Dear Missy,
Listen to Oma. She is pointing you in the right direction. NO ONE can be allergic to pure water. Since about 80+% of our bodies are made up of water, you can see how this could not be possible.
However, it is a real challenge (nowadays) to get pure water. You will have to become a student of water pollution and how to get rid of it. THEN, you will clear up.
Please share your experiences, as you get over this, with the rest of the bulletin board participants. There are a lot more out there with this problem and it is only going to get worse.
The REAL problem is: Who is going to tell you about this? No one will make any money explaining this to you. There is a lot of money to be made by treating your symptoms while the causes go on their merry way.
Walt
Dear Liz,
You sound like a typical Multiple Chemical Sensitivity (MCS) pereson to me. You need to plug into several national networks for lay people to learn enough to know how to approach this. Melva Smith is the editor of one of these newsletters & her site is linked to this site. Also, she is a regular "lurker" to this BB & you could draw her attention by doing this note but putting her name in the title.
Also, you might contact CIIN (Chemical Injury Information Network) at Box #301, White Sulphur Springs, MT 59645.
Please share with us what you learn.
In the meantime, you could learn why YOU have this problem. That basic understanding would stand you in good stead in deciding how best to help yourself. Toward that end, a copy of my book (link below) and one of the resources listed in the back "Mind as Healer, Mind as Slayer" by Dr Pelletier, would be a big start in the right direction.
IF you are wanting expert guidance while you are learning, I cannot recommend too highly one of the best in the world in Phoenix (since you mentioned going there) Gladys McGarey, MD at (602) 990-1528. Also, perhaps the top Clinical Ecologist in the world is in Dallas. Bill Rea, MD can be reached at (214) 368-4132. I would go to Gladys first and if she thought Bill could help in consultation she would say so.
The longer this goes on, the more work you will have to do to get back to normal functioning.
As you get well, please share your experiences with us here on this BB. You have lots of company & many people would be helped by seeing you get well.
Walt
Read more about endotoxins and yoy get your answer!
Do you have neurospasms?
Like someone hooked you to high voltage?
What about fluorescent light, and crt monitors, do you feel
blinded, and feel pain of eyeballs?
Next get nerv conducticity test to check peripheral neurophaty! You have it for sure!
I posted several messages on this site under EBV, etc you may scann it and you wiol find answer to latest research.
nd lets disbar all members of AMand other medical organizations. There is no objective findings that those bozos have intelectual capacity to,act, to serve to make decisions!
The difference between Bozo and the doctor is that BOZO make you smile, doctor make you cry!
Liz ,
yes you have it!
Neurotoxicity may but does not have to be caused by endotoxines in your case!
Who ever called it lupus get confused because of autoimmune reaction! Get good occupational industrial environmental and industrial hygienist!
gO TO osha/niosh SITE and scan Right-TO-KNOW, CFR29, 1200(?) for any toxins you worked with!
You may find a lot of info! Do not waste time with doctors not trained in occupational medicine! This is a serious law suit, I believe there is no statue of limitation on toxic exposures!
NEUROTOXICITY it is all you have!
I am interested with cases like yours since I am in process of lawsuite! No attorney will take my case! Keep in mind wastewater!
!., get enzymatic cleaning of your colon with YAMAZU
213-7691116 $15.00 for 8 oz. in case you have bacterial problems producing endotoxins in your colon!
When bad firehydrant always use activated charcoal powder (drink with water)! Will controll diarrhea!
Than read what I have posted about endotoxins!!
They protected the wafers from contamination, by bunny suits, while killing people Central Nervous system!
Any cognitive and memory deficits?
Get good psychiatrist, occupational disability!
Never use medication CECLOR CD!
I was dizzy , unable to walk psychotic, loosing balance, my brain moved two feet in front of me I could not think.
Hope you sue bastards!
It is known also as bunny suit job with silicone industry!?
??
I posted some info for someone on same subject giving also legal cases found on INTERNET try to find it . Posted on 5/14/98.
Your DNA is damaged, your body may have altered enzymatic/hormonal balance. Consequently you may produce own proteins to which you may be responding with immunotoxic reaction!
You may have reaction similar to endotoxins.
Check nerv conductivity for peripheral neuropathy first.
I know this does not have a sense ! try it any way!
In Reply to: Re: Neurotoxicity posted by Walt Stoll on May 03, 1998 at 09:50:23:
Clear cut of CMS.
Dr. She needs someone like Proctor or HUGHS, and industrial hygienist not clinical ecologist. The difference is that the courts will not recognize REA, due to such cons as Eric COMSTOCK of Houston.
Recommend KAYE (?) KILBURN WHO IS WELL RECOGNIZED, AND HAVE thousands of publications even far a way.
He has a clinic in LONG BEACH, Ca.
Such test runs about $ 2000.00 but will hold also in court!
also may be interested to review www.immed.organd www.gulflink.osd.mil, for good briefing!
Also need blood tests for heavy metals from specialized accredited laboratory with extreme reading sensitivity.
The mercury fillings may need to be knocked out and replaced with porcelain like EP EMPRESS.
In my case the severe pain in knees, and buckling knees made the difference! The neurological spasms slightly improved!
My body was jerking as shoot with high voltage!
Svere abdominal pains, neuromuscular cramps all over my back, stiffness! Could not sleep in the bed, slept on a carpet floor for 2 years! due to pain when bed compressing!
I am not going to say any more.
I believe he can really help. She needs someone connected with powerful institution such as Medical Center or University, and not Environmental Ecologist!
There is no doubt on my mind that this is severe as in my case : MCS!
I am in same position and that is how I landed on your site!
IN deed New Hampshire Supreme Court rulled that MCS is compensable Workers Compensation.
Right now there is no treatment for MCS caused by chemicals.
There is treatment for MCS/CFIDS if viral/ bacterial/ endotoxic!
The diet will make difference!
acivated charcoal (wood, not-coal rocks) gives some relief for digestive system!
In Reply to: Re: Neurotoxicity posted by Jn on May 15, 1998 at 05:55:26:
Deare JN,
I can't argue with your position. This problem is just another hurdle that anyone who is going to resolve this is going to have to take. Many are unable to go to these lengths--having spent all their money butting their heads up against the conventional medical stone wall. Those are going to have to do this by learning.
The best I can hope to do is open a window (or door) for the individual to look at this from a causitive angle rather than just from the simplistic "treatment of symptoms" conventional medical approach. If I can just do THAT, they will eventually find their way by accumulation of knowledge.
Besides, frequently, someone like you will come along & give out nuggets like this to speed them on their way. Knowledge is really the answer in the end. You & I are tryijng to offer some of that.
Namaste` Walt
Dear Dr. Walt,
What you may not recognized, in my case, it is now only due to neurotoxicity resulting from bio-poisoning.
My brain does not function now as before. I do suffer from properly diagnosed cognitive and memory deficits, also expressed by lack of concentration, anger, and loss of control while carried a little by....
Imagine my brain at all time feels like something is "tingling" in my head, a painful physical symptom which can not be objectively tested. This is combined with frequent dizziness, and severe pain of "eyeballs", like hot charcoals.
Beside a few doctors who catched it to late, and are being defamed by DUCTORS who represent disability insurance -for their diagnosis, many ridiculed me, since it is unbeliveable. In deed if you will come to me an tell me symptoms like I do have, I will put you on PROSAC, and send for extended psychiatric evaluation. That is what I needed to do while unable to relax, due to extreeme stress, anger, and like obsessive behavoir. I feel physical "discomfrt" in my brain. Powerful antibiotic CECLOR CD make me totally psychotic!!
I am sharing this with you not because it make me feel better, but because as you know, many do not recognize such and are in denial. It will only make you a better doctor, while I do not mind that others learn from my experience.
If I ramble like AYA said, it is not because I want to, but I can not concentrate, and due to memory problems I am forgeting what I wanted to say. Believe me it is very severe. Not knowing what I just said, can make one narcisisticly brutal and unfair, with some comments.
I also can not look at CRT monitors, and laptop with LCD with special set-up (black background, green fonts) alows me to use computer, other wise I am getting dizzy, loosing my balance (falling down), this is called as you may know Electromagnetic Hypersensitivity to light flicker as result of (amplitude modulated) fluorescent, mercury, halogen, or low pressure sodium light. I even needed to controll my driving since moving objects (relative to car movement) are making me dizzy. The avoidance help a little.
This what is diagnosed as Multiple Chemical Sensitivity, with peripheral neurophaty, damage to CNS, and CFIDS, FM, IBD, and probably LGS as you correctly stated, and I have them all.
I am not looking for excuses but I am shocked by the power of perswasion of like tabacco "JOE" Camel mentality, in medical leadership authorities (authority with lack of notariety) such as AMA, or ADA (mercury). Gulf War Illnes well demonstrated what such western doctors can not do, they can not diagnose, or treat!
But the worst is the denial, and pointing toward post traumatic disorder. The Canadian study confirmed with patients diagnosed with MCS, that the injections od Sodium Lactite caused symptoms like panic disorder. The first such clinical medical evidence which may or may not be used in the future as the diagnostic tool.
As you know some call this also Idiopatic disorder , I guess because it drove some doctors to the state of IDIO(*) pat(holog)ic mental dimentia. And when the patient can not cure his doctor of such condition, than the patient consequently develop doctors symptom.
The attention to the great details (which I needed due to my profession) leaded me to discoveries which let me understand what doctors could not.
The research on ENDOTOXINES and GLUCANS is just emerging, many may not know about it. (see www.XOMA.com).
When I called local State Department of Health with inquiry about, The Director (MD) ask me: "What are ENDOTOXINES!?"
You may also find that EPA just started first project on "Sick Building Syndrome", where between other elements are considering to conduct test on airborne ENDOTOXINES aeorosoled thru airconditioning and ventilation systems.
I fund on this site that:
The difference between God and Doctor?
God provide guidance with no authority.
Doctor provides authority with
Hi all.
Just thought I'd share my new MCS page I am working on.
Click on the link below to get you to MCS ALIVE!
And By the way, I like the new BB Dr. Stoll. Looks good.
Melva
In Reply to: New Multiple Chemical Sensitivity Website In The Making posted by Melva Gail Smith on May 24, 1998 at 16:30:00:
Looks go so far. One constructive comment. The first table forces me to scroll to the right to view the text. The second table looks OK. Peter
In Reply to: New Multiple Chemical Sensitivity Website In The Making posted by Melva Gail Smith on May 24, 1998 at 16:30:00:
Dear Melva,
I asked Bill if he would link our site to your new one. I hope youy will link yours to ours.
Walt
In Reply to: New Multiple Chemical Sensitivity Website In The Making posted by Melva Gail Smith on May 24, 1998 at 16:30:00:
Dear Melva Gail Smith,
The navigating thru your site need a skilled Captain.
The size of the display does not fit, and need to be scrolled.
perfect fit
http://www.teleport.com/~ctseng/cfs_pages/index.html
In Reply to: New Multiple Chemical Sensitivity Website In The Making posted by Melva Gail Smith on May 24, 1998 at 16:30:00:
Need not to Show "Objective" Proof of Disability.
A series of recent federal court decisions under the Social Security Act which stand firm for the proposition that disability benefits may not be denied for FM, CFIDS and CMS, based on the absence of "objective" laboratory tests.
These cases are of extreme importance to state agencies and private insurers, since there are no contrary judicial opinions.
The citations to these cases are as follows:
1. Sarchet v. Chater, 78 F.3d 305 (7th Cir. 1996) ("there are no laboratory tests for the presence of fibromyalgia. ..but elusive and mysterious, disease, much like chronic fatigue syndrome, with which it shares a number of features. Its cause or causes are unknown, there is no cure, and, of greatest importance to disability law, its symptoms are entirely subjective..Whether or not she is disabled within the necessarily restrictive meaning of the Social Security Act and its regulations, she is unemployable");
2. Rose v. Shalala, 34 F.3d 13 (1st Cir. 1994) ("the absence of definitive diagnostic tests "for chronic fatigue syndrome" does not constitute substantial evidence to support a finding that claimant did not suffer from the syndrome");
3. Sisco v. Dep't of Health and Human Services, 10 F.3d 739
(10th Cir. 1993) ("there is no 'dipstick' laboratory test
for chronic fatigue syndrome");
4. Cohen v. Secretary, 964 F.2d 524 (6th Cir. 1992)
"the exact causes of chronic fatigue syndrome are still being explored");
5. Lantow v. Chater, No. 95-5262 (N.D. Okla. October 8,1996) "negative test results or the absence of an objective medical test to diagnose [fibromyalgia] cannot support a conclusion that claimant does not suffer from a potentially disabling condition").
6. SHERMAN v. APFEL, No. 97-7085 (10th Cir. 1997)
("..may not use the lack of corroborating objective medical evidence to disregard the claimant's allegations. Nonspecific malaise, anorexia, and fatigue often dominate the clinical picture, sometimes with low-grade fever and nondescript upper abdominal discomfort....the severity of plaintiff's abdominal pain, diarrhea, and nausea, it does not undermine her complaints of other nonexertional limitations, such as frequent headaches or fatigue, which plaintiff described as her most limiting symptom..."
7. PETERSON, v. CHATER, (No. 96-1906)(" So if, as the administrative law judge found, Peterson is not capable of prolonged sitting, standing, and walking, he is not capable
of doing sedentary or light work-- contrary to the administrative law judge's other finding.")
8. Sherman, v. Callahan (No. 97-7085)("fatigue does not differentiate between patients with mild or severe liver disease...Liver tests performed in May and June 994 showed an upward trend in certain liver enzymes, and hospital records showed continued complaints of headaches, diarrhea, abdominal pain, decreased energy, depression and anxiety. Dr. Inbody diagnosed plaintiff with moderate depression and ongoing polysubstance abuse. He reported that plaintiff had severe psychosocial stressors and gave her a "global assessment of functioning" (GAF) score of forty-five, id. at 290, which meant that she had "[s]erious symptoms (e.g., suicidal ideation, severe obsessional rituals, frequent shoplifting) OR any serious impairment in social, occupational or school functioning (e.g., no friends, unable to keep a job)," American Psychiatric Association, Diagnostic and Statistical Manual of Mental Disorders 32... In so describing plaintiff's activities, the ALJ ignored other statements on the same forms that evidenced limitations on plaintiff's activities.")
9. TIGER, v. APFEL, ("An ALJ cannot substitute his own opinion for medical opinion")
In Reply to: Re: allergic to water? posted by Walt Stoll on May 01, 1998 at 10:37:04:
I can't believe I am actually finding someone else who is searching for an answer to this problem. And your comments about the amount of money made on treating the symptoms is one that I can appreciate only too well.
Unfortunately, I have tried every conceivable type of water purifier....water softeners, carbon filters, structured matrix...reverse osmosis, and have even tried bathing in bottled water. Unfortunately, the only thing that has relieved my symptoms has been bathing in certain places where the water seems to bother me less. I have gotten reports from the local water companies in an attempt to determine what is either present or missing from the water in those places, but as you can imagine, unless you know what you are looking for, it is like finding a needle in a haystack. My problem has gone on for over ten years now, and has reached a point where the constant burning on my face and scalp make it difficult to work.......I am constantly needing to get up and put cold compresses on my face.....and, unfortunately, I have lost about half of my hair. If I try ointments to lessen the burning and itching, they aggrevate the problem......doctors tell me to learn to live with it.
If anyone anywhere has any suggestions, I would be more grateful than you can imagine.
Somebody out there....please help!!!!!!
Hi Dr. Stoll: I just found an Oxygen Generator at http://members.tripod.com/~healingtools Right now the ozone and heat are enough to kill us in KY!!! Have you heard of these generators? I've been so ill from the outside air that it affected my vision (seeing double) memory, and I almost passed out while taking my mother to the doctor. I thought I'd drive to the nearest dr about a mile from the hospital I got sick at as I figured they would make me worse if I went inside the hospital for oxygen because of the chemicals. I also wanted to make sure it wasn't my heart. What I was told by the other dr., was to go to my holistic dr. which was about 15 miles away, and ended up going home because I didn't want to chance the drive. I could have been dying and the one dr. didn't care. While I have recovered, I have found a product called Chem Defense that is made by Source Naturals. Molybdemum 120 mcg Glutathione 50 mg and Coenzymated Vitamin B 2 2.25 mg. Taken Sublingually. This seems to help a small amount, but not enough. What do you think about these oxygen generators to assist in breathing? This Summer is going to be a toughie on those of us with Chemical Sensitivity.
Thanks,
Melva
In Reply to: Re: allergic to water? posted by Marcy Wells on May 29, 1998 at 22:31:00:
Dear Marcy,
Unless you had the wherewithall to live in a glass box & be fed purified air, food & water through a straw, the solution to THIS problem will not be analysis of the water. You have to do those things that will make you less susceptible (SERIOUS WELLNESS). In about a year, you will stop reacting. Of course, a serious wellness program will do you a lot of good in MANY other aspects of your health at the same time.
To learn WHY you have to do & WHAT to do, I would suggest you first gather knowledge. The best introduction to that would be reading a copy of MY book (link on this page) and a copy of one of the resources in the back: Dr Pelletier's classic "Mind as Healer, Mind as Slayer".
THEN, if you still have questions, write again.
Walt
In Reply to: Oxygen Generators and Pollution in the air and interesting story. posted by Melva Smith on May 30, 1998 at 20:55:00:
Dear MELVA,
MCS is not caused by polutants. People with MCS respond to polutants, which make them very sick.
1. You may consider remouval of Amalgam fillings which may make a differnce (due to neurotoxicity).
2. MCS may be caused by bacteria (gram-negative) which produce endotoxines.
3. Endotoxines results in ACNE Form
4. As result of Endotoxines the CNS get damaged. MCS is demonstration of such damage.
5. People with MCS may be getting some relief by taking extensive courses of antibiotics in 6 weeks cycles. It may take few cycles.
6. If taking antibiotics results in severe side effects, such as worsening the condition, this is indication that they work! Such reaction is called Herxheimer Effect.
Unfortunatelly only few doctors know it.
7. Endooxines are seeded in intestinnes and colon, that is were the bacteria is triving.
8. Women in general develop also Yeast problem, which must be treated with Diflucan.
9. The antibiotics to be used for treatment are those which
will result in breaking of Bacterial DNA.
The latest is TROVAN.
The treatment may start with 18 days of BIAXIN, Metrodonizole and Prilosec, Than continue with Trovan for 28 days, than move to Z-pac for a week , than may continue with Agumentin. Other good one is CIPRO, Ciproflaxin.
Ceclor CD 500mg - make me very ill and had psychotic effects, double vision, dizziness, los of balance, disorientation.
You must wipe out bacteria producing endotoxines in your gut!
The course may need to be repeated.
Fibromyalgia may be caused by dental amalgam!
You may consider to try take supplements of Lipoflavonoid, and Bioflavonoid, Echinacea, ginco biloba, and DHEA, vitamin C, B12. Do not take minerals when taking antibiotics, since you lower effectivness of antibiotics.
Antibiotics if taken once a day shall be taken before you go to sleep, to reduce adverse reaction and side effects.
Use a lot of raw fresh Garlic, lemon, and olive oil!
Avoid MSG!
There are claims that tea spoon of Vinegar daily may also have properties which control fungi.
This is a verypotent terapy but it may help and be worhof trying!
You may read the following research of Prof Garth Nicolson,
on mycoplasmas.
Hi:
I have a new e mail mcsinfo@ns2.adept.net for those who have been writing and can't get through.
Also for Multiple Chemical Sensitivity Awareness Day May 12th, I am launching Freedom 2001. Freedom 2001 will attempt to put people who want to make a difference in contact with others who already are. So... if you have been injured by chemicals and want to address specific issues in your community, drop me a line. I'll see what I can do to link you up with groups that are already winning the battle. On may 12th 2001, I'll set back and see how far we have come in making a difference across the nation, and then figure out how far we have to go. Your letters, phone calls, and e mails to your representatives for healthcare freedom, and disability rights are making a difference. Let's knock a big dent in the side of the problem by 2001. Hope to hear from ya.
Melva
In Reply to: New E Mail / Project Freedom 2001 Underway. posted by Melva Gail Smith on May 09, 1998 at 19:34:08:
Dear Melva,
I appreciate you! I am glad to see that you are still "out there" and are not letting the b-----ds get you down!
Namaste` Walt
In Reply to: New E Mail / Project Freedom 2001 Underway. posted by Melva Gail Smith on May 09, 1998 at 19:34:08:
If any one has a disability legal problems the winning or loosing will depand on this site:
First read www.immed.org
Get the key words and then look at:
www.lawguru.com/lawsearch.html
enter in all circuit courts and study every case.
It is blasting blessing for those who have to file a claim!
I came across this article and thought some of the users of this BB would find it interesting and alarming.
Are Beanie Babies Toxic?
In Reply to: Beanie Babies and PVC posted by Peter Wray on May 20, 1998 at 15:57:34:
Thanks, Peter.
The REAL problem is that children are many times as sensitive to this kind of toxin as adults. Who plays with Beanie Babies? WEEELLL, I guess SOME adults do (grin).
Walt