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diagnosed tmj problems and conversion disorder

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diagnosed tmj problems and conversion disorder

Posted by
vera longee on April 25, 2001 at 19:46:45:

Hello:

Two years ago I had my right wisdom tooth extracted, which took 2 1/2 hours.

Since then I've had tmj problems, swollen tongue and throat that became a inability to speak, part of right carotid artery was pulsing and tender.

I had MRI done on my tmjs, and had to be scheduled for ultrasound for my right carotid artery because when my jaws were forced open during the tmj MRI the blood flow became irregular in the right carotid artery. Which was found to be normal during the ultrasound.

I was told that nothing was found wrong with my tmjs or anything else that would affect my speech, so I was diagnosed with conversion disorder.

Two years have passed and I called and asked for the results of the tests done and had never recieved. I recieved them and was surprised with the following results.

"MRI of the temporomandibular joints demonstrates anterior subluxation of the disk in the right tmj in the closed-mouth position. The position of the disk does not change relative to the mandibular condyle with mouth opening. However, there is little ifany translation of the mandibular condyle with mouth opening, indicating marked decrease range of motion. Due to the restricted translation, it is not possible to discern whether there is recapture of the disk with mouth opening. On the left, the disk is slightly deformed with low signal intensity changes which could be due to fibrosis or calcification. The disk is situated slightly more superior and posterior to the head of the condyle. The position of the disk does not change with mouth opening, but there is marked decrease in the range of motion, with little if any anterior translation of the condyle. The atypical position of the disk and lack of change in position suggest the possibility of scarring or fibrosis about the disk of the left tmj.

Before this extraction I had no problems with my jaws or speech. Is this conversion disorder? I've read the BB and found that this disorder is not mentioned with the tmj problems posted there. I finally went in and had a mouth guard made so I would quit grinding my teeth. I was told that once I wanted all this problems to go away they would. It was my mind that produced all of my symptoms and nothing else, so that's what I believed for a year now. Any kind of advice would be appreciated. Thank you



Re: diagnosed tmj problems and conversion disorder

Posted by
Rona on April 26, 2001 at 18:28:27:

In Reply to: diagnosed tmj problems and conversion disorder posted by vera longee on April 25, 2001 at 19:46:45:

I am a tmj sufferer and it is NOT IN THE MIND! tmj is a real problem and needs a very specialized dr and a very compassionate person. Tell me where you are and maybe I can help you find someone. I even know a very fine specialist who will speak to you on the internet and even go over your xray results. Be careful who you trust in this field.
R.



Re: diagnosed tmj problems and conversion disorder

Posted by
Vera L on April 26, 2001 at 21:17:29:

In Reply to: Re: diagnosed tmj problems and conversion disorder posted by Rona on April 26, 2001 at 18:28:27:

Rona:

Thank you for your reply to my message. Yes I would like you to tell me the name of your specialist. I was diagnosed by supposedly the best specialists in the U.S. and because of this I can not get anyone else to help me with my tmj problem. I live in the northeast corner of Montana on the Fort Peck Indian Reservation.



Re: diagnosed tmj problems and conversion disorder

Posted by
Rona on April 26, 2001 at 23:16:47:

In Reply to: Re: diagnosed tmj problems and conversion disorder posted by Vera L on April 26, 2001 at 21:17:29:

You must speak to a Dr. Joseph Schames. Quite approachable. His email and phone number are on this site. He will advise you from the results of your tests. He will speak to you or answer your email questions. He is a very kind and compationate human being. If he can't direct you, please get back to me and I will give you some more ideas. I've been through so much and I would love to help someone else. There are some good people out there, but you have to be so careful. Please let me know.
R.

http://craniofacialclinic.dentistryonline.com/

CVCV

Follow Ups:


Re: diagnosed tmj problems and conversion disorder

Posted by Walt Stoll on April 27, 2001 at 12:36:48:

In Reply to: diagnosed tmj problems and conversion disorder posted by vera longee on April 25, 2001 at 19:46:45:

Hi, Vera.

This is "stupid doctor disorder". You desperately need a better doc and some of what has happened to you is now irreversable. Can you imagine why your doc would have told you this study was normal if he knew anything about it at all?

Walt



Re: diagnosed tmj problems and conversion disorder

Posted by
vera longee on April 27, 2001 at 20:03:48:

In Reply to: Re: diagnosed tmj problems and conversion disorder posted by Walt Stoll on April 27, 2001 at 12:36:48:

Hi Dr. Stoll:

I appreciate your feedback and now I need to ask a question that seems to be scaring me. What part or parts do you believe are irreversible?



Re: diagnosed tmj problems and conversion disorder

Posted by Walt Stoll on April 29, 2001 at 12:48:03:

In Reply to: Re: diagnosed tmj problems and conversion disorder posted by vera longee on April 27, 2001 at 20:03:48:

Hi, Vera.

Your TMJ diagnosis has been delayed long enough for there to be permanent damage to the cartilege within the joint and likely to the bony surfaces as well. Remember that an MRI will only find damage when it is pretty gross--even though this is the best technology currently available for this. STILL, stopping the bracing will prevent further damage and SOME healing.

If the cartilege is totally gone by the time you stop the bracing, there are plastic replacements that can be inserted surgically. Pretty new technology, though.

Let us know how you do.

Walt

Follow Ups:


Re: diagnosed tmj problems (Archive in TMJ.)

Posted by Walt Stoll on April 29, 2001 at 12:49:14:

In Reply to: Re: diagnosed tmj problems and conversion disorder posted by vera longee on April 27, 2001 at 20:03:48:

Hi, Vera.

Your TMJ diagnosis has been delayed long enough for there to be permanent damage to the cartilege within the joint and likely to the bony surfaces as well. Remember that an MRI will only find damage when it is pretty gross--even though this is the best technology currently available for this. STILL, stopping the bracing will prevent further damage and SOME healing.

If the cartilege is totally gone by the time you stop the bracing, there are plastic replacements that can be inserted surgically. Pretty new technology, though.

Forget about the conversion disorder diagnosis!!!

Let us know how you do.

Walt

Follow Ups:


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