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Dr. Stoll--Treatment Options for PCOS

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Dr. Stoll--Treatment Options for PCOS

Posted by P [15.105] on July 27, 2004 at 00:29:44:

Dr. Stoll,

As you may recall, I have bilaterally enlarged ovaries both of which have the "string of pearls configuration" of cysts on them. However, there are solid and cystic structures on the inside of the left ovary which have caused it to enlarge to the size of a tennis ball. My ob/gyn and gynecologic oncologist believe that a unilateral oophorectomy may be in order and I am now headed to the REI.

The LH:FSH ratio is over 6. My testosterone level is 112 and my fasting glucose level is 103 (the lab indicates that any gluc. level over 99 is too high). I am underweight most of the time and it is a real struggle to gain enough weight to achieve the lower limit of what is generally considered to be ideal for a 5'7'' woman. In fact, the only way it has ever been possible to achieve a weight of 115 or more has been through building muscle mass. My bloodwork indicates that I am ovulating each month, although, my periods are about half as long as they were in high school (I'm 24) and are lighter than they used to be. My CA125 is 12.

I swim about 40 laps 3 mornings each week. I practice yoga for 1.5 hours 3 times a week. I walk at least 2 miles 3 evenings a week. I alternate days comprising 30 minutes of cardio machines (either elliptical machine or recumbant bike) with weight training (alternating days of upper body with lower body). I practice other forms of relaxation for as long and as frequently as I can.

I avoid refined carbohydrates like the plague and don't even like the way eating an occasional piece of fruit makes me feel. I feel physically sluggish, not necessarily but sometimes sleepy, and as though there is a dull ache and tenseness throughout my body. However, there are times when I become quite shaky/faint and hungry without warning and consume a small amount very sweet food, usually a piece of fruit.

I do not want to take birth control for a variety of reasons. However, I am very often urged to get a prescription. The only reason I consider it is because I would love for my mood to be improved on a more consistent basis. The mood improvement and/or relaxation response does not always last that long after exercise or meditative practice.

I suppose that my questions are these:

1) If exercise and diet have not improved glucose and testosterone levels, I am thin, and my ovaries keep getting bigger and bigger what am I doing wrong?

2) It seems to me that taking metformin would target a more deeply underlying problem than birth control would. Is metforming a better or safer option for me than birth control? Could it jump start a metabolic change that could make me feel better at least for a time until pursuing these other methods for a longer period have gotten this under control and, if so, can one be safely weened off of it? Are there long lasting repercussions of using metformin?

3) Do you think its likely that the other ovary won't last much longer than this one?

4) Are you aware of other cases of PCOS in which the partially solid, partially cystic lesion is primarily inside rather than on the ovary (with the regular ovarian tissue stretched around the cysts rather than the cysts being on the surface of the ovary)?



Re: Dr. Stoll--Treatment Options for PCOS

Posted by
zarin [188.8] on July 27, 2004 at 00:49:52:

In Reply to: Dr. Stoll--Treatment Options for PCOS posted by P [15.105] on July 27, 2004 at 00:29:44:

i would like to make a suggestion. do not worry about your weight, just listen to your body and feed it what it wants, not what other people say is good for you. I too am 5'7" and have always been active. When I was your age I too had great difficulty maintaining my weight and was always walking around looking like a broomstick. It's not a bad thing. I used to weigh( on lucky days) 110lbs. Now at the age of 51 I am a muscular 154lbs and remain in good shape. Just keep up the exercise, but dont over do it, and eat right.



Re: Dr. Stoll--Treatment Options for PCOS

Posted by c. elizabeth [117.74] on July 27, 2004 at 02:54:48:

In Reply to: Dr. Stoll--Treatment Options for PCOS posted by P [15.105] on July 27, 2004 at 00:29:44:

I have been on metformin for what my doctor says was insulin resistance.. it made me sooooooo sick!!! much worse that what i already was.. if i were you i would just try an continue what you are doing as best as you can, and maybe add in evening primrose oil. it has helped my moods tremedously, and is very safe/ gentle



Re: Dr. Stoll--Treatment Options for PCOS

Posted by P [6.105] on July 27, 2004 at 09:09:05:

In Reply to: Re: Dr. Stoll--Treatment Options for PCOS posted by c. elizabeth [117.74] on July 27, 2004 at 02:54:48:

My concern is that doing what I have been doing has actually not stopped the ovary from growing very very large and now it sounds like I am probably going to lose it. Thus, it seems like what I have been doing hasn't been working so I don't want to lose the other one, because I am only 24 years old. I have to do something more to stop the disease.

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Re: Dr. Stoll--Treatment Options for PCOS

Posted by P [6.105] on July 27, 2004 at 09:13:21:

In Reply to: Re: Dr. Stoll--Treatment Options for PCOS posted by zarin [188.8] on July 27, 2004 at 00:49:52:

It's not that I am concerned about my weight in and of itself. It is that I was already underweight and have PCOS, thus, the typical lifestyle changes that should resolve the condition were already instituted before I got the condition. Now, I am going to lose my ovary at only 24 years of age and if all the natural remedies don't work to stop the progression of monstrously sized cysts in my ovary, then I could conceivably lose the other ovary next year. I need to do something RIGHT NOW to stop the disease in its tracks.

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Re: Dr. Stoll--Treatment Options for PCOS Archive. (reference)

Posted by Walt Stoll [9.8] on July 27, 2004 at 15:19:25:

In Reply to: Dr. Stoll--Treatment Options for PCOS posted by P [15.105] on July 27, 2004 at 00:29:44:

P.

The solution to your problem is discussed in "The Clinician of the Month" section of the February, 2004 world research summary I get every month. Dr Warshowsky routinely resolves exactly what you have without surgery. He is a board certified OB-Gyn who is internationally known.

Call Functional Medicine Update at (800) 843-9660 and tell them you want a copy of the February issue and the references.

Let us know what you learn and how you do.

Walt

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dr. stoll

Posted by c. elizabeth [117.74] on July 27, 2004 at 23:39:13:

In Reply to: Dr. Stoll--Treatment Options for PCOS posted by P [15.105] on July 27, 2004 at 00:29:44:

The article that you are mentioning, does it discuss treatment options other than going on insulin sensitizers/birth control pills/ or anti androgens? this seems to be the mainstream treatment, but i was curious as to if this doctor is on to something different. thanks so much!



Re: dr. stoll

Posted by P [6.105] on July 28, 2004 at 13:07:39:

In Reply to: dr. stoll posted by c. elizabeth [117.74] on July 27, 2004 at 23:39:13:

My understanding is that the anti-androgens and birth control are not necessary. The goal is only to get your cells sensitized to insulin again whether through exercise and a no refined carb diet (which doesn't work for me) or the use of something like metformin.

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