect from such a diagnosis like that if nothing is done about the causes AND that nothing is known about the causes.
We can treat your symptoms (sometimes) but the treatment could be harder on you than the Lupus. Sorry, but that is the best we can offer.
HOWEVER, that is only true if we allopaths continue to insist on pushing the health-care camel through the eye of the allopathic needle.
What you need right now is a MUCH better basis for understanding what you are dealing with here. I have two little books to recommend to get you started thinking differently--which is what you need right now. THEN, if they make sense to you, I stand ready to answer your questions & refer you to more resources OR a competent physician close to you who can serve as your consultant to get this behind you. Physicians should never serve as anything more than consultants. Even the word "doctor" means "teacher" and nothing more.
Get a copy of my 200 page book "Saving Yourself from the Disease-care Crisis" (see link at the bottom of this page). Also, get a copy of "Health at the Crossroads" by Dean Black, PhD; call (800) 333-4290. His book is about the same size.
In the meantime, I would not make any irrevokable decisions about treatment. Soon you will have a lot more basis for choosing what is best for you & not waiting for we "pill fairies" to do your thinking for you.
THEN, as you get well, I would appreciate your sahring your experiences with the participants of thei BB. others deserve to know that "incurable" conditions like this are only incurable if ONLY allopathy is applied to the situation.
Walt
I may have both hepatitus C and Lupus. I have a rather unique set of test results. I'm having a difficult time deciding on what treatent I should pursue. I'm hoping that you can help. I have chronic active hepatitus C as determined by a recent biopsy. There is no
chirrosus and only "piecemeal" necrosis. My HCV/RNA by PCR was 168,919. My gastro doc wants me to begin interfuron. Meanwhile I go to a rhumie because I'm experiencing alot of joint pain and some other really weird symptoms. He runs some tests and finds the following: ANA positive titer of 1:640, pattern is homogenous, RA positive - 32.9, sedimentation rate normal - 20 mm/hr, compliments low c3-88 and c4-18, cryoglobulins - none detected, In view of the autoimmune results I'm not elligable for any rebaviran / interfuron trials. I'm not convinced that the interfuron
treatments are right for me. My Rhumie thinks that I have Lupus and HCV . Have you ever heard of this? Do you have any suggestions?
In Reply to: Re: Lupas posted by marilyn craig on October 14, 1997 at 14:04:40:
Dear Marilyn,
As you can see from the note at the top of this page, I am on a speaking tour till November 3rd. As such, I do not have the international resources at hand to refer you to to best answer your question.
Please send your note again after that & I will do my best to point you in the right direction.
Basically, lupus is an autoimmune disease that mainly effects connective tissue and blood vessels. It is incurable (& basically untreatable) from a conventional medical approach alone. However, it is easily improved from a holistic viewpoint.
You would benefit greatly by reading a copy of my book (link on this page) so you would have a much better basis for understanding how this condition happens.
Walt
In Reply to: Re: Lupas - Results posted by Larry Pope on September 02, 1997 at 02:16:29:
My sister has Lupas, we believe and is getting no relief. I know little about it and wonder where to start. Please comment.
Thanks,
Jay Johnson
In Reply to: Re: Lupas posted by Walt Stoll on August 24, 1997 at 14:53:31:
My dear friend is in the hospital as i sit here....no one knows what she has, yet, she is literally at deaths door!
Ematiated,dehydrated, 75lbls, her eyes flicker, mind going,
only 54 yrs old, WHAT is this?????
Kidney'z tested OK, has open sores, losing bowels, someone
plz respond w/ any info. Did CAT Scan.......nothing!?
In Reply to: Re: Lupas posted by friend on December 06, 1997 at 03:19:21:
Dear Friend,
This is awfully young to be in such dire straits. It sounds like she needs a fresh way to look at this. If this is that far gone, there may be nothing that can be done. Any healing way I know of takes several days (at least) to deal with the causes enough that the slide toward death is halted. Conventional medicine is best at prolonging the agony.
If I knew what part of the country she is in, perhaps I could recommend someone personally where you could start finding a professional who would be willing to see her in consultation.
It is a mark of the times that the conventional medical monopoly is powerful enough that--even though they may have no answers to a problem like this--they can bar those healing philosophies that DO from the hospitals. Philosophies like Naturopathy, Chinese Medical Practitioners, Ayervedic Practioners, Anthroposophical Physicians, Homeopathy, and the like, would give her that fresh perspective. These approaches all have the distinction of looking for causes and causing no harm--something that is the antithesis of the conventional (allopathic) philosophy. The only thing that could be hurt by them seeing her is the egos of the current physicians who would sooner see her die than allow a competing philosophy be found to be successful.
By the way, why did you list this under "lupus"?
Walt
Is Amantadine and herbal treatments like reshi mushroom and milk thistle an option ? I was recently diagnosed with HCV
the doctor said mym enzmes are moderately elevated (150-300)
with a viral count of 3,000,000. I get a lot of flu and colds,some benefits are being achieved with echinaca. Interferon looks like something to avoid with all it's side effects.
In Reply to: Re: HCV & Lupus / Treatment? posted by bill easley on December 08, 1997 at 23:48:49:
Dear Bill,
I am not a good enough herbologist to advise you about herbs but you can get some marvelous results if you can find a really good one.
Since is seems from your note that your problem is an immunological one, I would recommend you read a wonderful book that your library can find for you: "Psychoimmunity & the Healing Process" edited by Jason Serinus & published by Celestial Arts in 1986.
Let us know what you learn & how you do.
Walt
In Reply to: Re: Lupas posted by CAROLYN on September 29, 1997 at 01:16:20:
WOULD LIKE SYMPTOMS, AFFECTS OF LUPAS, LUPAS AND THE HEART, LUPAS & THE LIVER & OTHER VITAL ORGANS. PROGNOSIS W/LUPAS SIX OR SEVEN YEARS AFTER DIAGNOSIS & NOW WITH HEART & LIVER DISEASE
THANK YOU
In Reply to: Re: Lupas posted by STEPHANIE M. SMITH on December 14, 1997 at 21:49:56:
Dear Stephanie,
The first thing you need to do is be sure you are spelling Lupus right so you can look it up. Your reference librarian can do that for you. Even better, if you have a medical school in your area, would be to go to the med library & have the librarian there look it up for you.
Since Lupus affects each person differently, it is really the responsibility of the diagnosing doc to explain all this to you--that is why they make so much money.
THEN, when you are ready to find out what YOU can do to help yourself (much more than any conventional medical approach can help) write again & I will be happy to point you in the right direction.
Walt
In Reply to: Lupas posted by Teresa R. Barrett on August 06, 1997 at 20:48:45:
My 33 year old wife has been diagnosis with Lupas.
I want to know everything about his desease, from how to treat it, if there are any cures, what kind of normal life she can lead.
Please help!!!!!!!!!!!
In Reply to: Re: Lupas posted by Tom Hanna on December 23, 1997 at 15:36:16:
Dear Tom,
Whether one "gets" lupus, rheumatoid arthrotis, ankylosing spondylitis, regular arthritis, fibromyositis, scleroderma, etc., has nothing to do with difrferent causes--they are all the same. What causes the difference in what the person "gets" is due to their particular genetic susceptibility.
Go to the library & ask the reference librarian to find you both the most recent information about lupus. Once you both have familiarized yourself with the conventional viewpoint, you both will likely be ready to learn about the causes. Until then, you both will be at the mercy of the simplistic paradigm of the conventional medical monopoly. Since I have practiced both ways, I KNOW which way is most effective, safest & least expensive. My book is still the best way to get started with this deeper understanding (link below) even though I have not mentioned the word lupus in the entire book.
Once you both begin to see your other options, please write again with any more questions you might have. In the end, it is NOT you who needs to become a student of this. It is your wife! Neither of us can do this part for her.
Walt
Walt
In Reply to: HCV & Lupus / Treatment? posted by Terry on October 21, 1997 at 20:17:28:
I would like to know the answer to "Terry's" question Re: HCV & Lupus, Dated:10-21-97, since there appears to be a lot of simular signs & symptoms. Is there any way the to can be related at all besides just simular s&s and autoimmune simularities? Also is it possible to get an E-mail address for "Terry" or could you pass my address on to her? I would like to find out more info from her.
In Reply to: HCV & Lupus / Treatment? posted by Terry on October 21, 1997 at 20:17:28:
I would like to know the answer to "Terry's" question Re: HCV & Lupus, Dated:10-21-97, since there appears to be a lot of simular signs & symptoms. Is there any way the to can be related,at all, besides just simular s&s and autoimmune simularities? Also, is it possible to get an E-mail address for "Terry" or could you pass my address on to her? I would like to find out more info from her.
In Reply to: Re: HCV & Lupus / Treatment? posted by Stephen Desmarais R.N. -Hepsters President on December 29, 1997 at 21:06:08:
Dear Stephen,
Who are the Hepsters?
Anyhow, if you sent a reply to Terry by clicking the "post Followup" icon at the top of Terry's message, you are responding to, it will go directly to that person. You can get in touch that way & you can share email addresses if you both wish. I would hope that you could share as much with the rest of us as possible since that is one of the ways we learn/
Walt