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I discovered that I have mvp for about two years now. I have been under supervision to monitor the progression of the valve. I bumbed into a post by Jenel with regard to a mvp repair and a heart reduction. I am truly interested in finding out from anyone if they have also have had repair done to their heart valve and who was the surgeon. I would also be interested in knowing if anyone is familiar with Dr. T.E. David. I am supposed to have surgery in a couple of months from now and I am craving information. Has anyone heard of any type of no invasive methods of healing this type of condition?
I appreciate any kind of info at all
much appreciated
sincerely
Albert
In Reply to: Mitral Valve Prolapse posted by Albert Wizman on May 01, 2001 at 23:57:50:
Hi, Albert.
UNLESS your mitral problem is rheumatic in nature, any surgery would be malpractice since the current FAD diagnosis of MVP is a nonentity. I can guarantee, if this is really MVP, that all of your symptoms--currently ascribed to the MVP-- will still be there after the surgery.
At least read the home page and the archives about MVP before having them cut out your heart.
Walt
In Reply to: Re: Mitral Valve Prolapse posted by Walt Stoll on May 03, 2001 at 09:19:27:
Hi Dr Stoll, I have MVP and MVPS (I'm making a distinction where Mitral Valve Prolapse Syndrome - MVPS is the typical symptoms like extra heartbeats, and MVP is the valve difference with or without symptoms). I have had my MVP looked at by a cardiologist and he considers it mild and not a problem. He said that my symptoms are caused by hyper beta-adrenergic sensitivity and not the valve. So lets assume that the valve has nothing to do with the symptoms. This means that there must be people who have the symptoms without the MVP. If so, what is the name of this diagnosis?
In Reply to: Re: Mitral Valve Prolapse posted by Ronald on May 04, 2001 at 12:14:18:
Hi, Ron.
Dysautonomia. If you want to understand this, read Selye's or Pelletier's book.
For example, even your doc would admit that your MVPS has nothing to DO with your dysrrhythmia. You could even have a total valve replacement and ALL of your symptoms would still be there.
There are NO symptoms connected with this valvular condition!
Hope this helps.
Walt
In Reply to: Re: Mitral Valve Prolapse posted by Walt Stoll on May 03, 2001 at 09:19:27:
I was told that I have MVP. I had three ultra sounds to see the condition of my mitral valve. Now when I saw it myself, on the screen I saw one side flapping over and under the other side. Which led me to beleive that there was no longer a tight seal. To further verify that I was a candidate for repair They did a proceedure called T.E.E..(Trans-esophogeal echocaridogram). I hope I spelled that correctly. Where by they stuck a large tube as thick as a cigar down my throat to see the heart from the inside. After having the results verified by the surgeon he said I have a 95% chance of repair. The proceedure is done where by they cut out the streched condrites, ( I'm not sure if that is what they are called or if that is the correct spelling) and then they are replaced with gortex. ( of that I am sure.) Have you heard of this proceedure?
I'm sory I have not replied sooner but I thought I put down my email and I was looking for a response to my first email there.
If you Mr. Stall or anyone else wish to reply to this you can email me a asw@sympatico.ca
respectfully
Albert
In Reply to: Mitral Valve Prolapse posted by Albert Wizman on May 01, 2001 at 23:57:50:
Dear Dr. Stoll: To add to my previous reply to you dated 05-19-01 20:49:09 I read further other post to and your replies. I am willing to beleive that doctors often mis-diagonse conditions. How can I be certain that I have been mis-diagonsed. Further, do you have an idea what it might be and what I can look into as a solution to my problem. I should mention that I have been in the gym for over 20 years and am fit. I eat well and have taken vitamins for just as long. Over the past five years I have taken a variety of muscle building protein products. All over the counter powders, creatine etc. Never have I taken steroids. I body fat % has ranged from 18% down to 9%. Could any of these products caused my condition. Since having my condition Iam sometimes short of breath. I do not train as hard in the gym for fear of causing more damage. Hence I have lost some lean muscle mass. My cardiologist says I can work out as long as I do not raise my blood preasure. Just do moderate weight but no intense aerobics or running etc.
So I continue to eat relatively well and go to the gym 4-5 times a week, however my intensity is not there and at times I miss the natural high from feeling physically expended. The surgeon that plans to do the surgery is Dr. Tyrone E David. Have you heard of him? The proceedure I mentioned earlier in my previous post, he is one of only three doctors able to it. I don't want to go under the knife if I don't have to. I was told that I could stay like this for possibly a year or two. Then the possibility of repair deminishes. Afterwards it is either a pig valve or mechanical one. When I asked him what I was on a scale of 1-10. He said a 7. However he said that I am still a candidate for elective surgery. That it has not gone severe. I have listened to my heart with a stethescoope and is sound like boomb swish, boomb swihs and so on. Of cours when I listen to someone elses it is bomb bomb, bomb bomb.
Up to now I have not been on any meds. I wonder why I see many people on the boards that are on meds?
Dr Stoll, I am waiting for your reply either on the boards or at my email.
Respectfully
Albert
In Reply to: Re: Mitral Valve Prolapse posted by Albert on May 19, 2001 at 20:41:09:
Hi, Albert.
What you are describing is not the conventionally "discovered" MVP I have been disparaging on this 'site. It is a rheumatic heart disease damaged valve (there are few other causes).
Surgery is very successful and the valvular function tests determine when it is bad enough to need surgery. This is a place where conventional medicine shines. HOWEVER, this is NOT MVP.
Let us know how you do.
Walt
In Reply to: Re: Mitral Valve Prolapse posted by Albert on May 19, 2001 at 21:57:46:
Hi, Albert.
See my previous reply.
Until your valvular function tests show you at risk, you will have NO symptoms. The idea is to do the surgery before you have symptoms that might damage you.
Lots of people are on medications because of the simplistic paradigm of the allopathic monopoly and the convenience to the doctor by giving the patient a simplistic "diagnosis" to hang their hat on.
If everyone could understand what I have on this website, this FAD would disappear overnight.
Walt
In Reply to: Re: Mitral Valve Prolapse (Not!) Archive. posted by Walt Stoll on May 21, 2001 at 08:35:58:
If this is not mvp then what is mvp and how does it differ from the condition that exists from rheumatic fever. In the end does it not still mean that there is regurgitation and a dysfunctional valve which needs to be repaired or replaced. The other question I have is have you heard of the valve being repaired and and the mortality rate? Have you heard of Dr. Tirone E. David. and his work? In your opinion what would you do if G_d forbid you or a loved one had a condition similar to this. Would you have premtive elective surgery for repair or would you wait until replacement was the only option? sory to ask this question and I hope you are not offended by this question?
Respectfully
Albert
In Reply to: Re: Mitral Valve Prolapse (Not!) Archive. posted by Albert on May 21, 2001 at 16:33:04:
Hi, Albert.
The current FAD diagnosis of MVP is a physiologic varient that MANY people have. Rheumatic fever damage frequently does need surgery in later life. Your cardiologist can likely discern the difference in causation but just the fact that he is conidering surgery says that it is not the FAD diagnosis.
If you have read the archives in their entirity, you would already know what is known about this condition.
Hope this helps. I have no knowledge of this particular surgeon. There are MANY conventional websites out there who may know the answers to your other questions.
Walt
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