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Hi, Walt
I was diagnosed with PN (peripheral neuropathy)almost 1.5 years ago and have run through different complaints since. The facts that the ENT I recently saw seemed to believe I might possibly be suffering from MS, my neurologit immmediately ruled out this thinking due to the tests I'd gone through 1/2001.
A person I know has raised the possibility of possibly of this being "ALS" due to my difficulty in swallowing since that silly dog bite.
Is there possibility this might not be PN, but instead ALS? Researching through the Internet and have appointment with different neurologist within the next week and half. Would like to have more information on both in order to ask appropriate guestions. I've got a list of guestions already started, along with copies of my medical records.
What is possibility both could be beaten by SR, exercise, and diet? I've made headway on regaining my health and don't plan to let something like this beat my efforts.:-)It's unacceptable to me.
In Reply to: Amyotrophic Lateral Sclerosis (ALS) v.s. Peripheral Neuropathy posted by B.B. on May 02, 2002 at 00:37:38:
This probably has no relation to your swallowing problem but
I had a bad scare from a dog when young and for 10 yrs when
a dog came near me I would get a tingling sensation in
my chest, I think in my esophagus. It took a friends pup
geting car sick in my lap that got me over it. Really, I
think being around a pup got me over my fears. Could your
swallowing problem be tightness from fear ??
VF
In Reply to: Amyotrophic Lateral Sclerosis (ALS) v.s. Peripheral Neuropathy posted by B.B. on May 02, 2002 at 00:37:38:
Hi, B.B.,
When were you bitten by the dog? Of course, I have no medical advice; but, if the two are related,and it sounds as if they are, it seems impossible that you would have either MS or ALS. Sounds to me as if a nerve somewhere was damaged (and could gradually return to normal) when you were bitten. Also, as Vince said, perhaps the trauma affected you temporarily. Just don't want you to worry unnecessarily! I always wonder why doctors throw out these names of diseases as if they were saying you have a 'cold'!!
Good luck! Raisa
In Reply to: Re: Amyotrophic Lateral Sclerosis (ALS) v.s. Peripheral Neuropathy posted by Raisa on May 02, 2002 at 10:13:03:
Raisa
I was bitten the end of February of 2002. No, I'm not traumatized by the bite as I take care of the three dogs with no problem. This includes holding and playing the small dog that bit me.
IMHO I believe doctors throw out names of diagnosis in a means of scaring the heavens out of the patients, especially the female patients! Most women IMO are treated as a sack of potatos and not as human beings.
Getting a real attitude lately around the doctors. Only three of them actually treat me like a human being, and haven't seen or heard my sarcastic attitude. Nope, not proud of it either, but I just can't take it any longer.
Am I afraid that there could possibly be some underlying illness? Yes, do I think they'll find anything? Nope, I'm just confused and frustrated at this point and want to find out one way or the other. It's the NOT knowing which fuels my anxiety and stress level.
In Reply to: Re: Amyotrophic Lateral Sclerosis (ALS) v.s. Peripheral Neuropathy posted by B.B. on May 02, 2002 at 19:47:14:
Hi, B.B. - Of course it does!!! I've had this done to me by doctors many times - they jump to the worst conclusion they can. I think this could be that they selfishly want to show their superiority and also they want you to be sure to be afraid so that you will continue to seek their help.
I have finally found a doctor who does not do this; however, I hope that he would realize it if I did have something seriously wrong! I do trust his opinion more than I have any doctor for a long time.
I truly think that what you are going through is temporary and will resolve itself in time. Be sure to let us know the results of your tests - I'm betting that they find nothing wrong, but "their pockets will be lined", as my father would say. Best of luck. Raisa
In Reply to: Re: Amyotrophic Lateral Sclerosis (ALS) v.s. Peripheral Neuropathy posted by Raisa on May 02, 2002 at 20:04:41:
Raisa,
I'm planning to take copies of my records and tests to this doctor in a couple of weeks. Truly wasn't planning on going through anymore TESTS! A doctor whom I trust mentioned to me of a test which might be suggested (prescribed)in order to rule out ms. Nope, didn't mentioned anything to him of the als as he knows this other doctor.
He asked if I'd gone through a test to pull out liquid to test from the spine. I looked at him and said NO! This particular doc is one of the three who hasn't heard my sarcasism or seen my outburst. I've been taming it down to a controllable level in order for them to listen to what I have to say. It's just that when I become riled up, for some reason don't realize that I'm screaming at them.
Truly hope and pray that you're correct as this is my first instinct as well.
Thanks
In Reply to: Re: Amyotrophic Lateral Sclerosis (ALS) v.s. Peripheral Neuropathy posted by B.B. on May 02, 2002 at 20:17:20:
Hi, B.B. -
I hope so, too! Good thing you are keeping your sense of humor through all this! I had to laugh when picturing you
trying to keep your composure! Good luck! Raisa
PS - Did the doctor mean a spinal tap? My son had one and it was a very simple procedure and safe (I think). But no use to have something you don't need!
In Reply to: Amyotrophic Lateral Sclerosis (ALS) v.s. Peripheral Neuropathy posted by B.B. on May 02, 2002 at 00:37:38:
Hi, B.B.
It is, increasingly being established by the human genome project that environmental chemical pollutants are intimately related to ALL chronic neurological conditions. Experts in the field have been suggesting that for more than 20 years.
Since we have so thoughly, and thoughtlessly, "fouled our nest" it is almost impossible to avoid these spilled chemicals and so, the best we can do right now is to improve the detoxification capbility of our livers as much as possible. Go to the liver archives for that.
It will take a good Clinical Ecologist to help you sort out what kinds of environmental chemicals might be possible to avoid that are directly impinging on your tissue.
Let us know what you learn.
Walt
In Reply to: Re: Amyotrophic Lateral Sclerosis (ALS) v.s. Peripheral Neuropathy (Archive.) posted by Walt Stoll on May 03, 2002 at 09:41:35:
Walt,
Thank you soooo much for the information. Never had an inkling it could be due to environmental chemical pollutants . Thought at first I was just getting old and my body was slowly disintergrating:-(
Do you know of a good clinical ecologist in S Florida area? At this rate, I'll nevr be able to divorce my doctors and that's what I'm planning on doing asap.
In Reply to: Re: Amyotrophic Lateral Sclerosis (ALS) v.s. Peripheral Neuropathy (Archive.) posted by B.B. on May 03, 2002 at 10:34:25:
Hi, B.B.
I think the resource is in the MCS (multiple chemical sensitivity) archives.
Let me know.
Walt
In Reply to: Re: Amyotrophic Lateral Sclerosis (ALS) v.s. Peripheral Neuropathy (Archive.) posted by Walt Stoll on May 04, 2002 at 08:21:07:
Walt,
I'm sorry didn't think of it. Input clinical ecologist into the search engine and it was the first post which was brought up.
This is the information you had provided:
Call (316) 684-5500 0R go to their email at info@aaem.com
Since it's Saturday chose to send email and will advise of response. I'd tried surfing through the Internet and couldn't get any information. Perhaps I was surfing under incorrect subject.
Thanks:-)
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