Restless Legs historical posts February 1998

Restless Legs Syndrome

Posted by Vicki on February 18, 1998 at 12:59:07:

Do any of you folks out there suffer from restless legs? I have a theory that the condition is somehow related to LGS. I'd like to hear your thoughts.
Vicki


Re: Restless Legs Syndrome

Posted by Ron on February 18, 1998 at 20:32:35:

In Reply to: Restless Legs Syndrome posted by Vicki on February 18, 1998 at 12:59:07:

What exactly is "Restless Leg Syndrome"? I've heard about it a dozen times in two weeks.

Ron


Re: Restless Legs Syndrome

Posted by Kyra Kitts on February 18, 1998 at 21:15:38:

In Reply to: Re: Restless Legs Syndrome posted by Ron on February 18, 1998 at 20:32:35:


Dear Vicki and Ron,

Per a current medical dictionary, restless legs syndrome is defined as "an irritating feeling of uneasiness, tiredness, and itching deep in the muscles of the leg. This occurs often in the lower part of the leg. There may also be twitching and sometimes pain. The only relief is walking or moving the legs. The condition may be linked to many nervous system disorders." Been there too. For me, it used to come on only at night as i was trying to fall asleep. The only thing that worked for me for total relief, and i speak only from personal experimentation, was to take 5 to 8 400 mcg tabs of folic acid at night if i felt the "twitches" coming on. All symptoms would disappear within half an hour. i really doubt that i was absorbing all that folic acid, so i'd suspect that LGS can well be an underlying cause. Also, the only run-ins i've had with restless legs syndrome have occurred when i've been on strong systemic medications. i have a sense that strong meds of many kinds may deplete folic acid and possibly intracellular magnesium levels; hence, the restless leg thing. i know that the FDA says 800 mcg folic acid daily max. In fact i've read that much higher doses are perfectly safe, since folic acid is a water soluble vitamin. Again, this is only my expereince, but hope it helps.

Kyra



Re: Restless Legs Syndrome

Posted by Walt Stoll on February 19, 1998 at 06:14:59:

In Reply to: Restless Legs Syndrome posted by Vicki on February 18, 1998 at 12:59:07:

Dear Vicki,

You are right! However, it is even more directly related to some of the causes AND effects of LGS.

Bracing is the most closely linked mechanism to RLS. Of course, bracing is the most common cause of LGS.

Low intracellular magnesium (for that person) is the second most common associated cause. Of course, with LGS, magnesium is poorly absorbed AND one of the most common symptoms of low intracellular magnesium is muscle tension (bracing).

Finally, leakage fo peptides through the LGS is a very common cause of the immunological inflammation present in many cases of fibromyositis (a relative of RLS).

If one looks hard enough, one begins to see that everything is related in one way of another.

Walt



Re: Restless Legs Syndrome

Posted by Vicki on February 19, 1998 at 13:27:06:

In Reply to: Re: Restless Legs Syndrome posted by Ron on February 18, 1998 at 20:32:35:

Ron,
Have you ever been around a person who shakes one of his or her legs incessantly? That's one variety of restless leg. It seems to vary somewhat from one person to another. My husband experiences it primarily when he begins to relax in bed before sleeping. It's curious because he can lie in bed reading for an hour or more without shaking, but the moment he turns out the light and tries to sleep, he has an irresistible need to move his right leg. Sometimes it vibrates so violently that the whole bed shakes. Although he sometimes feels pain in his lower back, it's not necessarily associated with pain per se. Needless to say, it prevents restful sleep (on the part of both the person affected and anyone else trying to sleep in the same bed). If you go to Dr Andrew Weil's website, you will find a description of the condition as well as some of the treatments people use for it. From our experience, they don't work. Drugs can successfully mask the problem, but they don't get to the root cause.
Vicki



Re: Restless Legs Syndrome

Posted by Vicki on February 19, 1998 at 13:37:47:

In Reply to: Re: Restless Legs Syndrome posted by Kyra Kitts on February 18, 1998 at 21:15:38:

Sounds like you've been there, Kyra. My husband does move his lower leg (a lot); and he also flexes muscles in his buttock and lower back that I didn't even know I had and CANNOT move voluntarily. He was diagnosed by the Carl Pfeiffer Center a couple of years ago as a "malabsorber." The Center didn't find he was deficient in folic acid, but maybe they didn't check for that. Anyway, he takes something in excess of 5000 mcg of folic acid and 500 mg of magnesium per day--alas, to no avail. The only thing that ever really seemed to help was when he took caprylic acid, biotin, and Pau d'Arco. He didn't shake for a whole month. Thanks for writing.
Vicki



1998: Feb

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