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Amy is 2.5. I believe she may have had the flu that triggered her diabetes. She is seeing pediatric endocrinologists plus a naturopath. She is honeymooning and I feel she is in a critical window to alter her condition favorably and I am seeking experienced guidance to help me figure this out. Time is of the utmost importance and Im confused at what would be the most effective and logical for her. What do I do? She is currently prescribed Syzgium Jambolanum 30 drops 2x/day (homeopathic remedy) , antioxidants, diabinil ( chromium, b vit, zinc etc), l-lysine. It is difficult administer as she is ON TO ME, but I keep trying. Shes slept on a magnetic matress for 3 wks. She is producing insulin esp at night as her #'s go down to usually 60's then increase to 200's most of the day. She gets minimal dosing of Long and Humolog insulin in the am and at supper. Im trying the glycemic index scale and avoiding higher glucose intake and scaling down on milk and avoiding juices when possible. I want the world for my children! Please, any experienced advise welcome. Thank you.
Tami
In Reply to: seeking guidance for 2 yo recent type I diabetic posted by Tami on May 03, 2001 at 13:17:29:
Hello, Tami,
I certainly do know what you are going through because I went through this 33 years ago when my first son got diabetes. He was 6 years old when we found out. The fact that she was ill just before you found out didn't have anything to do with her getting diabetes in my opinion.
I'm glad she is having two insulin injections a day. As for the other things, I am not at all an authority. But, I can tell you that she should have no fruit juices unless she is in a reaction because fruit juices contain sugar which enters the blood stream quickly. I see nothing wrong with milk. Of course, you should never give her candy or anything with "high glucose" in it. I'm sure they have instructed you about what to do when she has an insulin reaction. They told me at the beginning that my son would learn to know the symptoms of a reaction - shaky feeling, dizziness, feeling of extreme tiredness. And when he showed those symptoms (or told me about them), I was to give him orange juice (or another juice). If that didn't work immediately, I was to put a tsp. of sugar in the orange juice. And, he needed two snacks a day plus one before bedtime (but never juice).
Don't worry - your daughter will be very healthy because the diabetic diet is one that everyone should follow. My son is now 40 years old and is very healthy with a wife and a handsome son. Write whenever you want. Needless to say, this is just advice from a mother who has been there. Dr. Stoll will give you professional advice. Good luck! It's hard at the beginning, but everyone gets used to it, and because your daughter has gotten it so young, she will be much more able to accept it that one who gets it later.
In Reply to: seeking guidance for 2 yo recent type I diabetic posted by Tami on May 03, 2001 at 13:17:29:
Hi, Tami.
Raisa's experience was many years before we learned that the most easily reversed (in some cases of type 1 diabetes in very young children) cause of juvenile diabetes is TOTAL removal of dairy from the child. This may not be the cause in this child but why take the chance? The poorly metabolised caseine causes the production of an antibody that attacks the beta cells of the pancreas. Other than that her information is right on.
Let us know how this little tyke does.
Walt
In Reply to: seeking guidance for 2 yo recent type I diabetic posted by Tami on May 03, 2001 at 13:17:29:
Our son was 3.5 years old when he was diagnosed diabetic (he is now 6), and strangely enough, our next door neighbor's daughter was diagnosed diabetic 3 months later at the age of 4. We now live in Italy and our son is being followed by the Bambin Gesł Hospital near Rome, where the director of the Pediatric Diabetes section is the discoverer of the pancreatic islet cell antibodies. Last October I went to a conference for the parents of diabetic children (in Rome) where he stated that it now appears obvious that, in MOST cases of type 1 diabetes, both wheat gluten and milk (and genetics) are causal factors. Our son (strangely enough!) is severely allergic to both wheat and milk.
Since diagnosis, we have removed both wheat and gluten from our son's diet, but he is still extremely allergic to these foods. In the beginning he was on very little insulin and had "good" HbA1C's, from 12 at diagnosis to 8. But of course, looking for better control the doctors have continued to raise his insulin and that just seems to make things worse...his last HbA1C was over 10! We just raised his insulin again and now he is on a rollercoaster worse than ever, I am up all night trying to keep him from going too low and rebounding (although it usually happens anyway). We know he has insulin antibodies but the only thing the doctors know to do is to give more insulin.
My advice to you...make sure your child gets plenty of rest and exercise, these are the only factors that I have seen that help to give our son more stable readings. For some reason miso soup - the soup that the Japanese eat every day for breakfast - also seems to help (I have no idea why but now I'm wondering if it is because of miso's ability to remove mercury and toxic metals from the bloodstream). We will be admitting our son into the hospital again soon to see if they can try to stabilize his readings, but like I say it seems that the more insulin, the higher (and lower) the blood sugar rollercoaster ride! And of course the part I really hate is to see the emotional toil he goes through as he rides through the highs and lows.
The good news is that our son is healthy in other ways, his height/weight ratio is good and no one ever suspects he is diabetic. In fact, one of our problems is in reminding others, especially teachers and family members, to be careful with him and to watch what they give him to eat. Life isn't easy for a diabetic, and it's tough on others around them too, especially mom. I'd give anything for a REAL diabetic cure....
Best of luck to you. Keep in touch with this board.
--Sherri
In Reply to: Re: seeking guidance for 2 yo recent type I diabetic posted by Sherri on May 05, 2001 at 16:45:00:
Hi, Sherri - As I said in an earlier post, my son was 6 1/2 when he was diagnosed with diabetes. He, too, improved tremendously when we first started giving him insulin,and then his pancreas stopped secreting insulin, as usually happens in Type I. My son was not allergic to any foods that we knew of, nor were most of the children we met at the juvenile diabetes camp at Joslin Clinic. I'm not at all saying that food allergies don't have anything to do with it. I'm sure Dr. Stoll is correct in saying that milk products are bad for diabetics and that 33 years ago when my son's diabetes was discovered, we had no idea that things like that could be contributing factors. All I am saying is that some children will develop diabetes no matter what because it is in their genes. Thank God for the research that has been done to help them control their disease better.
My son went through good times and bad. You are so right in saying that exercise is extremely important. When we took a trip to Europe and walked and walked, my son's urine tests were always negative and he was able to have a wonderful time with no insulin reactions.
The only time I had a problem was when he went through puberty and his hormones were changing. That time was very difficult. Still, things do work out and I would say that my diabetic son is the most well-adjusted of all three of my children. Good luck, and please do keep in touch!
In Reply to: Re: seeking guidance for 2 yo recent type I diabetic posted by Raisa on May 05, 2001 at 18:26:15:
Sherri - I just want to say that I didn't mean that all went smoothly at the beginning -- it didn't. We had many ups and downs, but the pediatrician kept having us add 2 units of NPH, or 2 units of regular insulin. Or he would have us deduct 2 units, etc. He said that from day to day my son's insulin requirements would vary because of his growing body and the different amounts of exercise he did each day. Also, if he got a fever or upset stomach, everything would have to change. But, the thing is that he and I got used to these things happening; and as your son gets older he will understand so much more and it will become easier and easier for you and your family.
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