Vertigo Archives

Veritgo

I am writing you hoping you can help me as I have been to many doctors and they only want to give me pills, Well I have had 6 Brain tumors and have 2 more in my head I have von-hipple-lindau, Hope I spelled it right.
I have had Veritgo for abouta year and I can't find anyone to help me, the doctor did send me to a place that was to help me but they made me do things that made me dizzie I was there for help not to make me Dizzer.
Can you help me please tell me what I can do this is not fun
I have no life I can't do anything without being dizzie all the time I am a 49 year old felmale I am a fighter I have batteled all my tumors but this I can't battel it's hell I don't wish this on no one, I hope you can help me as I am so tired of this I want to be able to do like I used to but I can't I stay so dizzie.
Thank you,
Charlotte Cobb

Follow Ups:

• Re: Veritgo billy evans 20:09:59 8/19/02 (2)
  • Re: Veritgo Donna E. 13:54:25 8/20/02 (0)
  • Re: Veritgo Walt Stoll 10:38:55 8/20/02 (0)
• Re: Vertigo (Archive.) Walt Stoll 08:42:15 7/11/02 (0)
• Re: Veritgo Happygal 12:12:33 7/10/02 (0)

In Reply to: Veritgo posted by Charlotte Cobb on July 10, 2002 at 10:46:18:

Hi Charlotte,

Walt will no doubt give you more complete advice, considering the complexity of your situation.

I just wanted to mention that tight muscles (especially in the neck and jaw) can contribute to or cause vertigo. The tight muscles can pull on the ear mechanisms that regulate balance. I treated a client who had a bad headache with massage -- and her dizziness went away. She was thrilled.

Best wishes,
Happygal (Certified Massage Therapist)

In Reply to: Veritgo posted by Charlotte Cobb on July 10, 2002 at 10:46:18:

Hi, Charlotte.

Bad condition!

Since the cerebellum is the most common part of the brain for these congenitally derived hemangiotamous tumors, and that is where (ultimately) your balance is determined, I am not surprised at your symptoms. What I AM surprised at, though, is that your docs have not been able to identify the present individual tumor causing your difficulty. Perhaps, if they knew how much it was interfering with your quality of life, they would take it more seriously. Radiation has been found to be about as effective as surgery for lesions that are difficult to reach surgically.

You may find that serious wellness would improve your quality of life while even possibly retarding the development of new tumors.

Let us know how you do.

Walt

In Reply to: Veritgo posted by Charlotte Cobb on July 10, 2002 at 10:46:18:

hi,I am a44 year old male,with a family history of von-hippel-lindau syndrom,i have lost a mother,brother,and sister due to the disease.I am now showing several symptons of the disease,the doctors don't take me serious,and are testing me for everything else to no avail.I can barely work any longer and just seem to get worse and worse.If you have any information that could help me,please let me know.thank you

Follow Ups:

• Re: Veritgo Donna E. 13:54:25 8/20/02 (0)
• Re: Veritgo Walt Stoll 10:38:55 8/20/02 (0)

In Reply to: Re: Veritgo posted by billy evans on August 19, 2002 at 20:09:59:

Hi, billy.

With your family history, you need better docs.

Gather as many records of your family, including death certificates, as you can. and find a doc who will listen.

Walkt

In Reply to: Re: Veritgo posted by billy evans on August 19, 2002 at 20:09:59:

Here's a website that might help you w/more info.

• http://www.vhl.org/