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It was Friday may 30th 2003- I all the sudden felt a bit sore in the tailbone when I sat down. Wasnt bad at all. Was swollen maybe a tiny little tiny bit. I read online about the Pilonidal cyst and thought better safe than sorry and went to see a Doctor. He said I have a Pilonidal cyst. I don't have the boil,no draning,fever,those little holes or really,any of the stuff I have read about this. While the stuff I have read KINDA a little bit sounds something like what I have,not really.I got put on clarithromycin 500MG every 12 hours. After 6 doses,I'm 95% better! I'm worried this might come back. Any way a Doctor can tell if it will?? Im a 20 year old female if that helps any. My "pain" had only been about 16 hours old when I went to see the Doctor. Maybe even about 12 hours since I noticed the soreness! Does that make my risk of surgrey or it comeing back smaller?? If I don't have the surgrey,what will happen?
I don't have a problem with ingrown hair...I do sit quite a bit on the PC though. I have a chair that rubs me a bit in the lower back..and I have had no injury to the back or tailbone..that's about all I know to tell you.
Thank you!! Sorry for any typos or miss spelled words there.
In Reply to: I don't no. posted by Kia on June 02, 2003 at 00:37:43:
I may also add I asked my DR if I'd need surgrey. He said he doubts it...I've seen him since I was 5 and have trust in him...well...quite a bit! Can he be right??? Im so afraid. I don't eat or anything. drink milk to take my meds and that's it. I can't do anything. My parents said it' slike I'm in a commoa. Feels that way too.
Thank you again for reading.
In Reply to: I don't no. posted by Kia on June 02, 2003 at 00:37:43:
Sometimes the little holes are further down than you may think. I went to at least 20 doctors that told me it would just go away because I didn't have the holes. Finally I went to one doctor and he found them. Just way far down than the usual place. Maybe you should go see another doctor and ask him to look better. I hope you don't have one, but that might help you to determine that you do :) Good luck!
In Reply to: Re: I don't no. posted by Hope on June 02, 2003 at 01:39:26:
Thank you Hope. How do they find the holes??? I didn't know if they could or not. Did you have surgrey? Or,have you had it and it not come back yet? If you don't mind,can you tell me about yours?
Thanks!
In Reply to: Re: I don't no. posted by Kia on June 02, 2003 at 04:59:33:
Well I got my cyst when I was 17 I believe. The first time I had it lanced was with no numbing agent or anything. It was very horrible. The Doctor said, "It is not God's way to use medicine to help pain". Needless to say, I never went back to that crazy man. After a year, I had just moved to Virginia where my husband was stationed. At that time it came back. I spent the next 2 years in the Er every single month. Sometimes I was lucky to only have to go every other month. Over the years I did a lot or research. I learned about the surgery that is available. I decided to deal with it. I am now able to use epsom salt and keep the infection out. Every year to a year and a half it comes back and I use drawout salve to home lance it myself. It isn't something I like to live with, but I would rather not go through the surgery. I would rather use the drawout salve than have it lanced. To me it is heaven compared to the hell lancings are. You just have to weigh your options and decide what is best for you. For the location of the holes on me, they are on the inside about 4 inches north of the top of my leg. That was the best way to tell you without being rude ;) I hope everything goes well.
In Reply to: Re: I don't no. posted by Kia on June 02, 2003 at 00:45:30:
Hello Kia...Fancy seeing you here...
RELAX SISTER....I have told you before...the ONLY way to get rid of it is to have surgery to have it removed...Surgery is the easy part...you go to sleep and you wake up ...request MAC anestesia...I tought you were leaving your parents out of it ant taking control of your life...you are 20 years old...You can do this without all their negative comment....now calm down and go eat a cheeseburger ...your stress will make your cyst worse cz your immune system will be weak....AND Eat! Malnutrition will not help either...if you really want to feel better then you need to start taking better care of yourself...Eat and stop stressing!!! NO surgery is not like a coma..it is like an afternoon nap on a hammock in the back yard if you have MAC anestesia.
In Reply to: Re: I don't no. posted by stephe on June 02, 2003 at 15:17:24:
Well do you know the size of hers? I had a friend who had a 3x3x4 inch wound. How can that be easy? How can that not hurt when it is left open? Maybe you were a lucky one. I hope so. I wish to all it was like a nap. Let her do what she feels she has to do. It is a very scary thing to have to go through. People are different :)
In Reply to: Re: I don't no. posted by Hope on June 02, 2003 at 13:42:58:
Thanks again Hope! I don't want surgrey. Mine infection never reached the part to be lanced. The Doctor told me I got there so early that there wasn't hardly an infection! I'm pretty much better. If you don't mind,can you give me the name of the drawout stuff? And,how do you use the salts? You have been very helpful! Thank you! And, I hope-Hope,that your doesn't bother you again!
In Reply to: Re: I don't no. posted by Hope on June 02, 2003 at 16:23:12:
I got sweaty around my well,back about a week ago. I had never got that sweaty before at that area. I got to thinking it might have caused this? I wonder if something like sweat did cause it to flare up if you don't sweat like that again,why should it not come back? I find all this odd really. In grown hairs.....stray hairs...little holes....What the??? I don't think I'll ever fully understand! Say, do you need meds to get yours better Hope or do they go away on there own?
In Reply to: Re: I don't no. posted by Kia on June 02, 2003 at 16:54:57:
hehe. You can get the ointment at a drug store such as Eckerd's. It is called "Drawout Salve". It is black and smells like tar. It soothes it wonderfully. As soon as it touches me I feel so much better. For the compresses I take just a hand towel, add about 1/2 cup of Epsom Salt, and then rinse it under very very hot tap water. I then sit on that for about 15 minutes. I do that about 5 times a day, sometimes more and within a day or 2 the infection is gone. If for some reason it doesn't work, I just use the salve and I am better within 2 days that way. It will drawout the infection and come to a head and then release. It is gross, but hey, it is better then being cut on! Don't ever depend on the Epsom Salt baths. They NEVER worked for me. They made it feel better for maybe an hour, but never made the infection go away. I really hope all of this helps you. Take care :)
In Reply to: Re: I don't no. posted by Kia on June 02, 2003 at 16:58:59:
I use to take tons and tons of antibiotics. I think the docs were trying to get me immune to antibiotics :( Anyway, I never take them now. I just do the salt and drawout salve. Yes, I have noticed that higher levels of activity make mine come back. When I shower, I blow dry the area very well. You probably had the cyst at birth and then something bothered it. I was a tennis player in high school and I fell really hard on my tailbone. About 2 weeks later I found out I had the cyst. You can get anything in the holes. Even when showering. A hair from your head can fall down there. Just make sure you wash and dry very well and check after your shower to make sure there is no stray hairs going that way. SOmetimes I swear the holes are sucking hair from everywhere! I have really long hair and I think those mean holes try to steal it! Anyway, keep the pressure off, wash very well, and always keep it dry. I hope it works!
In Reply to: Re: I don't no. posted by Hope on June 02, 2003 at 18:40:08:
Well,I find this odd. Your name is Hope. And by golly if you didn't give me some hope! :-) Mine has never got to the boil phase. I guess it would have with out meds though! Then again,maybe not.I have long hair too! It gets pulled out sometimes by my pants waist band. Tickles a bit and I get the hair out.I think maybe the sweat did something to me. Matter in fact I feel sure of it.I had something happen to me today that snapped me out of my state of shock. I ate,I'm getting ready to take a bath and I slept! It's a bit of a long story.....but to sum it up it was a blue bird! I think it was a sing. I cried and cried and last night I htough Id have a heart attack! I think I'll be OK now. Thanks for all the info! I'll be going to get some of that stuff now. Thanks so much for telling me! I thnik someday they will be a plastic surgrey type thing to fix these holes! Heck, one of us might even invent it! Woo hoo!
In Reply to: Re: I don't no. posted by Kia on June 02, 2003 at 20:31:44:
OHHH. I forgot to ask this. Even if it was a mild infection,if I had the holes,wouldn't there had been SOME draning? Even if it was just a little bit? I had none at all. Looks like I would have.
In Reply to: Re: I don't no. posted by Kia on June 02, 2003 at 21:51:58:
I have never and I mean never had any type of drainage. Only of course when it is lanced or it pops on its own. This is where I became very confused as well. Mine is just a closed little pocket that turns red when it is infected. I am so glad I could help you. :)
In Reply to: Re: I don't no. posted by Hope on June 02, 2003 at 22:46:57:
Hum.Odd. This whole deal is a bit baffeling!
I was wondering if you might have AOL or MSN or ICQ messengers? Id like to time to time keep in touch with you ONLY IF you REALLY don't mind. I'll even give you one of my e-mail address here if you'd like to e-mail like your ICQ number or something and don't want others seeing. See,your the first one I've found that sounds like me!! I like knowing someone around the net has the same kind of cyst trouble I seem to have.And you seem to think surgrey isn't right for you too. I thank you again for your help!!
In Reply to: Re: I don't no. posted by stephe on June 02, 2003 at 15:17:24:
I ate today for the first time in almost 2 days. Slept some. I feel so much better now. It's a rather long story. I wouldn't want to offend anyone that may not like to read about things such as signs and heaven and such. Some don't like it.But that's a summery of what happend to me. I didn't have a cheesburger. I wish I did have one right now though......uuummmm. :-) I have a feeling I'll be eating like I use to again soon (like a horse!!)
In Reply to: Re: I don't no. posted by Kia on June 02, 2003 at 23:05:09:
np. Just leave your email or whatever for me to grab. I am in the process of moving for college, so I will be losing my cable internet :( Back to 56k I go :( Just post it if you want to and I will write it down and when I get settled next weekend I will respond to you with mine. I am once again glad I could help. I just want you to know that if none of what I say works, you have to make the decision to have the surgery not me. I would feel so badly if you had flare-ups all of the times and nothing worked and then you took my advice and just suffered :( Hope to talk to you soon.
In Reply to: I don't no. posted by Kia on June 02, 2003 at 00:37:43:
Kia,
The first thing for you to do is to read every word in the pilonidal archives and let us know what you learned.
Walt
In Reply to: Re: I don't no. posted by Walt Stoll on June 03, 2003 at 06:39:18:
Well,I have learned it will probably come back and I'll have to have surgrey.Which I won't. No one really gets out of these things. They always come back. You know,life is ruined,go on as best as you can type things.
In Reply to: Re: I don't no. posted by Hope on June 03, 2003 at 05:08:25:
No! I take your advice that's just me! Not you. Even if I haven't found your advice I still wouldn't have had surgrey! So no biggie! My email is
sumone1983@hotmail.com
yeah thats sumone. I couldn't think of a cool email dang it :) Id love hearing from you!! You gave me hope! As your names states! ;)
In Reply to: Re: I don't no. posted by Walt Stoll on June 03, 2003 at 06:39:18:
I also have learned that I haven't heard one,not one story about it never coming back. And,that the open wound surgrey is a pain. I mean PAIN. Like the worse pain ever and healing is so slow and painful! Learned all the bad things I guess didn't I? I can't stand to read any more about it. I get sick to my stomach thinking about reading stories and things. :/
In Reply to: Re: I don't no. posted by Kia on June 03, 2003 at 17:35:32:
Dang it I'm very sorry to keep replying to myself! I have the mind of a dead donkey and when I go to typing I forget the questions and things I wanted to type! Please forgive. When I say I haven't read only story of it not coming back,I mean for like years instead or months. I haven't (yet) seen someone say "It was 1979 I had a flare up,that was the first and last. It's 2003 and I'm fine" That's what worries me so. I'm so messed up with everything. I have so many questions. Well,maybe not tons but a few.
1. How do you find out if you have the holes?
2. Can you stop it from coming a boil by useing the hot compress? I;m thinking with out meds,it will get that big no matter what.
3.How can you REALLY prevent flare ups? Use the black stuff every day? Hot compress every day? Soap?
4.Will sitting in a chair or having it rubbed alot increas the chance of it returning?
5.This time I didn't have the boil or anything. I went to the DR before it got bad. Next time,do I let it do what it wants and try the black stuff and compresses? Meds arn't always the best thing?
That's really all I want to know. I know people can live with them. And surgrey isn't all it's cracked up to be.Man. My mind is realing from all this stuff.
I'm lost! I'll admit, I'm dense....some times things have to be rewored for then to get through my thick head! Please forgive my....denseness...or what ever you want to call it.
Thanks.
In Reply to: Re: I don't no. posted by Walt Stoll on June 03, 2003 at 06:39:18:
Ok DR.Stoll. I got out of my mood and re-read the things I read before with a new additude. I guess what I have REALLY learned is there seem to be quite a few people on your board who have this cyst and live a normal life WITH out surgrey. And,maybe it wasn't as bad as I thought. I think maybe that's what you wanted me to see? Am I right? It's strange how a change of additude can make you see things better. Maybe I was in a bad mood and still in a bit of shock. Who knows. Id like to know though if that is what you meant by reading it. I;ve read alot of the stuff more than 4 times already! But then I got to thinking that maybe I should'nt be lookin for people who never had a flare up and look at the people who control it. My Dad said he remembers when I was little (sround 6-7 years old) I was first learning to roller skate. I feel a bunch and he said one time I said my rump hurt and he thought my tailbone was brusied.I use to have a bit of trouble riding bike when smaller but thought nothing of it till today. In your own opinion do you think trama around or to the tailbone can cause this? I'd like to here what you think about the roller skating. I'll still be afriad of flare ups. But now I see that doesn't mean it will happen every single day and you can treat and more than live with it! I;m glad you bought up reading the archives. Made me go back and read again after to shcok wore off things looked much better! THANK YOU! Thanks to you and every body else here!!
In Reply to: Re: I don't no. posted by Kia on June 03, 2003 at 18:24:22:
Kia,
I really wish you would take the time to read the archives. 50% of those who have surgery never have another problem. The risk is that the surgery of the other 50% will create more problems that there were prior to surgery.
"Holes" make the condition easier to live with since the nidi can drain.
The archives is filled with suggestions for making living with this a lot easier.
Take the time! You are going to have this for a long time unless you are lucky with surgery.
Walt
In Reply to: Re: I don't no./read them again. posted by Kia on June 03, 2003 at 22:04:19:
Congratulations, Kia.
That is what I wanted you to see.
The trauma cannot cause it but absolutely can cause an existing genetic problem to flare up.
Walt
In Reply to: Re: I don't no./read them again. posted by Walt Stoll on June 04, 2003 at 09:42:09:
Ah...smart Doctor you are! I feel better now since I have seen so many people who didn't have the surgrey. Thanks for making me go back and re-read those. I was looking for the wrong thing I guess. And as far as what you said "The trauma cannot cause it but absolutely can cause an existing genetic problem to flare up." I bought a new desk chair back in last summer that rubbed my lower back(where the cyst boil pops out) like crazy. I didn't pay any never mind till my Dad told me. And sure enough,all my waight was on my tailbone and the part of my back where the cyst pops out! We all tind to think this may have caused my flare up. needless to say I'm getting a new chair soon! Even if it didn't cause the flare up,it can't be at all good on my back sitting in that silly thing!
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