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Uterine Mass (pelvic congestion syndrome)

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Uterine Mass

Posted by
Paige on October 23, 2003 at 17:14:53:

Dear Dr. Stoll,

My health related question has to do with a mass in my uterus. I experience abdominal tenderness from time to time sometimes exacerbated by certain cardio machines. During intercourse in certain positions I feel as though my partner is striking against a mass in my uterus or something that is protruding into my uterus somehow. Also when during intercourse he strikes this mysterious mass I usually end up with extreme back pain and slight bleeding for a week or so, but never otherwise. I have had multiple ultrasounds that have supposedly revealed no pertinent findings. I believe that the position during intercourse versus one's position during a pelvic exam is part of the problem because my partner has actually been capable of feeling a definitely existing mass. I think that the inability of my doctors to find anything is contributing to a view of me as a bit of a hypochondriac, which may have some truth, but doesn't change the fact that I definitely have some sort of mass or protrusion in my uterus. Any ideas? I am between obgyn's.

Paige



Re: Uterine Mass

Posted by Kelly on October 23, 2003 at 17:23:06:

In Reply to: Uterine Mass posted by Paige on October 23, 2003 at 17:14:53:

Hi Paige,

Has any of your gyn's suggested a sonogram? If not, I would demand one!



Re: Uterine Mass

Posted by Paige on October 23, 2003 at 20:41:00:

In Reply to: Re: Uterine Mass posted by Kelly on October 23, 2003 at 17:23:06:

I thought I had mentioned it but I have had two batteries of pelvic, abdominal and endovaginal(transvaginal) ultrasounds. The thing is that they say that there is nothing out of the ordinary on the films, but I am afraid that these technologies just aren't detailed enough or the location of the mass is buried so deeply (ie. it is only palpable in certain positions) that the ultrasound (sonogram) does not resonate deeply enough. I am also afraid (as you might have noticed I have posted information about varicosities in leg veins) that their may be some vascular problem in my trunk that is getting worse in my legs. I don't really know if I am posting responses correctly. I should look that up. Thanks
Paige



Re: Uterine Mass

Posted by Walt Stoll on October 24, 2003 at 07:36:03:

In Reply to: Uterine Mass posted by Paige on October 23, 2003 at 17:14:53:

Hi, Paige.

Something this obvious should be easy to find. Wish I was there. I would suggest a second opinion--which, with your new gyn, you will be getting.

Walt

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Re: Uterine Mass

Posted by Kelly on October 24, 2003 at 11:53:34:

In Reply to: Re: Uterine Mass posted by Paige on October 23, 2003 at 20:41:00:

I can see your concern. Maybe you should get a pelvic MRI. I think that is the best diagnostic tool available right now in locating soft tissue masses.

How does your boyfriend feel the mass? With his hands or with his penis when he is inside you? I don't mean to be graphic, but I can't have sex in the missionary position because of the same problem you have. But, I don't have a mass of any kind. I do have a very small fibroid that hasn't changed in years. They found that with sonogram. And, I do have a uterus that is not in the correct position, although no gyn ever told me that. It took an osteopath to figure it out. I always wondered why it take the gyn 5 minutes to get a speculum in place and lock it in. They struggle with that everytime I go, it's so frustrating and it hurts like hell. I can't remember what they called it.

Perhaps you have a uterus that is not situation right and your boyfriend is hitting your cervix during intercourse?

Also, have you ever had intercourse while you are on your period? If so, did that make a difference in the feeling of the mass? For me, I get great relief with intercourse during my period, but my husband refuses to do it, and I don't blame him. I only got it once that way because I lied that I was on my period. lol

If ultrasounds don't find anything, it could be your cervix that is bothering you.

Check these links:

http://www.webwomb.com/cervical_position_frame_page.htm




Re: Uterine Mass

Posted by Paige on October 24, 2003 at 12:57:09:

In Reply to: Re: Uterine Mass posted by Kelly on October 24, 2003 at 11:53:34:

I am really not sure that its my cervix, but I will look into the info you mention.
There may be something mishapen about my uterus. I don't know if its a cause or a symptom though. At times it seems like insertion of a tampon or penetration during intercourse goes to the left (which is the side in question. I don't know if this is true because my uterus simply developed somewhat mishapen or if it is due to some sort of change or development of a mass that caused the uterus to become mishapen enough to cause something like this to happen in the first place.

My boyfriend has felt it both digitally and through genital to genital intercourse.

I have been reading about bracing, which is definitely a problem of mine because I become stressed very easily. I have this mass of unknown etiology. I have varicose veings beginning in my legs. Now I am beginning to wonder if there are any ideas of whether or not I have a situation similar to one about which I read in the bracing archives. A woman that suffered from bracing has reported that she had varicose veins then had a hysterectomy and found out that she has varicose veins in her uterus. But that is just a hypothesis that I am developing from reading things on this site.


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Re: Uterine Mass

Posted by Walt Stoll on October 25, 2003 at 06:55:02:

In Reply to: Uterine Mass posted by Paige on October 23, 2003 at 17:14:53:

Hi, Paige.

Are you orgasmic?

Walt



Re: Uterine Mass

Posted by Paige on October 25, 2003 at 12:10:51:

In Reply to: Re: Uterine Mass posted by Walt Stoll on October 25, 2003 at 06:55:02:

I do not experience orgasm through conventional intercourse.

It seems to me that as I recall the discomfort is not there immediately after intercourse but within a few hours or the next morning the discomfort exists. The discomfort exists in the LLQ about at inch and half to the right of the protrusion of the pelvic bone (Or about an inch and a half lower than the navel and two inches to the left of midline.) However, this is not to say that it is superficial it is deeper than how I am describing it. Also, there is an ache and tenderness in the back about where the kidney is said to lie.

Heating pads have been capable of minimizing the discomfort so long as the heating pad is applied. The discomfort usually returns within a short while of discontinuing applied heat.

I have found that an hour or so of Ashtanga yoga seems to eliminate the pain for most of the day.

Massage only helps so long as it is being employed. However, at certain points in the back where the kidney is said to be, pressure from massage causes not so much pain but tenderness.

My boyfriend is of course not a doctor but he seems to think that this mass is about the size of a ping pong ball and that when felt digitally there seems to be an indentation in the middle.

The last time I had an ultrasound the technician seemed to be in a hurry or something because the procedures were only a fraction of the duration of the initial ultrasounds and the depth was not as great as the first ultrasounds.

What do we think?



Re: Uterine Mass

Posted by Paige on October 25, 2003 at 12:40:06:

In Reply to: Re: Uterine Mass posted by Paige on October 25, 2003 at 12:10:51:

By the way, I don't know if it is helpful to know. I understand that a PAP test doesn't tell anything about abnormal cells in the uterine. Anyhow though, my last PAP indicated that there was no cervical cancer detected and I am seemingly negative for all HPV's and gonorrhea.

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Re: Uterine Mass

Posted by Paige on October 25, 2003 at 12:40:47:

In Reply to: Re: Uterine Mass posted by Paige on October 25, 2003 at 12:10:51:

By the way, I don't know if it is helpful to know. I understand that a PAP test doesn't tell anything about abnormal cells in the uterus. Anyhow though, my last PAP indicated that there was no cervical cancer detected and I am seemingly negative for all HPV's and gonorrhea.

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Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome)

Posted by Walt Stoll on October 26, 2003 at 08:07:46:

In Reply to: Re: Uterine Mass posted by Paige on October 25, 2003 at 12:10:51:

Thanks,Paige.

This is "pelvic congestion syndrome" and is caused by 2 things: #1. Not having orgasm after sexual excitement and, #2. Levator ani bracing (the same thing that causes IC, hemorrhoids and prostatosis).

Both you and your partner need to become students of the Kama Sutra and assure that you never have excitement without ending up with an orgasm. To get rid of the symptoms you need to have at least one orgasm a day for a couple of weeks.

You also need to stop bracing the levator ani (See the IC archives and the bracing archives for options.)

Let us know what you learn and how you do.

Walt



Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome)

Posted by 2Shy on October 27, 2003 at 10:57:05:

In Reply to: Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome) posted by Walt Stoll on October 26, 2003 at 08:07:46:

Is it abnormal to need about 5-6 orgasms before pressure has been released? It is very embarassing to need this, sometimes even 10 and I make a mess all over the place. I am sorry to be graphic, but I have never heard of another woman talk about this and my partner is not always understanding. Is this also from bracing?



Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome)

Posted by Walt Stoll on October 28, 2003 at 06:45:00:

In Reply to: Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome) posted by 2Shy on October 27, 2003 at 10:57:05:

Thanks, 2Shy.

5-6 orgasms at the same sitting or over 5-6 days?

This is not related to bracing but to trapping of blood in the pelvis. Of course pelvic bracing can aggravate it.

Walt



Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome)

Posted by 2Shy on October 28, 2003 at 11:23:13:

In Reply to: Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome) posted by Walt Stoll on October 28, 2003 at 06:45:00:

5-10 at the same sitting. Once I get started, it is very hard for me to stop. One is definitely not enough because then I feel extremely congested - kind of like I have to urinate, but can't. I would rather not have any than just one. It's awful because then tons of fluid keeps coming out every time I orgasm. It is very embarassing and tiring to my partner.

Now I am wondering if I have some sort of blockage somewhere because my right hip aches quite frequently, sometimes radiating down to my knee. It is the inner groin area, but deep in my hip. And the pain radiates inside of my thigh down to my knee.

I told the doctor about the hip pain, but he said not to worry about it. Only if it was consistent would I have to worry. The pain is intermittent and will only last about 3 or 4 hours. I only get it about 3 times a month on average.



Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome)

Posted by Walt Stoll on October 29, 2003 at 08:09:56:

In Reply to: Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome) posted by 2Shy on October 28, 2003 at 11:23:13:

Thanks, 2Shy.

I surely wish I could examine you!

Sounds to me like you are having something other than an orgasm.

Have you seen a female sexual dysfunction physician?

Let us know what you learn.

Walt



Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome)

Posted by 2Shy on October 29, 2003 at 11:12:25:

In Reply to: Re: Uterine Mass? Archive in sex. (Pelvic Congestion Syndrome) posted by Walt Stoll on October 29, 2003 at 08:09:56:

No, I haven't done that. I really want to steer clean of doctors. From experience, all they will do is try to prescribe a pill. My gyn wanted me to take a cat scan. I asked for an MRI instead and he said a cat scan would be better, but I refuse to be irradiated. If I can't get an MRI, then I won't bother. I'll just try to deal with it with SR since I have just started doing that yesterday.

Thanks.

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