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I had a complete hysterectomy on Dec. 22 for huge fibroids and adhesions. I'm 49.
About the middle of February, a couple of weeks after going back to work, I started having these weird "head rushes" when I get up out of my chair. I walk about 20 paces and I feel pressure through my neck and ears--it diminishes my hearing for about 30 seconds--and I feel like my eyes will pop out.
After a few days of this, I noticed my glands in my neck were swollen and it felt like I was wearing a tight turtleneck. My eyelids were swollen, I was exhausted to the point of tears. I went to Wal Mart and checked my blood pressure. It was 142 over 89. After walking around awhile, it went down to 128 over 82.
I went to the doc the next day and the blood pressure was fine. I was given antibiotics and sent home.
After two weeks, I went back and asked for a mono test. My Epstein Barr level was way up, but the mono test showed that I had mono at some time before (I never knew it) and it was gone. The nurse practitioner said that it meant that because of the EB level, the mono probably recurred due to stress. I was given steroids for the swollen glands and sent home.
It's now a month since the blood test. I've had a few good days but now it's back, just like before. My eyelids look sleepy, my neck feels tight, I feel kinda sinus-y and I get those creepy head rushes at the base of my neck when I get up. Is postural thing a high blood pressure spike, or low blood pressure drop? It feels horrible and I'm so tired I'm concerned about my job. I'm an editor and I'm getting sloppy with my editing. Not good for the publishing biz.
WHAT CAN I TAKE? Is there a cure for this?
I should also tell you that my thyroid was on the high side of normal (not unusual after a hysterectomy, I'm told), and my hormone and cbc levels are all great. I had extensive blood work and other tests--colonoscopy, etc.-- before surgery and I seem to be a picture of health. Ha!
I feel like crap. Somebody help me out here.
Susan
In Reply to: Mono? after hysterectomy posted by Susan [2436.1399] on April 08, 2005 at 12:10:51:
Hi Susan,
You can not be sure that you didn't pick up some bug during the
surgery.
Enterococcus (Beta Strep Group D) or (Vancomycin Resistant Enterococcus) can be contracted at a hospital and long term or intravenous antibiotics will often be the solution If you are still in the hospital. Once you are out, they are less
likely to treat so agressively and will often deny a surgical exposure.
I did hear yesterday that Mono remains in the saliva
forup to 6 months after infection, so now we know why
it is so hard to contain. What young person goes for
6 months without a kiss?
How is all your bloodwork? Sed Rate, C reactive Protein Antinuclear Antibody, White Blood Cell Count, Rheumatoid Factor can be elevated and that would be reason to get on a long term antibiotic.. not just a week or two.
If you had recent bloodwork, it would be a good thing to repeat these tests to see what differences appear.
If you suspect some seasonal allergy at this time of the year, it would be worth an antihistamine to help your breathing and tiredness.
Good luck
Ron
In Reply to: Mono? after hysterectomy posted by Susan [2436.1399] on April 08, 2005 at 12:10:51:
Hi Susan. I had a total hysterectomy in 1991 and shortly after developed CFS. My EBV titers were way up - I had had mono some years before that.
Big question is - did they put you on HRT? You realize that having taken your ovaries out, you are no longer producing your own hormones. This is like going through instant menopause. Did your doctor talk to you about these things. You are bound to feel exhausted just because of that. Also many of the other symptoms you describe can be post-menopausal.
I have often heard that for some people surgery can be a mojot stressor to the entire body and that it ccan take some time to recover.
Why were you given antibiotics? For what? Did you have an infection? I suggest you find another, holistic doctor and a gyno who specializes in menopausal and post-menopausal women and see if you do any better with them.
I'm telling you all this because all this happened to me and the regular docs were completely useless.
Best to you
Naya
In Reply to: Re: Mono? after hysterectomy posted by Naya [3095.14] on April 08, 2005 at 16:25:16:
I meant "major" stressor. God knows what I was thinking when I typed "mojot"! What is that?! Sorry!
In Reply to: Mono? after hysterectomy posted by Susan [2436.1399] on April 08, 2005 at 12:10:51:
Hi, Susan.
I agree with your nurse practitioner. The stress of the hysterectomy was enough to push your homeodynamic balance over the edge. If you had not had the surgery this would have happened within a few years anyhow.
Serious wellness is your best option and it has many positive side effects. See the home page about "health" and see the wellness archives. Happygal calls this the 3LS.
Let us know how you do.
Walt
In Reply to: Re: Mono? after hysterectomy posted by Naya - correction! [3095.14] on April 08, 2005 at 16:27:23:
Hi Naya--being an editor, I knew you ment "major"--typing near letters h
appens all the tine. See what I mean?!
As for the antibiotics, I meant antihistamines!! (See, we all make boo b
oos--my excuse is having mono and being too tired to think clearly! Ha!) I
was given Allegra, thinking I had a drainage problem which was making m
y glands swell. When I realized it wasn't helping, I looked into my s
ymptoms myself and came up with the mono idea. We have to be p
roactive with our own health!! : )
And yes, I'm on a Climara patch and my hormone levels were perfect w
hen the bloodwork was done. Thanks!
Susan
In Reply to: Re: Mono? after hysterectomy posted by Susan [642.1721] on April 09, 2005 at 15:28:14:
Hi again, Susan. Has anyone suggested that you may have CFS?
I was mortified by my weird typo because, like you, I used to be an editor and a foreign language professor. I'm a maniac about my mistakes! Loved your intentional typos. :)
Hope you rally soon!
Naya
In Reply to: Re: Mono? after hysterectomy (A lesson in wellness.) Archive. posted by Walt Stoll [93.1889] on April 09, 2005 at 07:24:49:
Thanks for your reply. I went to our local WHOLE FOODS store and stocked up on lots of whole veggies and a ton of Vitamin A, C, a B complex, Olive Leaf, and a lot of other things recommended in the Encyclopedia for Natural Healing (forgot the author's name...).
I have a couple of questions. One of my major discomforts with this mono thing is the sense of pressure in my neck. As I said before, I get rushes of pressure when I stand up after sitting awhile. It feels like my entire face is going to pop. Is this because of the glands?
Also, the 3LS says aerobics is essential. Can I really do that with mono? How far should one go? And how do I know whether my spleen is enlarged?
Thanks, Doc.
Susan
In Reply to: Re: Mono? after hysterectomy (A lesson in wellness.) Archive. posted by Susan [2436.1399] on April 13, 2005 at 14:21:11:
FYI--The book I referred to is actually the Prescription for Nutritional Healing, by James and Phyllis Balch.
In Reply to: Re: Mono? after hysterectomy (A lesson in wellness.) Archive. posted by Susan [2436.1399] on April 13, 2005 at 14:21:11:
Susan,
Your doc can tell you if your spleen is enlarged. Remember that mono is a self-limited condition that usually lasts about 6 weeks.
Your neck pressure and the symptoms in your head will go away as the nodes reduce in size.
Let us know how you do.
Walt
In Reply to: Re: Mono? after hysterectomy (A lesson in wellness.) Archive. posted by Susan [2436.1399] on April 13, 2005 at 14:41:25:
Good info!
Walt
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