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Dr. Stoll:
I appreciate your work. I also appreciate what you've said about Mitral Valve Prolapse not being based in reality as those of us who suffer from it might think. I of course want to believe I can be rid of it. But I am not so convinced. In any event, I was wondering if you're aware of the MVP book (considered to be the best on the subject) written by Sharon Anderson. Now, this one goes absolutely to the other end of the spectrum. (Doom and gloom.) But given that it has such support, I wanted your input. Thanks.
In Reply to: MVPS & Dysautonomia posted by Dave McKenzie on December 14, 2002 at 23:22:24:
Thanks, Dave.
Without even reading it I can tell you that, in my opinion, it is total BS. I know that can be a dangerous thing to do but I would not waste my time.
MVP is a totally manufactured syndrome that will fade into history within the next 10-20 years. It will only last that long because it is conventient for the PHYSICIAN to keep it around.
You will never get your valve to be "normal" but that is like saying that you will never change your eye color--AND it would have just as much value!
There is NO relationship between MVP and ANY symptoms. Just think: there was someone who wrote a whole book about nothing. I guess that is not the first time that has happened :o) or :>(.
Comments?
Walt
In Reply to: Re: MVPS & Dysautonomia (BS book.) Archive in MVP. posted by Walt Stoll on December 15, 2002 at 10:03:30:
I have known for almost 11 years about my having MVP. The valve is like a marker. It just seems that many people who have the complaints of racing heartrate, palpitations, anxiety, when checked also have the billowing of the leaflet(s). I was made to understand it that any symptoms we are feeling are due to an imbalance in the nervous system. Too much stress etc, can push us over the limit and the symptoms become pronounced. The severity of a prolapse has nothing to do with the severity of symptoms, so I was told.
I read the book a while back also, and certainly scares anyone, but I thought she had an undiagnosed murmur and then became infected with endocarditis. I know it is more likely to occur in a person with valve regurgitation, but it also occurs in normals. It was horrible all she went through and I'm sure she cannot speak for the entire % who have it that this is the way it will turn out. Getting the symptoms under control would be from diet, exercise,fluids and stress management. My dentist will not touch me w/o my taking a preventative antibiotic first but for me, it is usually not that often that I have to have dental work done!
Just my opinion, and hope you do not fear the worst for yourself after reading that book. Plenty of other good sites about the syndrome and how to manage the symptoms!
In Reply to: Re: MVPS & Dysautonomia (BS book.) Archive in MVP. posted by HoneyB on December 15, 2002 at 10:11:31:
I will have to disagree with Mr. Walt about MVP.
I have recently been told by a dr that I have MVP.
He has put me on an herb called SAM-E that has helped me greatly in just the few short weeks I have been taking it. But it was a relief to know what made me so moody and worried all the time. This is a real condition but it doesnt have to take over your life! Dont listen to people that try to tell you it isnt real and that its all in your head!
In Reply to: Re: MVPS & Dysautonomia (BS book.) Archive in MVP. posted by mandi on December 18, 2002 at 16:37:38:
Boy, mandi, are you behind the times.
Even most conventional docs are beginning to phase out this ersatz diagnosis. Perhaps, when you have suffered enough, you will begin to learn what REALLY is causing your symptoms and begin doing something about them. The one thing you can be sure of is that they are not related to your MVP!
Walt
In Reply to: Re: MVPS & Dysautonomia (BS book.) Archive in MVP. posted by mandi on December 18, 2002 at 16:37:38:
Read up on SAM-E Mandi.
SAM-E has nothing to do with MVP, but it would help with your moodiness/worrying.
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